Re: pure apraxia

[Guest guest]

Carol, I agree with you. If you do research into the many syndromes,

disorders, etc,, you will see that there are many aspects that are common to

yet differently caused disabilities. In my very bad experience with a dr.

from Columbia prest. I found that in his case, he was quick to fit my child

into a neat little group with a clear cut label. I also become uneasy when

doctors too often put every child with severe speech delays or a disorder

into the so called " autism spectrum. " I pointed out a good example to this

well know fool, I said that 2 different people can have hands that shake

uncontrollably, however that does not mean that they both have Parkinson's.

He looked surprised at the remark and didn't know what to say.

So, in my again humble opinion from only a lay person, apraxia or any other

motor planning speech problem may come from some insult to the brain that may

not be shown in Mri's, some spontaneous change in the formation/arrangement

of the chromosomes of a developing fetus, something that happens preterm or

in labor to affect the brian whether from the environment, illness, or drugs,

or some inherited disorder/syndrome.

I can understand anyone's interest in knowing what the cause of a child's

issues are because I have been there and go back and forth with it. If my

child had been found to have one of the overgrowth syndromes, Sotos Syndrome,

I would probably have been comforted because as Dr. Schaffer explained to me,

children tend to grow out of it and positively progress. However, there are

other overgrowth syndromes that are important for parents to know if their

children have because in one the child tends to have polys on the intestines

on obviously that's important for health reasons.

One thing I found in researching the Sotos syndrome was that these kids have

big differences in the actual age and the age shown by the bone age. So,

just because your child looks a year older probably isn't enough of a

difference. Also, another sign that parents spoke about was shoe size being

way way bigger than normal.

When I first went to the geneticist, she pointed out all kinds of things,

like isn't your child's eyes further apart than normal, but the blood tests

showed no problems.

The fool from Columbia Prest. commented that my daughter's breast nipples

were inverted. I didn't comment because I never noticed anything. But then I

kept on looking every day and found well, if she is cold they are one way and

another is she is warm, they aren't always in or out.

Sorry this is so long. Good luck to all. Carolyn aigjr@...

[Guest guest]

Carol, I think about this alot too. Sometimes when I am looking at my son, he

really seems just like a normal 12 year old. And then I remember he cannot

coordinate himself enough to swim, he hates sports or any physical activity that

he cannot accomplish, he cannot catch a ball, he has a few articulation

problems, he forgets people's faces and names that he's known his whole life,

he's really large for his age and has extended arms, legs and torso, etc. Are

these just symptoms or are these all necessary signs of apraxia ? I am still a

little confused about the terminology used. What I wonder is that all of the

things I listed above are present in other kids too so what absolutely defines

my son as apraxic ? I'm learning right along with ya !!!

[Guest guest]

Do you know if children with solely verbal apraxia have any better

prognosis than those who have other issues? Can one have such

severe verbal apraxia (and nothing else) that speech will be

unlikely?

the Genius. I like that.

Pam

> has verbal apraxia. Nothing else. His intelligence tests

> put him in the genius level. No motor /sensory /developmental

issues

> at all except his speech.