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Re: Digest Number 457

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Dear Geri,

I sent a rather lengthy letter to Bill earlier this evening. I hope he will

respond. I get bored around here and I would rather write letters than cook

or clean anyday. When you live alone, you can get away with that.

This for Susie, My heart goes out to you and if I can help in any way please

call on me. My ear is always open and if I can share anything that could be

of help, I will gladly do that.

Ginger AYH

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Hey, Guys,

I get the daily digest. Which is the best way to do this? I hate when it

comes with a text attachment to download. Would it be better to get all the

mail or what? I would like several opinions, please. I am still just a novice

when it comes to computers. Just started in July and had never touched one

before. I have learned a lot, but have a lot more to learn.

Thanks, Ginger AIH

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Ginger,

I have tried recieving the posts both ways. Digest form seemed quicker, but

I always felt like I hadn't recieved all the posts. I prefer the individual

e-mail, because even though it takes forever to get through it all, I can

reply to each letter as I read it, and I can get the attachments!

Hugs,

(PBC,AIH,PSC)

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  • 9 months later...

Sue,

I called the ARC of King county and got a copy of the August newsletter you were

referring to in your previous email. It is the original one where they altered

the names of the knights. I also went on line and in there September newsletter

they wrote a retraction to the original article and gave people a phone number

to call where they could receive the proper story. So, if you want a copy of the

original newsletter I would be happy to send it to you. Just email me your

address.

Diane G.

Mom to Adam, 8 and (DS) 4 (in one week) and baby numero 4 due Jan.

3rd

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  • 5 months later...

Hello,

I am looking to hire a therapist to work with my 5 year old son w/ Autism.

We are into our third year of ABA, having started just after he turned three.

We did one year Lovass approach and started the second year Verbal Behavior

approach. We are located in Southwest Houston area. Please email if

interested.

Thank you,

Janet Nunez

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  • 3 weeks later...
Guest guest

HEY ALL!!!!!

I am sorry that i do not respond more to some of the questions. I am very

busy but here goes.

about calendula, it infuses best into olive or jojoba oil. but i didn't

really understand what the person who posted was saying about it. did you

mean it is not good for skin eczema? i'm sorry i just didn't understand the

wording. i make a diaper rash cream and a healing cream with calendula

infused olive oil. they are both big sellers.

someone asked about what relieves arthritis. i have arthritis in my thumb

and talked to my herbalist and she told me to soak my hands in cat's claw

tea. i have since formulated a lotion with cat's claw infused into the

water and oil that i use on my hands about 5 times a day. i cannot believe

what it has done for my dexterity. cat's claw actually rebuilds cartilage

that is deteriorating from the arthritis.

if you would like the recipe i use please email me privatly. i sell it as

hand & joint cream . people rave about it.

take care.

sunny

lizard head natural products

100% natural & vegan body care handcrafted in the san juan mtns. of colorado

lizardhead.homestead.com

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com

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Guest guest

Subject: Re: Digest Number 457

> HEY ALL!!!!!

> I am sorry that i do not respond more to some of the questions. I am very

> busy but here goes.

> about calendula, it infuses best into olive or jojoba oil.

I use only castor oil for infusion because castor delivers the medicinal

properties better than any other

oil and doesn't turn rancid as quickly as other oils.

but i didn't

> really understand what the person who posted was saying about it. did you

> mean it is not good for skin eczema?

calendula is excellent for eczema, one of the best!

i'm sorry i just didn't understand the

> wording. i make a diaper rash cream and a healing cream with calendula

> infused olive oil. they are both big sellers.

> someone asked about what relieves arthritis. i have arthritis in my thumb

> and talked to my herbalist and she told me to soak my hands in cat's claw

> tea. i have since formulated a lotion with cat's claw infused into the

> water and oil that i use on my hands about 5 times a day.

sounds like a good idea!

i cannot believe

> what it has done for my dexterity. cat's claw actually rebuilds cartilage

> that is deteriorating from the arthritis.

> if you would like the recipe i use please email me privatly. i sell it as

> hand & joint cream . people rave about it.

Lucinda

Glenbrook Farms Herbs and Such

Living Healthy! Living Well!

http://www.glenbrookfarm.com/herbs

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Guest guest

Hi Sunny

Does the cats claw need to be fresh or can you use dried. I'm in Australia

and am dreading the coming winter as I have arthritis in both knees and the

base of my spine, of course the cold weather doesnt help them. Some days it

takes a long time to get moving.

Laraine

Re: Digest Number 457

someone asked about what relieves arthritis. i have arthritis in my thumb

and talked to my herbalist and she told me to soak my hands in cat's claw

tea. i have since formulated a lotion with cat's claw infused into the

water and oil that i use on my hands about 5 times a day. i cannot believe

what it has done for my dexterity. cat's claw actually rebuilds cartilage

that is deteriorating from the arthritis.

if you would like the recipe i use please email me privatly. i sell it as

hand & joint cream .

sunny

lizard head natural products

100% natural & vegan body care handcrafted in the san juan mtns. of colorado

lizardhead.homestead.com

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  • 1 month later...
Guest guest

In a message dated 4/30/2001 8:17:44 AM Central Daylight Time,

writes:

> A friend recently asked me if I knew of a company/store that provided

> clothing for people with special needs. Her son has DS and needs some

>

Jill, I have heard of such a company, unfortunately, I can't remember the

name. Have you tried doing a search? I will poke around and see what I can

find.

Beth, Mommy to Austin (ds) and Dakota 4

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  • 5 months later...

Psychosocial support on individual and small group basis.

Houston wrote:

> Gill what a brilliant idea - why dont we collectively think about 10 key

> things for health visitors, we have a different knowledge base see the world

> in a different frame and should be shouting about the difference and letting

> Trusts and governmnet know about the differences and not were we can be sort

> of somehow perhaps the same. Margaret is quite right when she mentions child

> protection perhaps the first key difference is the child protection role.

> What do others think???

>

> ps the article on empowerment in practice and the Field of Words assessment

> has been accepted by the Journal of Clinical Nursing.

>

> >From: Gill Newell <GC.Newell@...>

> >Reply-

> > " ' ' " < >

> >Subject: RE: Digest Number 457

> >Date: Thu, 15 Nov 2001 15:28:58 -0000

> >

> >Margaret

> >

> >We made fairly simple changes in order to go corporate, all of which were

> >suggested by and Jeanette. On the admin side we merged all the files

> >to give us one caseload, notified child health so that computer returns and

> >appointments for checks etc wouldn't get messed up, and merged the birth

> >books into one. We wrote to everyone we could think of to ensure that what

> >we were going to do was as public as we could make it.

> >

> >As far as our clients were concerned, we designed a leaflet outlining the

> >HV service available, and we give this out to all new contacts. Some have

> >expressed surprise " I normally see x " but we haven't had any complaints,

> >and we have had some who have been surprised and pleased by the changes!

> >

> >We made changes to our practice - nothing revolutionary, though. Our core

> >service now has fewer visits to new mothers, although we have extended our

> >clinic times to accomodate those clients who need to see a HV. We now do

> >the primary visit, a possible follow up (eg primips, sections) and see

> >everyone at home at 6 weeks, when we do the EPDS and 's field of words

> >family health assessment. We then agree a care plan. If all seems fine,

> >and the client is happy, we offer contacts at 7 months (HVDT,EPDS) 2 years

> >(dev ass) and, if there is parental or HV concern, a further check at 3

> >1/2, although all children at this age are screened by parents completing a

> >questionnaire and they can request a contact if they want.

> >

> >The hardest thing has been letting go of " our " families, especially as some

> >have been in contact with the same HV for 10 years! The benefits have been

> >tremendous, as I 've indicated.

> >[]

> >On the other issue I raised - eradication of HV - I totally accept what you

> >say, but I would prefer to talk about 10 key roles for HVs and have these

> >as separate and distinct from nursing. These would obviously include child

> >protection and supporting new parents. Some of the 10 things for nurses

> >would be pretty hard to adapt short of a complete re-write anyway! I know

> >I risk sounding pedantic but it's in the detail like this that health

> >visiting is gradually being disregarded so I feel that if we bother to

> >fight over the details it will help the bigger cause.

> >[]

> >Gill

> > Digest Number 457

> >

> >

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  • 4 weeks later...

Margaret

We made fairly simple changes in order to go corporate, all of which were

suggested by and Jeanette. On the admin side we merged all the files

to give us one caseload, notified child health so that computer returns and

appointments for checks etc wouldn't get messed up, and merged the birth

books into one. We wrote to everyone we could think of to ensure that what

we were going to do was as public as we could make it.

As far as our clients were concerned, we designed a leaflet outlining the

HV service available, and we give this out to all new contacts. Some have

expressed surprise " I normally see x " but we haven't had any complaints,

and we have had some who have been surprised and pleased by the changes!

We made changes to our practice - nothing revolutionary, though. Our core

service now has fewer visits to new mothers, although we have extended our

clinic times to accomodate those clients who need to see a HV. We now do

the primary visit, a possible follow up (eg primips, sections) and see

everyone at home at 6 weeks, when we do the EPDS and 's field of words

family health assessment. We then agree a care plan. If all seems fine,

and the client is happy, we offer contacts at 7 months (HVDT,EPDS) 2 years

(dev ass) and, if there is parental or HV concern, a further check at 3

1/2, although all children at this age are screened by parents completing a

questionnaire and they can request a contact if they want.

The hardest thing has been letting go of " our " families, especially as some

have been in contact with the same HV for 10 years! The benefits have been

tremendous, as I 've indicated.

[]

On the other issue I raised - eradication of HV - I totally accept what you

say, but I would prefer to talk about 10 key roles for HVs and have these

as separate and distinct from nursing. These would obviously include child

protection and supporting new parents. Some of the 10 things for nurses

would be pretty hard to adapt short of a complete re-write anyway! I know

I risk sounding pedantic but it's in the detail like this that health

visiting is gradually being disregarded so I feel that if we bother to

fight over the details it will help the bigger cause.

[]

Gill

Digest Number 457

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Thanks Gill

I do agree about the ten key roles and you will have seen waht else I have

said today.

there is so much in health visitng that does not fit into nursing and it

seems like there is more each day. The child protection issue is i thibk

going to become major again as there are so maynasty Part 8s about. We

need to think how we can promote this and really make a difference.

Regards

Margaret

Digest Number 457

>

>

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Gill what a brilliant idea - why dont we collectively think about 10 key

things for health visitors, we have a different knowledge base see the world

in a different frame and should be shouting about the difference and letting

Trusts and governmnet know about the differences and not were we can be sort

of somehow perhaps the same. Margaret is quite right when she mentions child

protection perhaps the first key difference is the child protection role.

What do others think???

ps the article on empowerment in practice and the Field of Words assessment

has been accepted by the Journal of Clinical Nursing.

>From: Gill Newell <GC.Newell@...>

>Reply-

> " ' ' " < >

>Subject: RE: Digest Number 457

>Date: Thu, 15 Nov 2001 15:28:58 -0000

>

>Margaret

>

>We made fairly simple changes in order to go corporate, all of which were

>suggested by and Jeanette. On the admin side we merged all the files

>to give us one caseload, notified child health so that computer returns and

>appointments for checks etc wouldn't get messed up, and merged the birth

>books into one. We wrote to everyone we could think of to ensure that what

>we were going to do was as public as we could make it.

>

>As far as our clients were concerned, we designed a leaflet outlining the

>HV service available, and we give this out to all new contacts. Some have

>expressed surprise " I normally see x " but we haven't had any complaints,

>and we have had some who have been surprised and pleased by the changes!

>

>We made changes to our practice - nothing revolutionary, though. Our core

>service now has fewer visits to new mothers, although we have extended our

>clinic times to accomodate those clients who need to see a HV. We now do

>the primary visit, a possible follow up (eg primips, sections) and see

>everyone at home at 6 weeks, when we do the EPDS and 's field of words

>family health assessment. We then agree a care plan. If all seems fine,

>and the client is happy, we offer contacts at 7 months (HVDT,EPDS) 2 years

>(dev ass) and, if there is parental or HV concern, a further check at 3

>1/2, although all children at this age are screened by parents completing a

>questionnaire and they can request a contact if they want.

>

>The hardest thing has been letting go of " our " families, especially as some

>have been in contact with the same HV for 10 years! The benefits have been

>tremendous, as I 've indicated.

>[]

>On the other issue I raised - eradication of HV - I totally accept what you

>say, but I would prefer to talk about 10 key roles for HVs and have these

>as separate and distinct from nursing. These would obviously include child

>protection and supporting new parents. Some of the 10 things for nurses

>would be pretty hard to adapt short of a complete re-write anyway! I know

>I risk sounding pedantic but it's in the detail like this that health

>visiting is gradually being disregarded so I feel that if we bother to

>fight over the details it will help the bigger cause.

>[]

>Gill

> Digest Number 457

>

>

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Well done , we look forward to seeing it in print!

Toity

On Fri, 16 Nov 2001 11:07:21

+0000 Houston <annamhouston@...> wrote:

>

> Gill what a brilliant idea - why dont we collectively think about 10 key

> things for health visitors, we have a different knowledge base see the world

> in a different frame and should be shouting about the difference and letting

> Trusts and governmnet know about the differences and not were we can be sort

> of somehow perhaps the same. Margaret is quite right when she mentions child

> protection perhaps the first key difference is the child protection role.

> What do others think???

>

> ps the article on empowerment in practice and the Field of Words assessment

> has been accepted by the Journal of Clinical Nursing.

>

> >From: Gill Newell <GC.Newell@...>

> >Reply-

> > " ' ' " < >

> >Subject: RE: Digest Number 457

> >Date: Thu, 15 Nov 2001 15:28:58 -0000

> >

> >Margaret

> >

> >We made fairly simple changes in order to go corporate, all of which were

> >suggested by and Jeanette. On the admin side we merged all the files

> >to give us one caseload, notified child health so that computer returns and

> >appointments for checks etc wouldn't get messed up, and merged the birth

> >books into one. We wrote to everyone we could think of to ensure that what

> >we were going to do was as public as we could make it.

> >

> >As far as our clients were concerned, we designed a leaflet outlining the

> >HV service available, and we give this out to all new contacts. Some have

> >expressed surprise " I normally see x " but we haven't had any complaints,

> >and we have had some who have been surprised and pleased by the changes!

> >

> >We made changes to our practice - nothing revolutionary, though. Our core

> >service now has fewer visits to new mothers, although we have extended our

> >clinic times to accomodate those clients who need to see a HV. We now do

> >the primary visit, a possible follow up (eg primips, sections) and see

> >everyone at home at 6 weeks, when we do the EPDS and 's field of words

> >family health assessment. We then agree a care plan. If all seems fine,

> >and the client is happy, we offer contacts at 7 months (HVDT,EPDS) 2 years

> >(dev ass) and, if there is parental or HV concern, a further check at 3

> >1/2, although all children at this age are screened by parents completing a

> >questionnaire and they can request a contact if they want.

> >

> >The hardest thing has been letting go of " our " families, especially as some

> >have been in contact with the same HV for 10 years! The benefits have been

> >tremendous, as I 've indicated.

> >[]

> >On the other issue I raised - eradication of HV - I totally accept what you

> >say, but I would prefer to talk about 10 key roles for HVs and have these

> >as separate and distinct from nursing. These would obviously include child

> >protection and supporting new parents. Some of the 10 things for nurses

> >would be pretty hard to adapt short of a complete re-write anyway! I know

> >I risk sounding pedantic but it's in the detail like this that health

> >visiting is gradually being disregarded so I feel that if we bother to

> >fight over the details it will help the bigger cause.

> >[]

> >Gill

> > Digest Number 457

> >

> >

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Child Protection implementing the 'Paramountcy' principle

Psychosocial support on individual and small group basis.

>From: ruthngrant <ruthngrant@...>

>Reply-

>

>Subject: Re: Digest Number 457

>Date: Thu, 18 Oct 2001 09:11:44 +0100

>

>Psychosocial support on individual and small group basis.

>

> Houston wrote:

>

> > Gill what a brilliant idea - why dont we collectively think about 10 key

> > things for health visitors, we have a different knowledge base see the

>world

> > in a different frame and should be shouting about the difference and

>letting

> > Trusts and governmnet know about the differences and not were we can be

>sort

> > of somehow perhaps the same. Margaret is quite right when she mentions

>child

> > protection perhaps the first key difference is the child protection

>role.

> > What do others think???

> >

> > ps the article on empowerment in practice and the Field of Words

>assessment

> > has been accepted by the Journal of Clinical Nursing.

> >

> > >From: Gill Newell <GC.Newell@...>

> > >Reply-

> > > " ' ' " < >

> > >Subject: RE: Digest Number 457

> > >Date: Thu, 15 Nov 2001 15:28:58 -0000

> > >

> > >Margaret

> > >

> > >We made fairly simple changes in order to go corporate, all of which

>were

> > >suggested by and Jeanette. On the admin side we merged all the

>files

> > >to give us one caseload, notified child health so that computer returns

>and

> > >appointments for checks etc wouldn't get messed up, and merged the

>birth

> > >books into one. We wrote to everyone we could think of to ensure that

>what

> > >we were going to do was as public as we could make it.

> > >

> > >As far as our clients were concerned, we designed a leaflet outlining

>the

> > >HV service available, and we give this out to all new contacts. Some

>have

> > >expressed surprise " I normally see x " but we haven't had any

>complaints,

> > >and we have had some who have been surprised and pleased by the

>changes!

> > >

> > >We made changes to our practice - nothing revolutionary, though. Our

>core

> > >service now has fewer visits to new mothers, although we have extended

>our

> > >clinic times to accomodate those clients who need to see a HV. We now

>do

> > >the primary visit, a possible follow up (eg primips, sections) and see

> > >everyone at home at 6 weeks, when we do the EPDS and 's field of

>words

> > >family health assessment. We then agree a care plan. If all seems

>fine,

> > >and the client is happy, we offer contacts at 7 months (HVDT,EPDS) 2

>years

> > >(dev ass) and, if there is parental or HV concern, a further check at 3

> > >1/2, although all children at this age are screened by parents

>completing a

> > >questionnaire and they can request a contact if they want.

> > >

> > >The hardest thing has been letting go of " our " families, especially as

>some

> > >have been in contact with the same HV for 10 years! The benefits have

>been

> > >tremendous, as I 've indicated.

> > >[]

> > >On the other issue I raised - eradication of HV - I totally accept what

>you

> > >say, but I would prefer to talk about 10 key roles for HVs and have

>these

> > >as separate and distinct from nursing. These would obviously include

>child

> > >protection and supporting new parents. Some of the 10 things for nurses

> > >would be pretty hard to adapt short of a complete re-write anyway! I

>know

> > >I risk sounding pedantic but it's in the detail like this that health

> > >visiting is gradually being disregarded so I feel that if we bother to

> > >fight over the details it will help the bigger cause.

> > >[]

> > >Gill

> > > Digest Number 457

> > >

> > >

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  • 2 months later...

I just jumped out of my seat when I read about the

shingles, my husband Arun and I were barely married 3

days when he had shingles in his T2 nerve, from left

palm to shoulder, we were in India then and chickenpox

is extremely common there. This makes me winder if A

is progressive, i hope to god this is not!

Anusha

--- achalasia wrote:

> There are 6 messages in this issue.

>

> Topics in this digest:

>

> 1. Re: Thoracotomy

> From: " jc_elder " <jc_elder@...>

> 2. Shingles/Chicken Pox

> From: " JC Elder " <jc_elder@...>

> 3. (unknown)

> From: " teresa_uk1 " <ladiloulou@...>

> 4. Re: Re: Thoracotomy

> From: lindwood@...

> 5. Re: (unknown)

> From: cmjfriary@...

> 6. Re: Saying hi, and telling everyone thanks

> From: " pnmhideaway " <nell341@...>

>

>

>

________________________________________________________________________

>

________________________________________________________________________

>

> Message: 1

> Date: Fri, 25 Jan 2002 06:27:52 -0000

> From: " jc_elder " <jc_elder@...>

> Subject: Re: Thoracotomy

>

> Connie,

> I have had 2 Thoracotomies. The last was September

> of 2000. I am

> glad you are doing well. One thing though, they

> wanted me eating

> solids as soon as I could. In the hospital they

> gave me full meals.

> When I got home I went to soups for some time

> because I felt it was

> easier. The other thing for me ( I probably should

> not say this BUT)

> was that the incision abcessed (sp) and came open.

> That is just more

> fun then anyone needs after all that surgery.

>

> dear, a Thoracotomy is a myotomy only they

> open your chest. I

> just wish they would install a zipper for me.....LOL

>

> JC

>

>

>

>

=== message truncated ===

__________________________________________________

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  • 4 weeks later...

Dennis said:

What's good about kefir? Please don't refer me to

kefir making

message board. To hear those people " everything " is

kefir. Anyway

just wandering what is in kefir that's better than

yogurt or

comparable.

-------------------

Besides what everyone else said, kefir has right

turning lactic acid (natural and beneficial to our

intestines), yogurt has left turning lactic acid (not

natural to our intestinal tract and in too large

quantities is not good for us) which might explain why

people get more benefits from kefir over yogurt. I got

this from a book by Klaus Kauffman called Kefir

Rediscovered. He also says that because of the left

turning lactic acid in yogurt, adults should limit

their yogurt consumption to one quart per day. There

is no limit to the amount of kefir you can take.

I make all my own kefir and probably consume a

pint/day. Once in a while I get hungry for yogurt so I

buy Stonyfield brand. I like the way the cream rises.

Yum!

The reason the people on the kefir making message

board think everything is kefir is because a lot of

them have been on both sides of the fence, me

included. Once you all get your kefir grains and see

them grow!, and realize they are going to last

forever, and that you'll be able to share some with

all your friends, you'll see how much fun it is, not

to mention all the health benefits. How do you like

that for a run-on sentence?

Cheers,

Marilyn

=====

" When our food refuse is discarded as waste,

the natural human nutrient cycle is broken,

creating problems such as pollution,

loss of soil fertility,

and abuse of our water resources. "

Learn how to safely compost human manure.

http://www.weblife.org/humanure/default.html

__________________________________________________

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>yogurt has left turning lactic acid (not

>natural to our intestinal tract and in too large

>quantities is not good for us)

Hmm, are you sure about that? I've read that yoghurt cultures generate the

healthy kind of lactic acid -- and they do have some bacteria in common

with kefir.

-

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  • 1 year later...

Has anyone tried the 'Air Press Massager' boots that are being widely advertised on infomercials lately? If so, has anyone found them to be effective in providing any relief from RA-related swelling and stiffness in the legs? I know they're not designed to be a therapy for any specific medical conditions, but I thought they might provide some relief. Please let me know if you or anyone you know has any personal experience with this product.

----- Original Message -----

From: Rheumatoid Arthritis

Rheumatoid Arthritis

Sent: Thursday, September 04, 2003 7:44 PM

Subject: Digest Number 457

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  • 1 month later...

After reading all of your posts for about a month, I am inclined to maybe

consider corrective surgery of my spine. I have a straight spine from the neck

down and flat back. No curvature where there should be some. My lower back tilts

foreword but I don't know how many degrees.

I have had two cervical neuro surgeries to make space for my nerves. But my

neck vertebrae are continuing to expand due to growing calcium deposits. The

surgery was done by an excellent neuerosugvion that did all of the work. He is

part time VA employee.

My two lower lumbar fusion's were done by unsupervised VIA residents. They

butchered me.

I do have a terrible appearance now and its getting worse. I cannot seem to

hold my back up or my head for very long. I am giving into it due to the pain

and fatigue.

It has come upon me in the last four ears with each year getting worse. My

fusion's were done in 1991 and 1993.

I so want to find a specialist that is trusted by the group to give me an

honest diagnosis of my flat back and my arachnoiditis. I hope to find one in

California. If not I will go east. But being unable to be away long would be

difficult for me now. Thanks again. Jim

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Jim, there are quite a few possible (and a few very experienced) revision

surgeons in CA. Yes, I know it's a big state, but there shouldn't be a reason

to travel clear across the country.

Cheryl has put together a nice list which is in the web site under " files " .

http://f2.grp.fs.com/v1/kHGRPx4bhfctOVsTb00BWqTwVTMGi0zXJfiKhZByIu64Kwa0W6L\

BsafsSFiqGbb6O-jatoRhuO2cjh-hK_Fef0QYd9u9DAHRpySmB6U/Finding%20a%20Physician/Rev\

ision%20Surgeon%20List%2010-17-03.htm

I wish you the best in finding someone who can help you.

Sharon

Re: Digest Number 457

After reading all of your posts for about a month, I am inclined to maybe

consider corrective surgery of my spine. I have a straight spine from the neck

down and flat back. No curvature where there should be some. My lower back

tilts

foreword but I don't know how many degrees.

I have had two cervical neuro surgeries to make space for my nerves. But my

neck vertebrae are continuing to expand due to growing calcium deposits. The

surgery was done by an excellent neuerosugvion that did all of the work. He is

part time VA employee.

My two lower lumbar fusion's were done by unsupervised VIA residents. They

butchered me.

I do have a terrible appearance now and its getting worse. I cannot seem to

hold my back up or my head for very long. I am giving into it due to the pain

and fatigue.

It has come upon me in the last four ears with each year getting worse. My

fusion's were done in 1991 and 1993.

I so want to find a specialist that is trusted by the group to give me an

honest diagnosis of my flat back and my arachnoiditis. I hope to find one in

California. If not I will go east. But being unable to be away long would be

difficult for me now. Thanks again. Jim

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Jim,

I am amazed to read this letter from you! You actually had ME thinking just

about the opposite, that I should think more seriously about NOT having more

surgery after hearing about your own experience!

No doubt you have read up on the California people who do this surgery, but I

wanted to remind you once more -- along with everyone else -- that Cheryl has

pioneered some promising surgeon-review resources here at the Feisty site. I

hope that you and others will contribute your own data for the benefit of

others.

I do not recall offhand where in California you might be thinking of going for

surgery, so the following may not be relevant but: Several of us do NOT think

too kindly of Dr. Swank in Whittier.

The UCSF team (at least until recently under " grand old man " Bradford, MD,

who may or may not be retiring soon?) generally gets high marks from this group,

though. We have had favorable experiences with San Francisco surgeons Berven and

Hu in particular.

I'm sure I don't need to plead with you to get second, third, and more opinions

as needed before you head to the O.R. I believe I consulted a total of six(6)

spinal specialists before my last revision procedure. In my experience, those

who are not geographically convenient are glad to look at x-rays and give you at

least a general idea on the phone as to whether they would recommend surgery and

if so, what their specific surgical approach might be. I myself am in Chicago. I

got long-distance opinions from LaGrone, Boachie, and Rand before eventually

traveling to Boston and having the revision with Rand.

Good luck! We will be here for you as you continue with this difficult

decision-making process.

Re: Digest Number 457

After reading all of your posts for about a month, I am inclined to maybe

consider corrective surgery of my spine. I have a straight spine from the neck

down and flat back. No curvature where there should be some. My lower back

tilts

foreword but I don't know how many degrees.

I have had two cervical neuro surgeries to make space for my nerves. But my

neck vertebrae are continuing to expand due to growing calcium deposits. The

surgery was done by an excellent neuerosugvion that did all of the work. He is

part time VA employee.

My two lower lumbar fusion's were done by unsupervised VIA residents. They

butchered me.

I do have a terrible appearance now and its getting worse. I cannot seem to

hold my back up or my head for very long. I am giving into it due to the pain

and fatigue.

It has come upon me in the last four ears with each year getting worse. My

fusion's were done in 1991 and 1993.

I so want to find a specialist that is trusted by the group to give me an

honest diagnosis of my flat back and my arachnoiditis. I hope to find one in

California. If not I will go east. But being unable to be away long would be

difficult for me now. Thanks again. Jim

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