CVID Diagnosis

[Guest guest]

I first want to thank those that supported me when I first was asking

about parents who were diagnosed after their children with PI.

Yesterday, after many lab workups they diagnosed me with CVID. I will

be starting IVIG at UCLA on April 6th. They are going to do it in the

pediatrics department with my 10 year old son. He keeps reassuring me

that he will hold my hand when they start the IV (I am not a lover of

needles).

Thanks again for the information and support I received from the

members of this board when I first started the testing awhile back.

[Guest guest]

Hi, . At last, you have a diagnosis and will get the treatment that you

need. I hope all goes smoothly on the 6th. You are in great hands at UCLA.

And, don't hesitate to solicit experiences with SCIG when you are stable and

ready to consider.

Just wondering...does your lab profile match your son's or was there something

different that led the docs to CVID?

Best wishes to you and Ian,

Your neighbor, (mom to CVIDer)

ianrileysfamily <_Riley@...> wrote:

I first want to thank those that supported me when I first was asking

about parents who were diagnosed after their children with PI.

Yesterday, after many lab workups they diagnosed me with CVID. I will

be starting IVIG at UCLA on April 6th. They are going to do it in the

pediatrics department with my 10 year old son. He keeps reassuring me

that he will hold my hand when they start the IV (I am not a lover of

needles).

Thanks again for the information and support I received from the

members of this board when I first started the testing awhile back.

This forum is open to parents and caregivers of children diagnosed with a

Primary Immune Deficiency. Opinions or medical advice stated here are the sole

responsibility of the poster and should not be taken as professional advice.

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