Sharon/What are you in for?

[Guest guest]

Hi Sharon,

My name is and want to say " Welcome " ! Not that it's good to have this

horrid condition, but it's nice to have a " family " that understands. As for

your question about what you are in for: well, each of us reacts differently.

I was diagnosed at age 27, and ended up being pulled from work at 30. I had

gone downhill SO fast I was shocked! My rheumy told me when I was first dx'd

that eventually I would end up on disability, but I never expected it to be

within 3 years! I have been on so many different meds throughout the last 5 yrs

(I was dx'd late 1997) & have yet to strike that " miracle combo " , so I keep

chugging along taking one day at a time. Being out of work has actually been

the best thing I could have hoped for. I am a divorced mother of 2 boys, and I

can now save my much needed strength for them. But this is just MY scenario.

Everyone has different reactions with their condition. Some in the group are

still working full or part time, allot I believe are on disability. I can't

imagine having this condition AND going to school......I had a hard enough time

dealing with stills and work. I can't imaging having to worry about keeping

grades up, etc.

So, basically, answering your question is rather difficult. There are no " set

rules/guidelines " for this and everyone pretty much has to take a " wait and see "

outlook. It's just so unpredictable. Sorry I can't answer you and say " This is

what you're in for...... "

Chris

greywolf70@...

[Guest guest]

Hi

Nice to meet you! Thanks for sharing your story. I do think it's for

the best that you're able to go on disability and spend all your

energy on what's most important. It's definitely nice to have a

family to run to when the dx comes.

Wishing you a Happy New Year, full of peace and pain-free!

-Sharon

> Hi Sharon,

>

> My name is and want to say " Welcome " ! Not that it's good to

have this horrid condition, but it's nice to have a " family " that

understands. As for your question about what you are in for: well,

each of us reacts differently. I was diagnosed at age 27, and ended

up being pulled from work at 30. I had gone downhill SO fast I was

shocked! My rheumy told me when I was first dx'd that eventually I

would end up on disability, but I never expected it to be within 3

years! I have been on so many different meds throughout the last 5

yrs (I was dx'd late 1997) & have yet to strike that " miracle combo " ,

so I keep chugging along taking one day at a time. Being out of work

has actually been the best thing I could have hoped for. I am a

divorced mother of 2 boys, and I can now save my much needed strength

for them. But this is just MY scenario. Everyone has different

reactions with their condition. Some in the group are still working

full or part time, allot I believe are on disability. I can't imagine

having this condition AND going to school......I had a hard enough

time dealing with stills and work. I can't imaging having to worry

about keeping grades up, etc.

>

> So, basically, answering your question is rather difficult. There

are no " set rules/guidelines " for this and everyone pretty much has to

take a " wait and see " outlook. It's just so unpredictable. Sorry I

can't answer you and say " This is what you're in for...... "

>

> Chris

>

> greywolf70@f...

>

>

>

>

>