Guest guest Posted August 28, 2003 Report Share Posted August 28, 2003 Hello to everyone! My name is Heidi, and I am 33. I am awaiting diagnosis. My symptoms started the last week of June - my hands felt swollen and stiff when I woke up in the mornings, but it would pass, so I didn't think a whole lot of it. Right after the 4th of July, the stiffness didn't go away, and went to my elbows. It got uncomfortable, and then I got concerned. I went to the local ER, thinking I was experiencing some sort of allergy or something. My sed rate was 28, ANA negative, and I was sent home with directions to take ibuprofen 3x/day and tylenol 3x/day. After several visits to my local doc, and more blood tests, which all came back essentially normal, I was referred to a rheumatologist at Mayo Clinic in Rochester, MN (I live in a town nearby). They did some more tests; the sed rate increased to 30, and x-rays of my hands and wrists showed some osteopenia. Still no definitive diagnosis; the rheumatologist said that although I haven't had it long enough to make an official diagnosis, signs point to RA. I go again to see him on the 11th of Sept. I have been taking Celebrex twice a day, and tylenol 3x/day. I think things are the same, if not even worse. My hand joints don't like pressure applied to them, and when I move them at any sort of an angle, they scream! My elbows, wrists, hands, and knees are the worst, but I have pain in my ankles and feet as well. I was supposed to call the rheumy a couple of weeks before my appointment to report how things are going, so that if there was no change, they could order more tests and possible joint scans for my visit. I left a message for him yesterday, so I hope that I can get some answers and a diagnosis. It seems strange to complain about the length of time I've been dealing with this when I read how some of you went undiagnosed for such long periods of time! I just hate not having any answers. It's frustrating when I'm so miserable, but yet the tests don't reflect the pain I feel. At least the rheumy didn't look at me like I was crazy or tell me it is all in my head! The rheumy told me that if I was still dealing with the pain on my next visit, they'd be adding another med, bridging it with the Celebrex. I have done quite a bit of research on the meds, and it seems that methotrexate seems to be the front-runner as far as usage is concerned. Is that usually the first med tried? Since it takes awhile to take effect, is prednisone usually prescribed to bridge it? I know everyone's circumstance is different, but I am nervous and wonder what to expect. Exercise is another thing I'm wondering about. Before all this started, I gave up my gym membership and bought a Bowflex and a Gazelle Edge (elliptical trainer). The Gazelle is pretty low- impact, but does anybody know about Bowflex's usage in RA? Is it safe? When can I exercise? I have read that if you're in a flare, you shouldn't exercise, but rather wait until the flare passes. But how would I know if I'm in a flare vs. just the garden variety pain? Sorry if these are stupid questions, and sorry about the length of the post. Take care everybody! Thanks in advance for any advice. Heidi Quote Link to comment Share on other sites More sharing options...
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