Guest guest Posted April 22, 2006 Report Share Posted April 22, 2006 Valarie - Thanks for replying. I am part of this group to give and receive support, sister. We are all in this together and I appreciate your tolerance. This enables our group to remain a safe haven where we can call for help, share our experiences, and learn from eachother. So, thanks! = ) , Welcome to the group! My daughter is 4 years old and was recently classified as having CVID. We are still learning new things and this group has helped so much! Early on, our general peds doc did not see tonsils (though they have grown a bit -- yea). The radiologist determined " absent adenoids " . Red flag -- as you know with XLA. Her anatomy matched her b- and t-cell numbers/function to some extent. She is doing well on SQ -- and we are tweeking the needle sets, rates, tape, etc. to get things just right. There are several parents here using SQ and, I hope, that we can support you on this journey. mom to CVIDer Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.