Guest guest Posted July 15, 2008 Report Share Posted July 15, 2008 Hi.. I've been doing the Fuzeon shots for months now, and it's really not pleasant. Has anyone here been on this drug for a long period of time? Has anyone stopped because they couldn't handle all of the injecting, and lumps and redness, and soreness? Would appreciate any feedback. thanks, Charlie in Ct.The Famous, the Infamous, the Lame - in your browser. Get the TMZ Toolbar Now! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2008 Report Share Posted July 16, 2008 Hi all, I was on Fuzeon for over two years and it took a while to get used to.....the trick to minimising discomfort is learning where to inject (avoid the legs!) and getting a good technique, keeping it sub cut and not going deeper is not always easy and making sure to remember recent injection sites are important....having said that I was using my pecs, lower back, buttocks etc. I found using calamine lotion on injection site reactions helped and I also took Loratadine prophylactically to help with redness and irritation.....Eventually I got 'needle fatigue' and am now on Raltegravir... Best Wishes Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2008 Report Share Posted July 16, 2008 There is a Nurse-to-patient Connections project where nurse educators make home visits to assit in educating/re-educating about self-injections plus there is also a toll-free number for phone consults (separate program). The former is a program managed by Maxim health Systems. To learn more about FUZEON Connections, call 877-4FUZEON (877-438-9366) or visit www.FUZEONconnections.com. -- Healthfully & Electronically, GoldmanSan Francisco Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2008 Report Share Posted July 16, 2008 I've been on Fuzeon for a couple of years now... I JUST found a knack for avoiding the injection site reactions by injecting in my tricep area. I also make sure I inject at an angle (almost sideways) instead of a deep straight-on injection, and stay close to the skin surface, as opposed to going deep. I still get the lumps/bumps but they are less painful than the belly and thighs. The Fuzeon people will send a nurse to your home to review your techniques to see if they can give you any pointers... go to the Fuzeon website and check it out. My t-cells have gone from 1 to 900 so it's definitely worth the inconvenience and pain. > > Hi.. > I've been doing the Fuzeon shots for months now, and it's really not pleasant.? Has anyone here been on this drug for a long period of time?? Has anyone stopped because they couldn't handle all of the injecting, and lumps and redness, and soreness?? Would appreciate any feedback.? > thanks, > Charlie in Ct. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2008 Report Share Posted July 17, 2008 Hi, I've been using Fuzeon for nearly 2 yrs. now. I, also, had injection site problems and asked if there was anything that could help lessen them. My doctor said he had a " novel idea " and suggested we try me on Fuzeon 1 week and then OFF Fuzeon for the next... alternating every other week. I was tested numerous times during this trial and found that my viral load STAYED undetectable even though I was on one week and then off 1 week. We've done this now for over 5 months and I have continued to be undetectable!!! Ask your doctor about doing 1 week on and then 1 one week off.... 1/2 the time I'm lump/bumps free!!! Steve Emeryville, CA > > I've been on Fuzeon for a couple of years now... I JUST found a knack > for avoiding the injection site reactions by injecting in my tricep > area. I also make sure I inject at an angle (almost sideways) instead > of a deep straight-on injection, and stay close to the skin surface, as > opposed to going deep. I still get the lumps/bumps but they are less > painful than the belly and thighs. The Fuzeon people will send a nurse > to your home to review your techniques to see if they can give you any > pointers... go to the Fuzeon website and check it out. > My t-cells have gone from 1 to 900 so it's definitely worth the > inconvenience and pain. > Quote Link to comment Share on other sites More sharing options...
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