Guest guest Posted November 9, 2001 Report Share Posted November 9, 2001 Have you used an OT for your son, my son used to gag on everything but he never stuffed his mouth, he would choke on a pea!!! Anyway the OT really helped, they do amazing things. I don't think the stuffing his mouth is an issue that the slp should be dealing with(but not sure). Kate. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2001 Report Share Posted November 9, 2001 My first reaction is to give him each bite yourself, one at a time. That said, our EI therapist used to tell me that overstuffing is common with apraxic kids. She said it has to do with oral stimulation, and them needing to get enough food in there to be able to feel it and control it in their mouths. For example, my son (diagnosed apraxic at 18mos - now 3yo) has muscle weakness in his mouth. He does much better with bigger bites - but not huge. He also will swallow gum - I think it's just too small for him to control. He has food texture issues, and will gag if the texture isn't just right - mashed potatoes are the worst, no matter what size the bite is. Try giving him each bite at whatever size you think is good, and see how he does with controlling it in his mouth. I'm not an SLP - just a mom sharing my thoughts. Take care, TJ > Any tidbit of info ANYONE can give me would be greatly appreciated. My > 27 mo old son has been diagnosed with hypotonia and dev delay. I also > have just requested a behaviorist to assist with his ongoing > speech/feeding and spec. ed. sessions. Beyond the speech and dev issues > my son does not chew properly and insists on stuffing his mouth with way > more food than he can safely handle without risk of choking. You can see > that his eyes water when he swallows because it hurts. His SLP told me > today that she has no idea how to get him to chew more. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2001 Report Share Posted November 9, 2001 Hi Dani, My son, 5, also has global delays and hypotonia, but also apraxia. I will think on this problem you mentioned a bit more. I just wanted you to know that I am there, too. also takes bigger bites than he should and used to gag a LOT, but he seemed to outgrow a lot of it. will not eat crackers, raw carrots, potato chips, or anything that is very crunchy. But what he does eat he tends to put too much in his mouth. Someone once said in this group (I think) that these children are maybe UNDERsensitive around the mouth area and truly can't tell how much food is in their mouths. With , I have tried to DEsensitize him over the years by constantly touching in and around his mouth area using massage or with a toothbrush, brushing the insides of his cheeks. When your son is maybe laying quietly in your lap or watching TV, you could start him on this. If I think of anything else, I'll let you know! ~~ in PA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2001 Report Share Posted November 9, 2001 Dear TJ, Thank you so much for responding! I do try to feed him as often as I can but he usually INSISTS on feeding himself or he won't eat at all. Even when he does let me, the anticipation of the next bite makes him swallow what he has without chewing it at all. I completely agree with your theory on mouthstuffing. I have always felt that it was maybe a satisfaction issue especially because I have to cut his food into " swallowable " pieces just in case he decides not to chew at all. Does you son still overstuff if he feeds himself? Are there any chewing exercises that you found to have worked? Please let me know, and thanks again for the advice! Sincerely, Dani (mom of , 27 mos) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2001 Report Share Posted November 9, 2001 My 5 year old was a total mouth stuffer! We had to sit with him when he ate and put one or two bites on his plate at a time so he could still feed himself. I still have to " watch " him if I load his plate with food. At this point certain foods are more likely for him to stuff- waffles, meat, beans etc. Work with your child everyday to use a straw and blow bubbles. He can do it. My other 6 year old wasn't a " chewer " . He told me he hated the way the food felt on his tongue- so he'd just slip it down his throat, but he got chubby from that technique! If you really think that he isn't " absorbing and gaining weight " because of his unchewed food, then give him some pureed type food too- apple sauce, mash potatoes, in addition to foods that will give him practice chewing. If that doesn't help, you should look into his " absorbtion " issue further. Absorbtion problems can cause developmental delays, so it might be the other way around for your child. > Any tidbit of info ANYONE can give me would be greatly appreciated. My > 27 mo old son has been diagnosed with hypotonia and dev delay. I also > have just requested a behaviorist to assist with his ongoing > speech/feeding and spec. ed. sessions. Beyond the speech and dev issues > my son does not chew properly and insists on stuffing his mouth with way > more food than he can safely handle without risk of choking. You can see > that his eyes water when he swallows because it hurts. His SLP told me > today that she has no idea how to get him to chew more. She works very > hard to get him to cooperate but to no avail. I know of so many > exercises to strengthen his jaw but none can be used until he learns the > basics. I've been told of chewing gum - he swallows it. Eating bagels - > he doesn't chew them well and chokes. Drinking thick liquids through a > straw - we haven't been able to teach him to drink from a straw yet. He > loves food and is a very good eater. At most meals he eats more than the > adults. Unfortunately, his lack of chewing hinders the absorption of a > lot of what he eats so he doesn't weigh nearly as much as he should for > his caloric intake. Does anyone know what to do? The SLP is at the end > of her rope and so am I. I don't think my nerves can handle another > heimlich. Any suggestion? > > Sincerely, > Dani (Mom of , 27 mos) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2001 Report Share Posted November 9, 2001 Hi Dani, You only want a tidbit of information? OK-I'll try to keep this short like I always do. When Tanner was three years old he was diagnosed by SLPs and neuro doctors (a few of both) with verbal and oral apraxia (severe) hypotonia (most in truncal area and face) and sensory integration. Tanner's five years old now and we still sometimes have to remind him not to put so much in his mouth. He was a big time mouth stuffer all the time when he was two or three years old though. Tanner's therapist told me there are a few reasons why Tanner would do this. One was for stimulation-and one was that he didn't sense the food in his mouth the way we would. What helped stop this was increasing the stimulation in other ways. There are a number of suggestions from Tanner's therapist Ortega MA CCC SLP at http://www.apraxia.cc under index-and then under therapies-and then look for mealtime or feeding tips. (Dr. Katz's intro to EFAs is there now too!) In addition to what is at the website - we used to use the massage vibrators on Tanner's face and lips. I know some children may hate this-but Tanner still loves this. He pushes his face and lips into the vibration. We used the Dr. Scholls vibrator which looks kind of like a base ball cut in half. It's just this flat round thing that you can hold in the palm of your hand. I also found this Garfield one where the feet vibrated. Then of course there is the vibrating tooth brushes. This is in addition of course to all the Oral Motor Therapy. A really good thing was these lollypop holders that play music or sounds which the child hears when they have the lollypop in their mouth. Below is an old post of mine from last Halloween about these cool lollypop holders -I'm not sure if they are still available or not. ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2001 Report Share Posted November 9, 2001 You have gotten some really great advice! I just wanted to note that my son has sensory issues with food textures - he prefers crunchy, gags on mushy. I agree that an OT should be first to deal with these issues. The OT who evaluated my son said his SI wasn't enough to disrupt his day to day life (or anyone else's), so we didn't receive OT. The speech therapist through EI worked with him on EVERYthing, though. She was wonderful - I wish EI went longer than just 3 years, especially when you only get them at 2yo!! I also agree with the mouth stimulation with the toothbrush. We also used a Nuk - I guess it's an infant type of toothbrush. My son LOVED that, and chewed on it constantly. He still would today, but he figured out how to make the end pop off, so we don't give it to him. He's either constantly chewing on something, or asking for something to eat or drink. He just craves that oral stimulation. Again, Good luck! TJ > Any tidbit of info ANYONE can give me would be greatly appreciated. My > 27 mo old son has been diagnosed with hypotonia and dev delay. I also > have just requested a behaviorist to assist with his ongoing > speech/feeding and spec. ed. sessions. Beyond the speech and dev issues > my son does not chew properly and insists on stuffing his mouth with way > more food than he can safely handle without risk of choking. You can see > that his eyes water when he swallows because it hurts. His SLP told me > today that she has no idea how to get him to chew more. She works very > hard to get him to cooperate but to no avail. I know of so many > exercises to strengthen his jaw but none can be used until he learns the > basics. I've been told of chewing gum - he swallows it. Eating bagels - > he doesn't chew them well and chokes. Drinking thick liquids through a > straw - we haven't been able to teach him to drink from a straw yet. He > loves food and is a very good eater. At most meals he eats more than the > adults. Unfortunately, his lack of chewing hinders the absorption of a > lot of what he eats so he doesn't weigh nearly as much as he should for > his caloric intake. Does anyone know what to do? The SLP is at the end > of her rope and so am I. I don't think my nerves can handle another > heimlich. Any suggestion? > > Sincerely, > Dani (Mom of , 27 mos) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2001 Report Share Posted November 9, 2001 Dani, Hi - Where do you live? I'd be happy to give you the name of SLP's who specialize in oral-motor/feeding/ sensory issues. Safety is so very important, as you know! There are oral-motor exercises and feeding protocols that can assist, & consulting with a behavorist who can collaborate w/ an SLP & OT is a good plan. " Stuffing " is common among many of our 'low tone' kids, seeking increased sensory input - a SI program (sensory integration) may prove to be helpful...There are specialists to guide you & your son on a specific therapy treatment program. Feel free to email me or I'll check this list serve again, to see where you are located. Best regards, PS: Suggestion - go w/ your instinct & don't give foods that he chokes on, until you have an oral-motor/feeding therapy program in place. Oral motor exercises to facilitate strength, & jaw-lip-tongue disociation typically proceed feeding more " challenging " foods - please email me if this doesn't make sense! zimetslp@... Any tidbit of info ANYONE can give me would be greatly appreciated. My 27 mo old son has been diagnosed with hypotonia and dev delay. I also have just requested a behaviorist to assist with his ongoing speech/feeding and spec. ed. sessions. Beyond the speech and dev issues my son does not chew properly and insists on stuffing his mouth with way more food than he can safely handle without risk of choking. You can see that his eyes water when he swallows because it hurts. His SLP told me today that she has no idea how to get him to chew more. She works very hard to get him to cooperate but to no avail. I know of so many exercises to strengthen his jaw but none can be used until he learns the basics. I've been told of chewing gum - he swallows it. Eating bagels - he doesn't chew them well and chokes. Drinking thick liquids through a straw - we haven't been able to teach him to drink from a straw yet. He loves food and is a very good eater. At most meals he eats more than the adults. Unfortunately, his lack of chewing hinders the absorption of a lot of what he eats so he doesn't weigh nearly as much as he should for his caloric intake. Does anyone know what to do? The SLP is at the end of her rope and so am I. I don't think my nerves can handle another heimlich. Any suggestion? Sincerely, Dani (Mom of , 27 mos) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2001 Report Share Posted November 10, 2001 >Any tidbit of info ANYONE can give me would be greatly appreciated. >My 27 mo old son has been diagnosed with hypotonia and dev delay. I >also have just requested a behaviorist to assist with his ongoing >speech/feeding and spec. ed. sessions. Beyond the speech and dev >issues my son does not chew properly and insists on stuffing his >mouth with way more food than he can safely handle without risk of >choking. Hi Dani and Welcome, Last month this discussion came up and I posted this information to the group list. Perhaps you can find some answers at these Feeding Disorder Websites I posted below. Also check the archives for additional information and see what comes up on this topic. To search the archives go to In your search, I hope you find the answers you are looking for! Best Wishes, Mustafa Khalid ( will be 15 yr. just 2 days! ) Jadd ( 7.6 ) Danya ( 10 ) ( Both my sons are apraxic and doing well ) Oral Motor Excercises: http://www.suite101.com/article.cfm/speech_language_disorders/41710 Oral motor excercises are occasionally necessary for weak articulators or muscles in the mouth and face for speech production. They sometimes need strengthening, need to move farther and/or have better coordination. These can help a child make speech sounds better as well as help with the eating/feeding/swallowing problems some children have difficulty with. Below are listed some things you can do with any child just for fun to help improve their oral motor skills. These are some of the excercises I have used in therapy and you can usually use them with kids aged three and up. If the child is not too good at following directions you may not want to try these until they can follow simple directions well. They do not even need to be in a speech therapy program either because these are things all children would love to do. 1) Blowing bubbles. This works on working the muscles that make our lips round like for the /w/ sound. It also makes us use better breath control. 2) Licking peanut butter or marshmallow crème with the tongue only (no fingers) after a glob of it has been placed on the roof of the mouth or behind the top front teeth. Works on tongue elevation/lifting and if you put it over in one cheek for example, it works to help lateralize the tongue/move it to the side. 3) Put cheerios or apple jacks on the table and have the child " spear " one with his tongue. No hands or lips can be used. Child has to learn to aim and protrude tongue past the lips. 4) Roll little round suckers like " dum dums " around the mouth back and forth from in one cheek to inside the other using only their tongue. Should be able to see the sucker pushing against the cheek if they did it successfully. Also works on lateralization and coordination of tongue movements. 5) Rub syrup or frosting or peanut butter on outside of lips (red/pink part) so child must lick lips with tongue to clean them off. No hands for this either. 6) Lick ice cream as it drips down the side of the cone on a hot day. Can't use lips- tongue only. 7) Pretend to make faces at one another while you look in the mirror. Make the silliest ones you want. These are a lot of fun and a way to get the family involved in therapy too if your child has been tested and could benefit from some oral motor therapy. If your child has feeding/swallowing /eating difficulties do not try this unless approved by your therapist. Chances are he/she will personally train you in tasks to help them anyway. If your child does not need speech therapy it is just a way to have goofy fun together time. Enjoy! ( may need to cut and paste links ) Information on Feeding Disorders: Kennedy Krieger Feeding Disorders Specialists: Bart Sevin, Ph.D. Email: sevin@... http://www.kennedykrieger.org/ S. Gulotta, Ph.D. E-mail: gulotta@... http://www.kennedykrieger.org/ Dr. M. Katz, M.D., M.S.B., F.A.A.P. http://www.kennedykrieger.org/ Kennedy Krieger Institute Pediatric Feeding Disorders Program http://www.kennedykrieger.org/ Feeding Young Children with Special Needs http://www.hs.state.az.us/cfhs/ons/defi-e.htm New Visions: The Development of oral motor skills in children receiving non oral feedings http://www.new-vis.com/ws/p-orlmtr.htm New Visions: Why Evaluate and Treat Mild Feeding Delays and Limitations http://www.new-vis.com/fym/papers/p-feed6.htm New Visions: Feeding and Speech Relationships http://www.new-vis.com/fym/papers/p-feed8.htm Feeding and Related Medical Issues http://members.home.net/dinack/feeding.htm Feeding Disorders Clinic http://www.chob.edu/Clinical_Services/feeding.html Book: The Educator's Guide to Feeding Children with Disabilities CCC-SLP http://www.brookespublishing.com/store/books/lowman-3750/index.htm Nutrition and Feeding for Persons with Special Needs: A Practical Guide and Resource Manual. Nutrition Education and Training Program, South Dakota Department of Education, Child and Adult Nutrition Services, 1992. To order contact: Child and Adult Nutrition Programs; (605) 773-3413. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2001 Report Share Posted November 11, 2001 Hi Kate, Thank you for your response. I am really seeing that this has all been handled the wrong way. I'm calling my EIP coordinator first thing Monday morning to ask for an OT eval. Dani (mom of , 27mos) L.I.,NY Quote Link to comment Share on other sites More sharing options...
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