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lazy /faking/malingering

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Hello everyone,

Me too! People only see me when I am not so flared, and of course one often looks quite healthy even with rosy cheeks when having a flare.

It is so tough having to tell people over and over "I can't do .... . when perhaps the next month you can.

I'll never forget one incident which happened while I could still work. I was giving a paper and people came up to shake hands afterwards ..... what do you do?

One woman - a stranger - came up to me and said "I see you have RA!"

I nearly burst out crying there and then as she went on to say "I could tell from the way you held your hands. My father had RA and it was always difficult, he looked a picture of health , and people did not believe there was anything wrong with him - that's why they call it the hidden disease"

I later realised that even my doctor had never seen my when the RA was bad, because I could not get to the surgery - i could barely get to the bathroom!

I have even thought maybe if I had a wheelchair and could get out when I was bad in the wheelchair, then perhaps people would begin to realise this is a serious disease.

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