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to those of you who have been doing this longer

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About 2 or 3 years into IVIG, my visiting nurse called to confirm our

appointment. I was like, " Wow, your coming again already. " She said, " Wow,

you are healing " . She said you know you are healing when you don't eat,

sleep and breath CVID issues. The day came. It is always there and

something I worry about always, but it has become " our normal " . The first

couple of years are the worst...especially the very beginning - it's a

whirlwind! It's a crash course in immunology. But over time, I have come

to terms with the cards we have been dealt. We still have bad days and bad

scares and why me's. But as a whole, it does get better. Hang in there and

we are lucky to have found this group and each other to share with! .

Kim, Mom to 9 - CVID

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