Guest guest Posted July 28, 2003 Report Share Posted July 28, 2003 Hello All, Well I just returned from Seattle and was very pleased with the Rheumatologist that I saw there. He wants me to start on Enbrel. Only problem is that my insurance company is balking that it is an experimental drug. I had to have the Dr. write a letter of medical necessity and they said it could be up to 3 weeks before they let me know. My pharmacist says that is will be approx $1500 per month if I have to self pay. I need to do something. Because I have tried all of the other drugs in the past and have already suffered more joint damage and bone loss than I even realized, he wants me to go directly to the Enbrel. Unfortunately I contracted Parvovirus(yes there is a human version of this) this Spring and that is what is causing my recent awful flare. Those of you with children or involved with children, be aware of Fifth's Disease. It's a childhood disease that when kids get it is fairly benign. However if adults, particularly women get it it can be quite disabling. Fatigue, severe joint pain, low grade fever and flushing of cheeks. I guess if you already have RA it's rather like adding insult to injury. At least that explains why I have felt the worst I have in 15 years. Have any of you had problems getting insurance companies to cover the drugs? Has anyone ever gone to Canada to get the drugs? I heard on NPR that this is becoming a popular approach to out of reach pharmacutical costs. Wish me luck. Thanks for listenning. Janet Quote Link to comment Share on other sites More sharing options...
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