Guest guest Posted October 3, 2003 Report Share Posted October 3, 2003 hi everyone, I have not put a message on for a while, but i was wondering if anyone can give me some advice.I was diagnosed in 2001 after having surgery, with ra (my mum also has ra), recently my rhuemy stopped my plaquenil and sulsfazine so i could go on a drug trial, for mabethra. I am now only tking prednisone 8mg and vioxx and methatrexate. I have never had a blood test come back abnormal my esr is always normal as is my crp, i had a rf test in 2001 which came back negative. to go on this trial i had to have a high esr or crp so my rhuemy suggest i didnt take prednisone for 2 days before blood test (i have been in agony ever since) which i did and of course as usual my bloods came back normal. i have had genetic testing done and they found i think its dl-27. i have decided to change rhuemy's as i dont think he has my best interests at heart only his research. all my xrays etc show no changes, but i can see them in my hands and feet. i have had cortisone injections in my hand for what my rhuemy thinks is carpal tunnel even thoug the nerve test it is not, in my shoulder twice and twice in my hip which did not work. if anyone has any advice for me it would be great, i am starting to feel as though maybe i have been misdiagnosed even though i know in heart i have this rotten disease as it is following how my mum started with it.please help!!!!!! Quote Link to comment Share on other sites More sharing options...
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