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Hello Joan:

God answers blessings! I have been trying to do research for alternative

medicine for my son who was just diagnosed with epilepsy in July of 2001. He

is 5 years old.

If you can help me by telling me about some of the findings you have come

up with and maybe some good books to read, I'd be greatly appreciative. You

can email me privately if you like or on the group.

Thank You,

Kareemah

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Hi Joan

Here is a site where you can learn about coconut oil and purchase a

very high quality oil.

http://www.coconut-info.com/

As for the bone broth this should be very easy to include in her

ketogenic diet without any problem. You can go to www.eatwild.com

and they will list farms in you relative vacinity. You may have to

drive a couple hours to get the bones from a quality farmer or if you

explain your situation they may even be willing to ship them to you.

Making the extra effort would certainly be of value to both of you.

I have some other thoughts in regard to your situation however I

would need more info in order to make further comment on specifics

regarding the amino acids relative to her history, diet, etc...

All My Best,

Dr. Marasco,BS,DC

Cincinnati, Oh

> Hello-I am Joan mom to Jen on the Ketogenic diet for epilepsy. I

> found you all researching coconut oil. My first question would be

> can

> someone tell me all the available brands and where to find them? I

> have been using some from the local indian store(looks too old) and

> spectrum for hair which i just found out is refined(is that OK?)

and

> is more expensive than the indian brand. Both are white and

> tasteless. I also use the thai milk which is good but not enough

fat

> for the keto diet to use alone. I did check your archives and

looked

> at he websites so I am interested in what I may be able to find

> locally. I don't think I want to spend $25 on a quart when I can

get

> the indian brand for $6. We use tons of it. I tried spectrum

palm

> oil which was much less expensive but it smoked like crazy when I

> fried with it so that is not an option.

>

> My other question is about the amino acids. We are using taurine &

> magnesium like a drug for seizure control as are another people I

> know

> from the internet. I tried to remove them & Jen had a withdrawl

> seizure. What natural alternatives do I have? I don't live near

any

> farms for bone broth. It would also be difficult to calculate into

> the keto diet. Does some health oriented company make it canned?

> Wouldn't it be dangerous with mad cow disease if the bones were

> commercial?

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This is the only coconut oil that I am aware of that does not heat to the

point of beginning to denature the oil somewhat. Even the low heat oil

from Tropical Traditions, while of a better quality than most anyone

else, heats their oil to a temperature of about 118 degrees. It is at

www.coconutoil-online.com.

-----Original Message-----

From: Gale Weisenbarger [mailto:gmw@...]

Sent: Tuesday, February 12, 2002 7:59 PM

Subject: Coconut Oil

I guess the term " heat " is relative. We bring the temperature of the oil

slowly to about 85°F in a temperature controlled chamber so that it can

be poured and repackaged. It actually starts to liquefy at about 76°F

but needs to be a little warmer than that to pour freely. The oil is

considered to be processed without heat since it is not exposed to

temperatures higher than normal ambient temperatures, depending on the

time of year. Coconut oil which is refined is subjected to temperatures

of several hundred degrees and coconut oil produced by the fermentation

method is also generally brought to a temperature around the boiling

point of water so as to drive off excess moisture which could lead to

rancidity.

If you provide your mailing address I would be happy to send you a

sample.

Thanks,

Gale

On Sun, 17 Feb 2002 14:20:03 -0000 " jscooptions " <jscooptions@...>

writes:

Hello-I am Joan mom to Jen on the Ketogenic diet for epilepsy. I

found you all researching coconut oil. My first question would be

can

someone tell me all the available brands and where to find them? I

have been using some from the local indian store(looks too old) and

spectrum for hair which i just found out is refined(is that OK?) and

is more expensive than the indian brand. Both are white and

tasteless. I also use the thai milk which is good but not enough fat

for the keto diet to use alone. I did check your archives and looked

at he websites so I am interested in what I may be able to find

locally. I don't think I want to spend $25 on a quart when I can get

the indian brand for $6. We use tons of it. I tried spectrum palm

oil which was much less expensive but it smoked like crazy when I

fried with it so that is not an option.

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>This is the only coconut oil that I am aware of that does not heat to the

>point of beginning to denature the oil somewhat. Even the low heat oil

>from Tropical Traditions, while of a better quality than most anyone

>else, heats their oil to a temperature of about 118 degrees. It is at

>www.coconutoil-online.com.

What do you mean, exactly? My understanding of the term is that, as far as

food goes, denaturing refers strictly to proteins. Isn't coconut oil

supposed to be stable and unchanged up past 200 degrees? I did order a

sample of the oil you recommend, but I have a hard time imagining a coconut

oil being better than Tropical Traditions' superb product.

-

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200 degrees? Not that I am aware of. Several coconut sites list what is

lost as the temperature rises. My understanding is that it doesn't become

harmful at the higher temperatures but it does lose some of it benefits

in the heating process.

And therapeutically speaking, we always had less than stellar experiences

with oil that was heated beyond body temperature. Like day old milk that

may not be an issue in maintaining health but it certainly was trying to

recover it. Yes Tropical Traditions has a great tasting and smelling oil

and the oil I mentioned I think is comparable but you may not agree.

Denature: to deprive something of its natural character, properties, etc.

(Random house). But yes you are right, biochemically speaking it normally

refers to protein.

On Mon, 18 Feb 2002 18:31:21 -0500 Idol <Idol@...>

writes:

>This is the only coconut oil that I am aware of that does not heat to

the

>point of beginning to denature the oil somewhat. Even the low heat oil

>from Tropical Traditions, while of a better quality than most anyone

>else, heats their oil to a temperature of about 118 degrees. It is at

>www.coconutoil-online.com.

What do you mean, exactly? My understanding of the term is that, as far

as

food goes, denaturing refers strictly to proteins. Isn't coconut oil

supposed to be stable and unchanged up past 200 degrees? I did order a

sample of the oil you recommend, but I have a hard time imagining a

coconut

oil being better than Tropical Traditions' superb product.

-

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>200 degrees? Not that I am aware of. Several coconut sites list what is

>lost as the temperature rises. My understanding is that it doesn't become

>harmful at the higher temperatures but it does lose some of it benefits

>in the heating process.

Could you point me to some references? I was unable to find anything.

Also, if coconut oil is used in cooking, is there any actual benefit to

using completely unheated oil, since it'll just be heated in the course of

cooking anyway? AFAIK, Bruce Fife and Enig are both on Tropical

Traditions' coconut mailing list and both endorse their oil. I guess I

could be wrong about the endorsement part, and certainly even if I'm right

there still could be a better oil, but I'd like to see why.

-

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Will dig up the references when I get a chance. And yes you are very

right that if you are going to use the oil to cook with then the

" unheated " aspect is not that important. But I use my oil mixed in shakes

and smoothies and on my body. On the rare blue moon when I pull out my

fry daddy and make me up some delicious french fries I use the local

organic brand that doesn't even SMELL like coconut.

It was Bruce Fife who introduced me to Tropical Traditions. Good stuff!

On Mon, 18 Feb 2002 19:28:13 -0500 Idol <Idol@...>

writes:

>200 degrees? Not that I am aware of. Several coconut sites list what is

>lost as the temperature rises. My understanding is that it doesn't

become

>harmful at the higher temperatures but it does lose some of it benefits

>in the heating process.

Could you point me to some references? I was unable to find anything.

Also, if coconut oil is used in cooking, is there any actual benefit to

using completely unheated oil, since it'll just be heated in the course

of

cooking anyway? AFAIK, Bruce Fife and Enig are both on Tropical

Traditions' coconut mailing list and both endorse their oil. I guess I

could be wrong about the endorsement part, and certainly even if I'm

right

there still could be a better oil, but I'd like to see why.

-

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>But I use my oil mixed in shakes

>and smoothies

Doesn't the oil solidify in shakes and smoothies? I've tried mixing

coconut oil into eggnogs and such, but I just get lumps of coconut butter.

-

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I melt mine on low heat and drizzle it in while the Vita-Mix is on and

seem to have no problem. Even when I have frozen fruit it is okay as long

as I blend the mixture before adding the oil. Same goes for butter (add

soft at room temp), which I blend in my shake before adding frozen fruit.

Everything comes out smooth and creamy, like a very nice yogurt.

On Mon, 18 Feb 2002 20:55:31 -0500 Idol <Idol@...>

writes:

>But I use my oil mixed in shakes

>and smoothies

Doesn't the oil solidify in shakes and smoothies? I've tried mixing

coconut oil into eggnogs and such, but I just get lumps of coconut

butter.

-

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  • 1 year later...

With only 3 rheumatologists in the state it sounds like Alaska but it could be another state. (I'm from Washington state but my youngest son is from Anchorage.)

Here's a link to a description of RF and ANA (and other blood work). http://rheumatoid.arthritis.freehosting.net/Lab%20Tests.html

I find a lot of general information on Arthritis Insight at http://arthritisinsight.com/ I also like their message board at http://www.arthritisinsight.com/cgi-bin/wsmbb/wsmbb.cgi?SB+KYWRJLLXVS/AKFCLKZQUN+config Good luck and God bless.

Harold Van Tuyl (Grandpavan1927)

----- Original Message -----

From: ddesigns_1999

Rheumatoid Arthritis

Sent: Thursday, September 11, 2003 3:05 PM

Subject: New with questions

My name is . I am a married 36 yo mom of 3 and I was diagnoisedin June of this year. I have my first appointment with aRheumatologist in October.(There are only 3 in our state.)I am currently taking Bextra, but have tried Vioxx and Celebrex.My question is what is the difference between ANA # and RF? My dr dida blood test in June and my ANA was 68 and last week it was 86. I have been trying to learn all I can about this disease, can anyonerecommend any good books to read or websites for more information.I have to say I have been blessed with a wonderful husband and kidswho have been such a huge help and support with all this.Thank you,

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, Jay Bishop from Soldotna is a regular poster to this site but he is temporarily on the North Slope as an EMT. When he gets back you might want to make contact with him. He has only seen a rheumatologist once and that was a couple of weeks ago. However, he has done a lot of studying about RA and his primary care physician works well with him. Good luck and God bless.

Harold Van Tuyl (Grandpavan)

----- Original Message -----

From: ddesigns_1999

Rheumatoid Arthritis

Sent: Friday, September 12, 2003 4:40 PM

Subject: Re: New with questions

Harold,Thank you for the information and the sites to go to. Yes, I live inAlaska about 40 miles outside of Anchorage.

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