's Progress

[Guest guest]

Gosh girl, I cant wait to read your testimonail/'s Journey! This

post was so candid, and I love that you shared your multiple fears on what

was going on...The elaborated on how it really becomes a part of s

life and everyone in the fam. Love it. Thank you.

HRH

Oh, and how it does get harder as they get older. Very true statment from

my point of view.

> Aw . How could I not mention them? They paved the way for this and

> I am always grateful and have shed many many tears for all the unknown

> children who've gone through so much pain before casting was an

> option.   They, and you with your persistence, have given my son a

> chance to beat this without surgery. I will never forget that and never

> fail to mention to others when talking about casting, what other children

> have had to deal with before mehta casting was available.

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> I completely agree 100% that no matter how long it takes, this course is

> the best way to go. It's funny. In the beginning, I was sure we'd be done

> in oh, 3 casts!  But then during the few days he was out of cast waiting

> for the next one, I'd almost want to hurry up time and get him back in

> it.  I felt like his cast kept him safe and was terrified he'd fall or

> hurt his back when it wasn't on.  Kind of crazy.  He developed a rash on

> his back after his last cast came off (only where the cast covered him!)

> It was so odd and he was out of cast for 3 weeks!  I was so scared!

>  

> It has gotten a little harder as he's gotten older. He is pretty vocal

> about his opinions now. But as soon as the cast is back on, he's right

> back to being .  He's had the cast on now over half of his little

> life, so he " knows " it better than he knows life without it.  I have lots

> of random thoughts and notes from when this all began, so I will try to

> pull it all together so I can post 's Journey on ISOP!!

>  

> Stay Strong!!

> Crystal

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> From: Hyatt <heather@...>

> Subject: RE: 's Progress

> infantile scoliosis treatment

> Date: Thursday, March 31, 2011, 11:28 AM

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> Thank you so much for sharing ’s journey, so far.  Its been a

> while since I last heard from you and am so happy to hear of his fabulous

> progress!  ’s story is a true example of how properly applied

> EDF/Mehta casting can not only correct, maintain body shape, buy

> invaluable growth time ~AND~ prevent surgery.  Yeah, its takes a toll on

> us parents, but its worth every second in my opinion.  I can tell you

> feel the same way!  Please consider sharing ’s Journey at some

> point, if possible.  It’s a great example of how EDF/Mehta casting can

> help children older than 2.  Please continue to check in and post when

> you can.  And, ~thanks for mentioning the children who never had the

> chance at being treated early, like my Olivia.  That means a lot to me

> Crystal.  Thank you hon.

> Best wishes & much love to lil Jess and your family!

> HRH

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> From: infantile scoliosis treatment

> [mailto:infantile scoliosis treatment ] On Behalf Of crysetalg

> Sent: Wednesday, March 30, 2011 7:09 AM

> infantile scoliosis treatment

> Subject: 's Progress

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> First of all, let me apologize for not being a regular participant in the

> group! We have been on this cast journey for quite some time and I was

> more active here in the beginning. Lately I have been able to read some

> posts and am determined to participate more! If I'm being completely

> honest, I got too scared. I wanted to be that bird who hides their head in

> the sand when I'd read some of the children's stories. As time has gone

> on, I am realizing that I am doing a huge dis-service to new members who

> need to hear about my son and that while the road may be long, it is worth

> traveling.

>

> will turn 4 in August. He just had a new cast put on this past

> Monday at Erie Shriners. So 10 casts, 1 summer brace and 2 MRI's later,

> here we are. He started casting April 2009. His curve was approaching 60

> degrees. From the first cast and each subsequent cast, they have gotten

> him to zero degrees in cast. Out of cast, he is now at 20. God is not done

> yet with my son though! I just know it, because the only thing I DO know

> for sure, is that my God is bigger than Scoliosis. The doctor is pretty

> encouraged that is still so very flexible to be able to get to zero

> in cast, even though he's getting older, so we are going to keep moving

> forward and trying to get lower numbers out of cast.

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> I feel compelled to post now because along this journey, I lost sight of

> something important. We get so focused on needing our childs spine to be

> under 10 degrees so they can stop and be done. Ideally our child does hit

> zero or under 10 out of cast. During a talk with the doctor though Monday

> it hit me that yes, under 10 would be great, but under 30 and maintaining

> (even if it does mean a brace long term) until he is done growing in his

> teens, that's all we really need to avoid surgery. And that's our goal. No

> surgery. So many children have had to have surgery and made the sacrifice

> before casting was an option, that I become so overwhelmed with emotion

> just thinking about them.

>

> I sometimes wish I had a crystal ball to see the future and just know that

> it's all going to turn out okay. We all want to know. I am so grateful for

> all the work has done and all that her daughter has had to endure

> for my son to have a chance. A chance to beat this without surgery. I

> think of her often when I get impatient with how long this takes

> sometimes. I just felt that I should post to encourage other parents that

> this doesn't happen immediately. One cast and done would be awesome, but

> it doesn't work that way. Don't get discouraged if one year turns into 2

> with casting. Be encouraged! Because it means it's still working! I have a

> happy, healthy and otherwise completely typical little boy who loves the

> wii, loves to fight with his brother and hates green beans. Other than

> getting his cast wet, we have not come across anything that he cannot do

> like other children. His biggest complaint recently with his cast is that

> he can't have a black

> one (like Darth Vader!) :-)

>

> Sorry this is so long. It's just been on my heart to offer this

> encouragement to other families. Blessings and prayers to all for good

> numbers and great correction in your child's journey!

>

> Crystal Garthwaite

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