Guest guest Posted March 8, 2006 Report Share Posted March 8, 2006 The first thing that comes to mind is that there is a lack of O2 when they are in the middle of a flare. As a result of that lack there is muscle spasms becuase they aren't getting enough O2. I don't htink that I have experienced it first hand but that would be the logical thing in my opinion. Cassie osdbmom wrote: > Does anyone else whose kid has asthma develop horrific leg pains > during an asthma flare? I dont know what the relation there would be, > but it sems like the worse the asthma, the worse the leg pains, and I > mean, waking up in the night and screaming for hours leg pains, the > child cannot walk at all when they occur. Before we knew she had > asthma, she did this too, but she has been diagnosed for nearly 2 yrs, > and I am noticing that the majority of her really bad leg cramps are > going along with her dropping peak flows and asthma flares. just > curiousity!!vk > > > > > > This forum is open to parents and caregivers of children diagnosed > with a Primary Immune Deficiency. Opinions or medical advice stated > here are the sole responsibility of the poster and should not be taken > as professional advice. > > To unsubscribe -unsubscribegroups (DOT) > To search group archives go to: > /messages > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2006 Report Share Posted March 9, 2006 Ok, I have to pipe in because this sounds too familiar. Ana started doing the same thing around five months of age. We have called it night terrors, because I didn't know what else it could be. She wakes up out of nowhere and flips out. She screams and arches her back and pushes away from me. Nothing helps. It can last ten minutes or two hours. It is horrible and nothing helps. It comes in spurts but I would say it happens at least once a week. And now that she is getting older I am able to tell more that she IS awake and just in pain. But she still can't talk and it kills me to see her scream until she passes out. Then sometimes she lays there and moans in her sleep for another half hour or so. I usually end up holding her the rest of the night so she can get some rest. There is a history of RA in my family, I am actually going to the doc in a couple weeks for similar problems.... Could RA really start this young? And would it make her tummy hurt too? Are the autoimmune problems that can come with PID tied more to the T or B side of the problems? I will talk to the doctor today when we go in for her ear check...another infection. Ana 13 mo, IgG def. FTT, atopic, ??? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2006 Report Share Posted March 13, 2006 In a message dated 3/12/2006 6:18:08 AM Pacific Standard Time, rn4premies@... writes: I also have RLS, what are you taking for it, I must have missed that post , It's a friend of mine--he is taking the Malaria medication for it--sorry I can't remember the name. It's related to Plaquenil. Sandi, Mom to --age 13--CVID Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2006 Report Share Posted March 14, 2006 In a message dated 3/13/2006 6:08:45 PM Central Standard Time, sassykay59@... writes: > Malaria medication It's Quinine. Or maybe Quinine Sulfate? I took it in college for RLS. Funny story (well, it's funny now). Doc gave me script for stronger dosage than in the OTC (Legatrin, don't know if they still make it). I was having HORRIBLE symptoms and rushed to take my med, out of habit took TWO pills, because that's the normal dose on the OTC. Well, the prescription he gave me was already a double dose. So I ended up sort of OD'ing on Quinine!! Didn't hurt me, just felt bad, could tell something was wrong -- buzzing in ears, dizzy and yuck. Health services told me it was OD. My mom's quote was the best: " How in the h**l did you overdose on malaria medicine? " My RLS resolved... seemed like the thing that helped it most was using a stationary bike daily. (mom to , age 7, dairy intolerant-related GERD -- currently has polysaccharide antibody def, previously had transient IgG, IgA, t-cell & other defs... and also to Kate, age 3!, more dairy intolerant but very healthy!) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2006 Report Share Posted March 14, 2006 Isnt that crazy? ok, here is my dumb story. in the fall, I had all 4 kids flaring with asthma at the same time, which meant round the clock every 4 hr treatments, plus my asthma was flaring. ok, my kids take like, 50 meds a day for a normal time add some for sick times. So I was rushing to get the kids out the door to school in the morning and the little one to my moms so I could go to Donovans school field trip...and doling out the meds. I make a little stack near everyones juice cup. Then, I got out my antibiotic for bronchitis and sinus infection I was taking, and sat that by my drink. then I get out the kids foradil(if you dont have asthma kids, foradil is a dry inhale powdered bronchodilator type thing, and we open it up and dump it in neb treatments)and I picked up my drink and walked into the living room and popped the pills in my hand into my mouth and as SOON as the drink hit my throat I realized those were NOT my antibiotics, but the kids foradil!!Four of them!!That stuff is supposed to be INHALED, not swallowed!!and I just stood there, thinking, WHAT do I do? what to do, indeed? drink two 20 oz mountain dews and call it good. I had to stop by the pharmacy later that day and the pharmacist assured me if anything was going to happen, it would have happened by now. I felt so dumb even admitting I did it. The pharm. guys eyes got so big...and I could tell he was stifling a laugh. valarie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2006 Report Share Posted March 19, 2006 In a message dated 3/15/2006 7:00:32 AM Pacific Standard Time, bunneegirl@... writes: hmmmm, for a mom, that sounds like a vacation! , You forgot the part where Bri was 11 or 12 and in and out of my room at the hospital!! I finally sent him home to the neighbors to get some rest. Then, my landlord showed up to " keep my company " which roughly translated meant: he was worried! I was so glad to go home. Sandi, Mom to --age 13--CVID Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.