Re: My Dad's trigeminal neuralgia AND bells palsy - statin involved?

[Guest guest]

I had that.

The pain was absolutely unbearable. It was caused by a stuid inept idiot

arrogant, know-it-all dentist who insisted that my bite was okay when it

was not. After 3 months (no one else would take me!!) she adjusted the

bite by shaving off a millimeter of enamel from the top of a cuspid and

the pain went away in seconds. It a good thing I was weakened by the

pain as, had I been any stronger, I might have carried out some

unregrettable actions on her!! Then that particular tooth started to

get infected ( probably from the wiggling everytime I tried to chew) ,

xrays later showed inflammation from the root down my neck. Several

months later, I had Frozen Shoulder and that pain was probably worse

than the neuralgia. It was like a Charley Horse in my arm for 7 months.

I healed it finally on my own with homeopathy, Ferrum Metallicum.

( who is now her own doctor)

Kip Cleaver schrieb:

> Ok not even sure I spelled the first disease right, but my 85 year old

> but very healthy and very active Dad came down with both of these

> almost at the same time.

>

> This neuralgia was called " the suicide disease " - as the pain is so

> bad people just killed themselves. It's a nerve that controls the

> face. He had bells palsy about 15 years ago and it went away and now

> its back.

>

> He has been on Lipitor for many years. The doctors say they have never

> seen the two of these together. His face is drooping more and more. He

> is surviving the neuralgia on percocet - hopes to taper down or off

> long term and avoid surgery.

>

> Has anyone see anything about the statins that would make them think

> they are involved?

>

> I am getting ready to REALLY pressure him into going off Lipitor for

> awhile. He has so little to lose and everything to gain. The great

> question to ask " Whats the worst that could happen? " With the

> statins, the worst might be the best decision you have made in

> years...But he is very swayed by his doctor, who tried to put my

> perfectly healthy 83 year old Mom on them and she refused (thanks to me).

>

> If you saw my Dads face you would want to help...

>

> Kip

>

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19:16

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[Guest guest]

Hi Kip,

did you know that the myelin sheaths that surround the nerves and keep

them insulated/protected are made out of HUGE AMOUNTS of cholesterol?

Doesn't bells palsy and trigeminal neuralgia (whatever that means)

have to do with the nerves? So why wouldn't statins NOT be the cause

or the contributor to these " diseases " when MUCH NEEDED cholesterol is

being deprived from the the nerves????

Also, did you know that women and the elderly DO NOT benefit from

statins???? There are no clinical trial that show any benefit whatsoever.

phine

>

> Ok not even sure I spelled the first disease right, but my 85 year

old but very healthy and very active Dad came down with both of these

almost at the same time.

>

> This neuralgia was called " the suicide disease " - as the pain is

so bad people just killed themselves. It's a nerve that controls the

face. He had bells palsy about 15 years ago and it went away and now

its back.

>

> He has been on Lipitor for many years. The doctors say they have

never seen the two of these together. His face is drooping more and

more. He is surviving the neuralgia on percocet - hopes to taper down

or off long term and avoid surgery.

>

> Has anyone see anything about the statins that would make them

think they are involved?

>

> I am getting ready to REALLY pressure him into going off Lipitor

for awhile. He has so little to lose and everything to gain. The great

question to ask " Whats the worst that could happen? " With the

statins, the worst might be the best decision you have made in

years...But he is very swayed by his doctor, who tried to put my

perfectly healthy 83 year old Mom on them and she refused (thanks to me).

>

> If you saw my Dads face you would want to help...

>

> Kip

>

>

>

>

> ---------------------------------

> Be a better friend, newshound, and know-it-all with Mobile.

Try it now.

>

[Guest guest]

- hi and Wow thanks for that reply. He did have some overdue dental work done with no effect, but he surely needs to look into his bit alignment. I also cant imagine how you got through that shoulder for 7 months??? Misalignment might even explain bells palsy if that is really what the other disorder is?Yes my Dad is aging, but to see this is as the first chink in the armor is tough and I am trying to get him in the mode I was in when I fought leukemia - why wouldnt you try just about anything with little downside and some promise. Even for no other reason than to know you tried everything - very important from a mind/body perspective.This monster, which my oncodoc called "miserable but treatable" is not going to go away by meditation or acupuncture(which he is trying), its so nasty. Thanks again so much for this!KipJULIE GRIFFITHS <moppett1@...> wrote: I had that. The pain was absolutely unbearable. It was caused by a stuid inept idiot arrogant, know-it-all dentist who insisted that my bite was okay when it was not. After 3 months (no one else would take me!!) she adjusted the bite by shaving off a millimeter of enamel from the top of a cuspid and the pain went away in seconds. It a good thing I was weakened by the pain as, had I been any stronger, I might have carried out some unregrettable actions on her!! Then that particular tooth started to get infected ( probably from the wiggling everytime I tried to

chew) , xrays later showed inflammation from the root down my neck. Several months later, I had Frozen Shoulder and that pain was probably worse than the neuralgia. It was like a Charley Horse in my arm for 7 months. I healed it finally on my own with homeopathy, Ferrum Metallicum. ( who is now her own doctor) Kip Cleaver schrieb: > Ok not even sure I spelled the first disease right, but my 85 year old > but very healthy and very active Dad came down with both of these > almost at the same time. > > This neuralgia was called "the suicide disease" - as the pain is so > bad people just killed themselves. It's a nerve that controls the > face. He had bells palsy about 15 years ago and it went away and now > its back. > > He has been on Lipitor for many years. The doctors say they have never > seen the two of these together. His face is drooping

more and more. He > is surviving the neuralgia on percocet - hopes to taper down or off > long term and avoid surgery. > > Has anyone see anything about the statins that would make them think > they are involved? > > I am getting ready to REALLY pressure him into going off Lipitor for > awhile. He has so little to lose and everything to gain. The great > question to ask "Whats the worst that could happen?" With the > statins, the worst might be the best decision you have made in > years...But he is very swayed by his doctor, who tried to put my > perfectly healthy 83 year old Mom on them and she refused (thanks to me). > > If you saw my Dads face you would want to help... > > Kip > > ---------------------------------------------------------- > Be a better friend, newshound, and know-it-all with

Mobile. Try > it now. > <http://us.rd./evt=51733/*http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ%20> > > > ---------------------------------------------------------- > > No virus found in this incoming message. > Checked by AVG. > Version: 7.5.524 / Virus Database: 269.23.4/1394 - Release Date: 23/04/2008 19:16 >

Be a better friend, newshound, and know-it-all with Mobile. Try it now.

[Guest guest]

I was listening to Dr. Hoffman on WOR. He almost had a fit

because a doctor prescribed an elderly gentleman statins for his

cholesterol. The side effects of these drugs are horrific and even

worse than any of the diseases.

Let's be realistic here though, at this age, why even bother getting

involved with it?

>

> Ok not even sure I spelled the first disease right, but my 85 year

old but very healthy and very active Dad came down with both of these

almost at the same time.

>

> This neuralgia was called " the suicide disease " - as the pain is

so bad people just killed themselves. It's a nerve that controls the

face. He had bells palsy about 15 years ago and it went away and now

its back.

>

> He has been on Lipitor for many years. The doctors say they have

never seen the two of these together. His face is drooping more and

more. He is surviving the neuralgia on percocet - hopes to taper down

or off long term and avoid surgery.

>

> Has anyone see anything about the statins that would make them

think they are involved?

>

> I am getting ready to REALLY pressure him into going off Lipitor

for awhile. He has so little to lose and everything to gain. The great

question to ask " Whats the worst that could happen? " With the

statins, the worst might be the best decision you have made in

years...But he is very swayed by his doctor, who tried to put my

perfectly healthy 83 year old Mom on them and she refused (thanks to me).

>

> If you saw my Dads face you would want to help...

>

> Kip

>

>

>

>

> ---------------------------------

> Be a better friend, newshound, and know-it-all with Mobile.

Try it now.

>

[Guest guest]

My husband had trigeminal neuralgia with lymphoma, and it is considered

one of the top three horribly painful conditions (right up there with

kidney stones and childbirth). One thing that helped the pain some

(better than various pain pills)was capsaicin ointment. You do have to

be careful putting it on--best to use rubber gloves, as it can soak

into your hands and be uncomfortable. A friend of mine recently had

Bells Palsy, and it cleared up in about a month, which was much faster

than my brother-in-law some years ago that took over six months to get

better. I will be seeing this friend tomorrow, and will ask what

treatment she got for it.

Linden

My Dad's trigeminal neuralgia AND

bells palsy - statin involved?

Ok not even sure I spelled the first disease right, but my 85 year old

but very healthy and very active Dad came down with both of these

almost at the same time.

 

This neuralgia was called " the suicide disease " - as the pain is so bad

people just killed themselves. It's a nerve that controls the face. He

had bells palsy about 15 years ago and it went away and now its back.

 

He has been on Lipitor for many years. The doctors say they have never

seen the two of these together. His face is drooping more and more. He

is surviving the neuralgia on percocet - hopes to taper down or off

long term and avoid surgery.

 

Has anyone see anything about the statins that would make them think

they are involved?

 

I am getting ready to REALLY pressure him into going off Lipitor for

awhile. He has so little to lose and everything to gain. The great

question to ask " Whats the worst that could happen? "    With the

statins, the worst might be the best decision you have made in

years...But he is very swayed by his doctor, who tried to put my

perfectly healthy 83 year old Mom on them and she refused (thanks to

me).

 

If you saw my Dads face you would want to help...

 

Kip

------------------------------------------------------------

Be a better friend, newshound, and know-it-all with Mobile. Try

it now.

[Guest guest]

phine,

You are right in that the neuralgia is caused by a problem with the trigeminal

nerve which basically starts at the brain and comes down the sides of the face.

It's the unmistakeable facial pain, nose, lips, cheeks that usually gives the diagnosis away. It hits with lightening speed

and intensity and the slightest touch or movement can trigger it.

Scary. My heart goes out to anyone who is suffering from TN.

D

Re: My Dad's trigeminal neuralgia AND bells palsy - statin involved?

Hi Kip,did you know that the myelin sheaths that surround the nerves and keepthem insulated/protected are made out of HUGE AMOUNTS of cholesterol?Doesn't bells palsy and trigeminal neuralgia (whatever that means)have to do with the nerves? So why wouldn't statins NOT be the causeor the contributor to these "diseases" when MUCH NEEDED cholesterol isbeing deprived from the the nerves????Also, did you know that women and the elderly DO NOT benefit fromstatins???? There are no clinical trial that show any benefit whatsoever. phine>> Ok not even sure I spelled the first disease right, but my 85 yearold but very healthy and very active Dad came down with

both of thesealmost at the same time.> > This neuralgia was called "the suicide disease" - as the pain isso bad people just killed themselves. It's a nerve that controls theface. He had bells palsy about 15 years ago and it went away and nowits back.> > He has been on Lipitor for many years. The doctors say they havenever seen the two of these together. His face is drooping more andmore. He is surviving the neuralgia on percocet - hopes to taper downor off long term and avoid surgery.> > Has anyone see anything about the statins that would make themthink they are involved? > > I am getting ready to REALLY pressure him into going off Lipitorfor awhile. He has so little to lose and everything to gain. The greatquestion to ask "Whats the worst that could happen?" With thestatins, the worst might be the best decision you have made inyears...But he is very

swayed by his doctor, who tried to put myperfectly healthy 83 year old Mom on them and she refused (thanks to me).> > If you saw my Dads face you would want to help...> > Kip> > > > > ------------ --------- --------- ---> Be a better friend, newshound, and know-it-all with Mobile. Try it now.>

Be a better friend, newshound, and know-it-all with Mobile. Try it now.

[Guest guest]

My friend who had Bells Palsy was given an antiviral immune treatment;

she didn't know any more about it, but whatever it was (and a lot of

prayer) cleared it in a month and she shows no signs or aftereffects.

Linden

My Dad's trigeminal neuralgia AND

bells palsy - statin involved?

Ok not even sure I spelled the first disease right, but my 85 year old

but very healthy and very active Dad came down with both of these

almost at the same time.

 

This neuralgia was called " the suicide disease " - as the pain is so bad

people just killed themselves. It's a nerve that controls the face. He

had bells palsy about 15 years ago and it went away and now its back.

 

He has been on Lipitor for many years. The doctors say they have never

seen the two of these together. His face is drooping more and more. He

is surviving the neuralgia on percocet - hopes to taper down or off

long term and avoid surgery.

 

Has anyone see anything about the statins that would make them think

they are involved?

 

I am getting ready to REALLY pressure him into going off Lipitor for

awhile. He has so little to lose and everything to gain. The great

question to ask " Whats the worst that could happen? "    With the

statins, the worst might be the best decision you have made in

years...But he is very swayed by his doctor, who tried to put my

perfectly healthy 83 year old Mom on them and she refused (thanks to

me).

 

If you saw my Dads face you would want to help...

 

Kip

----------------------------------------------------------

Be a better friend, newshound, and know-it-all with Mobile. Try

it now.

[Guest guest]

Bell's Palsy typically clears up on its own but is different for everyone.

Treatment is controversial but corticosteroids are sometines used.

D

From: linmalki@... <linmalki@...>Subject: Re: My Dad's trigeminal neuralgia AND bells palsy - statin involved?Lipitor Date: Monday, May 19, 2008, 3:07 AM

I asked my friend about the Bell's Palsy treatment and she said it was an antiviral drug..wasn't sure exactly what, but even that much info might be of some help to somebody.Linden... A friend of mine recently hadBells Palsy, and it cleared up in about a month, which was much fasterthan my brother-in-law some years ago that took over six months to getbetter. I will be seeing this friend tomorrow, and will ask whattreatment she got for it.Linden