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> . I'm sure many of you went through the genetic testing.

> But did any of you ever have the wrist XRay done of your child's

> wrist?

Mollie had this Xray done and it was for the same reason....to calculate her

bone age. I think they found her bone age to about 14 and she was 8 at the

time. Who knows what significance that is. Mollie had the test done as a

part of a clinical study she participated in. they don't have a lot of info

on her syndrome. We went to TX for a week and they ran every test in the

book. It was a long and stressful week but we did get a lot of information

about the syndrome and Mollie.

~~~~~~~~~~*~~~~~~~~~~

(AKA Mollie's Mom)

and

Mollie

9 years old 1p36.22 deletion

:>)

~~~~~~~~~~*~~~~~~~~~~

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Yes, I had my daughter's wrist xrayed to determine bone age. The reason for

this is to determine if there is an overgrowth syndrome such as Sotos

syndrome. My daughter's xray revealed that her bone age was exactly her

actual age to the very month. So, the Sotos expert (Dr. Schaffer) from the

Un. of Nebraska who I had sent her records to and was consulting with over

the phone (at no charge!) determined that there was no overgrowth syndrome

especially after looking at the xray and brain mri which also didn't show any

overgrowth of the brain parts just a large normal brain.

Carolyn

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