Guest guest Posted March 30, 2011 Report Share Posted March 30, 2011 First of all, let me apologize for not being a regular participant in the group! We have been on this cast journey for quite some time and I was more active here in the beginning. Lately I have been able to read some posts and am determined to participate more! If I'm being completely honest, I got too scared. I wanted to be that bird who hides their head in the sand when I'd read some of the children's stories. As time has gone on, I am realizing that I am doing a huge dis-service to new members who need to hear about my son and that while the road may be long, it is worth traveling. will turn 4 in August. He just had a new cast put on this past Monday at Erie Shriners. So 10 casts, 1 summer brace and 2 MRI's later, here we are. He started casting April 2009. His curve was approaching 60 degrees. From the first cast and each subsequent cast, they have gotten him to zero degrees in cast. Out of cast, he is now at 20. God is not done yet with my son though! I just know it, because the only thing I DO know for sure, is that my God is bigger than Scoliosis. The doctor is pretty encouraged that is still so very flexible to be able to get to zero in cast, even though he's getting older, so we are going to keep moving forward and trying to get lower numbers out of cast. I feel compelled to post now because along this journey, I lost sight of something important. We get so focused on needing our childs spine to be under 10 degrees so they can stop and be done. Ideally our child does hit zero or under 10 out of cast. During a talk with the doctor though Monday it hit me that yes, under 10 would be great, but under 30 and maintaining (even if it does mean a brace long term) until he is done growing in his teens, that's all we really need to avoid surgery. And that's our goal. No surgery. So many children have had to have surgery and made the sacrifice before casting was an option, that I become so overwhelmed with emotion just thinking about them. I sometimes wish I had a crystal ball to see the future and just know that it's all going to turn out okay. We all want to know. I am so grateful for all the work has done and all that her daughter has had to endure for my son to have a chance. A chance to beat this without surgery. I think of her often when I get impatient with how long this takes sometimes. I just felt that I should post to encourage other parents that this doesn't happen immediately. One cast and done would be awesome, but it doesn't work that way. Don't get discouraged if one year turns into 2 with casting. Be encouraged! Because it means it's still working! I have a happy, healthy and otherwise completely typical little boy who loves the wii, loves to fight with his brother and hates green beans. Other than getting his cast wet, we have not come across anything that he cannot do like other children. His biggest complaint recently with his cast is that he can't have a black one (like Darth Vader!) :-) Sorry this is so long. It's just been on my heart to offer this encouragement to other families. Blessings and prayers to all for good numbers and great correction in your child's journey! Crystal Garthwaite Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2011 Report Share Posted March 30, 2011 What an uplifting post! My son is beginning his cast journey today. We are nervous but at the same time hoping that god will watch over our son and help heal him. KeeleySent from my BlackBerry® wireless handheldFrom: crysetalg <crysetalg@...>Sender: infantile scoliosis treatment Date: Wed, 30 Mar 2011 13:08:55 +0000<infantile scoliosis treatment >Reply infantile scoliosis treatment Subject: 's Progress First of all, let me apologize for not being a regular participant in the group! We have been on this cast journey for quite some time and I was more active here in the beginning. Lately I have been able to read some posts and am determined to participate more! If I'm being completely honest, I got too scared. I wanted to be that bird who hides their head in the sand when I'd read some of the children's stories. As time has gone on, I am realizing that I am doing a huge dis-service to new members who need to hear about my son and that while the road may be long, it is worth traveling. will turn 4 in August. He just had a new cast put on this past Monday at Erie Shriners. So 10 casts, 1 summer brace and 2 MRI's later, here we are. He started casting April 2009. His curve was approaching 60 degrees. From the first cast and each subsequent cast, they have gotten him to zero degrees in cast. Out of cast, he is now at 20. God is not done yet with my son though! I just know it, because the only thing I DO know for sure, is that my God is bigger than Scoliosis. The doctor is pretty encouraged that is still so very flexible to be able to get to zero in cast, even though he's getting older, so we are going to keep moving forward and trying to get lower numbers out of cast.I feel compelled to post now because along this journey, I lost sight of something important. We get so focused on needing our childs spine to be under 10 degrees so they can stop and be done. Ideally our child does hit zero or under 10 out of cast. During a talk with the doctor though Monday it hit me that yes, under 10 would be great, but under 30 and maintaining (even if it does mean a brace long term) until he is done growing in his teens, that's all we really need to avoid surgery. And that's our goal. No surgery. So many children have had to have surgery and made the sacrifice before casting was an option, that I become so overwhelmed with emotion just thinking about them.I sometimes wish I had a crystal ball to see the future and just know that it's all going to turn out okay. We all want to know. I am so grateful for all the work has done and all that her daughter has had to endure for my son to have a chance. A chance to beat this without surgery. I think of her often when I get impatient with how long this takes sometimes. I just felt that I should post to encourage other parents that this doesn't happen immediately. One cast and done would be awesome, but it doesn't work that way. Don't get discouraged if one year turns into 2 with casting. Be encouraged! Because it means it's still working! I have a happy, healthy and otherwise completely typical little boy who loves the wii, loves to fight with his brother and hates green beans. Other than getting his cast wet, we have not come across anything that he cannot do like other children. His biggest complaint recently with his cast is that he can't have a black one (like Darth Vader!) :Sorry this is so long. It's just been on my heart to offer this encouragement to other families. Blessings and prayers to all for good numbers and great correction in your child's journey!Crystal Garthwaite Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2011 Report Share Posted March 30, 2011 What an uplifting post! My son is beginning his cast journey today. We are nervous but at the same time hoping that god will watch over our son and help heal him. KeeleySent from my BlackBerry® wireless handheldFrom: crysetalg <crysetalg@...>Sender: infantile scoliosis treatment Date: Wed, 30 Mar 2011 13:08:55 +0000<infantile scoliosis treatment >Reply infantile scoliosis treatment Subject: 's Progress First of all, let me apologize for not being a regular participant in the group! We have been on this cast journey for quite some time and I was more active here in the beginning. Lately I have been able to read some posts and am determined to participate more! If I'm being completely honest, I got too scared. I wanted to be that bird who hides their head in the sand when I'd read some of the children's stories. As time has gone on, I am realizing that I am doing a huge dis-service to new members who need to hear about my son and that while the road may be long, it is worth traveling. will turn 4 in August. He just had a new cast put on this past Monday at Erie Shriners. So 10 casts, 1 summer brace and 2 MRI's later, here we are. He started casting April 2009. His curve was approaching 60 degrees. From the first cast and each subsequent cast, they have gotten him to zero degrees in cast. Out of cast, he is now at 20. God is not done yet with my son though! I just know it, because the only thing I DO know for sure, is that my God is bigger than Scoliosis. The doctor is pretty encouraged that is still so very flexible to be able to get to zero in cast, even though he's getting older, so we are going to keep moving forward and trying to get lower numbers out of cast.I feel compelled to post now because along this journey, I lost sight of something important. We get so focused on needing our childs spine to be under 10 degrees so they can stop and be done. Ideally our child does hit zero or under 10 out of cast. During a talk with the doctor though Monday it hit me that yes, under 10 would be great, but under 30 and maintaining (even if it does mean a brace long term) until he is done growing in his teens, that's all we really need to avoid surgery. And that's our goal. No surgery. So many children have had to have surgery and made the sacrifice before casting was an option, that I become so overwhelmed with emotion just thinking about them.I sometimes wish I had a crystal ball to see the future and just know that it's all going to turn out okay. We all want to know. I am so grateful for all the work has done and all that her daughter has had to endure for my son to have a chance. A chance to beat this without surgery. I think of her often when I get impatient with how long this takes sometimes. I just felt that I should post to encourage other parents that this doesn't happen immediately. One cast and done would be awesome, but it doesn't work that way. Don't get discouraged if one year turns into 2 with casting. Be encouraged! Because it means it's still working! I have a happy, healthy and otherwise completely typical little boy who loves the wii, loves to fight with his brother and hates green beans. Other than getting his cast wet, we have not come across anything that he cannot do like other children. His biggest complaint recently with his cast is that he can't have a black one (like Darth Vader!) :Sorry this is so long. It's just been on my heart to offer this encouragement to other families. Blessings and prayers to all for good numbers and great correction in your child's journey!Crystal Garthwaite Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2011 Report Share Posted March 30, 2011 Thinking of today, how did it go?Sent from my iPhoneOn Mar 30, 2011, at 8:45 AM, kfaul@... wrote: What an uplifting post! My son is beginning his cast journey today. We are nervous but at the same time hoping that god will watch over our son and help heal him. KeeleySent from my BlackBerry® wireless handheldFrom: crysetalg <crysetalg@...> Sender: infantile scoliosis treatment Date: Wed, 30 Mar 2011 13:08:55 +0000<infantile scoliosis treatment >Reply infantile scoliosis treatment Subject: 's Progress First of all, let me apologize for not being a regular participant in the group! We have been on this cast journey for quite some time and I was more active here in the beginning. Lately I have been able to read some posts and am determined to participate more! If I'm being completely honest, I got too scared. I wanted to be that bird who hides their head in the sand when I'd read some of the children's stories. As time has gone on, I am realizing that I am doing a huge dis-service to new members who need to hear about my son and that while the road may be long, it is worth traveling. will turn 4 in August. He just had a new cast put on this past Monday at Erie Shriners. So 10 casts, 1 summer brace and 2 MRI's later, here we are. He started casting April 2009. His curve was approaching 60 degrees. From the first cast and each subsequent cast, they have gotten him to zero degrees in cast. Out of cast, he is now at 20. God is not done yet with my son though! I just know it, because the only thing I DO know for sure, is that my God is bigger than Scoliosis. The doctor is pretty encouraged that is still so very flexible to be able to get to zero in cast, even though he's getting older, so we are going to keep moving forward and trying to get lower numbers out of cast. I feel compelled to post now because along this journey, I lost sight of something important. We get so focused on needing our childs spine to be under 10 degrees so they can stop and be done. Ideally our child does hit zero or under 10 out of cast. During a talk with the doctor though Monday it hit me that yes, under 10 would be great, but under 30 and maintaining (even if it does mean a brace long term) until he is done growing in his teens, that's all we really need to avoid surgery. And that's our goal. No surgery. So many children have had to have surgery and made the sacrifice before casting was an option, that I become so overwhelmed with emotion just thinking about them. I sometimes wish I had a crystal ball to see the future and just know that it's all going to turn out okay. We all want to know. I am so grateful for all the work has done and all that her daughter has had to endure for my son to have a chance. A chance to beat this without surgery. I think of her often when I get impatient with how long this takes sometimes. I just felt that I should post to encourage other parents that this doesn't happen immediately. One cast and done would be awesome, but it doesn't work that way. Don't get discouraged if one year turns into 2 with casting. Be encouraged! Because it means it's still working! I have a happy, healthy and otherwise completely typical little boy who loves the wii, loves to fight with his brother and hates green beans. Other than getting his cast wet, we have not come across anything that he cannot do like other children. His biggest complaint recently with his cast is that he can't have a black one (like Darth Vader!) : Sorry this is so long. It's just been on my heart to offer this encouragement to other families. Blessings and prayers to all for good numbers and great correction in your child's journey! Crystal Garthwaite Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2011 Report Share Posted March 30, 2011 Thinking of today, how did it go?Sent from my iPhoneOn Mar 30, 2011, at 8:45 AM, kfaul@... wrote: What an uplifting post! My son is beginning his cast journey today. We are nervous but at the same time hoping that god will watch over our son and help heal him. KeeleySent from my BlackBerry® wireless handheldFrom: crysetalg <crysetalg@...> Sender: infantile scoliosis treatment Date: Wed, 30 Mar 2011 13:08:55 +0000<infantile scoliosis treatment >Reply infantile scoliosis treatment Subject: 's Progress First of all, let me apologize for not being a regular participant in the group! We have been on this cast journey for quite some time and I was more active here in the beginning. Lately I have been able to read some posts and am determined to participate more! If I'm being completely honest, I got too scared. I wanted to be that bird who hides their head in the sand when I'd read some of the children's stories. As time has gone on, I am realizing that I am doing a huge dis-service to new members who need to hear about my son and that while the road may be long, it is worth traveling. will turn 4 in August. He just had a new cast put on this past Monday at Erie Shriners. So 10 casts, 1 summer brace and 2 MRI's later, here we are. He started casting April 2009. His curve was approaching 60 degrees. From the first cast and each subsequent cast, they have gotten him to zero degrees in cast. Out of cast, he is now at 20. God is not done yet with my son though! I just know it, because the only thing I DO know for sure, is that my God is bigger than Scoliosis. The doctor is pretty encouraged that is still so very flexible to be able to get to zero in cast, even though he's getting older, so we are going to keep moving forward and trying to get lower numbers out of cast. I feel compelled to post now because along this journey, I lost sight of something important. We get so focused on needing our childs spine to be under 10 degrees so they can stop and be done. Ideally our child does hit zero or under 10 out of cast. During a talk with the doctor though Monday it hit me that yes, under 10 would be great, but under 30 and maintaining (even if it does mean a brace long term) until he is done growing in his teens, that's all we really need to avoid surgery. And that's our goal. No surgery. So many children have had to have surgery and made the sacrifice before casting was an option, that I become so overwhelmed with emotion just thinking about them. I sometimes wish I had a crystal ball to see the future and just know that it's all going to turn out okay. We all want to know. I am so grateful for all the work has done and all that her daughter has had to endure for my son to have a chance. A chance to beat this without surgery. I think of her often when I get impatient with how long this takes sometimes. I just felt that I should post to encourage other parents that this doesn't happen immediately. One cast and done would be awesome, but it doesn't work that way. Don't get discouraged if one year turns into 2 with casting. Be encouraged! Because it means it's still working! I have a happy, healthy and otherwise completely typical little boy who loves the wii, loves to fight with his brother and hates green beans. Other than getting his cast wet, we have not come across anything that he cannot do like other children. His biggest complaint recently with his cast is that he can't have a black one (like Darth Vader!) : Sorry this is so long. It's just been on my heart to offer this encouragement to other families. Blessings and prayers to all for good numbers and great correction in your child's journey! Crystal Garthwaite Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2011 Report Share Posted March 30, 2011 Really good! The cast is good. He went from 90 to 45Sent from my BlackBerry® wireless handheldFrom: Tame Olson <dazies2001@...>Sender: infantile scoliosis treatment Date: Wed, 30 Mar 2011 11:10:29 -0700 (PDT)infantile scoliosis treatment <infantile scoliosis treatment >Reply infantile scoliosis treatment Subject: Re: 's Progress Thinking of today, how did it go?Sent from my iPhoneOn Mar 30, 2011, at 8:45 AM, kfaul@... wrote:What an uplifting post! My son is beginning his cast journey today. We are nervous but at the same time hoping that god will watch over our son and help heal him. KeeleySent from my BlackBerry® wireless handheldFrom: crysetalg <crysetalg@...>Sender: infantile scoliosis treatment Date: Wed, 30 Mar 2011 13:08:55 +0000<infantile scoliosis treatment >Reply infantile scoliosis treatment Subject: 's Progress First of all, let me apologize for not being a regular participant in the group! We have been on this cast journey for quite some time and I was more active here in the beginning. Lately I have been able to read some posts and am determined to participate more! If I'm being completely honest, I got too scared. I wanted to be that bird who hides their head in the sand when I'd read some of the children's stories. As time has gone on, I am realizing that I am doing a huge dis-service to new members who need to hear about my son and that while the road may be long, it is worth traveling. will turn 4 in August. He just had a new cast put on this past Monday at Erie Shriners. So 10 casts, 1 summer brace and 2 MRI's later, here we are. He started casting April 2009. His curve was approaching 60 degrees. From the first cast and each subsequent cast, they have gotten him to zero degrees in cast. Out of cast, he is now at 20. God is not done yet with my son though! I just know it, because the only thing I DO know for sure, is that my God is bigger than Scoliosis. The doctor is pretty encouraged that is still so very flexible to be able to get to zero in cast, even though he's getting older, so we are going to keep moving forward and trying to get lower numbers out of cast.I feel compelled to post now because along this journey, I lost sight of something important. We get so focused on needing our childs spine to be under 10 degrees so they can stop and be done. Ideally our child does hit zero or under 10 out of cast. During a talk with the doctor though Monday it hit me that yes, under 10 would be great, but under 30 and maintaining (even if it does mean a brace long term) until he is done growing in his teens, that's all we really need to avoid surgery. And that's our goal. No surgery. So many children have had to have surgery and made the sacrifice before casting was an option, that I become so overwhelmed with emotion just thinking about them.I sometimes wish I had a crystal ball to see the future and just know that it's all going to turn out okay. We all want to know. I am so grateful for all the work has done and all that her daughter has had to endure for my son to have a chance. A chance to beat this without surgery. I think of her often when I get impatient with how long this takes sometimes. I just felt that I should post to encourage other parents that this doesn't happen immediately. One cast and done would be awesome, but it doesn't work that way. Don't get discouraged if one year turns into 2 with casting. Be encouraged! Because it means it's still working! I have a happy, healthy and otherwise completely typical little boy who loves the wii, loves to fight with his brother and hates green beans. Other than getting his cast wet, we have not come across anything that he cannot do like other children. His biggest complaint recently with his cast is that he can't have ablack one (like Darth Vader!) :Sorry this is so long. It's just been on my heart to offer this encouragement to other families. Blessings and prayers to all for good numbers and great correction in your child's journey!Crystal Garthwaite Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2011 Report Share Posted March 30, 2011 Really good! The cast is good. He went from 90 to 45Sent from my BlackBerry® wireless handheldFrom: Tame Olson <dazies2001@...>Sender: infantile scoliosis treatment Date: Wed, 30 Mar 2011 11:10:29 -0700 (PDT)infantile scoliosis treatment <infantile scoliosis treatment >Reply infantile scoliosis treatment Subject: Re: 's Progress Thinking of today, how did it go?Sent from my iPhoneOn Mar 30, 2011, at 8:45 AM, kfaul@... wrote:What an uplifting post! My son is beginning his cast journey today. We are nervous but at the same time hoping that god will watch over our son and help heal him. KeeleySent from my BlackBerry® wireless handheldFrom: crysetalg <crysetalg@...>Sender: infantile scoliosis treatment Date: Wed, 30 Mar 2011 13:08:55 +0000<infantile scoliosis treatment >Reply infantile scoliosis treatment Subject: 's Progress First of all, let me apologize for not being a regular participant in the group! We have been on this cast journey for quite some time and I was more active here in the beginning. Lately I have been able to read some posts and am determined to participate more! If I'm being completely honest, I got too scared. I wanted to be that bird who hides their head in the sand when I'd read some of the children's stories. As time has gone on, I am realizing that I am doing a huge dis-service to new members who need to hear about my son and that while the road may be long, it is worth traveling. will turn 4 in August. He just had a new cast put on this past Monday at Erie Shriners. So 10 casts, 1 summer brace and 2 MRI's later, here we are. He started casting April 2009. His curve was approaching 60 degrees. From the first cast and each subsequent cast, they have gotten him to zero degrees in cast. Out of cast, he is now at 20. God is not done yet with my son though! I just know it, because the only thing I DO know for sure, is that my God is bigger than Scoliosis. The doctor is pretty encouraged that is still so very flexible to be able to get to zero in cast, even though he's getting older, so we are going to keep moving forward and trying to get lower numbers out of cast.I feel compelled to post now because along this journey, I lost sight of something important. We get so focused on needing our childs spine to be under 10 degrees so they can stop and be done. Ideally our child does hit zero or under 10 out of cast. During a talk with the doctor though Monday it hit me that yes, under 10 would be great, but under 30 and maintaining (even if it does mean a brace long term) until he is done growing in his teens, that's all we really need to avoid surgery. And that's our goal. No surgery. So many children have had to have surgery and made the sacrifice before casting was an option, that I become so overwhelmed with emotion just thinking about them.I sometimes wish I had a crystal ball to see the future and just know that it's all going to turn out okay. We all want to know. I am so grateful for all the work has done and all that her daughter has had to endure for my son to have a chance. A chance to beat this without surgery. I think of her often when I get impatient with how long this takes sometimes. I just felt that I should post to encourage other parents that this doesn't happen immediately. One cast and done would be awesome, but it doesn't work that way. Don't get discouraged if one year turns into 2 with casting. Be encouraged! Because it means it's still working! I have a happy, healthy and otherwise completely typical little boy who loves the wii, loves to fight with his brother and hates green beans. Other than getting his cast wet, we have not come across anything that he cannot do like other children. His biggest complaint recently with his cast is that he can't have ablack one (like Darth Vader!) :Sorry this is so long. It's just been on my heart to offer this encouragement to other families. Blessings and prayers to all for good numbers and great correction in your child's journey!Crystal Garthwaite Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2011 Report Share Posted March 30, 2011 thank you so much for this post. very encouraging. and i know it is a process and a work that God does have in His hands. i like the way you put it about being under 30 degrees to avoid surgery. i never thought of it like that so i was encouraged to know that. my husband always reminds me that this is a process and we need to have patience. that is not something i am the best at! ha! thank you again. Mom to Grace-11, Lilly-7, and Joy (almost 3 years old) cleft lip/palate and scoliosis (from 39 degrees to 14 degrees. 3 casts and now in brace)On Wed, Mar 30, 2011 at 1:10 PM, Tame Olson <dazies2001@...> wrote: Thinking of today, how did it go?Sent from my iPhoneOn Mar 30, 2011, at 8:45 AM, kfaul@... wrote: What an uplifting post! My son is beginning his cast journey today. We are nervous but at the same time hoping that god will watch over our son and help heal him. KeeleySent from my BlackBerry® wireless handheld From: crysetalg <crysetalg@...> Sender: infantile scoliosis treatment Date: Wed, 30 Mar 2011 13:08:55 +0000<infantile scoliosis treatment >Reply infantile scoliosis treatment Subject: 's Progress First of all, let me apologize for not being a regular participant in the group! We have been on this cast journey for quite some time and I was more active here in the beginning. Lately I have been able to read some posts and am determined to participate more! If I'm being completely honest, I got too scared. I wanted to be that bird who hides their head in the sand when I'd read some of the children's stories. As time has gone on, I am realizing that I am doing a huge dis-service to new members who need to hear about my son and that while the road may be long, it is worth traveling. will turn 4 in August. He just had a new cast put on this past Monday at Erie Shriners. So 10 casts, 1 summer brace and 2 MRI's later, here we are. He started casting April 2009. His curve was approaching 60 degrees. From the first cast and each subsequent cast, they have gotten him to zero degrees in cast. Out of cast, he is now at 20. God is not done yet with my son though! I just know it, because the only thing I DO know for sure, is that my God is bigger than Scoliosis. The doctor is pretty encouraged that is still so very flexible to be able to get to zero in cast, even though he's getting older, so we are going to keep moving forward and trying to get lower numbers out of cast. I feel compelled to post now because along this journey, I lost sight of something important. We get so focused on needing our childs spine to be under 10 degrees so they can stop and be done. Ideally our child does hit zero or under 10 out of cast. During a talk with the doctor though Monday it hit me that yes, under 10 would be great, but under 30 and maintaining (even if it does mean a brace long term) until he is done growing in his teens, that's all we really need to avoid surgery. And that's our goal. No surgery. So many children have had to have surgery and made the sacrifice before casting was an option, that I become so overwhelmed with emotion just thinking about them. I sometimes wish I had a crystal ball to see the future and just know that it's all going to turn out okay. We all want to know. I am so grateful for all the work has done and all that her daughter has had to endure for my son to have a chance. A chance to beat this without surgery. I think of her often when I get impatient with how long this takes sometimes. I just felt that I should post to encourage other parents that this doesn't happen immediately. One cast and done would be awesome, but it doesn't work that way. Don't get discouraged if one year turns into 2 with casting. Be encouraged! Because it means it's still working! I have a happy, healthy and otherwise completely typical little boy who loves the wii, loves to fight with his brother and hates green beans. Other than getting his cast wet, we have not come across anything that he cannot do like other children. His biggest complaint recently with his cast is that he can't have a black one (like Darth Vader!) : Sorry this is so long. It's just been on my heart to offer this encouragement to other families. Blessings and prayers to all for good numbers and great correction in your child's journey! Crystal Garthwaite -- Leah Jeffries Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2011 Report Share Posted March 30, 2011 thank you so much for this post. very encouraging. and i know it is a process and a work that God does have in His hands. i like the way you put it about being under 30 degrees to avoid surgery. i never thought of it like that so i was encouraged to know that. my husband always reminds me that this is a process and we need to have patience. that is not something i am the best at! ha! thank you again. Mom to Grace-11, Lilly-7, and Joy (almost 3 years old) cleft lip/palate and scoliosis (from 39 degrees to 14 degrees. 3 casts and now in brace)On Wed, Mar 30, 2011 at 1:10 PM, Tame Olson <dazies2001@...> wrote: Thinking of today, how did it go?Sent from my iPhoneOn Mar 30, 2011, at 8:45 AM, kfaul@... wrote: What an uplifting post! My son is beginning his cast journey today. We are nervous but at the same time hoping that god will watch over our son and help heal him. KeeleySent from my BlackBerry® wireless handheld From: crysetalg <crysetalg@...> Sender: infantile scoliosis treatment Date: Wed, 30 Mar 2011 13:08:55 +0000<infantile scoliosis treatment >Reply infantile scoliosis treatment Subject: 's Progress First of all, let me apologize for not being a regular participant in the group! We have been on this cast journey for quite some time and I was more active here in the beginning. Lately I have been able to read some posts and am determined to participate more! If I'm being completely honest, I got too scared. I wanted to be that bird who hides their head in the sand when I'd read some of the children's stories. As time has gone on, I am realizing that I am doing a huge dis-service to new members who need to hear about my son and that while the road may be long, it is worth traveling. will turn 4 in August. He just had a new cast put on this past Monday at Erie Shriners. So 10 casts, 1 summer brace and 2 MRI's later, here we are. He started casting April 2009. His curve was approaching 60 degrees. From the first cast and each subsequent cast, they have gotten him to zero degrees in cast. Out of cast, he is now at 20. God is not done yet with my son though! I just know it, because the only thing I DO know for sure, is that my God is bigger than Scoliosis. The doctor is pretty encouraged that is still so very flexible to be able to get to zero in cast, even though he's getting older, so we are going to keep moving forward and trying to get lower numbers out of cast. I feel compelled to post now because along this journey, I lost sight of something important. We get so focused on needing our childs spine to be under 10 degrees so they can stop and be done. Ideally our child does hit zero or under 10 out of cast. During a talk with the doctor though Monday it hit me that yes, under 10 would be great, but under 30 and maintaining (even if it does mean a brace long term) until he is done growing in his teens, that's all we really need to avoid surgery. And that's our goal. No surgery. So many children have had to have surgery and made the sacrifice before casting was an option, that I become so overwhelmed with emotion just thinking about them. I sometimes wish I had a crystal ball to see the future and just know that it's all going to turn out okay. We all want to know. I am so grateful for all the work has done and all that her daughter has had to endure for my son to have a chance. A chance to beat this without surgery. I think of her often when I get impatient with how long this takes sometimes. I just felt that I should post to encourage other parents that this doesn't happen immediately. One cast and done would be awesome, but it doesn't work that way. Don't get discouraged if one year turns into 2 with casting. Be encouraged! Because it means it's still working! I have a happy, healthy and otherwise completely typical little boy who loves the wii, loves to fight with his brother and hates green beans. Other than getting his cast wet, we have not come across anything that he cannot do like other children. His biggest complaint recently with his cast is that he can't have a black one (like Darth Vader!) : Sorry this is so long. It's just been on my heart to offer this encouragement to other families. Blessings and prayers to all for good numbers and great correction in your child's journey! Crystal Garthwaite -- Leah Jeffries Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2011 Report Share Posted March 30, 2011 Awesome!! That is wonderful news! What an uplifting post! My son is beginning his cast journey today. We are nervous but at the same time hoping that god will watch over our son and help heal him. Keeley Sent from my BlackBerry® wireless handheld From: crysetalg <crysetalg@...> Sender: infantile scoliosis treatment Date: Wed, 30 Mar 2011 13:08:55 +0000 <infantile scoliosis treatment > Replyinfantile scoliosis treatment Subject: 's Progress First of all, let me apologize for not being a regular participant in the group! We have been on this cast journey for quite some time and I was more active here in the beginning. Lately I have been able to read some posts and am determined to participate more! If I'm being completely honest, I got too scared. I wanted to be that bird who hides their head in the sand when I'd read some of the children's stories. As time has gone on, I am realizing that I am doing a huge dis-service to new members who need to hear about my son and that while the road may be long, it is worth traveling. will turn 4 in August. He just had a new cast put on this past Monday at Erie Shriners. So 10 casts, 1 summer brace and 2 MRI's later, here we are. He started casting April 2009. His curve was approaching 60 degrees. From the first cast and each subsequent cast, they have gotten him to zero degrees in cast. Out of cast, he is now at 20. God is not done yet with my son though! I just know it, because the only thing I DO know for sure, is that my God is bigger than Scoliosis. The doctor is pretty encouraged that is still so very flexible to be able to get to zero in cast, even though he's getting older, so we are going to keep moving forward and trying to get lower numbers out of cast.I feel compelled to post now because along this journey, I lost sight of something important. We get so focused on needing our childs spine to be under 10 degrees so they can stop and be done. Ideally our child does hit zero or under 10 out of cast. During a talk with the doctor though Monday it hit me that yes, under 10 would be great, but under 30 and maintaining (even if it does mean a brace long term) until he is done growing in his teens, that's all we really need to avoid surgery. And that's our goal. No surgery. So many children have had to have surgery and made the sacrifice before casting was an option, that I become so overwhelmed with emotion just thinking about them.I sometimes wish I had a crystal ball to see the future and just know that it's all going to turn out okay. We all want to know. I am so grateful for all the work has done and all that her daughter has had to endure for my son to have a chance. A chance to beat this without surgery. I think of her often when I get impatient with how long this takes sometimes. I just felt that I should post to encourage other parents that this doesn't happen immediately. One cast and done would be awesome, but it doesn't work that way. Don't get discouraged if one year turns into 2 with casting. Be encouraged! Because it means it's still working! I have a happy, healthy and otherwise completely typical little boy who loves the wii, loves to fight with his brother and hates green beans. Other than getting his cast wet, we have not come across anything that he cannot do like other children. His biggest complaint recently with his cast is that he can't have a black one (like Darth Vader!) : Sorry this is so long. It's just been on my heart to offer this encouragement to other families. Blessings and prayers to all for good numbers and great correction in your child's journey!Crystal Garthwaite Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2011 Report Share Posted March 30, 2011 Awesome!! That is wonderful news! What an uplifting post! My son is beginning his cast journey today. We are nervous but at the same time hoping that god will watch over our son and help heal him. Keeley Sent from my BlackBerry® wireless handheld From: crysetalg <crysetalg@...> Sender: infantile scoliosis treatment Date: Wed, 30 Mar 2011 13:08:55 +0000 <infantile scoliosis treatment > Replyinfantile scoliosis treatment Subject: 's Progress First of all, let me apologize for not being a regular participant in the group! We have been on this cast journey for quite some time and I was more active here in the beginning. Lately I have been able to read some posts and am determined to participate more! If I'm being completely honest, I got too scared. I wanted to be that bird who hides their head in the sand when I'd read some of the children's stories. As time has gone on, I am realizing that I am doing a huge dis-service to new members who need to hear about my son and that while the road may be long, it is worth traveling. will turn 4 in August. He just had a new cast put on this past Monday at Erie Shriners. So 10 casts, 1 summer brace and 2 MRI's later, here we are. He started casting April 2009. His curve was approaching 60 degrees. From the first cast and each subsequent cast, they have gotten him to zero degrees in cast. Out of cast, he is now at 20. God is not done yet with my son though! I just know it, because the only thing I DO know for sure, is that my God is bigger than Scoliosis. The doctor is pretty encouraged that is still so very flexible to be able to get to zero in cast, even though he's getting older, so we are going to keep moving forward and trying to get lower numbers out of cast.I feel compelled to post now because along this journey, I lost sight of something important. We get so focused on needing our childs spine to be under 10 degrees so they can stop and be done. Ideally our child does hit zero or under 10 out of cast. During a talk with the doctor though Monday it hit me that yes, under 10 would be great, but under 30 and maintaining (even if it does mean a brace long term) until he is done growing in his teens, that's all we really need to avoid surgery. And that's our goal. No surgery. So many children have had to have surgery and made the sacrifice before casting was an option, that I become so overwhelmed with emotion just thinking about them.I sometimes wish I had a crystal ball to see the future and just know that it's all going to turn out okay. We all want to know. I am so grateful for all the work has done and all that her daughter has had to endure for my son to have a chance. A chance to beat this without surgery. I think of her often when I get impatient with how long this takes sometimes. I just felt that I should post to encourage other parents that this doesn't happen immediately. One cast and done would be awesome, but it doesn't work that way. Don't get discouraged if one year turns into 2 with casting. Be encouraged! Because it means it's still working! I have a happy, healthy and otherwise completely typical little boy who loves the wii, loves to fight with his brother and hates green beans. Other than getting his cast wet, we have not come across anything that he cannot do like other children. His biggest complaint recently with his cast is that he can't have a black one (like Darth Vader!) : Sorry this is so long. It's just been on my heart to offer this encouragement to other families. Blessings and prayers to all for good numbers and great correction in your child's journey!Crystal Garthwaite Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2011 Report Share Posted March 31, 2011 I met pooh yesterday. It was so cool. Looking forward to decorating coopers cast. Diapering is interesting. s cast is high enough that it hasn't been too bad yet. going for trimming now. Sent from my BlackBerry® wireless handheldFrom: crystal garthwaite <crysetalg@...>Sender: infantile scoliosis treatment Date: Wed, 30 Mar 2011 14:42:53 -0700 (PDT)<infantile scoliosis treatment >Reply infantile scoliosis treatment Subject: Re: 's Progress Awesome!! That is wonderful news! What an uplifting post! My son is beginning his cast journey today. We are nervous but at the same time hoping that god will watch over our son and help heal him. KeeleySent from my BlackBerry® wireless handheldFrom: crysetalg <crysetalg@...> Sender: infantile scoliosis treatment Date: Wed, 30 Mar 2011 13:08:55 +0000<infantile scoliosis treatment >Replyinfantile scoliosis treatment Subject: 's Progress First of all, let me apologize for not being a regular participant in the group! We have been on this cast journey for quite some time and I was more active here in the beginning. Lately I have been able to read some posts and am determined to participate more! If I'm being completely honest, I got too scared. I wanted to be that bird who hides their head in the sand when I'd read some of the children's stories. As time has gone on, I am realizing that I am doing a huge dis-service to new members who need to hear about my son and that while the road may be long, it is worth traveling. will turn 4 in August. He just had a new cast put on this past Monday at Erie Shriners. So 10 casts, 1 summer brace and 2 MRI's later, here we are. He started casting April 2009. His curve was approaching 60 degrees. From the first cast and each subsequent cast, they have gotten him to zero degrees in cast. Out of cast, he is now at 20. God is not done yetwith my son though! I just know it, because the only thing I DO know for sure, is that my God is bigger than Scoliosis. The doctor is pretty encouraged that is still so very flexible to be able to get to zero in cast, even though he's getting older, so we are going to keep moving forward and trying to get lower numbers out of cast.I feel compelled to post now because along this journey, I lost sight of something important. We get so focused on needing our childs spine to be under 10 degrees so they can stop and be done. Ideally our child does hit zero or under 10 out of cast. During a talk with the doctor though Monday it hit me that yes, under 10 would be great, but under 30 and maintaining (even if it does mean a brace long term) until he is done growing in his teens, that's all we really need to avoid surgery. And that's our goal. No surgery. So many children have had to have surgery and made the sacrifice before casting was an option,that I become so overwhelmed with emotion just thinking about them.I sometimes wish I had a crystal ball to see the future and just know that it's all going to turn out okay. We all want to know. I am so grateful for all the work has done and all that her daughter has had to endure for my son to have a chance. A chance to beat this without surgery. I think of her often when I get impatient with how long this takes sometimes. I just felt that I should post to encourage other parents that this doesn't happen immediately. One cast and done would be awesome, but it doesn't work that way. Don't get discouraged if one year turns into 2 with casting. Be encouraged! Because it means it's still working! I have a happy, healthy and otherwise completely typical little boy who loves the wii, loves to fight with his brother and hates green beans. Other than getting his cast wet, we have not come across anything that he cannot do like other children.His biggest complaint recently with his cast is that he can't have a black one (like Darth Vader!) : Sorry this is so long. It's just been on my heart to offer this encouragement to other families. Blessings and prayers to all for good numbers and great correction in your child's journey!Crystal Garthwaite Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2011 Report Share Posted March 31, 2011 I met pooh yesterday. It was so cool. Looking forward to decorating coopers cast. Diapering is interesting. s cast is high enough that it hasn't been too bad yet. going for trimming now. Sent from my BlackBerry® wireless handheldFrom: crystal garthwaite <crysetalg@...>Sender: infantile scoliosis treatment Date: Wed, 30 Mar 2011 14:42:53 -0700 (PDT)<infantile scoliosis treatment >Reply infantile scoliosis treatment Subject: Re: 's Progress Awesome!! That is wonderful news! What an uplifting post! My son is beginning his cast journey today. We are nervous but at the same time hoping that god will watch over our son and help heal him. KeeleySent from my BlackBerry® wireless handheldFrom: crysetalg <crysetalg@...> Sender: infantile scoliosis treatment Date: Wed, 30 Mar 2011 13:08:55 +0000<infantile scoliosis treatment >Replyinfantile scoliosis treatment Subject: 's Progress First of all, let me apologize for not being a regular participant in the group! We have been on this cast journey for quite some time and I was more active here in the beginning. Lately I have been able to read some posts and am determined to participate more! If I'm being completely honest, I got too scared. I wanted to be that bird who hides their head in the sand when I'd read some of the children's stories. As time has gone on, I am realizing that I am doing a huge dis-service to new members who need to hear about my son and that while the road may be long, it is worth traveling. will turn 4 in August. He just had a new cast put on this past Monday at Erie Shriners. So 10 casts, 1 summer brace and 2 MRI's later, here we are. He started casting April 2009. His curve was approaching 60 degrees. From the first cast and each subsequent cast, they have gotten him to zero degrees in cast. Out of cast, he is now at 20. God is not done yetwith my son though! I just know it, because the only thing I DO know for sure, is that my God is bigger than Scoliosis. The doctor is pretty encouraged that is still so very flexible to be able to get to zero in cast, even though he's getting older, so we are going to keep moving forward and trying to get lower numbers out of cast.I feel compelled to post now because along this journey, I lost sight of something important. We get so focused on needing our childs spine to be under 10 degrees so they can stop and be done. Ideally our child does hit zero or under 10 out of cast. During a talk with the doctor though Monday it hit me that yes, under 10 would be great, but under 30 and maintaining (even if it does mean a brace long term) until he is done growing in his teens, that's all we really need to avoid surgery. And that's our goal. No surgery. So many children have had to have surgery and made the sacrifice before casting was an option,that I become so overwhelmed with emotion just thinking about them.I sometimes wish I had a crystal ball to see the future and just know that it's all going to turn out okay. We all want to know. I am so grateful for all the work has done and all that her daughter has had to endure for my son to have a chance. A chance to beat this without surgery. I think of her often when I get impatient with how long this takes sometimes. I just felt that I should post to encourage other parents that this doesn't happen immediately. One cast and done would be awesome, but it doesn't work that way. Don't get discouraged if one year turns into 2 with casting. Be encouraged! Because it means it's still working! I have a happy, healthy and otherwise completely typical little boy who loves the wii, loves to fight with his brother and hates green beans. Other than getting his cast wet, we have not come across anything that he cannot do like other children.His biggest complaint recently with his cast is that he can't have a black one (like Darth Vader!) : Sorry this is so long. It's just been on my heart to offer this encouragement to other families. Blessings and prayers to all for good numbers and great correction in your child's journey!Crystal Garthwaite Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2011 Report Share Posted March 31, 2011 Thank you so much for sharing ’s journey, so far. Its been a while since I last heard from you and am so happy to hear of his fabulous progress! ’s story is a true example of how properly applied EDF/Mehta casting can not only correct, maintain body shape, buy invaluable growth time ~AND~ prevent surgery. Yeah, its takes a toll on us parents, but its worth every second in my opinion. I can tell you feel the same way! Please consider sharing ’s Journey at some point, if possible. It’s a great example of how EDF/Mehta casting can help children older than 2. Please continue to check in and post when you can. And, ~thanks for mentioning the children who never had the chance at being treated early, like my Olivia. That means a lot to me Crystal. Thank you hon.Best wishes & much love to lil Jess and your family!HRH From: infantile scoliosis treatment [mailto:infantile scoliosis treatment ] On Behalf Of crysetalgSent: Wednesday, March 30, 2011 7:09 AMinfantile scoliosis treatment Subject: 's Progress First of all, let me apologize for not being a regular participant in the group! We have been on this cast journey for quite some time and I was more active here in the beginning. Lately I have been able to read some posts and am determined to participate more! If I'm being completely honest, I got too scared. I wanted to be that bird who hides their head in the sand when I'd read some of the children's stories. As time has gone on, I am realizing that I am doing a huge dis-service to new members who need to hear about my son and that while the road may be long, it is worth traveling. will turn 4 in August. He just had a new cast put on this past Monday at Erie Shriners. So 10 casts, 1 summer brace and 2 MRI's later, here we are. He started casting April 2009. His curve was approaching 60 degrees. From the first cast and each subsequent cast, they have gotten him to zero degrees in cast. Out of cast, he is now at 20. God is not done yet with my son though! I just know it, because the only thing I DO know for sure, is that my God is bigger than Scoliosis. The doctor is pretty encouraged that is still so very flexible to be able to get to zero in cast, even though he's getting older, so we are going to keep moving forward and trying to get lower numbers out of cast.I feel compelled to post now because along this journey, I lost sight of something important. We get so focused on needing our childs spine to be under 10 degrees so they can stop and be done. Ideally our child does hit zero or under 10 out of cast. During a talk with the doctor though Monday it hit me that yes, under 10 would be great, but under 30 and maintaining (even if it does mean a brace long term) until he is done growing in his teens, that's all we really need to avoid surgery. And that's our goal. No surgery. So many children have had to have surgery and made the sacrifice before casting was an option, that I become so overwhelmed with emotion just thinking about them.I sometimes wish I had a crystal ball to see the future and just know that it's all going to turn out okay. We all want to know. I am so grateful for all the work has done and all that her daughter has had to endure for my son to have a chance. A chance to beat this without surgery. I think of her often when I get impatient with how long this takes sometimes. I just felt that I should post to encourage other parents that this doesn't happen immediately. One cast and done would be awesome, but it doesn't work that way. Don't get discouraged if one year turns into 2 with casting. Be encouraged! Because it means it's still working! I have a happy, healthy and otherwise completely typical little boy who loves the wii, loves to fight with his brother and hates green beans. Other than getting his cast wet, we have not come across anything that he cannot do like other children. His biggest complaint recently with his cast is that he can't have a black one (like Darth Vader!) :-)Sorry this is so long. It's just been on my heart to offer this encouragement to other families. Blessings and prayers to all for good numbers and great correction in your child's journey!Crystal Garthwaite Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2011 Report Share Posted March 31, 2011 Thank you so much for sharing ’s journey, so far. Its been a while since I last heard from you and am so happy to hear of his fabulous progress! ’s story is a true example of how properly applied EDF/Mehta casting can not only correct, maintain body shape, buy invaluable growth time ~AND~ prevent surgery. Yeah, its takes a toll on us parents, but its worth every second in my opinion. I can tell you feel the same way! Please consider sharing ’s Journey at some point, if possible. It’s a great example of how EDF/Mehta casting can help children older than 2. Please continue to check in and post when you can. And, ~thanks for mentioning the children who never had the chance at being treated early, like my Olivia. That means a lot to me Crystal. Thank you hon.Best wishes & much love to lil Jess and your family!HRH From: infantile scoliosis treatment [mailto:infantile scoliosis treatment ] On Behalf Of crysetalgSent: Wednesday, March 30, 2011 7:09 AMinfantile scoliosis treatment Subject: 's Progress First of all, let me apologize for not being a regular participant in the group! We have been on this cast journey for quite some time and I was more active here in the beginning. Lately I have been able to read some posts and am determined to participate more! If I'm being completely honest, I got too scared. I wanted to be that bird who hides their head in the sand when I'd read some of the children's stories. As time has gone on, I am realizing that I am doing a huge dis-service to new members who need to hear about my son and that while the road may be long, it is worth traveling. will turn 4 in August. He just had a new cast put on this past Monday at Erie Shriners. So 10 casts, 1 summer brace and 2 MRI's later, here we are. He started casting April 2009. His curve was approaching 60 degrees. From the first cast and each subsequent cast, they have gotten him to zero degrees in cast. Out of cast, he is now at 20. God is not done yet with my son though! I just know it, because the only thing I DO know for sure, is that my God is bigger than Scoliosis. The doctor is pretty encouraged that is still so very flexible to be able to get to zero in cast, even though he's getting older, so we are going to keep moving forward and trying to get lower numbers out of cast.I feel compelled to post now because along this journey, I lost sight of something important. We get so focused on needing our childs spine to be under 10 degrees so they can stop and be done. Ideally our child does hit zero or under 10 out of cast. During a talk with the doctor though Monday it hit me that yes, under 10 would be great, but under 30 and maintaining (even if it does mean a brace long term) until he is done growing in his teens, that's all we really need to avoid surgery. And that's our goal. No surgery. So many children have had to have surgery and made the sacrifice before casting was an option, that I become so overwhelmed with emotion just thinking about them.I sometimes wish I had a crystal ball to see the future and just know that it's all going to turn out okay. We all want to know. I am so grateful for all the work has done and all that her daughter has had to endure for my son to have a chance. A chance to beat this without surgery. I think of her often when I get impatient with how long this takes sometimes. I just felt that I should post to encourage other parents that this doesn't happen immediately. One cast and done would be awesome, but it doesn't work that way. Don't get discouraged if one year turns into 2 with casting. Be encouraged! Because it means it's still working! I have a happy, healthy and otherwise completely typical little boy who loves the wii, loves to fight with his brother and hates green beans. Other than getting his cast wet, we have not come across anything that he cannot do like other children. His biggest complaint recently with his cast is that he can't have a black one (like Darth Vader!) :-)Sorry this is so long. It's just been on my heart to offer this encouragement to other families. Blessings and prayers to all for good numbers and great correction in your child's journey!Crystal Garthwaite Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2011 Report Share Posted March 31, 2011 Any news? How’d it go, Keeley?Please update us when you can, hon.HRH From: infantile scoliosis treatment [mailto:infantile scoliosis treatment ] On Behalf Of kfaul@...Sent: Wednesday, March 30, 2011 7:46 AMinfantile scoliosis treatment Subject: Re: 's Progress What an uplifting post! My son is beginning his cast journey today. We are nervous but at the same time hoping that god will watch over our son and help heal him. KeeleySent from my BlackBerry® wireless handheldFrom: crysetalg <crysetalg@...> Sender: infantile scoliosis treatment Date: Wed, 30 Mar 2011 13:08:55 +0000<infantile scoliosis treatment >Replyinfantile scoliosis treatment Subject: 's Progress First of all, let me apologize for not being a regular participant in the group! We have been on this cast journey for quite some time and I was more active here in the beginning. Lately I have been able to read some posts and am determined to participate more! If I'm being completely honest, I got too scared. I wanted to be that bird who hides their head in the sand when I'd read some of the children's stories. As time has gone on, I am realizing that I am doing a huge dis-service to new members who need to hear about my son and that while the road may be long, it is worth traveling. will turn 4 in August. He just had a new cast put on this past Monday at Erie Shriners. So 10 casts, 1 summer brace and 2 MRI's later, here we are. He started casting April 2009. His curve was approaching 60 degrees. From the first cast and each subsequent cast, they have gotten him to zero degrees in cast. Out of cast, he is now at 20. God is not done yet with my son though! I just know it, because the only thing I DO know for sure, is that my God is bigger than Scoliosis. The doctor is pretty encouraged that is still so very flexible to be able to get to zero in cast, even though he's getting older, so we are going to keep moving forward and trying to get lower numbers out of cast.I feel compelled to post now because along this journey, I lost sight of something important. We get so focused on needing our childs spine to be under 10 degrees so they can stop and be done. Ideally our child does hit zero or under 10 out of cast. During a talk with the doctor though Monday it hit me that yes, under 10 would be great, but under 30 and maintaining (even if it does mean a brace long term) until he is done growing in his teens, that's all we really need to avoid surgery. And that's our goal. No surgery. So many children have had to have surgery and made the sacrifice before casting was an option, that I become so overwhelmed with emotion just thinking about them.I sometimes wish I had a crystal ball to see the future and just know that it's all going to turn out okay. We all want to know. I am so grateful for all the work has done and all that her daughter has had to endure for my son to have a chance. A chance to beat this without surgery. I think of her often when I get impatient with how long this takes sometimes. I just felt that I should post to encourage other parents that this doesn't happen immediately. One cast and done would be awesome, but it doesn't work that way. Don't get discouraged if one year turns into 2 with casting. Be encouraged! Because it means it's still working! I have a happy, healthy and otherwise completely typical little boy who loves the wii, loves to fight with his brother and hates green beans. Other than getting his cast wet, we have not come across anything that he cannot do like other children. His biggest complaint recently with his cast is that he can't have a black one (like Darth Vader!) : Sorry this is so long. It's just been on my heart to offer this encouragement to other families. Blessings and prayers to all for good numbers and great correction in your child's journey!Crystal Garthwaite Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2011 Report Share Posted March 31, 2011 Any news? How’d it go, Keeley?Please update us when you can, hon.HRH From: infantile scoliosis treatment [mailto:infantile scoliosis treatment ] On Behalf Of kfaul@...Sent: Wednesday, March 30, 2011 7:46 AMinfantile scoliosis treatment Subject: Re: 's Progress What an uplifting post! My son is beginning his cast journey today. We are nervous but at the same time hoping that god will watch over our son and help heal him. KeeleySent from my BlackBerry® wireless handheldFrom: crysetalg <crysetalg@...> Sender: infantile scoliosis treatment Date: Wed, 30 Mar 2011 13:08:55 +0000<infantile scoliosis treatment >Replyinfantile scoliosis treatment Subject: 's Progress First of all, let me apologize for not being a regular participant in the group! We have been on this cast journey for quite some time and I was more active here in the beginning. Lately I have been able to read some posts and am determined to participate more! If I'm being completely honest, I got too scared. I wanted to be that bird who hides their head in the sand when I'd read some of the children's stories. As time has gone on, I am realizing that I am doing a huge dis-service to new members who need to hear about my son and that while the road may be long, it is worth traveling. will turn 4 in August. He just had a new cast put on this past Monday at Erie Shriners. So 10 casts, 1 summer brace and 2 MRI's later, here we are. He started casting April 2009. His curve was approaching 60 degrees. From the first cast and each subsequent cast, they have gotten him to zero degrees in cast. Out of cast, he is now at 20. God is not done yet with my son though! I just know it, because the only thing I DO know for sure, is that my God is bigger than Scoliosis. The doctor is pretty encouraged that is still so very flexible to be able to get to zero in cast, even though he's getting older, so we are going to keep moving forward and trying to get lower numbers out of cast.I feel compelled to post now because along this journey, I lost sight of something important. We get so focused on needing our childs spine to be under 10 degrees so they can stop and be done. Ideally our child does hit zero or under 10 out of cast. During a talk with the doctor though Monday it hit me that yes, under 10 would be great, but under 30 and maintaining (even if it does mean a brace long term) until he is done growing in his teens, that's all we really need to avoid surgery. And that's our goal. No surgery. So many children have had to have surgery and made the sacrifice before casting was an option, that I become so overwhelmed with emotion just thinking about them.I sometimes wish I had a crystal ball to see the future and just know that it's all going to turn out okay. We all want to know. I am so grateful for all the work has done and all that her daughter has had to endure for my son to have a chance. A chance to beat this without surgery. I think of her often when I get impatient with how long this takes sometimes. I just felt that I should post to encourage other parents that this doesn't happen immediately. One cast and done would be awesome, but it doesn't work that way. Don't get discouraged if one year turns into 2 with casting. Be encouraged! Because it means it's still working! I have a happy, healthy and otherwise completely typical little boy who loves the wii, loves to fight with his brother and hates green beans. Other than getting his cast wet, we have not come across anything that he cannot do like other children. His biggest complaint recently with his cast is that he can't have a black one (like Darth Vader!) : Sorry this is so long. It's just been on my heart to offer this encouragement to other families. Blessings and prayers to all for good numbers and great correction in your child's journey!Crystal Garthwaite Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2011 Report Share Posted April 1, 2011 Beautiful post, Crystal. I just talked to a mom today who found out as an adult she has two thirty degree curves and she has no problems with her scoliosis- and no pain. Heidi, Bexon's Mommy, (3.5 years old, in 9th cast from Salt Lake City Shriners, currently down from 63 degrees to 14.6 in cast. You can read Bexon's Story on www.GirltoMom.com)From: crysetalg <crysetalg@...>infantile scoliosis treatment Sent: Wed, March 30, 2011 6:08:55 AMSubject: 's Progress First of all, let me apologize for not being a regular participant in the group! We have been on this cast journey for quite some time and I was more active here in the beginning. Lately I have been able to read some posts and am determined to participate more! If I'm being completely honest, I got too scared. I wanted to be that bird who hides their head in the sand when I'd read some of the children's stories. As time has gone on, I am realizing that I am doing a huge dis-service to new members who need to hear about my son and that while the road may be long, it is worth traveling. will turn 4 in August. He just had a new cast put on this past Monday at Erie Shriners. So 10 casts, 1 summer brace and 2 MRI's later, here we are. He started casting April 2009. His curve was approaching 60 degrees. From the first cast and each subsequent cast, they have gotten him to zero degrees in cast. Out of cast, he is now at 20. God is not done yet with my son though! I just know it, because the only thing I DO know for sure, is that my God is bigger than Scoliosis. The doctor is pretty encouraged that is still so very flexible to be able to get to zero in cast, even though he's getting older, so we are going to keep moving forward and trying to get lower numbers out of cast. I feel compelled to post now because along this journey, I lost sight of something important. We get so focused on needing our childs spine to be under 10 degrees so they can stop and be done. Ideally our child does hit zero or under 10 out of cast. During a talk with the doctor though Monday it hit me that yes, under 10 would be great, but under 30 and maintaining (even if it does mean a brace long term) until he is done growing in his teens, that's all we really need to avoid surgery. And that's our goal. No surgery. So many children have had to have surgery and made the sacrifice before casting was an option, that I become so overwhelmed with emotion just thinking about them. I sometimes wish I had a crystal ball to see the future and just know that it's all going to turn out okay. We all want to know. I am so grateful for all the work has done and all that her daughter has had to endure for my son to have a chance. A chance to beat this without surgery. I think of her often when I get impatient with how long this takes sometimes. I just felt that I should post to encourage other parents that this doesn't happen immediately. One cast and done would be awesome, but it doesn't work that way. Don't get discouraged if one year turns into 2 with casting. Be encouraged! Because it means it's still working! I have a happy, healthy and otherwise completely typical little boy who loves the wii, loves to fight with his brother and hates green beans. Other than getting his cast wet, we have not come across anything that he cannot do like other children. His biggest complaint recently with his cast is that he can't have a black one (like Darth Vader!) :-) Sorry this is so long. It's just been on my heart to offer this encouragement to other families. Blessings and prayers to all for good numbers and great correction in your child's journey! Crystal Garthwaite Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2011 Report Share Posted April 1, 2011 Beautiful post, Crystal. I just talked to a mom today who found out as an adult she has two thirty degree curves and she has no problems with her scoliosis- and no pain. Heidi, Bexon's Mommy, (3.5 years old, in 9th cast from Salt Lake City Shriners, currently down from 63 degrees to 14.6 in cast. You can read Bexon's Story on www.GirltoMom.com)From: crysetalg <crysetalg@...>infantile scoliosis treatment Sent: Wed, March 30, 2011 6:08:55 AMSubject: 's Progress First of all, let me apologize for not being a regular participant in the group! We have been on this cast journey for quite some time and I was more active here in the beginning. Lately I have been able to read some posts and am determined to participate more! If I'm being completely honest, I got too scared. I wanted to be that bird who hides their head in the sand when I'd read some of the children's stories. As time has gone on, I am realizing that I am doing a huge dis-service to new members who need to hear about my son and that while the road may be long, it is worth traveling. will turn 4 in August. He just had a new cast put on this past Monday at Erie Shriners. So 10 casts, 1 summer brace and 2 MRI's later, here we are. He started casting April 2009. His curve was approaching 60 degrees. From the first cast and each subsequent cast, they have gotten him to zero degrees in cast. Out of cast, he is now at 20. God is not done yet with my son though! I just know it, because the only thing I DO know for sure, is that my God is bigger than Scoliosis. The doctor is pretty encouraged that is still so very flexible to be able to get to zero in cast, even though he's getting older, so we are going to keep moving forward and trying to get lower numbers out of cast. I feel compelled to post now because along this journey, I lost sight of something important. We get so focused on needing our childs spine to be under 10 degrees so they can stop and be done. Ideally our child does hit zero or under 10 out of cast. During a talk with the doctor though Monday it hit me that yes, under 10 would be great, but under 30 and maintaining (even if it does mean a brace long term) until he is done growing in his teens, that's all we really need to avoid surgery. And that's our goal. No surgery. So many children have had to have surgery and made the sacrifice before casting was an option, that I become so overwhelmed with emotion just thinking about them. I sometimes wish I had a crystal ball to see the future and just know that it's all going to turn out okay. We all want to know. I am so grateful for all the work has done and all that her daughter has had to endure for my son to have a chance. A chance to beat this without surgery. I think of her often when I get impatient with how long this takes sometimes. I just felt that I should post to encourage other parents that this doesn't happen immediately. One cast and done would be awesome, but it doesn't work that way. Don't get discouraged if one year turns into 2 with casting. Be encouraged! Because it means it's still working! I have a happy, healthy and otherwise completely typical little boy who loves the wii, loves to fight with his brother and hates green beans. Other than getting his cast wet, we have not come across anything that he cannot do like other children. His biggest complaint recently with his cast is that he can't have a black one (like Darth Vader!) :-) Sorry this is so long. It's just been on my heart to offer this encouragement to other families. Blessings and prayers to all for good numbers and great correction in your child's journey! Crystal Garthwaite Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2011 Report Share Posted April 1, 2011 Awesome news- Go ! : ) Heidi, Bexon's Mommy, (3.5 years old, in 9th cast from Salt Lake City Shriners, currently down from 63 degrees to 14.6 in cast. You can read Bexon's Story on www.GirltoMom.com)From: "kfaul@..." <kfaul@...>infantile scoliosis treatment Sent: Wed, March 30, 2011 11:33:32 AMSubject: Re: 's Progress Really good! The cast is good. He went from 90 to 45Sent from my BlackBerry® wireless handheldFrom: Tame Olson <dazies2001@...> Sender: infantile scoliosis treatment Date: Wed, 30 Mar 2011 11:10:29 -0700 (PDT)infantile scoliosis treatment <infantile scoliosis treatment >Reply infantile scoliosis treatment Subject: Re: 's Progress Thinking of today, how did it go?Sent from my iPhoneOn Mar 30, 2011, at 8:45 AM, kfaul@... wrote: What an uplifting post! My son is beginning his cast journey today. We are nervous but at the same time hoping that god will watch over our son and help heal him. KeeleySent from my BlackBerry® wireless handheldFrom: crysetalg <crysetalg@...> Sender: infantile scoliosis treatment Date: Wed, 30 Mar 2011 13:08:55 +0000<infantile scoliosis treatment >Reply infantile scoliosis treatment Subject: 's Progress First of all, let me apologize for not being a regular participant in the group! We have been on this cast journey for quite some time and I was more active here in the beginning. Lately I have been able to read some posts and am determined to participate more! If I'm being completely honest, I got too scared. I wanted to be that bird who hides their head in the sand when I'd read some of the children's stories. As time has gone on, I am realizing that I am doing a huge dis-service to new members who need to hear about my son and that while the road may be long, it is worth traveling. will turn 4 in August. He just had a new cast put on this past Monday at Erie Shriners. So 10 casts, 1 summer brace and 2 MRI's later, here we are. He started casting April 2009. His curve was approaching 60 degrees. From the first cast and each subsequent cast, they have gotten him to zero degrees in cast. Out of cast, he is now at 20. God is not done yet with my son though! I just know it, because the only thing I DO know for sure, is that my God is bigger than Scoliosis. The doctor is pretty encouraged that is still so very flexible to be able to get to zero in cast, even though he's getting older, so we are going to keep moving forward and trying to get lower numbers out of cast. I feel compelled to post now because along this journey, I lost sight of something important. We get so focused on needing our childs spine to be under 10 degrees so they can stop and be done. Ideally our child does hit zero or under 10 out of cast. During a talk with the doctor though Monday it hit me that yes, under 10 would be great, but under 30 and maintaining (even if it does mean a brace long term) until he is done growing in his teens, that's all we really need to avoid surgery. And that's our goal. No surgery. So many children have had to have surgery and made the sacrifice before casting was an option, that I become so overwhelmed with emotion just thinking about them. I sometimes wish I had a crystal ball to see the future and just know that it's all going to turn out okay. We all want to know. I am so grateful for all the work has done and all that her daughter has had to endure for my son to have a chance. A chance to beat this without surgery. I think of her often when I get impatient with how long this takes sometimes. I just felt that I should post to encourage other parents that this doesn't happen immediately. One cast and done would be awesome, but it doesn't work that way. Don't get discouraged if one year turns into 2 with casting. Be encouraged! Because it means it's still working! I have a happy, healthy and otherwise completely typical little boy who loves the wii, loves to fight with his brother and hates green beans. Other than getting his cast wet, we have not come across anything that he cannot do like other children. His biggest complaint recently with his cast is that he can't have a black one (like Darth Vader!) : Sorry this is so long. It's just been on my heart to offer this encouragement to other families. Blessings and prayers to all for good numbers and great correction in your child's journey! Crystal Garthwaite Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2011 Report Share Posted April 2, 2011 Thank you Crystal, thank you for reading Girl to Mom! It's a labor of love (obv. not all scoli related- I'm tricking people into being educated if they find me online- shhh). Oh my gosh, I just spent hours today excavating dinosaur bones from a rock thingy- don't ever do it, the bones never fit together in the end!.Yep, Bex is very bossy and strong willed. It will be a lot of fun in the airport tomorrow and on the plane for cast #10 Monday : )Great job spreading awareness! I really think as often says, we parents are the key to change the medical view on this forever. Heidi, Bexon's Mommy, (3.5 years old, in 9th cast from Salt Lake City Shriners, currently down from 63 degrees to 14.6 in cast. You can read Bexon's Story on www.GirltoMom.com)From: crystal garthwaite <crysetalg@...>infantile scoliosis treatment Sent: Thu, March 31, 2011 8:08:57 PMSubject: Re: 's Progress Thank you Heidi! I love your blog btw! How's Bexon doing? He and are about the same age so I imagine you're also going through the "No, I'll do it" and little bullhead phase too? :-) I know several adults with 20-30 degree curves who seem to have normal lives free of pain which is very encouraging!! Our pediatrician has been doing checks on all babies and toddlers since was diagnosed and from what I've heard, the x-ray dept has never been busier! At least I know there will never be another child slip through the crack with him know that he is aware of PIS! Take care!! Crystal From: NIck Guthe <nickguthe@...>Subject: Re: 's Progressinfantile scoliosis treatment Date: Thursday, March 31, 2011, 9:33 PM Beautiful post, Crystal. I just talked to a mom today who found out as an adult she has two thirty degree curves and she has no problems with her scoliosis- and no pain. Heidi, Bexon's Mommy, (3.5 years old, in 9th cast from Salt Lake City Shriners, currently down from 63 degrees to 14.6 in cast. You can read Bexon's Story on www.GirltoMom.com) From: crysetalg <crysetalg@...>infantile scoliosis treatment Sent: Wed, March 30, 2011 6:08:55 AMSubject: 's Progress First of all, let me apologize for not being a regular participant in the group! We have been on this cast journey for quite some time and I was more active here in the beginning. Lately I have been able to read some posts and am determined to participate more! If I'm being completely honest, I got too scared. I wanted to be that bird who hides their head in the sand when I'd read some of the children's stories. As time has gone on, I am realizing that I am doing a huge dis-service to new members who need to hear about my son and that while the road may be long, it is worth traveling. will turn 4 in August. He just had a new cast put on this past Monday at Erie Shriners. So 10 casts, 1 summer brace and 2 MRI's later, here we are. He started casting April 2009. His curve was approaching 60 degrees. From the first cast and each subsequent cast, they have gotten him to zero degrees in cast. Out of cast, he is now at 20. God is not done yet with my son though! I just know it, because the only thing I DO know for sure, is that my God is bigger than Scoliosis. The doctor is pretty encouraged that is still so very flexible to be able to get to zero in cast, even though he's getting older, so we are going to keep moving forward and trying to get lower numbers out of cast.I feel compelled to post now because along this journey, I lost sight of something important. We get so focused on needing our childs spine to be under 10 degrees so they can stop and be done. Ideally our child does hit zero or under 10 out of cast. During a talk with the doctor though Monday it hit me that yes, under 10 would be great, but under 30 and maintaining (even if it does mean a brace long term) until he is done growing in his teens, that's all we really need to avoid surgery. And that's our goal. No surgery. So many children have had to have surgery and made the sacrifice before casting was an option, that I become so overwhelmed with emotion just thinking about them.I sometimes wish I had a crystal ball to see the future and just know that it's all going to turn out okay. We all want to know. I am so grateful for all the work has done and all that her daughter has had to endure for my son to have a chance. A chance to beat this without surgery. I think of her often when I get impatient with how long this takes sometimes. I just felt that I should post to encourage other parents that this doesn't happen immediately. One cast and done would be awesome, but it doesn't work that way. Don't get discouraged if one year turns into 2 with casting. Be encouraged! Because it means it's still working! I have a happy, healthy and otherwise completely typical little boy who loves the wii, loves to fight with his brother and hates green beans. Other than getting his cast wet, we have not come across anything that he cannot do like other children. His biggest complaint recently with his cast is that he can't have a black one (like Darth Vader!) :-)Sorry this is so long. It's just been on my heart to offer this encouragement to other families. Blessings and prayers to all for good numbers and great correction in your child's journey!Crystal Garthwaite Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2011 Report Share Posted April 2, 2011 Thank you Crystal, thank you for reading Girl to Mom! It's a labor of love (obv. not all scoli related- I'm tricking people into being educated if they find me online- shhh). Oh my gosh, I just spent hours today excavating dinosaur bones from a rock thingy- don't ever do it, the bones never fit together in the end!.Yep, Bex is very bossy and strong willed. It will be a lot of fun in the airport tomorrow and on the plane for cast #10 Monday : )Great job spreading awareness! I really think as often says, we parents are the key to change the medical view on this forever. Heidi, Bexon's Mommy, (3.5 years old, in 9th cast from Salt Lake City Shriners, currently down from 63 degrees to 14.6 in cast. You can read Bexon's Story on www.GirltoMom.com)From: crystal garthwaite <crysetalg@...>infantile scoliosis treatment Sent: Thu, March 31, 2011 8:08:57 PMSubject: Re: 's Progress Thank you Heidi! I love your blog btw! How's Bexon doing? He and are about the same age so I imagine you're also going through the "No, I'll do it" and little bullhead phase too? :-) I know several adults with 20-30 degree curves who seem to have normal lives free of pain which is very encouraging!! Our pediatrician has been doing checks on all babies and toddlers since was diagnosed and from what I've heard, the x-ray dept has never been busier! At least I know there will never be another child slip through the crack with him know that he is aware of PIS! Take care!! Crystal From: NIck Guthe <nickguthe@...>Subject: Re: 's Progressinfantile scoliosis treatment Date: Thursday, March 31, 2011, 9:33 PM Beautiful post, Crystal. I just talked to a mom today who found out as an adult she has two thirty degree curves and she has no problems with her scoliosis- and no pain. Heidi, Bexon's Mommy, (3.5 years old, in 9th cast from Salt Lake City Shriners, currently down from 63 degrees to 14.6 in cast. You can read Bexon's Story on www.GirltoMom.com) From: crysetalg <crysetalg@...>infantile scoliosis treatment Sent: Wed, March 30, 2011 6:08:55 AMSubject: 's Progress First of all, let me apologize for not being a regular participant in the group! We have been on this cast journey for quite some time and I was more active here in the beginning. Lately I have been able to read some posts and am determined to participate more! If I'm being completely honest, I got too scared. I wanted to be that bird who hides their head in the sand when I'd read some of the children's stories. As time has gone on, I am realizing that I am doing a huge dis-service to new members who need to hear about my son and that while the road may be long, it is worth traveling. will turn 4 in August. He just had a new cast put on this past Monday at Erie Shriners. So 10 casts, 1 summer brace and 2 MRI's later, here we are. He started casting April 2009. His curve was approaching 60 degrees. From the first cast and each subsequent cast, they have gotten him to zero degrees in cast. Out of cast, he is now at 20. God is not done yet with my son though! I just know it, because the only thing I DO know for sure, is that my God is bigger than Scoliosis. The doctor is pretty encouraged that is still so very flexible to be able to get to zero in cast, even though he's getting older, so we are going to keep moving forward and trying to get lower numbers out of cast.I feel compelled to post now because along this journey, I lost sight of something important. We get so focused on needing our childs spine to be under 10 degrees so they can stop and be done. Ideally our child does hit zero or under 10 out of cast. During a talk with the doctor though Monday it hit me that yes, under 10 would be great, but under 30 and maintaining (even if it does mean a brace long term) until he is done growing in his teens, that's all we really need to avoid surgery. And that's our goal. No surgery. So many children have had to have surgery and made the sacrifice before casting was an option, that I become so overwhelmed with emotion just thinking about them.I sometimes wish I had a crystal ball to see the future and just know that it's all going to turn out okay. We all want to know. I am so grateful for all the work has done and all that her daughter has had to endure for my son to have a chance. A chance to beat this without surgery. I think of her often when I get impatient with how long this takes sometimes. I just felt that I should post to encourage other parents that this doesn't happen immediately. One cast and done would be awesome, but it doesn't work that way. Don't get discouraged if one year turns into 2 with casting. Be encouraged! Because it means it's still working! I have a happy, healthy and otherwise completely typical little boy who loves the wii, loves to fight with his brother and hates green beans. Other than getting his cast wet, we have not come across anything that he cannot do like other children. His biggest complaint recently with his cast is that he can't have a black one (like Darth Vader!) :-)Sorry this is so long. It's just been on my heart to offer this encouragement to other families. Blessings and prayers to all for good numbers and great correction in your child's journey!Crystal Garthwaite Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2011 Report Share Posted April 2, 2011 Way to go in educating the pediatrician! Way to grow ET! > Thank you Heidi! I love your blog btw! How's Bexon doing? He and > are about the same age so I imagine you're also going through the " No, > I'll do it " and little bullhead phase too? :-) >  > I know several adults with 20-30 degree curves who seem to have normal > lives free of pain which is very encouraging!! Our pediatrician has been > doing checks on all babies and toddlers since was diagnosed and from > what I've heard, the x-ray dept has never been busier! At least I know > there will never be another child slip through the crack with him know > that he is aware of PIS! >  > Take care!! > Crystal > > > > > From: NIck Guthe <nickguthe@...> > Subject: Re: 's Progress > infantile scoliosis treatment > Date: Thursday, March 31, 2011, 9:33 PM > > >  > > > > > Beautiful post, Crystal. I just talked to a mom today who found out as an > adult she has two thirty degree curves and she has no problems with her > scoliosis- and no pain. > >  Heidi, Bexon's Mommy, (3.5 years old, in 9th cast from Salt Lake City > Shriners, currently down from 63 degrees to 14.6 in cast. You can read > Bexon's Story on www.GirltoMom.com) > > > > > > > From: crysetalg <crysetalg@...> > infantile scoliosis treatment > Sent: Wed, March 30, 2011 6:08:55 AM > Subject: 's Progress > >  > > First of all, let me apologize for not being a regular participant in the > group! We have been on this cast journey for quite some time and I was > more active here in the beginning. Lately I have been able to read some > posts and am determined to participate more! If I'm being completely > honest, I got too scared. I wanted to be that bird who hides their head in > the sand when I'd read some of the children's stories. As time has gone > on, I am realizing that I am doing a huge dis-service to new members who > need to hear about my son and that while the road may be long, it is worth > traveling. > > will turn 4 in August. He just had a new cast put on this past > Monday at Erie Shriners. So 10 casts, 1 summer brace and 2 MRI's later, > here we are. He started casting April 2009. His curve was approaching 60 > degrees. From the first cast and each subsequent cast, they have gotten > him to zero degrees in cast. Out of cast, he is now at 20. God is not done > yet with my son though! I just know it, because the only thing I DO know > for sure, is that my God is bigger than Scoliosis. The doctor is pretty > encouraged that is still so very flexible to be able to get to zero > in cast, even though he's getting older, so we are going to keep moving > forward and trying to get lower numbers out of cast. > > I feel compelled to post now because along this journey, I lost sight of > something important. We get so focused on needing our childs spine to be > under 10 degrees so they can stop and be done. Ideally our child does hit > zero or under 10 out of cast. During a talk with the doctor though Monday > it hit me that yes, under 10 would be great, but under 30 and maintaining > (even if it does mean a brace long term) until he is done growing in his > teens, that's all we really need to avoid surgery. And that's our goal. No > surgery. So many children have had to have surgery and made the sacrifice > before casting was an option, that I become so overwhelmed with emotion > just thinking about them. > > I sometimes wish I had a crystal ball to see the future and just know that > it's all going to turn out okay. We all want to know. I am so grateful for > all the work has done and all that her daughter has had to endure > for my son to have a chance. A chance to beat this without surgery. I > think of her often when I get impatient with how long this takes > sometimes. I just felt that I should post to encourage other parents that > this doesn't happen immediately. One cast and done would be awesome, but > it doesn't work that way. Don't get discouraged if one year turns into 2 > with casting. Be encouraged! Because it means it's still working! I have a > happy, healthy and otherwise completely typical little boy who loves the > wii, loves to fight with his brother and hates green beans. Other than > getting his cast wet, we have not come across anything that he cannot do > like other children. His biggest complaint recently with his cast is that > he can't have a black > one (like Darth Vader!) :-) > > Sorry this is so long. It's just been on my heart to offer this > encouragement to other families. Blessings and prayers to all for good > numbers and great correction in your child's journey! > > Crystal Garthwaite > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2011 Report Share Posted April 2, 2011 Way to go in educating the pediatrician! Way to grow ET! > Thank you Heidi! I love your blog btw! How's Bexon doing? He and > are about the same age so I imagine you're also going through the " No, > I'll do it " and little bullhead phase too? :-) >  > I know several adults with 20-30 degree curves who seem to have normal > lives free of pain which is very encouraging!! Our pediatrician has been > doing checks on all babies and toddlers since was diagnosed and from > what I've heard, the x-ray dept has never been busier! At least I know > there will never be another child slip through the crack with him know > that he is aware of PIS! >  > Take care!! > Crystal > > > > > From: NIck Guthe <nickguthe@...> > Subject: Re: 's Progress > infantile scoliosis treatment > Date: Thursday, March 31, 2011, 9:33 PM > > >  > > > > > Beautiful post, Crystal. I just talked to a mom today who found out as an > adult she has two thirty degree curves and she has no problems with her > scoliosis- and no pain. > >  Heidi, Bexon's Mommy, (3.5 years old, in 9th cast from Salt Lake City > Shriners, currently down from 63 degrees to 14.6 in cast. You can read > Bexon's Story on www.GirltoMom.com) > > > > > > > From: crysetalg <crysetalg@...> > infantile scoliosis treatment > Sent: Wed, March 30, 2011 6:08:55 AM > Subject: 's Progress > >  > > First of all, let me apologize for not being a regular participant in the > group! We have been on this cast journey for quite some time and I was > more active here in the beginning. Lately I have been able to read some > posts and am determined to participate more! If I'm being completely > honest, I got too scared. I wanted to be that bird who hides their head in > the sand when I'd read some of the children's stories. As time has gone > on, I am realizing that I am doing a huge dis-service to new members who > need to hear about my son and that while the road may be long, it is worth > traveling. > > will turn 4 in August. He just had a new cast put on this past > Monday at Erie Shriners. So 10 casts, 1 summer brace and 2 MRI's later, > here we are. He started casting April 2009. His curve was approaching 60 > degrees. From the first cast and each subsequent cast, they have gotten > him to zero degrees in cast. Out of cast, he is now at 20. God is not done > yet with my son though! I just know it, because the only thing I DO know > for sure, is that my God is bigger than Scoliosis. The doctor is pretty > encouraged that is still so very flexible to be able to get to zero > in cast, even though he's getting older, so we are going to keep moving > forward and trying to get lower numbers out of cast. > > I feel compelled to post now because along this journey, I lost sight of > something important. We get so focused on needing our childs spine to be > under 10 degrees so they can stop and be done. Ideally our child does hit > zero or under 10 out of cast. During a talk with the doctor though Monday > it hit me that yes, under 10 would be great, but under 30 and maintaining > (even if it does mean a brace long term) until he is done growing in his > teens, that's all we really need to avoid surgery. And that's our goal. No > surgery. So many children have had to have surgery and made the sacrifice > before casting was an option, that I become so overwhelmed with emotion > just thinking about them. > > I sometimes wish I had a crystal ball to see the future and just know that > it's all going to turn out okay. We all want to know. I am so grateful for > all the work has done and all that her daughter has had to endure > for my son to have a chance. A chance to beat this without surgery. I > think of her often when I get impatient with how long this takes > sometimes. I just felt that I should post to encourage other parents that > this doesn't happen immediately. One cast and done would be awesome, but > it doesn't work that way. Don't get discouraged if one year turns into 2 > with casting. Be encouraged! Because it means it's still working! I have a > happy, healthy and otherwise completely typical little boy who loves the > wii, loves to fight with his brother and hates green beans. Other than > getting his cast wet, we have not come across anything that he cannot do > like other children. His biggest complaint recently with his cast is that > he can't have a black > one (like Darth Vader!) :-) > > Sorry this is so long. It's just been on my heart to offer this > encouragement to other families. Blessings and prayers to all for good > numbers and great correction in your child's journey! > > Crystal Garthwaite > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2011 Report Share Posted April 2, 2011 Gosh girl, I cant wait to read your testimonail/'s Journey! This post was so candid, and I love that you shared your multiple fears on what was going on...The elaborated on how it really becomes a part of s life and everyone in the fam. Love it. Thank you. HRH Oh, and how it does get harder as they get older. Very true statment from my point of view. > Aw . How could I not mention them? They paved the way for this and > I am always grateful and have shed many many tears for all the unknown > children who've gone through so much pain before casting was an > option.  They, and you with your persistence, have given my son a > chance to beat this without surgery. I will never forget that and never > fail to mention to others when talking about casting, what other children > have had to deal with before mehta casting was available. >  > I completely agree 100% that no matter how long it takes, this course is > the best way to go. It's funny. In the beginning, I was sure we'd be done > in oh, 3 casts! But then during the few days he was out of cast waiting > for the next one, I'd almost want to hurry up time and get him back in > it. I felt like his cast kept him safe and was terrified he'd fall or > hurt his back when it wasn't on. Kind of crazy. He developed a rash on > his back after his last cast came off (only where the cast covered him!) > It was so odd and he was out of cast for 3 weeks! I was so scared! >  > It has gotten a little harder as he's gotten older. He is pretty vocal > about his opinions now. But as soon as the cast is back on, he's right > back to being . He's had the cast on now over half of his little > life, so he " knows " it better than he knows life without it. I have lots > of random thoughts and notes from when this all began, so I will try to > pull it all together so I can post 's Journey on ISOP!! >  > Stay Strong!! > Crystal > > > > > From: Hyatt <heather@...> > Subject: RE: 's Progress > infantile scoliosis treatment > Date: Thursday, March 31, 2011, 11:28 AM > > >  > > > > > > Thank you so much for sharing ’s journey, so far. Its been a > while since I last heard from you and am so happy to hear of his fabulous > progress! ’s story is a true example of how properly applied > EDF/Mehta casting can not only correct, maintain body shape, buy > invaluable growth time ~AND~ prevent surgery. Yeah, its takes a toll on > us parents, but its worth every second in my opinion. I can tell you > feel the same way! Please consider sharing ’s Journey at some > point, if possible. It’s a great example of how EDF/Mehta casting can > help children older than 2. Please continue to check in and post when > you can. And, ~thanks for mentioning the children who never had the > chance at being treated early, like my Olivia. That means a lot to me > Crystal. Thank you hon. > Best wishes & much love to lil Jess and your family! > HRH >  >  > > > From: infantile scoliosis treatment > [mailto:infantile scoliosis treatment ] On Behalf Of crysetalg > Sent: Wednesday, March 30, 2011 7:09 AM > infantile scoliosis treatment > Subject: 's Progress >  >  > > > > First of all, let me apologize for not being a regular participant in the > group! We have been on this cast journey for quite some time and I was > more active here in the beginning. Lately I have been able to read some > posts and am determined to participate more! If I'm being completely > honest, I got too scared. I wanted to be that bird who hides their head in > the sand when I'd read some of the children's stories. As time has gone > on, I am realizing that I am doing a huge dis-service to new members who > need to hear about my son and that while the road may be long, it is worth > traveling. > > will turn 4 in August. He just had a new cast put on this past > Monday at Erie Shriners. So 10 casts, 1 summer brace and 2 MRI's later, > here we are. He started casting April 2009. His curve was approaching 60 > degrees. From the first cast and each subsequent cast, they have gotten > him to zero degrees in cast. Out of cast, he is now at 20. God is not done > yet with my son though! I just know it, because the only thing I DO know > for sure, is that my God is bigger than Scoliosis. The doctor is pretty > encouraged that is still so very flexible to be able to get to zero > in cast, even though he's getting older, so we are going to keep moving > forward and trying to get lower numbers out of cast. > > I feel compelled to post now because along this journey, I lost sight of > something important. We get so focused on needing our childs spine to be > under 10 degrees so they can stop and be done. Ideally our child does hit > zero or under 10 out of cast. During a talk with the doctor though Monday > it hit me that yes, under 10 would be great, but under 30 and maintaining > (even if it does mean a brace long term) until he is done growing in his > teens, that's all we really need to avoid surgery. And that's our goal. No > surgery. So many children have had to have surgery and made the sacrifice > before casting was an option, that I become so overwhelmed with emotion > just thinking about them. > > I sometimes wish I had a crystal ball to see the future and just know that > it's all going to turn out okay. We all want to know. I am so grateful for > all the work has done and all that her daughter has had to endure > for my son to have a chance. A chance to beat this without surgery. I > think of her often when I get impatient with how long this takes > sometimes. I just felt that I should post to encourage other parents that > this doesn't happen immediately. One cast and done would be awesome, but > it doesn't work that way. Don't get discouraged if one year turns into 2 > with casting. Be encouraged! Because it means it's still working! I have a > happy, healthy and otherwise completely typical little boy who loves the > wii, loves to fight with his brother and hates green beans. Other than > getting his cast wet, we have not come across anything that he cannot do > like other children. His biggest complaint recently with his cast is that > he can't have a black > one (like Darth Vader!) :-) > > Sorry this is so long. It's just been on my heart to offer this > encouragement to other families. Blessings and prayers to all for good > numbers and great correction in your child's journey! > > Crystal Garthwaite > > > > > > > Quote Link to comment Share on other sites More sharing options...
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