Hello from 's mom

[Guest guest]

I know it has been way to long since you all have heard from me, but the

trouble from last year has come right on back the same children that has

caused such misery has returned to their nasty ways and in my oppion

the vice principle has showed some bias ways also.It hurts to see a grown

man choose to pin my child as a trouble maker. All is doing is showing

the kids he won't take their crap. I've taught all 5 of my sons that this

world is made up of nice and not so nice and 99% people pick on people cause

they don't feel good about themselves. I also told them I know its hard to

turn and walk away, but what is a child to do when he knows that an adult

doesn't believe anything???

Diane.........Mommy, Taxi, cheerleader,friend

peacemaker, banker, cook, too 16 (aka ny)

15, 13, 11 (aka Jake),

and 9 (aka Josh) and a special Auntie nanny to Kayleigh 7 months

GOD BLESS AMERICA (fixed it linda lol)

[Guest guest]

Sue,

Is this your first post?? Welcome to this awesome place.

Cutting pred from 10mg to 5mg -- YIKES. You will hear many opinions

from everyone here, but one thing I think we all agree on is that

once you are getting below 10mg, the taper must be MUCH slower. You

(the rheumy) have made a 50% cut in her dose. I think you should

call her rheumy right away and talk about the taper and maybe start

reducing by 1mg per week (10mg to 9mg) or maybe by 2.5mg (10mg to

7.5mg) for a couple weeks, then go by 1mg per week once you hit 5mg.

You say that has been dealing with this since Nov, so I

assume she's been on pred. for about 6 months now?? Probably at the

30mg - 35mg level for a while??? Tell us more specifically and

you'll get more advice from others.

I can tell you our story briefly for comparison with the pred and

MTX. My son was 7 and started on pred last Sept and it quickly

increased to 35mg. He was on 35 mg for about 3 1/2 months and we

started to taper. At first dropping by 5mg every few weeks (about

and 8% dosage drop) til we got down to about 15mg, then it's been

dropping by 2.5mg til we got to 5mg which is where we are today. I

am now supposed to start dropping 1 mg every couple to few weeks.

He started on oral MTX, then injectible into juice, then the

injections started in early Feb. The injections have worked wonders.

I hope this helps and call your rheumy!

Stacia and Hunter,8,systemic,iritis

> I joined this group about 2 weeks ago after finding it while

> searching for info on JRA on the internet. My daughter has been

> struggling since November and has finally received a diagnosis of

JRA

> as well as Fibromyalgia. She just turned 11 last month and is in

the

> fifth grade. She has pretty much missed school since the beginning

of

> February and had arthroscopic surgery on both her knees to rule

out

> any repairable cause of her knee pain as well as to do a biopsy.

She

> has knee, ankle, wrist, toe and finger pain. Friday I gave her the

> first MTX injection. She is also on prednisone, piroxicam and

folic

> acid. The rheumy had me cut her prednisone from 10 to 5 mg. a day

on

> Saturday. She is to take the 5mg. for a week then go down by one

mg.

> a week until she is off. Today was the second day of only 5 mg and

> she had a terrible day. Her pain has increased and one knee is

> considerably swollen. I'm wondering if this is a common reaction

to

> the reduction in prednisone? Is there a light at the end of the

> tunnel as far as school absences? She is in a school for gifted

> children and so far we have been able to keep up with her work

from

> home. She changes classes six times a day and has to walk pretty

far

> to get from class to class which causes her quite a bit of pain.

Any

> hints that anyone has for me would be greatly appreciated. Thanks.

> Sue, Mom of

[Guest guest]

Sue,

Stacia, is right, that IS a big drop. My son, was put on

10mg of prednisone back in January ( along with MTX) his dose was 5mg

2x a day. We 1st started off tapering down the PM dose which we

finally did. We just started on the AM dose and just taking 1mg away

( going from 5mg to 4mg) was too much and has had increased

pain in his knees. The plan was to go down 1mg every 2 weeks, but the

rheumy has now amended that to 1/2mg every month. its going to take

the rest of the year to get Nick off the prednisone (

The doctor also increased his MTX from 10mg to 15mg so i hope that

starts to help soon.

I would talk to your rheumy about such a large drop if things dont

start to settle down soon.

Hugs Helen and (6,systemic)

> > I joined this group about 2 weeks ago after finding it while

> > searching for info on JRA on the internet. My daughter has been

> > struggling since November and has finally received a diagnosis of

> JRA

> > as well as Fibromyalgia. She just turned 11 last month and is in

> the

> > fifth grade. She has pretty much missed school since the

beginning

> of

> > February and had arthroscopic surgery on both her knees to rule

> out

> > any repairable cause of her knee pain as well as to do a biopsy.

> She

> > has knee, ankle, wrist, toe and finger pain. Friday I gave her

the

> > first MTX injection. She is also on prednisone, piroxicam and

> folic

> > acid. The rheumy had me cut her prednisone from 10 to 5 mg. a day

> on

> > Saturday. She is to take the 5mg. for a week then go down by one

> mg.

> > a week until she is off. Today was the second day of only 5 mg

and

> > she had a terrible day. Her pain has increased and one knee is

> > considerably swollen. I'm wondering if this is a common reaction

> to

> > the reduction in prednisone? Is there a light at the end of the

> > tunnel as far as school absences? She is in a school for gifted

> > children and so far we have been able to keep up with her work

> from

> > home. She changes classes six times a day and has to walk pretty

> far

> > to get from class to class which causes her quite a bit of pain.

> Any

> > hints that anyone has for me would be greatly appreciated.

Thanks.

> > Sue, Mom of

[Guest guest]

Hi Sue... Welcome to this group... My daughter is 2 and is on 30 mg/day of prednisone. We tried to taper her last month by administering the whole dosage in the morning versus splitting it into 2 daily dosages. After one day her joints were so swollen and she couldn't move until well into the late morning... We then upped her dosage slightly and will try the taper again next week after we see her rheumy...

Alia and Caroline, age 2, poly and uveitis

-----Original Message-----From: scd1129 [mailto:scd11291@...]Sent: Sunday, April 18, 2004 11:17 PM Subject: Hello from 's MomI joined this group about 2 weeks ago after finding it while searching for info on JRA on the internet. My daughter has been struggling since November and has finally received a diagnosis of JRA as well as Fibromyalgia. She just turned 11 last month and is in the fifth grade. She has pretty much missed school since the beginning of February and had arthroscopic surgery on both her knees to rule out any repairable cause of her knee pain as well as to do a biopsy. She has knee, ankle, wrist, toe and finger pain. Friday I gave her the first MTX injection. She is also on prednisone, piroxicam and folic acid. The rheumy had me cut her prednisone from 10 to 5 mg. a day on Saturday. She is to take the 5mg. for a week then go down by one mg. a week until she is off. Today was the second day of only 5 mg and she had a terrible day. Her pain has increased and one knee is considerably swollen. I'm wondering if this is a common reaction to the reduction in prednisone? Is there a light at the end of the tunnel as far as school absences? She is in a school for gifted children and so far we have been able to keep up with her work from home. She changes classes six times a day and has to walk pretty far to get from class to class which causes her quite a bit of pain. Any hints that anyone has for me would be greatly appreciated. Thanks. Sue, Mom of