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Re: New to apraxia

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hi heather...you are a very strong person and your

children are lucky to have you...having one

challenging child is tough, having two must be

overwhelming...you and your husband seem like you're

doing all you can for your kids...i have a three old

son with apraxia and at times is frustrating to my

family that he cannot communicate verbally...he has

come a long way though with the help of speech

therapy...i wish you continued strength and

courage...you will find tremendous support from this

group...good luck...joann from n.j.

>

> I was wondering if this would be genetic. I tell my

> family GOD took my

> oldest daughter and gave me three other childern to

> Love. And, two

> challenging boys. I was always told GOD never gives

> you more than you can

> handle but sometimes it feels like I can't take no

> more.

>

> Thanks,

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you have a full plate to deal with and considering what you have

been through ( your daughters death) you are doing the best that you can do.

To deal with the death of a child ( i can't even begin to imagine what you

have and are still going through) is the most difficult thing. You are never

supposed to outlive your child especially one as young as yours was when she

passed away. You now have 3 other children ( a blessing) and 2 have special

needs so that's alot to deal with. Having 3 " normal " children is exhausting.

It's great that your husband is able to do what he is doing for the kids. I

honestlly don't know what to tell you but just know that you are a good

mother and you will continue to be a good mother just take one day at a time

and try to remember that GOD is always there even though it seems as if

sometimes the burdens are too much, he is all good and all loving. We are

here for you and try to stay strong. If you need some support we are all

here for the long road ahead for you and your boys.

Kerry mom to age 7 and Apraxic and his two

sisters Courntey and Brittany

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:

I don't blame you for feeling as you do, you HAVE been

through alot! I don't know if I could endure all that

you have. When it comes to handling it, you usually

have no choice. As an aside, do you and your hubbie

ever get any time together? My guess is no. That might

help you state of mind if you 2 try and get out every

now & then.

My understanding is that ADHD is genetic. Is there

anyone in either one of your families that fits the

profile for ADHD? My neighbor's son is ADHD and I can

see it in his father. ADHD is an abnormality is some

part of the brain that causes people to be

hyperactive, and they have trouble focusing on a task.

Their attention span is usually very short, unless

they're doing something that they love (like computer

games, tv). They usually have trouble organizing

themselves and their work. From what I've seen from

this group, apraxia looks like it's genetic too.

I'm sorry about the loss of your daughter.

This is a great place for help and support, welcome!

Martha mom to 4.9 global developmental delay,

weak hand muscles, sensory integration dysfunction &

16 mos.

> I recently met with Drake's school teacher and

> speech therapist and they

> would like to get him tested for ADHD which I am not

> really sure what ADHD

> is. I know both of my sons are both very hyper. My

> son Drake will wake up

> at 7:00am and stay up to about 11:00pm without

> taking a nap. I sometimes

> feeling like I am going crazy. Sometimes I wish I

> was back at work when I

> come home which I know I should not feel that way.

> I also have a daugter who will be 2 in two weeks and

> she talks more than my

> boys.

> I was wondering if this would be genetic. I tell my

> family GOD took my

> oldest daughter and gave me three other childern to

> Love. And, two

> challenging boys. I was always told GOD never gives

> you more than you can

> handle but sometimes it feels like I can't take no

> more.

>

> Thanks,

\

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Hi,

I didn't read your original post about your child's death. I just

want you to know your not alone. I lost my 18 yr old daughter

in Nov. 98 in a car accident two weeks after I told her I was

pregnant. Four months my second daughter was born 6 weeks

early weighing 3.1 lbs. Luckily, she only had to stay in the

hospital 2 weeks until she gained some weight. Now I dealing with

the apraxia just like everyone else here. I just want to say I can

relate to how you feel, I've been there. I really don't believe that

God puts on you more than you can bear. if you ever need someone to

talk to that can relate let me know. HANG IN THERE

Love,

nancy

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> I recently met with Drake's school teacher and speech

therapist and they would like to get him tested for ADHD which I am

not really sure what ADHD is.

>

Dear ,

I LOVE it !!! " TESTED FOR ADHD " .

This is one of the things I hear most often in my practice. You

cannot " test " for ADHD any more than you can " test " for blue eyes or

brown hair.

Attention Deficit - Hyperactivity Disorder is the consequence of a

state of hypovigilance in a person, which causes difficulty

maintaining one's focus during the day, and sleep at night. It is

believed to be a malfunction of a series of structures in the base of

the brain called the Reticular Activating System, and this has been

shown to be so in functional studies of the brain over the last

several years.

The term comes from the psychiatric literature, and precisely from

the DSM IV, the manual psychiatrists and psychologists use to define

mental health conditions. It was previously known as Minimal Brain

Dysfunction (actually my favorite term), and Attention Deficit

Disorder.

If you are a strict DSM person, the child must show at least 6 of 9

criteria for inattention, hyperactivity/impulsivity, or both to be

called ADHD. I was trained that " if it smells like a fish, and swims

like a fish... " , so I don't do what I call the " chinese restaurant

definition " (no offense to our Asian readers) of 6 from column A and

6 from column B to tell me a kid has ADHD - it is what it is, and an

experienced practitioner can do that.

The important thing is that ADHD is a " diagnosis of exclusion " -

meaning you have to look at all the things that can make a child

fidgety, impulsive, restless, and unfocused - including learning

disabilities, thyroid disease, language disorders, mental

retardation, and a long list of other primary conditions that can

lead to " ADHD " . That is why you need to do a full workup, and find

out all the things that are going on.

> I was wondering if this would be genetic.

Yes, language and attention problems (also learning disabilities)

definitely run in families. That is why I spend so much time asking

about family history when I see a new patient.

Good luck to you,

Larry Laveman, MD

Consultant, CHERAB

http://www.apraxia.cc

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  • 3 weeks later...

Hi :

You pose several interesting questions. Let's take them one by one:

- There is no " test " for ADHD. ADHD is defined by the presence of a

series of behaviors, as defined in a document called the DSM-IV,

created by the American Psychological Association, for which the

child must have 6/9 for inattention and/or 6/9 for

hyperactivity/impulsivity, if you go by formal criteria. As a

developmental pediatrician, I don't feel bound by these criteria, but

rather look at how severely the child's behaviors interferes with

his/her functioning in the family, social, and school settings. If

the problem is just at school, then it is unlikely this is ADHD, but

perhaps surreal expectations of the school relative to the child's

developmental functioning. A child functioning at a 5 year level

should have a behavior profile consistent with their age, irrelevant

of the child's actual age. The same would apply to their social and

family functioning. ADHD by definition affects ALL aspects of a

child or adult's life.

- Could this run in families? Absolutely yes ! Twin studies have

shown that language disorders are much more common in identical twins

where one is affected, than in fraternal twins. We don't know

exactly where this sits in the genetic makeup of us, but it is clear

that learning and language problems, including apraxia, runs in

families.

Good luck,

Larry Laveman, MD

Consultant, CHERAB

http://www.apraxia.cc

> I am so glad I found this site...I recently met with Drake's school

teacher and speech therapist and they

>would like to get him tested for ADHD which I am not really sure

what ADHD

>is. I know both of my sons are both very hyper. My son Drake will

wake up

>at 7:00am and stay up to about 11:00pm without taking a nap. I

sometimes

>feeling like I am going crazy. Sometimes I wish I was back at work

when I

>come home which I know I should not feel that way.

>I also have a daugter who will be 2 in two weeks and she talks more

than my

>boys.

>I was wondering if this would be genetic. I tell my family GOD took

my

>oldest daughter and gave me three other childern to Love. And, two

>challenging boys. I was always told GOD never gives you more than

you can

>handle but sometimes it feels like I can't take no more.

>

>Thanks,

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  • 2 years later...
Guest guest

You have just described my 3yos. It seems that the only problem he

is having is talking everything else is fine.

Sheilvina

> We have a 20 month old toddler adopted from Georgia who has been

> diagosed with verbal apraxia.His receptive speech seems fine.

> His gross and fien motor skills are excellent. My question is it

> possible to have verbal apraxia and still have excellent gross and

> fine motor skills?

> THanks! Jacky in Vancouver

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