Updated Lipodystrophy Survey Results- Main Answers

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Impact of Lipodystrophy on Quality of Life and Self Esteem

Have you had body shape changes after starting HIV medications in the past?

Answer Options

Response Percent

Response Count

Yes

89.2%

901

No

10.8%

109

answered question

1010

skipped question

0

Impact of Lipodystrophy on Quality of Life and Self Esteem

What kind of body changes are you experiencing or have you experienced?

Answer Options

Response Percent

Response Count

Involuntary weight loss/wasting

44.0%

431

Abdominal (Belly) Fat Gain

62.3%

611

Facial Wasting

77.8%

762

Butt Wasting

71.2%

698

Veiny Legs or Arms

67.9%

665

Increased Breast Size

22.0%

216

Buffalo Hump (Behind The Neck)

21.7%

213

Increased Neck Size

16.5%

162

Parotid Gland Enlargement (sides of face)

16.2%

159

Other

6.7%

66

If other, please specify

86

answered question

980

skipped question

30

Impact of Lipodystrophy on Quality of Life and Self Esteem

Have you experienced depression or anxiety due to the body changes?

Answer Options

Response Percent

Response Count

Yes

87.3%

882

No

12.7%

128

answered question

1010

skipped question

0

Have you ever thought of killing yourself due to your body changes?

Answer Options

Response Percent

Response Count

Yes

25.2%

255

No

74.8%

755

answered question

1010

skipped question

0

Have you ever thought about not taking your HIV medications or have you ever stopped taking them because of fear of worsening your body changes?

Answer Options

Response Percent

Response Count

Yes

41.6%

420

No

58.4%

590

answered question

1010

skipped question

0

Have the body changes cause you to: (check all that apply)

Answer Options

Response Percent

Response Count

Stop socializing and going out to meet people

65.3%

620

Stop dating

51.2%

486

Decrease sexual activity

73.3%

696

Increase sexual activity

3.5%

33

Worry too much about people finding out you are HIV+

59.9%

568

Be rejected by potential sexual partners

56.2%

533

Affect your job performance

26.2%

249

Stop looking at yourself in the mirror

56.8%

539

Change your clothing style

57.0%

541

Abuse drugs or alcohol to feel better

16.9%

160

Deplete your finances in search of a solution

28.8%

273

Other

7.1%

67

Please Specify

90

answered question

949

skipped question

61

Have your insurance, ADAP/ White clinic, HMO, health care system (for countries outside the US) and/or supplier patient assistance program paid for ANY of the solution(s) mentioned in the answer(s) in the previous question? (Check all that apply)

Answer Options

Response Percent

Response Count

No one has. I had to pay with my own money

62.2%

534

Yes, my insurance company has

18.6%

160

Yes, my HMO has

5.5%

47

Yes, my ADAP/ White program has

7.2%

62

Yes, my country's health system has

7.3%

63

Yes, a supplier's patient assistance program has

11.5%

99

Please specify what was paid for

217

answered question

858

skipped question

152

Have you had facial wasting (lipoatrophy)?

Answer Options

Response Percent

Response Count

Yes

78.2%

789

No

21.8%

220

answered question

1009

skipped question

1

Do you think some HIV medications can increase fat loss under the skin (facial wasting, veiny legs/arms, fat loss in the butt)?

Answer Options

Response Percent

Response Count

Yes

88.6%

873

No

0.9%

9

Not sure

7.1%

70

I think HIV causes it, not the medications

3.4%

33

answered question

985

skipped question

25

What option have you used to improve your facial lipoatrophy? (check all that apply)

Answer Options

Response Percent

Response Count

I have done nothing

39.5%

336

I have used BioAlcamid

8.1%

69

I have used silicone

7.2%

61

I have used Sculptra (New Fill or polylactic acid)

30.8%

262

I have used Radiesse

4.6%

39

I have used PMMA in Rio, Tijuana or other

4.8%

41

I have switched off from Zerit to Viread, Ziagen, Epzicom or Truvada

32.2%

274

I have switched off from AZT to Viread, Ziagen, Epzicom, or Truvada

12.1%

103

I have taken Uridine (Nucleomaxx)

1.3%

11

Other

8.0%

68

please specify

116

answered question

850

skipped question

160

Do you think some HIV medications can increase belly fat?

Answer Options

Response Percent

Response Count

Yes

83.7%

824

No

0.8%

8

Not sure

13.5%

133

I think HIV causes it, not the medications

2.0%

20

answered question

985

skipped question

25

Regards, VergelDirectorProgram for Wellness Restorationpowerusa dot orgNew MapQuest Local shows what's happening at your destination. Dining, Movies, Events, News more. Try it out!