Re: Re: Update on my sister

[Guest guest]

In new Zealand we only take it once a week 3 days after the methotrexate.

Cheers

ette

At 15:19 3/07/03, you wrote:

>I believe the Folic ?Acid needs to be taken daily. Also it may take 8

>or more weeks for the Methotrexate to start working.

>

>Jay

>

>

> > Well after reading a lot of your emails - and sending all this info

> > on to my sister, she went to her rheumy yesterday who, after

>looking

> > at all the different medications, explained the pros and cons of

>them

> > all. He has put my sister on the following (I have checked on the

> > internet for the US equivalent). I would be interested in your

> > thoughts.

> >

> > Methotrexate - 10mg once a week for four weeks and folic acid also

> > once a week.

> >

> > Ansaid - 100mg morning and 200mg night

> >

> > Tramadol - 50mg to begin with (not sure of the frequency)

> >

> > She has also been prescribed stomach lining pills.

> >

> > I must say my sister is sounding so much more positive now that

> > something definite is being done.

> >

> > How does this all sound?

> >

> > Thanks so much.

> >

>

>

>

>

>

>

[Guest guest]

It almost makes one wonder if it makes any difference at all.

Becky

----- Original Message -----

From: Thurlow

Rheumatoid Arthritis

Sent: Thursday, July 03, 2003 3:02 AM

Subject: Re: Re: Update on my sister

In new Zealand we only take it once a week 3 days after the methotrexate.Cheersette

[Guest guest]

Sis ~

You have me cracking up endlessly, thank you, I have been very depressed and sure did need that ! All of us silicone rupture gals should donate blood and donate it to members of the FDA, and drug companies.........

Surely in the bunch someone will need blood, and will find second hand silicone a nightmare......LOL ~ DSee what's free at AOL.com.

[Guest guest]

Sis ~

I am so sorry that things are so challenging for you and your sister. You all are in my prayers ~

Hugs DedeSee what's free at AOL.com.

[Guest guest]

Dearest Sis:

My heart is breaking for you and your sister. Did she have breast implants? As you know, many women do not want to tell, because then they are treated differently. MM is more common in older black men. I have had a black friend in New York who died from MM, and she had breast implants.

Honey, my doctors treated me with Biaxin, when I became positive for MGUS. Thalidomide and Biaxin are part of the treatment, that many doctors use. This is so sad, because you have been through so much. Have you been tested for MGUS? My son told me that he would be a donor, if I should ever need him.

Good luck to you both....love always....Lea

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~``

Update on my sister> > > Hello All,> > A few weeks ago, I posted that my sister had a "thyroid storm", which > is considered very rare. Her blood pressure was also extremely high. > Her hemoglobin was 7, which is very low, and apparently was another > sign that things were terribly wrong. It turned out that she didn't > have a thyroid storm after all, but instead she's been diagnosed with > a type of cancer called Multiple Myeloma, which I believe impacts the > plasma. We're very close and I'll do everything I can to help her > through this. Not sure yet what the treatment options are, or what > stage or grade the cancer is. She's having a bone marrow biopsy today > that should tell more. What I have read is that possible causes are > exposure to pesticides, herbicides, etc. > > Sis>

[Guest guest]

Sis ~

You are welcome. Thank you ! It is kind of a ritual now. I have been doing it for awhile now. Makes it kind of special.

Hugs ~ DedeSee what's free at AOL.com.