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,

The monoclonal antibodies study uses a " control " (a person with a " normal "

functioning immune system) and compares a patient's immune response to the

" control " . This helps determine whether the patient's immune function

provides adequate protection. Unfortunately, these function tests aren't

available everywhere. However, blood can be shipped via FedEx to certified

labs in the US. The lymphocyte count is one part of the CBC lab; a manual

(non-automated) differential provides the most accurate count. The

lymphocyte count is multiplied by the red blood cell (RBC) count to

determine the absolute lymphocyte count. Norms differ as to age, but can

often be one of the first markers of immune deficiency. Ana's RSV, bouts

with pneumonia, and antibiotic struggles sounds similar to my son's story.

Has she had an x-ray to confirm the pneumonia is gone? By the way, children

with an immune deficiency, even though they may take in a good quantity of

food, may not be able to absorb the nutrients provided. Many of them have

trouble with gastro esophageal reflux (GERD) and vomiting. Does your

daughter have a problem with thrush/candida in her mouth or diaper area?

Has her oxygen saturation level ever been checked? A pulse-ox would simply

be placed on her finger or toe to check the level while visiting the doctor.

I'm so grateful for this group and others like it who have helped and

continue to help me ask the right questions to get the best care for my son.

That's what it's all about. Our children are so precious.

Antipov

mother to , 4 years old, X-SCID, 2 BMTS @ Duke, normal T cell

function, SCIG weekly

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