Re: Help please!

[Guest guest]

Many children with apraxia of speech are " very verbal, " but difficult to

understand. Like all children, some are quieter and more reserved,

while others are outgoing and chatty. A child that loves to talk (or

sing!) or is even tempered can still have apraxia of speech.

I agree with others that your SLP should be knowledgeable about apraxia

of speech in order to provide appropriate therapy. An SLP who is

knowledgeable and has experience with this disorder can diagnose it.

Is your SLP willing to learn about apraxia of speech in children in

order to help Braden? You may give him or her my name and email, and

I'd be happy to provide references and support.

Deborah L. Van den Beemt, MS, CCC-SLP

in NH/VT

private email: van@...

> Date: Fri, 19 Oct 2001 11:18:26 -0000

> From: dabbzb@...

> Subject: Help Please!!

>

> I posted a message about a week ago and I haven't gotten any

> responses. I am sorry if anything I said offended you, butI am

> seriously looking for help for my son. Braden is 5 years old and he

> just began kindergarten this year. I have a tentative diagnosis of

> verbal apraxia from three SLPs. However, none of them have ever

> treated someone with apraxia before. His current SLP asked me who

> diagnoses apraxia. I need to know what I need to look for in a SLP. I

> was advised to get him evaluated again. In some ways, he fits the

> apraxia definition to a tee. However, the more I read I'm not sure.

> Braden has always been very verbal just not understandable. He is

> also very even tempered. I need any help I can get and I appreciate

> any imput anyone might have.

[Guest guest]

HI M.E.,

Just a thought. You may have more experience at this than I know,

but I'm wondering if possibly more could be going on than GB trouble.

Maybe, just for peace of mind a cat-scan (chest with contrast)

could be in order. Just a thought when you said, " achiness

under my right rib cage. " Could be nothing - could be serious.

hmp

In a message dated 7/4/02 2:22:24 PM Eastern Daylight Time,

MENJ@... writes:

> Background information:

>

> I'd appreciate any help to get my loose bowel movements and achiness

> under my right rib cage under control which have continued for the

> past 7 days. It was tolerable in the beginning but I can ignore it

> no longer and it confirms my suspicions from earlier this year that

> I have a gall bladder problem since I cannot tolerate higher fat

> foods (e.g., red meat). I have already read all the hyperlinks

> posted under Bookmarks and started scanning the postings here plus

> did my own research on the internet (e.g., the Mercola site). Two

> years ago, an ultrasound did not reveal any gallstones. My liver

> enzyme levels were OK in January except my bun/creatinine ratio was

> a little high (but maybe that's for your kidneys).

>

> 2 Questions:

>

> 1. What immediate tips do you folks have to reduce the loose bowel

> movements and annoying pain so I can regain some control over this?

> I don't think I could mentally or physically handle a cleanse right

> now. So far, I have cut back on saturated fats, taken some taurine,

> will start taking phosphatidylcholine (which contains lecithin)

> starting later today, eat an apple for a snack and keep drinking

> more water. I also am going to stick to the diet recommendations

> when I make my meals today although I am pretty much following them

> already.

>

> 2. Are there things that I can get or do with a traditional doctor

> that may be useful as I help myself other than checking my blood

> levels and getting another ultrasound done? Don't worry --- I am

> not getting this gall bladder removed without trying very hard on my

> own part but maybe, I can " use " the doctor to my benefit!!

>

> With gratitude and Happy 4th to you all,

> M.E.

>

[Guest guest]

> From: " memorrisnj " <MENJ@...>

> 1. What immediate tips do you folks have to reduce the loose bowel

movements and annoying pain so I can regain some control over this?

Try the compressed cleansing tablets like " colon clenz " , " para cleanse " and so

on.

Eat raw grated salads. Read the books by Dr. Norman .

Stop eating fatty foods. Do whatever else it takes to take good care of

yourself.

> 2. Are there things that I can get or do with a traditional doctor that may

be useful

No.

[Guest guest]

ME, It is generally accepted that Drs are not very helpful with

encouraging you to keep your gallbladder once you have been diagnosed

with gallstones. 99% will recommend you have it out, period. There

have been some exceptions here, however. I would highly recommend

going through the last month's archives and reading Dale's

experience. He has detailed helpful information and Dale if you are

reading this, what kind of lecithin did you say you take? Dawn

>

> 2 Questions:

>

> 1. What immediate tips do you folks have to reduce the loose bowel

> movements and annoying pain so I can regain some control over this?

> I don't think I could mentally or physically handle a cleanse right

> now. So far, I have cut back on saturated fats, taken some

taurine,

> will start taking phosphatidylcholine (which contains lecithin)

> starting later today, eat an apple for a snack and keep drinking

> more water. I also am going to stick to the diet recommendations

> when I make my meals today although I am pretty much following them

> already.

>

> 2. Are there things that I can get or do with a traditional doctor

> that may be useful as I help myself other than checking my blood

> levels and getting another ultrasound done? Don't worry --- I am

> not getting this gall bladder removed without trying very hard on

my

> own part but maybe, I can " use " the doctor to my benefit!!

>

> With gratitude and Happy 4th to you all,

> M.E.

[Guest guest]

<<<<<<<<<<<<<<<<<<<<<<<

Dale if you are

reading this, what kind of lecithin did you say you take? Dawn

<<<<<<<<<<<<<<<<<<<<<<

I'm just using a plain old soy type. The brand I've got at the present time is

Schiff's. It would also behoove someone to also get taurine too and have around

2400 mg of lecithin with 500 mg of taurine. Taurine is made naturally by the

body, in most cases, but can be having a bit of difficulty in being made so it's

really nothing more than a make sure you've got it type of thing.

YOu can read up on it at Dr. Cabot's site;

http://www.liverdoctor.com/toneplus.shtml

Dale

[Guest guest]

I had a similar incident a few weeks ago, but it was in the forearm

area due to wrist joint inflamation. I can understand when you say

excruciating - regular pain relievers were no help at all and was

taking orudus for the inflamtion for RA already. i wasn't able to

sleep, lie down, only relief i got was to lye on my stomach and

dangle that arm over the side of the bed - why that helped I don't

know. The only thing that helped was ice and tylenol #3 per

instructions from the doc.

Hope you are doing better.

Diane

Rheumatoid Arthritis , " halya2002 " <hchester@w...>

wrote:

> I have developed a left

> shoulder-down the arm throbbing pain, but it is mainly in my

> arm/shoulder

> socket. It's excruciating. I've never had it before. I've been

> taking strong

> painkillers overnight (with minimal effect), but still have a few

> hours to go before I can get to

> the doctor. I have had arthritis inflammation in my toes in recent

> months. Is this what rheumatoid arthritis pain i like and what can

I

> do to alleviate it?

[Guest guest]

Diane

Thanks for your response. I was given a non-steroid injection at

the hospital and have been taking Panadeine Forte and Diclophenac,

but like you, the best relief is from ice.

I got the results of alood test yesterday indicating that I am

positive for ANA which indicates a collagen disorder, so now the

doctor will have more to go on re the inflamations I keep getting--

feet, hands and now my shoulder.

Helena

> > I have developed a left

> > shoulder-down the arm throbbing pain, but it is mainly in my

> > arm/shoulder

> > socket. It's excruciating. I've never had it before. I've been

> > taking strong

> > painkillers overnight (with minimal effect), but still have a

few

> > hours to go before I can get to

> > the doctor. I have had arthritis inflammation in my toes in

recent

> > months. Is this what rheumatoid arthritis pain i like and what

can

> I

> > do to alleviate it?

[Guest guest]

I am no expert but I don't know how ANA (anti nuclear antibody)and

Collagen are related. I probably don't have a full understanding of

what collagen does but ANA is usually an indicator for connective

tissue disorders.

Based on this link http://www.4adi.com/kits/hormones/3200ANA.html

here is what is said:

Anti-Nuclear Antibodies (ANA) are autoantibodies which binds to

cellular nuclear antigens. The frequency of ANA positivity in

various rheumatic diseases has been reported for SLE, rheumatoid

arthritis (RA), progressive systemic sclerosis (PSS), polymyositis

(PM), dermatomyositis (DM), mixed connective tissue diseases, drug-

induced SLE, and Sjogren's syndrome (SS). Most of these studies are

based on tedious immunofluorescence assay.

Take Care,

Miriam

> > > I have developed a left

> > > shoulder-down the arm throbbing pain, but it is mainly in my

> > > arm/shoulder

> > > socket. It's excruciating. I've never had it before. I've been

> > > taking strong

> > > painkillers overnight (with minimal effect), but still have a

> few

> > > hours to go before I can get to

> > > the doctor. I have had arthritis inflammation in my toes in

> recent

> > > months. Is this what rheumatoid arthritis pain i like and what

> can

> > I

> > > do to alleviate it?

[Guest guest]

Thanks for your response Miriam. I am feeling a lot better now,

especially if I don't move my arm--I am almost pain free then. I

have been getting in a hot bath three times a day, and rubbing my

shoulder with ice after I soak it in the hot water. I alternate the

hot and cold and that has worked miracles in terms of pain relief. I

have not had to take any anti-inflammatory or pain relief medication

for about 10 hours today. I was in pain even with it every three

hours before.

Regards

Helena

> > > > I have developed a left

> > > > shoulder-down the arm throbbing pain, but it is mainly in my

> > > > arm/shoulder

> > > > socket. It's excruciating. I've never had it before. I've

been

> > > > taking strong

> > > > painkillers overnight (with minimal effect), but still have

a

> > few

> > > > hours to go before I can get to

> > > > the doctor. I have had arthritis inflammation in my toes in

> > recent

> > > > months. Is this what rheumatoid arthritis pain i like and

what

> > can

> > > I

> > > > do to alleviate it?

[Guest guest]

Lan,

Unfortunately, this happens to a lot of people.

My advice to you would be to get evaluations done by experts in the field i..e

BCBA, neurologist etc.

Present this information to them. If they are not accomodating, then you will

need a good attorney who can defend your case.

If you do not know any attorneys, you can call Cosac for some recommendations.

Join parent support groups and you can learn from other parents.

Lan Gao wrote:

> We just moved to a new school district. We used in Deptford,NJ.

Now we moved to Voorhees, NJ. We had IEP in our old school district. My son is

PDD. He has been fully mainstreamed in a regular class with an one to one aide

since 1st grade. He also has 8 hours after school tutor hours which paid by

township. Now the new school doesn't want to give any of this service. They

doesn't want to give one-to opne aide and doesn't want to give in-home service.

They just want to fit my son in their existing pull out program which is not one

to one. They claimed to change my son's IEP to cut all these programs. What can

I do to protect my son's right? Do they have right to change my son's IEP in the

middle of year?

> Any suggestions are appreciated.

> Lan

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[Guest guest]

Hi Lan, and others,

When it's our job, as ABAers, or whatever... to simplify, for

understanding more, of more meaningful behavior, thereof, it may be

misconstrued as an abuse to ask us to, elaborate? .. . Find out

what's " really " the matter, thereof, and act upon it?

" Much " of my sense of how we get screwed around and how to deal with

it.. .

Mike,

I ABA

ABA for Understanding .

Yes, I know. Others can " elaborate " better, of " not " understanding

more, of this, of Us? .. . A choice, for " you, " as an Individual, of

and for " Indiviudalized " education and justice, thereof.

It's when others of " our " family are not up to the pressures

associated with Communication that we find our greatest limitation?

Justice, like education, begins at home, thereof.. .

You have to get " more " people on your side, Lan, singing the same

song, from the same page, basically, to get the Individualized

attention your child-student needs and deserves, for what you seek,

thereof.

I had (and still have) the same problem/s as you in that respect.

It's quit amazing how people can get to our " families, " and

our " children, " especially, in thwarting our every " Individualizing "

effort, thereof? Conscript your family and extended family for the

real battle that confronts you and Us? There you go, I more than

hope.. .

On " my " mission, of Understanding More, thereof.. The feeling,

of " The " feeling/s, I " all-ways " strive to achieve, thereof

You have some choice/s, of answers, of The answer, now, I Feel as

understand.. . Sorry if that sounds to " poetic " for you. Take

what " you " need and can understand from it, is the basic principle of

Life

P.S. I had one of the best experts money could buy in the whole

nation who couldn't do better than that, of my advice. (Big bucks...

And arbitration/litigation yields next-to-nothing where " I'm " from.

One win for 10 losses? Roughly. We may not have won " anything " ) The

school is an authority unto itself, thereof, of a/the political world

we are of (I have found;) and will listen to " you " as well as anyone

else, perhaps more so, even, of your being the parent, taxpayer and

expert of the child. Expertise (with authority) doesn't come better

than that I have found, for my self

It helps to have the whole family on board in that respect. Easier

said than done, I know, but it should be " simpler " now, to do? .. .

Use other experts where " you " need them? .. . Communicate, for

understanding, (More;) for " your " self and children as Individuals,

thereof, for the help you need, thereof? .. . You can do it.

I was a " good " start your coming here in that respect.

>

> We just moved to a new school district. We used in Deptford,NJ. Now

we moved to Voorhees, NJ. We had IEP in our old school district. My

son is PDD. He has been fully mainstreamed in a regular class with an

one to one aide since 1st grade. He also has 8 hours after school

tutor hours which paid by township. Now the new school doesn't want

to give any of this service. They doesn't want to give one-to opne

aide and doesn't want to give in-home service. They just want to fit

my son in their existing pull out program which is not one to one.

They claimed to change my son's IEP to cut all these programs. What

can I do to protect my son's right? Do they have right to change my

son's IEP in the middle of year?

> Any suggestions are appreciated.

>

> Lan

>

>

>

>

>

______________________________________________________________________

______________

> Be a better friend, newshound, and

> know-it-all with Mobile. Try it now.

http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

>