Guest guest Posted July 15, 2003 Report Share Posted July 15, 2003 nne, I find that the fatigue is one of the minor effects for me. But I have always been a high energy person. It has slowed me down and I can't do any where near what I did before. But the pain is what devastates me the most. When I get to tired I try to take a nap, but most times the pain prevents that. I take Trazadone to help me sleep at night. God Bless, Jay > Hi ... I just joined so all of this is new to me, but I just read > the latest digest and I found some of what I read interesting and a > lot related to me such as running low grade fevers, I do that on and > off and my doc said it is normal ... thanks for the info on sun and > plaquenil ... no one ever told me that, you would think the info > from the pharmacy would state it and I think fatigue is my worst > enemy ... anyone have any ideas on how to beat it or just lessen > it ... I am tired of being tired ... I have had RA for 16 years ... > take care and be well everyone ... nne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2003 Report Share Posted September 29, 2003 Hi DeWanda! I am Carla. I lived in Texas for the 1st 38 years of my life. I now live in Pennsylvania. It’s good to hear from a Texas gal! I wish you the best with your RA! Carla -----Original Message----- From: & DeWanda Lindsey [mailto:dlindsey@...] Sent: Friday, September 26, 2003 2:19 PM To: Rheumatoid Arthritis Subject: New to the Group Hello I am new to the group. I joined last week and I have been just sitting on the side lines reading post just lurking around to get a feel of things. This really does seem like a great group and I am so happy to have joined. My name is DeWanda. I am 35 as of two days ago. and I have been diagnosed for ten years. I live in Texas with a wonderful husband and a really fat over weight black cat. I am one of those type people who are not just satisfied knowing that something is happening to my body, I have to know what is happening ,how its happing and why. So I have researched RA and connected conditions very well. And I am very happy to share any info with anyone. Which brings me to the question about dry eyes that Deb had. It is a condition called Sjogrens Syndrome it can affect your eyes mouth and if your a female certain other areas I wont mention here. Your immune system starts to destroy the glands that produce lubrication. This is why people with RA cant or shouldn't have laser eye surgery done. The only thing to help is artificial lubrication. Also if you have a very dry month like me you have to be extremely fussy about dental care or it can cause allot of problems. I hope this helps a little. Well It looks as if I am writing a book here. So I guess I will run for now . I hope this letter didn't make me sound like a know it all . I just wanted to help. Hope everyone is having a super day! DeWanda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2003 Report Share Posted October 1, 2003 Hello I have been a member for a while just lurking and reading, trying to learn all I can. My name is , and I have not been completely diaignosed yet. They say it is Arthritis but thay have not said just what type. I believe it may be rheumatoid since the symptons match closer to that than any other I have read about. My Great Grand Mother had it. I am seeing my rheumatologist as directed. I am on Celebrex twice daily, and 2 days a week I take Predizone. I have a question I would like some help on. How much pain should I expect to have daily. I know weather and other factors come into play. But just how much pain on normal days. I don't hurt near as bad after the day or two after taking predizone. Then it seems to get worse as the days go by. I am wondering if the Celebrex is working at all. My worse pain is in my hands, fingers, wrist, feet and toes. I don't want to be to long winded. but should I expect to hurt this way the rest of my life, or is the better medicine I can take. I am not whinning, I just don't know what to expect. Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2003 Report Share Posted October 3, 2003 I think your medications are treating symptoms instead of trying to slow down or stop the permanent damage that often comes with RA. If you are not seeing a rheumatologist you should see one, and if you are seeing one you should look for a different one. Here's a link to summary information about medicines. http://www.arthritisinsight.com/medical/meds/ You may never be completely pain free but it should not be as bad as you describe. Also I have never heard of taking Prednisone only two days a week. Good luck and God bless. ----- Original Message ----- From: mowed2001 Rheumatoid Arthritis Sent: Wednesday, October 01, 2003 12:41 PM Subject: new to the group HelloI have been a member for a while just lurking and reading, trying to learn all I can. My name is , and I have not been completely diaignosed yet. They say it is Arthritis but thay have not said just what type. I believe it may be rheumatoid since the symptons match closer to that than any other I have read about. My Great Grand Mother had it. I am seeing my rheumatologist as directed. I am on Celebrex twice daily, and 2 days a week I take Predizone. I have a question I would like some help on. How much pain should I expect to have daily. I know weather and other factors come into play. But just how much pain on normal days. I don't hurt near as bad after the day or two after taking predizone. Then it seems to get worse as the days go by. I am wondering if the Celebrex is working at all. My worse pain is in my hands, fingers, wrist, feet and toes. I don't want to be to long winded. but should I expect to hurt this way the rest of my life, or is the better medicine I can take. I am not whinning, I just don't know what to expect. Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2004 Report Share Posted June 26, 2004 Anita, Welcome to the group and God bless you for good support of your husband. I have had a more difficult road to plow with little support at home in the past. It surely helps out with good support from somewhere... This is a great group who will share and offer help. I live in Louisiana and wet, humid weather also effects me. Good luck and God bless, Kay ----- Original Message ----- From: " Anita Cantrell " <TheFunFrug@...> <Rheumatoid Arthritis > Sent: Thursday, June 24, 2004 12:11 AM Subject: New to the group > Hi All, > > I am new to the group. I guess I am really new to RA as well. My dh > has been " diagnosed " as having RA. That is, he has 4 of the 7 > markers for RA and we are waiting for the results of the blood tests > to come back. If they are positive the GP(general practitioner) said > it only takes 5 of the 7 markers to have a positive diagnosis. My dh > has an aunt who has RA and it has been hard on her. > > Dh is still working at a very physical job and it is very hard on > him. He is in pain much of the time. He has been unable to close his > hands. He has had pain in all his joints: shoulders, elbows, wrists, > hands, fingers, hips, knees, ankles, feet, toes. It is easier for me > to be understanding, I think, because I have multiple sclerosis, and > have learned to deal with a body that doesn't always cooperate with > my want-tos. > > I joined to learn more about treatments and what others are going > through with RA. We are scheduled to see a rheumatologist in August. > The GP told us there were very few of them in our area so there is a > long wait to see them. He also said not to expect them to be " oozing > with rapport. " He said they weren't very chatty and since they have > the market sewn up they don't have to be. We will see how that goes. > In other words, all business. The GP has a military background, but > is nice and very thorough. > > Dh has been give prednisone and we are expecting to be prescribed a > DMARD by the rheumatologist. I've seen some talk here of cholesterol > drugs being used for RA and there has been recent research of one of > them being effective for MS. > > Weather always has an affect on me. Do any of you find that hot, > humid weather is more difficult for you? Dh was at work, which is > very hot, humid and a storm came up. They work in a steel building > with all the windows, doors open. Within 15 minutes of the storm > coming up, all his joints swelled up. (We live in the South US, > North Carolina.) > > Sorry so long. Blessings and prayers to all. > > Nita > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2004 Report Share Posted June 26, 2004 Thanks, Harold, for your kind reply. I also appreciate your suggestions. I will follow up and see what can be done. Also will check out the website. The GP was kind enough to sit down with us and read all about RA out of a book he had onhand. I assume it was a Physician's Reference book. Didn't see the title. He was certain of the diagnosis without the blood tests, but did them anyway to be thorough. The GP also did an x-ray of dh's worst hand to see how much joint damage has been done...to have a baseline for comparison later. So far not showing damage. Hopefully, we are coming into this early enough to at least slow the progression of the disease. Probably optimistic, but I am natured that way. Have a blessed day, Nita Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2004 Report Share Posted June 26, 2004 I think you are being realistic in hoping to slow down or stop the joint damage. It is important to be on a DMARD (disease-modifying anti-rheumatic drug) early and to keep experimenting till you find the right drug and dosage to be effective. For me it is Remicade together with Methotrexate and I live a pretty normal life considering that I'm 76 years old. I hope your husband also gets that kind of relief. God bless both of you. ----- Original Message ----- From: Anita Cantrell Rheumatoid Arthritis Sent: Saturday, June 26, 2004 11:38 AM Subject: Re: New to the group Thanks, Harold, for your kind reply.I also appreciate your suggestions. I will follow up and see what can be done. Also will check out the website.The GP was kind enough to sit down with us and read all about RA out of a book he had onhand. I assume it was a Physician's Reference book. Didn't see the title. He was certain of the diagnosis without the blood tests, but did them anyway to be thorough.The GP also did an x-ray of dh's worst hand to see how much joint damage has been done...to have a baseline for comparison later. So far not showing damage. Hopefully, we are coming into this early enough to at least slow the progression of the disease. Probably optimistic, but I am natured that way.Have a blessed day,Nita Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2007 Report Share Posted May 30, 2007 Welcome Barb! We're glad you came. Peace and love, Pat > > I just wanted to say Hello and thank you for allowing me to join the > group. > > Barb > Quote Link to comment Share on other sites More sharing options...
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