Re: another introduction.

[Guest guest]

Tami:

I don't know about apraxia, but I can tell you about

SI issues. is 4.9 has global developmental

delays (receptive & expressive speech delays), weak

hand muscles, she gets OT for, and sensory integration

dysfunction. For SID, that needs to be diagnosed by a

qualified Occupational Therapist(OT). In general, SID

is caused by an immature nervous system that causes

them to seek out sensory input that helps them.

twirls, jumps, swings because she needs joint

compression (proprioceptive) and movement (vestibular)

input. There's a foundation in CA called the Ayres

Institute. It's named after the OT who discovered the

syndrome. Their email is www.sensoryint@....

They have books, tapes & pamphlets that you can order

to learn more about this. Brushing therapy is used to

help kids with SID. You use a special plastic brush on

their skin, then you manipulate their joints. The

process takes about 5 minutes, and you do it multiple

times a day. Texture issues can be a part of SID. Hope

this helps, welcome to the group!

Martha, also 16 mos.

--- TAMINEWMAN@... wrote:

> Hello.

> My name is Tami and I am the mother of 5 children, 9

> year old twin boys, 4

> year old twin girls and 18 month old daughter, Sara.

> I am not necessarily sure that Sara has apraxia, but

> I was

> I would however like to take this opportunity to

> tell you all a little about

> Sara.

> She was diagnosed at 2 weeks old with Ventral Septal

> Defects, Coloboma (an

> eye condition where the irises did not form properly

> and as a result her

> pupils are key-hole shaped) and microcephaly. she

> still has a very large

> soft spot, umbilical hernia, anemia, and slightly

> enlarged liver.

> We started noticing Sara was not reaching the

> typical developmental

> milestones, but we just attributed that to all the

> other medical problems.

> Well, eventually it dawned on us that there may be

> more issues here, so we

> had a developmental assessment done. This was at 17

> months.

> The results showed her to be at the 8 month level in

> both physical and speech

> development.

> She still does not walk unless holding onto

> furmiture, she wont even walk if

> I hold her hands. Except for Cheerios, she will not

> eat any food that is not

> completely pureed (stage 1 baby food) everything

> else she just makes a

> gagging noise and spits it out.

> She has so far said " Up " but that was in a mimicking

> game, and has not said

> it since.

> She does babble quite a lot, even with different

> intonations (sp?). If i

> didnt know better I would swear she was just talking

> in a different language.

> She is a very affectionate happy-go-lucky little

> girl, with the worlds most

> beautiful smile.

> We do not at this point have any sort of diagnosis,

> but the Early

> Intervention program is working with her and we will

> be getting another

> assessment done on monday.

> Some people have suggested autism or PDD to me, her

> therapists dont think so

> though. They do think possibly apraxia or sensory

> intergration.

> anyhow.... I just had a few questions for those who

> are more well versed in

> this area than I am

> what is the difference between apraxia and sensory

> integration disorder? and

> can you only have one of them?

> also.....i noticed a couple of posts about brushing

> therapy and was wondering

> if someone could tell me more about it. Sara has

> serious texture issues, so

> this might be a good thing for her.

> well if you read this far, thanks, and sorry this

> turned out to be a novel

> tami

>

>

>

>

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