Re: just a ?

January 12, 2002

Eileen,

I don't have any answers, but my 2.9 year-old daughter, , does something

very

similar. It's mostly when we're having a " conversation " about something we're

going

to do or when she is telling me about something (that I'm not really following

always). She'll say " Mama (or mommy), Da (her name for Daddy), her approximation

of

our dog's name, Sadie, and me " . Then she'll go back and forth over the names

while

she's gesturing with her hands (kind of like she's counting or listing). I don't

know

if it's common to apraxia, but it's always seemed like her way of either

including

the people in her life or a just a case of using some words that come to her

most

easily. She is attempting to say almost everything when we talk, often getting

pretty

close to the word, but still has a long way to go to be understandable by

everyone.

She does alot of babbling and jibberish and has several made-up words that she

uses

consistently.

Hope someone has some input.

Barbara

seanzonigal wrote:

> Hello everyone,

> I have a question about my son Jack who is 2 1/2 with oral

> apraxia. Now that he is using more words about 3-4 word sentences 4

> when prompted, I notice he will say something for example instead of

> saying " Mama, eat more cheese " he will say " Mama Dada Mama Mama Dada

> Dada eat cheese. " Even when my husband is not around he will say Dada

> and sometimes he will call me Dada like 3-4 times before he says

> Mama. He will also do this with other words other than Mama and Dada.

> He will repeat the word many times but mostly does this with mama and

> dada. It is almost as if he has a stutter but the articulation of the

> word does not change.

> It is kind of hard to explain but hopefully I have made my ? clear.

> Is this how apraxia effects actual speech. This maybe a silly

> question but like I said I am new to hearing him talk and haven't

> really dealt with the other effects of apraxia.

> Thanks

> Eileen

January 12, 2002

Hi,

Could it be dysfluency (stuttering)? I have read here

some parents report stuttering when their children

begin to speak... just a thought.

Hello everyone,

I have a question about my son Jack who is 2 1/2

with oral

apraxia. Now that he is using more words about 3-4

word sentences 4

when prompted, I notice he will say something for

example instead of

saying " Mama, eat more cheese " he will say " Mama Dada

Mama Mama Dada

Dada eat cheese. " Even when my husband is not around

he will say Dada

and sometimes he will call me Dada like 3-4 times

before he says

Mama. He will also do this with other words other than

Mama and Dada.

He will repeat the word many times but mostly does

this with mama and

dada. It is almost as if he has a stutter but the

articulation of the

word does not change.

It is kind of hard to explain but hopefully I have

made my ? clear.

Is this how apraxia effects actual speech. This maybe

a silly

question but like I said I am new to hearing him talk

and haven't

really dealt with the other effects of apraxia.

Thanks

Eileen

January 13, 2002

Dear Barbara,

Someone mentioned Dysfluency, I don't really know,

since I have never heard of this. I think it is most

bizarre but claire sounds like Jack maybe it is the

age and that is what 2 1/2 yr olds do. Since Jack is

my oldest child I find I am always wondering what is

average 2 1/2 yr old stuff and not average stuff.

I only thought of stuttering because I myself had a

stuttering problem when I was about 5 yrs. old never

had therapy but outgrew it by the time I was 7-8 I do

remember doing it then and remember my parents telling

my to SLOW DOWN when speaking. I do wonder if

stuttering is a neurological issue as is Apraxia. I do

have so many ?'s I could go on for ever.

Thanks for your response,

Eileen

--- Barbara Eckert <borjeckert@...>

wrote:

> Eileen,

> I don't have any answers, but my 2.9 year-old

> daughter, , does something very

> similar. It's mostly when we're having a

> " conversation " about something we're going

> to do or when she is telling me about something

> (that I'm not really following

> always). She'll say " Mama (or mommy), Da (her name

> for Daddy), her approximation of

> our dog's name, Sadie, and me " . Then she'll go back

> and forth over the names while

> she's gesturing with her hands (kind of like she's

> counting or listing). I don't know

> if it's common to apraxia, but it's always seemed

> like her way of either including

> the people in her life or a just a case of using

> some words that come to her most

> easily. She is attempting to say almost everything

> when we talk, often getting pretty

> close to the word, but still has a long way to go to

> be understandable by everyone.

> She does alot of babbling and jibberish and has

> several made-up words that she uses

> consistently.

>

> Hope someone has some input.

> Barbara

>

> seanzonigal wrote:

>

> > Hello everyone,

> > I have a question about my son Jack who is 2

> 1/2 with oral

> > apraxia. Now that he is using more words about 3-4

> word sentences 4

> > when prompted, I notice he will say something for

> example instead of

> > saying " Mama, eat more cheese " he will say " Mama

> Dada Mama Mama Dada

> > Dada eat cheese. " Even when my husband is not

> around he will say Dada

> > and sometimes he will call me Dada like 3-4 times

> before he says

> > Mama. He will also do this with other words other

> than Mama and Dada.

> > He will repeat the word many times but mostly does

> this with mama and

> > dada. It is almost as if he has a stutter but the

> articulation of the

> > word does not change.

> > It is kind of hard to explain but hopefully I have

> made my ? clear.

> > Is this how apraxia effects actual speech. This

> maybe a silly

> > question but like I said I am new to hearing him

> talk and haven't

> > really dealt with the other effects of apraxia.

> > Thanks

> > Eileen

>

__________________________________________________

January 14, 2002

Hi Eileen!!

I so enjoy reading your post on the list and am so happy you are a

part of CHERAB!! Your Jack sounds a lot like my (he is 4

1/2). does the same thing with mama and Daddy. He also

sometimes get's stuck on " I " when he is using it at the beginning of

a sentence, repeating it up to 7 times before he can finish the

sentence!!

My understanding is that this is part of the progress. They will go

through a stuttering phase, and eventually phase out of it. I am

guessing it is because the mouth is saying the word before

the " message " has actually gotton through the " road block " in the

brain. (My best way of explaining apraxia is the mouth is fine, the

brain is fine, but there is a road block on the road from the brain

to the mouth. Therefore therapy is needed to either create a detour

or crash through the roadblock). I know my explanation is not

scientific or complex enough - but it seems to be something that

others can understand!!

Anyway Eileen, just wanted you to know you are not alone, that many

of our children go through this. It is a great test of patience!!!

Carnell

North Carolina

CHERAB Support

http://www.verbaldyspraxia.com

http://www.ubah.com/c1857 - GREAT books for children, they stimulate

speech!! Sign up now to win $50 in free books!!

[ ] just a ?

Hello everyone,

I have a question about my son Jack who is 2 1/2 with oral

apraxia. Now that he is using more words about 3-4 word sentences 4

when prompted, I notice he will say something for example instead of

saying " Mama, eat more cheese " he will say " Mama Dada Mama Mama Dada

Dada eat cheese. " Even when my husband is not around he will say Dada

and sometimes he will call me Dada like 3-4 times before he says

Mama. He will also do this with other words other than Mama and Dada.

He will repeat the word many times but mostly does this with mama and

dada. It is almost as if he has a stutter but the articulation of the

word does not change.

It is kind of hard to explain but hopefully I have made my ? clear.

Is this how apraxia effects actual speech. This maybe a silly

question but like I said I am new to hearing him talk and haven't

really dealt with the other effects of apraxia.

Thanks

Eileen

January 14, 2002

Dear ,

I spoke with Jack's SLP today who agreed that it is

just part of the process, she said alot of children

with no issues sometimes do that and sort of outgrow

it. She said that her daughter did it when she was

younger. What she did mention was not so typical was

that, Jack will come into a room seeing my husband and

imediatly say MAMA instead, then say DADA. But she

said it is probably due to the Apraxia.

I am so sad that I will not be able to see the show

tonight since I am in Massachusetts but will try to

get my hands on a tape. I think it is so AWESOME that

this will be on and so many, involved with dealing

with Apraxia and uninvolved will learn a great deal. I

do find that Apraxia is such a difficult disorder to

explain to people. Anyway thanks for your response.

I actually contacted Liz to have Jack put on her

web-site Apraxia Angels so you will be able to see my

little man, who by the way is not so little, LOL! And

we are going to add my younger son 13 months who

has been taking EFA's for 2 months and doing great.

Sincerely,

Eileen

--- @...,

UNEXPECTED_DATA_AFTER_ADDRESS@.SYNTAX-ERROR. wrote:

> Hi Eileen!!

>

> I so enjoy reading your post on the list and am so

> happy you are a

> part of CHERAB!! Your Jack sounds a lot like my

> (he is 4

> 1/2). does the same thing with mama and

> Daddy. He also

> sometimes get's stuck on " I " when he is using it at

> the beginning of

> a sentence, repeating it up to 7 times before he can

> finish the

> sentence!!

>

> My understanding is that this is part of the

> progress. They will go

> through a stuttering phase, and eventually phase out

> of it. I am

> guessing it is because the mouth is saying the word

> before

> the " message " has actually gotton through the " road

> block " in the

> brain. (My best way of explaining apraxia is the

> mouth is fine, the

> brain is fine, but there is a road block on the road

> from the brain

> to the mouth. Therefore therapy is needed to either

> create a detour

> or crash through the roadblock). I know my

> explanation is not

> scientific or complex enough - but it seems to be

> something that

> others can understand!!

>

> Anyway Eileen, just wanted you to know you are not

> alone, that many

> of our children go through this. It is a great test

> of patience!!!

>

> Carnell

> North Carolina

> CHERAB Support

> http://www.verbaldyspraxia.com

> http://www.ubah.com/c1857 - GREAT books for

> children, they stimulate

> speech!! Sign up now to win $50 in free books!!

>

> [ ] just a ?

>

> Hello everyone,

> I have a question about my son Jack who is 2

> 1/2 with oral

> apraxia. Now that he is using more words about 3-4

> word sentences 4

> when prompted, I notice he will say something for

> example instead of

> saying " Mama, eat more cheese " he will say " Mama

> Dada Mama Mama Dada

> Dada eat cheese. " Even when my husband is not around

> he will say Dada

> and sometimes he will call me Dada like 3-4 times

> before he says

> Mama. He will also do this with other words other

> than Mama and Dada.

> He will repeat the word many times but mostly does

> this with mama and

> dada. It is almost as if he has a stutter but the

> articulation of the

> word does not change.

> It is kind of hard to explain but hopefully I have

> made my ? clear.

> Is this how apraxia effects actual speech. This

> maybe a silly

> question but like I said I am new to hearing him

> talk and haven't

> really dealt with the other effects of apraxia.

> Thanks

> Eileen

>

__________________________________________________

January 15, 2002

Dear Eileen:

Where in Mass. do you live? We live in Medway, down by

lin, Milford, Bellingham, and Holliston?

How do you get your 13 month old to take EFA's? Where

do you buy them? I'm thinking of starting on

them. She's 4.9 has global developmental delay, weak

hand muscles and sensory integration dysfunction.

Martha also mom to , 16 mos.

--- eileen galusha <seanzonigal@...> wrote:

> Dear ,

> I spoke with Jack's SLP today who agreed that it is

> just part of the process, she said alot of children

> with no issues sometimes do that and sort of outgrow

> it. She said that her daughter did it when she was

> younger. What she did mention was not so typical was

> that, Jack will come into a room seeing my husband

> and

> imediatly say MAMA instead, then say DADA. But she

> said it is probably due to the Apraxia.

> I am so sad that I will not be able to see the

> show

> tonight since I am in Massachusetts but will try to

> get my hands on a tape. I think it is so AWESOME

> that

> this will be on and so many, involved with dealing

> with Apraxia and uninvolved will learn a great deal.

> I

> do find that Apraxia is such a difficult disorder to

> explain to people. Anyway thanks for your response.

> I actually contacted Liz to have Jack put on her

> web-site Apraxia Angels so you will be able to see

> my

> little man, who by the way is not so little, LOL!

> And

> we are going to add my younger son 13 months

> who

> has been taking EFA's for 2 months and doing great.

> Sincerely,

> Eileen

January 15, 2002

Dear MArtha,

I have the " Pro-efa " from the nordic naturals website

www.nordicnaturals.com I give Jack 2 a day and

gets 1 a day I put it right in their juice or milk or

in a cup of yogurt, they do not even know it. The

vitamin they get from the dr. is harder to get down

than the efa supplement. Sometimes I will give 2

because alot of times he does not finish the milk and

also because I notice alot of the oil sticks to the

cup.

Sincerely,

Eileen

--- Matsuda Martha <mgmfxm@...> wrote:

> Dear Eileen:

> Where in Mass. do you live? We live in Medway, down

> by

> lin, Milford, Bellingham, and Holliston?

> How do you get your 13 month old to take EFA's?

> Where

> do you buy them? I'm thinking of starting

> on

> them. She's 4.9 has global developmental delay, weak

> hand muscles and sensory integration dysfunction.

> Martha also mom to , 16 mos.

> --- eileen galusha <seanzonigal@...> wrote:

> > Dear ,

> > I spoke with Jack's SLP today who agreed that it

> is

> > just part of the process, she said alot of

> children

> > with no issues sometimes do that and sort of

> outgrow

> > it. She said that her daughter did it when she was

> > younger. What she did mention was not so typical

> was

> > that, Jack will come into a room seeing my husband

> > and

> > imediatly say MAMA instead, then say DADA. But she

> > said it is probably due to the Apraxia.

> > I am so sad that I will not be able to see the

> > show

> > tonight since I am in Massachusetts but will try

> to

> > get my hands on a tape. I think it is so AWESOME

> > that

> > this will be on and so many, involved with dealing

> > with Apraxia and uninvolved will learn a great

> deal.

> > I

> > do find that Apraxia is such a difficult disorder

> to

> > explain to people. Anyway thanks for your

> response.

> > I actually contacted Liz to have Jack put on her

> > web-site Apraxia Angels so you will be able to see

> > my

> > little man, who by the way is not so little, LOL!

> > And

> > we are going to add my younger son 13 months

> > who

> > has been taking EFA's for 2 months and doing

> great.

> > Sincerely,

> > Eileen

>

July 24, 2004

Hi Ursula,

Thanks, we were thinking of using a mask, I didn't want to go over board if that

wasn't necessary, it probably will be. Her initial wish was to go to Australia

Zoo and meet Steve Irwin, as of now he is not granting wishes, schedule too