Re: subcutaneous site inflammation/irritation

[Guest guest]

has had several local reactions but I couldn't tell you if they are

product/tape/EMLA related. He has only ever been infused with Carimune NF

12%. Coming up on 2 years now.

Amy,

mom to , 3 years old, CVID

> For those patients who have experienced irritated or inflamed skin at

> the site of subcutaneous needles, what product were you infusing?

[Guest guest]

Gammaguard Liquid

~Pattie Curran~

Piedmont Triad, NC

Elbridge Gerry--signer of the Declaration of Independence, Govenor of

Massachusetts and Vice President of the United States under

Madison....

Ever wonder where the term gerrymandering comes from? While serving as

governor of Massachusetts from 1810 to 1812, Elbridge Gerry helped enact a

law dividing the Bay State into political districts favorable to his own

party. This resulted in some odd shaped districts. One district looked like

a salamander, someone said. Someone else joked that it looked more like a

" gerrymander, " making a play on the governor's name. To this day, the

practice of drawing boundary lines to favor a political party or group is

called gerrymandering.

_____

From: [mailto: ] On Behalf Of

Ursula Holleman

Sent: Wednesday, April 05, 2006 9:37 PM

Subject: [Norton AntiSpam] subcutaneous site

inflammation/irritation

For those patients who have experienced irritated or inflamed skin at

the site of subcutaneous needles, what product were you infusing?

Thanks

Ursula - moderator

This forum is open to parents and caregivers of children diagnosed with a

Primary Immune Deficiency. Opinions or medical advice stated here are the

sole responsibility of the poster and should not be taken as professional

advice.

To unsubscribe -unsubscribegroups (DOT)

To search group archives go to:

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[Guest guest]

My boys' site reactions are different than their adhesive reactions--- the

site reaction is bright red, itches and has a blotchy shape (if I had to

describe it) their adhesive reactions are the exact shape and size of the

adhesive-- On J the one that had a hole in the middle? The hole was normal

skin and the rest was red-another reason we know it is the adhesive. The

site reactions go away with benadryl and over time.the adhesive reactions my

boys have last for days & weeks-and some turn to scabs-it is almost like a

chemical burn, if I had to describe their adhesive reactions.

~Pattie Curran~

Piedmont Triad, NC

Elbridge Gerry--signer of the Declaration of Independence, Govenor of

Massachusetts and Vice President of the United States under

Madison....

Ever wonder where the term gerrymandering comes from? While serving as

governor of Massachusetts from 1810 to 1812, Elbridge Gerry helped enact a

law dividing the Bay State into political districts favorable to his own

party. This resulted in some odd shaped districts. One district looked like

a salamander, someone said. Someone else joked that it looked more like a

" gerrymander, " making a play on the governor's name. To this day, the

practice of drawing boundary lines to favor a political party or group is

called gerrymandering.

_____

From: [mailto: ] On Behalf Of

Amy Bolich

Sent: Wednesday, April 05, 2006 10:48 PM

Subject: [Norton AntiSpam] Re: subcutaneous site

inflammation/irritation

has had several local reactions but I couldn't tell you if they are

product/tape/EMLA related. He has only ever been infused with Carimune NF

12%. Coming up on 2 years now.

Amy,

mom to , 3 years old, CVID

> For those patients who have experienced irritated or inflamed skin at

> the site of subcutaneous needles, what product were you infusing?

This forum is open to parents and caregivers of children diagnosed with a

Primary Immune Deficiency. Opinions or medical advice stated here are the

sole responsibility of the poster and should not be taken as professional

advice.

To unsubscribe -unsubscribegroups (DOT)

To search group archives go to:

/messages

[Guest guest]

My boys' site reactions are different than their adhesive reactions--- the

site reaction is bright red, itches and has a blotchy shape (if I had to

describe it) their adhesive reactions are the exact shape and size of the

adhesive-- On J the one that had a hole in the middle? The hole was normal

skin and the rest was red-another reason we know it is the adhesive. The

site reactions go away with benadryl and over time.the adhesive reactions my

boys have last for days & weeks-and some turn to scabs-it is almost like a

chemical burn, if I had to describe their adhesive reactions.

~Pattie Curran~

Piedmont Triad, NC

Elbridge Gerry--signer of the Declaration of Independence, Govenor of

Massachusetts and Vice President of the United States under

Madison....

Ever wonder where the term gerrymandering comes from? While serving as

governor of Massachusetts from 1810 to 1812, Elbridge Gerry helped enact a

law dividing the Bay State into political districts favorable to his own

party. This resulted in some odd shaped districts. One district looked like

a salamander, someone said. Someone else joked that it looked more like a

" gerrymander, " making a play on the governor's name. To this day, the

practice of drawing boundary lines to favor a political party or group is

called gerrymandering.

_____

From: [mailto: ] On Behalf Of

Amy Bolich

Sent: Wednesday, April 05, 2006 10:48 PM

Subject: [Norton AntiSpam] Re: subcutaneous site

inflammation/irritation

has had several local reactions but I couldn't tell you if they are

product/tape/EMLA related. He has only ever been infused with Carimune NF

12%. Coming up on 2 years now.

Amy,

mom to , 3 years old, CVID

> For those patients who have experienced irritated or inflamed skin at

> the site of subcutaneous needles, what product were you infusing?

This forum is open to parents and caregivers of children diagnosed with a

Primary Immune Deficiency. Opinions or medical advice stated here are the

sole responsibility of the poster and should not be taken as professional

advice.

To unsubscribe -unsubscribegroups (DOT)

To search group archives go to:

/messages

[Guest guest]

I already replied to this one-but meant to ask if Macey was having site

reactions? Or are you just surveying/polling to see how many folks get

reactions and to what brands?

~Pattie Curran~

Piedmont Triad, NC

Elbridge Gerry--signer of the Declaration of Independence, Govenor of

Massachusetts and Vice President of the United States under

Madison....

Ever wonder where the term gerrymandering comes from? While serving as

governor of Massachusetts from 1810 to 1812, Elbridge Gerry helped enact a

law dividing the Bay State into political districts favorable to his own

party. This resulted in some odd shaped districts. One district looked like

a salamander, someone said. Someone else joked that it looked more like a

" gerrymander, " making a play on the governor's name. To this day, the

practice of drawing boundary lines to favor a political party or group is

called gerrymandering.

_____

From: [mailto: ] On Behalf Of

Ursula Holleman

Sent: Wednesday, April 05, 2006 9:37 PM

Subject: [Norton AntiSpam] subcutaneous site

inflammation/irritation

For those patients who have experienced irritated or inflamed skin at

the site of subcutaneous needles, what product were you infusing?

Thanks

Ursula - moderator

This forum is open to parents and caregivers of children diagnosed with a

Primary Immune Deficiency. Opinions or medical advice stated here are the

sole responsibility of the poster and should not be taken as professional

advice.

To unsubscribe -unsubscribegroups (DOT)

To search group archives go to:

/messages

[Guest guest]

We were using Carimune, I often wondered if that specific product was the

cause of the pain and swelling. I believe that Carimune contains a good

amount of sucrose and I've wondered if that was behind our problems.

Doesn't matter, Conner refuses to try it again. I think now he doesn't like

the idea that he would have to go back to once a week, instead of every 3-4

weeks.

Mom to Conner (11, possible combined immune deficiency, Asperger's, mild CP,

partial seizures, asthma, GERD, Hashimoto's disease and resolved adrenal

insufficiency),

Hayden (11, unknown PID, PDD-NOS, IBS and moderate hearing loss/aided),

Evan (11, unknown PID, asthma and mild hearing loss/unaided),

and Kelsey - (10, unknown PID, asthma)

Please visit us at www.caringbridge.org/in/connersmith