Guest guest Posted November 19, 1999 Report Share Posted November 19, 1999 Dear Geri, I sent a rather lengthy letter to Bill earlier this evening. I hope he will respond. I get bored around here and I would rather write letters than cook or clean anyday. When you live alone, you can get away with that. This for Susie, My heart goes out to you and if I can help in any way please call on me. My ear is always open and if I can share anything that could be of help, I will gladly do that. Ginger AYH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 1999 Report Share Posted November 19, 1999 Hey, Guys, I get the daily digest. Which is the best way to do this? I hate when it comes with a text attachment to download. Would it be better to get all the mail or what? I would like several opinions, please. I am still just a novice when it comes to computers. Just started in July and had never touched one before. I have learned a lot, but have a lot more to learn. Thanks, Ginger AIH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 1999 Report Share Posted November 19, 1999 Ginger, I have tried recieving the posts both ways. Digest form seemed quicker, but I always felt like I hadn't recieved all the posts. I prefer the individual e-mail, because even though it takes forever to get through it all, I can reply to each letter as I read it, and I can get the attachments! Hugs, (PBC,AIH,PSC) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 1999 Report Share Posted November 19, 1999 Hi , I get my emails the same way. I enjoy reading all of the letters and takeing my time with them each day. I would feel left out otherwise. Gayle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2000 Report Share Posted September 19, 2000 Sue, I called the ARC of King county and got a copy of the August newsletter you were referring to in your previous email. It is the original one where they altered the names of the knights. I also went on line and in there September newsletter they wrote a retraction to the original article and gave people a phone number to call where they could receive the proper story. So, if you want a copy of the original newsletter I would be happy to send it to you. Just email me your address. Diane G. Mom to Adam, 8 and (DS) 4 (in one week) and baby numero 4 due Jan. 3rd Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2001 Report Share Posted February 20, 2001 Hello, I am looking to hire a therapist to work with my 5 year old son w/ Autism. We are into our third year of ABA, having started just after he turned three. We did one year Lovass approach and started the second year Verbal Behavior approach. We are located in Southwest Houston area. Please email if interested. Thank you, Janet Nunez Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2001 Report Share Posted March 13, 2001 HEY ALL!!!!! I am sorry that i do not respond more to some of the questions. I am very busy but here goes. about calendula, it infuses best into olive or jojoba oil. but i didn't really understand what the person who posted was saying about it. did you mean it is not good for skin eczema? i'm sorry i just didn't understand the wording. i make a diaper rash cream and a healing cream with calendula infused olive oil. they are both big sellers. someone asked about what relieves arthritis. i have arthritis in my thumb and talked to my herbalist and she told me to soak my hands in cat's claw tea. i have since formulated a lotion with cat's claw infused into the water and oil that i use on my hands about 5 times a day. i cannot believe what it has done for my dexterity. cat's claw actually rebuilds cartilage that is deteriorating from the arthritis. if you would like the recipe i use please email me privatly. i sell it as hand & joint cream . people rave about it. take care. sunny lizard head natural products 100% natural & vegan body care handcrafted in the san juan mtns. of colorado lizardhead.homestead.com _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2001 Report Share Posted March 14, 2001 Subject: Re: Digest Number 457 > HEY ALL!!!!! > I am sorry that i do not respond more to some of the questions. I am very > busy but here goes. > about calendula, it infuses best into olive or jojoba oil. I use only castor oil for infusion because castor delivers the medicinal properties better than any other oil and doesn't turn rancid as quickly as other oils. but i didn't > really understand what the person who posted was saying about it. did you > mean it is not good for skin eczema? calendula is excellent for eczema, one of the best! i'm sorry i just didn't understand the > wording. i make a diaper rash cream and a healing cream with calendula > infused olive oil. they are both big sellers. > someone asked about what relieves arthritis. i have arthritis in my thumb > and talked to my herbalist and she told me to soak my hands in cat's claw > tea. i have since formulated a lotion with cat's claw infused into the > water and oil that i use on my hands about 5 times a day. sounds like a good idea! i cannot believe > what it has done for my dexterity. cat's claw actually rebuilds cartilage > that is deteriorating from the arthritis. > if you would like the recipe i use please email me privatly. i sell it as > hand & joint cream . people rave about it. Lucinda Glenbrook Farms Herbs and Such Living Healthy! Living Well! http://www.glenbrookfarm.com/herbs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2001 Report Share Posted March 14, 2001 Hi Sunny Does the cats claw need to be fresh or can you use dried. I'm in Australia and am dreading the coming winter as I have arthritis in both knees and the base of my spine, of course the cold weather doesnt help them. Some days it takes a long time to get moving. Laraine Re: Digest Number 457 someone asked about what relieves arthritis. i have arthritis in my thumb and talked to my herbalist and she told me to soak my hands in cat's claw tea. i have since formulated a lotion with cat's claw infused into the water and oil that i use on my hands about 5 times a day. i cannot believe what it has done for my dexterity. cat's claw actually rebuilds cartilage that is deteriorating from the arthritis. if you would like the recipe i use please email me privatly. i sell it as hand & joint cream . sunny lizard head natural products 100% natural & vegan body care handcrafted in the san juan mtns. of colorado lizardhead.homestead.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2001 Report Share Posted April 30, 2001 In a message dated 4/30/2001 8:17:44 AM Central Daylight Time, writes: > A friend recently asked me if I knew of a company/store that provided > clothing for people with special needs. Her son has DS and needs some > Jill, I have heard of such a company, unfortunately, I can't remember the name. Have you tried doing a search? I will poke around and see what I can find. Beth, Mommy to Austin (ds) and Dakota 4 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2001 Report Share Posted April 30, 2001 HI Try this web site, I found it the other night when I was looking for some AT devices Kathy mom to Sara 9..........scroll down, this site lists a bunch of stuff lol <A HREF= " http://www.makoa.org/ " >disABILITY Information and Resources</A> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2001 Report Share Posted October 18, 2001 Psychosocial support on individual and small group basis. Houston wrote: > Gill what a brilliant idea - why dont we collectively think about 10 key > things for health visitors, we have a different knowledge base see the world > in a different frame and should be shouting about the difference and letting > Trusts and governmnet know about the differences and not were we can be sort > of somehow perhaps the same. Margaret is quite right when she mentions child > protection perhaps the first key difference is the child protection role. > What do others think??? > > ps the article on empowerment in practice and the Field of Words assessment > has been accepted by the Journal of Clinical Nursing. > > >From: Gill Newell <GC.Newell@...> > >Reply- > > " ' ' " < > > >Subject: RE: Digest Number 457 > >Date: Thu, 15 Nov 2001 15:28:58 -0000 > > > >Margaret > > > >We made fairly simple changes in order to go corporate, all of which were > >suggested by and Jeanette. On the admin side we merged all the files > >to give us one caseload, notified child health so that computer returns and > >appointments for checks etc wouldn't get messed up, and merged the birth > >books into one. We wrote to everyone we could think of to ensure that what > >we were going to do was as public as we could make it. > > > >As far as our clients were concerned, we designed a leaflet outlining the > >HV service available, and we give this out to all new contacts. Some have > >expressed surprise " I normally see x " but we haven't had any complaints, > >and we have had some who have been surprised and pleased by the changes! > > > >We made changes to our practice - nothing revolutionary, though. Our core > >service now has fewer visits to new mothers, although we have extended our > >clinic times to accomodate those clients who need to see a HV. We now do > >the primary visit, a possible follow up (eg primips, sections) and see > >everyone at home at 6 weeks, when we do the EPDS and 's field of words > >family health assessment. We then agree a care plan. If all seems fine, > >and the client is happy, we offer contacts at 7 months (HVDT,EPDS) 2 years > >(dev ass) and, if there is parental or HV concern, a further check at 3 > >1/2, although all children at this age are screened by parents completing a > >questionnaire and they can request a contact if they want. > > > >The hardest thing has been letting go of " our " families, especially as some > >have been in contact with the same HV for 10 years! The benefits have been > >tremendous, as I 've indicated. > >[] > >On the other issue I raised - eradication of HV - I totally accept what you > >say, but I would prefer to talk about 10 key roles for HVs and have these > >as separate and distinct from nursing. These would obviously include child > >protection and supporting new parents. Some of the 10 things for nurses > >would be pretty hard to adapt short of a complete re-write anyway! I know > >I risk sounding pedantic but it's in the detail like this that health > >visiting is gradually being disregarded so I feel that if we bother to > >fight over the details it will help the bigger cause. > >[] > >Gill > > Digest Number 457 > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2001 Report Share Posted November 15, 2001 Margaret We made fairly simple changes in order to go corporate, all of which were suggested by and Jeanette. On the admin side we merged all the files to give us one caseload, notified child health so that computer returns and appointments for checks etc wouldn't get messed up, and merged the birth books into one. We wrote to everyone we could think of to ensure that what we were going to do was as public as we could make it. As far as our clients were concerned, we designed a leaflet outlining the HV service available, and we give this out to all new contacts. Some have expressed surprise " I normally see x " but we haven't had any complaints, and we have had some who have been surprised and pleased by the changes! We made changes to our practice - nothing revolutionary, though. Our core service now has fewer visits to new mothers, although we have extended our clinic times to accomodate those clients who need to see a HV. We now do the primary visit, a possible follow up (eg primips, sections) and see everyone at home at 6 weeks, when we do the EPDS and 's field of words family health assessment. We then agree a care plan. If all seems fine, and the client is happy, we offer contacts at 7 months (HVDT,EPDS) 2 years (dev ass) and, if there is parental or HV concern, a further check at 3 1/2, although all children at this age are screened by parents completing a questionnaire and they can request a contact if they want. The hardest thing has been letting go of " our " families, especially as some have been in contact with the same HV for 10 years! The benefits have been tremendous, as I 've indicated. [] On the other issue I raised - eradication of HV - I totally accept what you say, but I would prefer to talk about 10 key roles for HVs and have these as separate and distinct from nursing. These would obviously include child protection and supporting new parents. Some of the 10 things for nurses would be pretty hard to adapt short of a complete re-write anyway! I know I risk sounding pedantic but it's in the detail like this that health visiting is gradually being disregarded so I feel that if we bother to fight over the details it will help the bigger cause. [] Gill Digest Number 457 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2001 Report Share Posted November 15, 2001 Thanks Gill I do agree about the ten key roles and you will have seen waht else I have said today. there is so much in health visitng that does not fit into nursing and it seems like there is more each day. The child protection issue is i thibk going to become major again as there are so maynasty Part 8s about. We need to think how we can promote this and really make a difference. Regards Margaret Digest Number 457 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2001 Report Share Posted November 16, 2001 Gill what a brilliant idea - why dont we collectively think about 10 key things for health visitors, we have a different knowledge base see the world in a different frame and should be shouting about the difference and letting Trusts and governmnet know about the differences and not were we can be sort of somehow perhaps the same. Margaret is quite right when she mentions child protection perhaps the first key difference is the child protection role. What do others think??? ps the article on empowerment in practice and the Field of Words assessment has been accepted by the Journal of Clinical Nursing. >From: Gill Newell <GC.Newell@...> >Reply- > " ' ' " < > >Subject: RE: Digest Number 457 >Date: Thu, 15 Nov 2001 15:28:58 -0000 > >Margaret > >We made fairly simple changes in order to go corporate, all of which were >suggested by and Jeanette. On the admin side we merged all the files >to give us one caseload, notified child health so that computer returns and >appointments for checks etc wouldn't get messed up, and merged the birth >books into one. We wrote to everyone we could think of to ensure that what >we were going to do was as public as we could make it. > >As far as our clients were concerned, we designed a leaflet outlining the >HV service available, and we give this out to all new contacts. Some have >expressed surprise " I normally see x " but we haven't had any complaints, >and we have had some who have been surprised and pleased by the changes! > >We made changes to our practice - nothing revolutionary, though. Our core >service now has fewer visits to new mothers, although we have extended our >clinic times to accomodate those clients who need to see a HV. We now do >the primary visit, a possible follow up (eg primips, sections) and see >everyone at home at 6 weeks, when we do the EPDS and 's field of words >family health assessment. We then agree a care plan. If all seems fine, >and the client is happy, we offer contacts at 7 months (HVDT,EPDS) 2 years >(dev ass) and, if there is parental or HV concern, a further check at 3 >1/2, although all children at this age are screened by parents completing a >questionnaire and they can request a contact if they want. > >The hardest thing has been letting go of " our " families, especially as some >have been in contact with the same HV for 10 years! The benefits have been >tremendous, as I 've indicated. >[] >On the other issue I raised - eradication of HV - I totally accept what you >say, but I would prefer to talk about 10 key roles for HVs and have these >as separate and distinct from nursing. These would obviously include child >protection and supporting new parents. Some of the 10 things for nurses >would be pretty hard to adapt short of a complete re-write anyway! I know >I risk sounding pedantic but it's in the detail like this that health >visiting is gradually being disregarded so I feel that if we bother to >fight over the details it will help the bigger cause. >[] >Gill > Digest Number 457 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2001 Report Share Posted November 16, 2001 Well done , we look forward to seeing it in print! Toity On Fri, 16 Nov 2001 11:07:21 +0000 Houston <annamhouston@...> wrote: > > Gill what a brilliant idea - why dont we collectively think about 10 key > things for health visitors, we have a different knowledge base see the world > in a different frame and should be shouting about the difference and letting > Trusts and governmnet know about the differences and not were we can be sort > of somehow perhaps the same. Margaret is quite right when she mentions child > protection perhaps the first key difference is the child protection role. > What do others think??? > > ps the article on empowerment in practice and the Field of Words assessment > has been accepted by the Journal of Clinical Nursing. > > >From: Gill Newell <GC.Newell@...> > >Reply- > > " ' ' " < > > >Subject: RE: Digest Number 457 > >Date: Thu, 15 Nov 2001 15:28:58 -0000 > > > >Margaret > > > >We made fairly simple changes in order to go corporate, all of which were > >suggested by and Jeanette. On the admin side we merged all the files > >to give us one caseload, notified child health so that computer returns and > >appointments for checks etc wouldn't get messed up, and merged the birth > >books into one. We wrote to everyone we could think of to ensure that what > >we were going to do was as public as we could make it. > > > >As far as our clients were concerned, we designed a leaflet outlining the > >HV service available, and we give this out to all new contacts. Some have > >expressed surprise " I normally see x " but we haven't had any complaints, > >and we have had some who have been surprised and pleased by the changes! > > > >We made changes to our practice - nothing revolutionary, though. Our core > >service now has fewer visits to new mothers, although we have extended our > >clinic times to accomodate those clients who need to see a HV. We now do > >the primary visit, a possible follow up (eg primips, sections) and see > >everyone at home at 6 weeks, when we do the EPDS and 's field of words > >family health assessment. We then agree a care plan. If all seems fine, > >and the client is happy, we offer contacts at 7 months (HVDT,EPDS) 2 years > >(dev ass) and, if there is parental or HV concern, a further check at 3 > >1/2, although all children at this age are screened by parents completing a > >questionnaire and they can request a contact if they want. > > > >The hardest thing has been letting go of " our " families, especially as some > >have been in contact with the same HV for 10 years! The benefits have been > >tremendous, as I 've indicated. > >[] > >On the other issue I raised - eradication of HV - I totally accept what you > >say, but I would prefer to talk about 10 key roles for HVs and have these > >as separate and distinct from nursing. These would obviously include child > >protection and supporting new parents. Some of the 10 things for nurses > >would be pretty hard to adapt short of a complete re-write anyway! I know > >I risk sounding pedantic but it's in the detail like this that health > >visiting is gradually being disregarded so I feel that if we bother to > >fight over the details it will help the bigger cause. > >[] > >Gill > > Digest Number 457 > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2001 Report Share Posted November 17, 2001 Child Protection implementing the 'Paramountcy' principle Psychosocial support on individual and small group basis. >From: ruthngrant <ruthngrant@...> >Reply- > >Subject: Re: Digest Number 457 >Date: Thu, 18 Oct 2001 09:11:44 +0100 > >Psychosocial support on individual and small group basis. > > Houston wrote: > > > Gill what a brilliant idea - why dont we collectively think about 10 key > > things for health visitors, we have a different knowledge base see the >world > > in a different frame and should be shouting about the difference and >letting > > Trusts and governmnet know about the differences and not were we can be >sort > > of somehow perhaps the same. Margaret is quite right when she mentions >child > > protection perhaps the first key difference is the child protection >role. > > What do others think??? > > > > ps the article on empowerment in practice and the Field of Words >assessment > > has been accepted by the Journal of Clinical Nursing. > > > > >From: Gill Newell <GC.Newell@...> > > >Reply- > > > " ' ' " < > > > >Subject: RE: Digest Number 457 > > >Date: Thu, 15 Nov 2001 15:28:58 -0000 > > > > > >Margaret > > > > > >We made fairly simple changes in order to go corporate, all of which >were > > >suggested by and Jeanette. On the admin side we merged all the >files > > >to give us one caseload, notified child health so that computer returns >and > > >appointments for checks etc wouldn't get messed up, and merged the >birth > > >books into one. We wrote to everyone we could think of to ensure that >what > > >we were going to do was as public as we could make it. > > > > > >As far as our clients were concerned, we designed a leaflet outlining >the > > >HV service available, and we give this out to all new contacts. Some >have > > >expressed surprise " I normally see x " but we haven't had any >complaints, > > >and we have had some who have been surprised and pleased by the >changes! > > > > > >We made changes to our practice - nothing revolutionary, though. Our >core > > >service now has fewer visits to new mothers, although we have extended >our > > >clinic times to accomodate those clients who need to see a HV. We now >do > > >the primary visit, a possible follow up (eg primips, sections) and see > > >everyone at home at 6 weeks, when we do the EPDS and 's field of >words > > >family health assessment. We then agree a care plan. If all seems >fine, > > >and the client is happy, we offer contacts at 7 months (HVDT,EPDS) 2 >years > > >(dev ass) and, if there is parental or HV concern, a further check at 3 > > >1/2, although all children at this age are screened by parents >completing a > > >questionnaire and they can request a contact if they want. > > > > > >The hardest thing has been letting go of " our " families, especially as >some > > >have been in contact with the same HV for 10 years! The benefits have >been > > >tremendous, as I 've indicated. > > >[] > > >On the other issue I raised - eradication of HV - I totally accept what >you > > >say, but I would prefer to talk about 10 key roles for HVs and have >these > > >as separate and distinct from nursing. These would obviously include >child > > >protection and supporting new parents. Some of the 10 things for nurses > > >would be pretty hard to adapt short of a complete re-write anyway! I >know > > >I risk sounding pedantic but it's in the detail like this that health > > >visiting is gradually being disregarded so I feel that if we bother to > > >fight over the details it will help the bigger cause. > > >[] > > >Gill > > > Digest Number 457 > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2002 Report Share Posted January 25, 2002 I just jumped out of my seat when I read about the shingles, my husband Arun and I were barely married 3 days when he had shingles in his T2 nerve, from left palm to shoulder, we were in India then and chickenpox is extremely common there. This makes me winder if A is progressive, i hope to god this is not! Anusha --- achalasia wrote: > There are 6 messages in this issue. > > Topics in this digest: > > 1. Re: Thoracotomy > From: " jc_elder " <jc_elder@...> > 2. Shingles/Chicken Pox > From: " JC Elder " <jc_elder@...> > 3. (unknown) > From: " teresa_uk1 " <ladiloulou@...> > 4. Re: Re: Thoracotomy > From: lindwood@... > 5. Re: (unknown) > From: cmjfriary@... > 6. Re: Saying hi, and telling everyone thanks > From: " pnmhideaway " <nell341@...> > > > ________________________________________________________________________ > ________________________________________________________________________ > > Message: 1 > Date: Fri, 25 Jan 2002 06:27:52 -0000 > From: " jc_elder " <jc_elder@...> > Subject: Re: Thoracotomy > > Connie, > I have had 2 Thoracotomies. The last was September > of 2000. I am > glad you are doing well. One thing though, they > wanted me eating > solids as soon as I could. In the hospital they > gave me full meals. > When I got home I went to soups for some time > because I felt it was > easier. The other thing for me ( I probably should > not say this BUT) > was that the incision abcessed (sp) and came open. > That is just more > fun then anyone needs after all that surgery. > > dear, a Thoracotomy is a myotomy only they > open your chest. I > just wish they would install a zipper for me.....LOL > > JC > > > > === message truncated === __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2002 Report Share Posted February 21, 2002 Dennis said: What's good about kefir? Please don't refer me to kefir making message board. To hear those people " everything " is kefir. Anyway just wandering what is in kefir that's better than yogurt or comparable. ------------------- Besides what everyone else said, kefir has right turning lactic acid (natural and beneficial to our intestines), yogurt has left turning lactic acid (not natural to our intestinal tract and in too large quantities is not good for us) which might explain why people get more benefits from kefir over yogurt. I got this from a book by Klaus Kauffman called Kefir Rediscovered. He also says that because of the left turning lactic acid in yogurt, adults should limit their yogurt consumption to one quart per day. There is no limit to the amount of kefir you can take. I make all my own kefir and probably consume a pint/day. Once in a while I get hungry for yogurt so I buy Stonyfield brand. I like the way the cream rises. Yum! The reason the people on the kefir making message board think everything is kefir is because a lot of them have been on both sides of the fence, me included. Once you all get your kefir grains and see them grow!, and realize they are going to last forever, and that you'll be able to share some with all your friends, you'll see how much fun it is, not to mention all the health benefits. How do you like that for a run-on sentence? Cheers, Marilyn ===== " When our food refuse is discarded as waste, the natural human nutrient cycle is broken, creating problems such as pollution, loss of soil fertility, and abuse of our water resources. " Learn how to safely compost human manure. http://www.weblife.org/humanure/default.html __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2002 Report Share Posted February 21, 2002 >yogurt has left turning lactic acid (not >natural to our intestinal tract and in too large >quantities is not good for us) Hmm, are you sure about that? I've read that yoghurt cultures generate the healthy kind of lactic acid -- and they do have some bacteria in common with kefir. - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2003 Report Share Posted September 7, 2003 Has anyone tried the 'Air Press Massager' boots that are being widely advertised on infomercials lately? If so, has anyone found them to be effective in providing any relief from RA-related swelling and stiffness in the legs? I know they're not designed to be a therapy for any specific medical conditions, but I thought they might provide some relief. Please let me know if you or anyone you know has any personal experience with this product. ----- Original Message ----- From: Rheumatoid Arthritis Rheumatoid Arthritis Sent: Thursday, September 04, 2003 7:44 PM Subject: Digest Number 457 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2003 Report Share Posted October 18, 2003 After reading all of your posts for about a month, I am inclined to maybe consider corrective surgery of my spine. I have a straight spine from the neck down and flat back. No curvature where there should be some. My lower back tilts foreword but I don't know how many degrees. I have had two cervical neuro surgeries to make space for my nerves. But my neck vertebrae are continuing to expand due to growing calcium deposits. The surgery was done by an excellent neuerosugvion that did all of the work. He is part time VA employee. My two lower lumbar fusion's were done by unsupervised VIA residents. They butchered me. I do have a terrible appearance now and its getting worse. I cannot seem to hold my back up or my head for very long. I am giving into it due to the pain and fatigue. It has come upon me in the last four ears with each year getting worse. My fusion's were done in 1991 and 1993. I so want to find a specialist that is trusted by the group to give me an honest diagnosis of my flat back and my arachnoiditis. I hope to find one in California. If not I will go east. But being unable to be away long would be difficult for me now. Thanks again. Jim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2003 Report Share Posted October 18, 2003 Jim, there are quite a few possible (and a few very experienced) revision surgeons in CA. Yes, I know it's a big state, but there shouldn't be a reason to travel clear across the country. Cheryl has put together a nice list which is in the web site under " files " . http://f2.grp.fs.com/v1/kHGRPx4bhfctOVsTb00BWqTwVTMGi0zXJfiKhZByIu64Kwa0W6L\ BsafsSFiqGbb6O-jatoRhuO2cjh-hK_Fef0QYd9u9DAHRpySmB6U/Finding%20a%20Physician/Rev\ ision%20Surgeon%20List%2010-17-03.htm I wish you the best in finding someone who can help you. Sharon Re: Digest Number 457 After reading all of your posts for about a month, I am inclined to maybe consider corrective surgery of my spine. I have a straight spine from the neck down and flat back. No curvature where there should be some. My lower back tilts foreword but I don't know how many degrees. I have had two cervical neuro surgeries to make space for my nerves. But my neck vertebrae are continuing to expand due to growing calcium deposits. The surgery was done by an excellent neuerosugvion that did all of the work. He is part time VA employee. My two lower lumbar fusion's were done by unsupervised VIA residents. They butchered me. I do have a terrible appearance now and its getting worse. I cannot seem to hold my back up or my head for very long. I am giving into it due to the pain and fatigue. It has come upon me in the last four ears with each year getting worse. My fusion's were done in 1991 and 1993. I so want to find a specialist that is trusted by the group to give me an honest diagnosis of my flat back and my arachnoiditis. I hope to find one in California. If not I will go east. But being unable to be away long would be difficult for me now. Thanks again. Jim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2003 Report Share Posted October 18, 2003 Jim, I am amazed to read this letter from you! You actually had ME thinking just about the opposite, that I should think more seriously about NOT having more surgery after hearing about your own experience! No doubt you have read up on the California people who do this surgery, but I wanted to remind you once more -- along with everyone else -- that Cheryl has pioneered some promising surgeon-review resources here at the Feisty site. I hope that you and others will contribute your own data for the benefit of others. I do not recall offhand where in California you might be thinking of going for surgery, so the following may not be relevant but: Several of us do NOT think too kindly of Dr. Swank in Whittier. The UCSF team (at least until recently under " grand old man " Bradford, MD, who may or may not be retiring soon?) generally gets high marks from this group, though. We have had favorable experiences with San Francisco surgeons Berven and Hu in particular. I'm sure I don't need to plead with you to get second, third, and more opinions as needed before you head to the O.R. I believe I consulted a total of six(6) spinal specialists before my last revision procedure. In my experience, those who are not geographically convenient are glad to look at x-rays and give you at least a general idea on the phone as to whether they would recommend surgery and if so, what their specific surgical approach might be. I myself am in Chicago. I got long-distance opinions from LaGrone, Boachie, and Rand before eventually traveling to Boston and having the revision with Rand. Good luck! We will be here for you as you continue with this difficult decision-making process. Re: Digest Number 457 After reading all of your posts for about a month, I am inclined to maybe consider corrective surgery of my spine. I have a straight spine from the neck down and flat back. No curvature where there should be some. My lower back tilts foreword but I don't know how many degrees. I have had two cervical neuro surgeries to make space for my nerves. But my neck vertebrae are continuing to expand due to growing calcium deposits. The surgery was done by an excellent neuerosugvion that did all of the work. He is part time VA employee. My two lower lumbar fusion's were done by unsupervised VIA residents. They butchered me. I do have a terrible appearance now and its getting worse. I cannot seem to hold my back up or my head for very long. I am giving into it due to the pain and fatigue. It has come upon me in the last four ears with each year getting worse. My fusion's were done in 1991 and 1993. I so want to find a specialist that is trusted by the group to give me an honest diagnosis of my flat back and my arachnoiditis. I hope to find one in California. If not I will go east. But being unable to be away long would be difficult for me now. Thanks again. Jim Quote Link to comment Share on other sites More sharing options...
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