Re: hello again!

[Guest guest]

Hi :

Nice to talk to you again too. is in her 3rd year of college. We

still do not know what the heck she is majoring in but I guess some day we

will find out (may graduation day LOL). How are you doing? I hope you are

doing ok. Poor a is not doing so hot I see. Those dang flares. I have

visions of someday somebody finding a cure for all of us. Wouldn't that be a

miracle?

Jeannette

[Guest guest]

Jeannette,

We missed ya. Welcome back. Tery

[Guest guest]

Thanks Tery, it is good to be back here. I feel safe now.

Jeannette

[Guest guest]

Welcome back, Jeannette! Yes, of course I remember you.

Glad you had such a nice party and that is safely off to school again.

What year is she?

Hope your liver test results come back normal so that you can stay on the

MTX.

A sunny day to you, too!

----- Original Message -----

From: <ednettieolson@...>

<RA-Supportegroups>

Sent: Monday, August 28, 2000 10:34 AM

Subject: [ ] Hello Again!

> Hello Group:

>

> Do you remember me? I was a sort of sometime person in this group until a

> couple of weeks ago. I now have a new address and have rejoined you all

with

> my new address. It has been a very stressful time for me but I think the

> worst is over. I won't bore you with the gorey details. It has nothing

to

> do with RA anyway.

>

> I have been really busy as well. We sent my stepdaughter off to college

on

> Friday. At the same time we had a 60th wedding anniversary party for my

mom

> and dad. So, alot was going on all at the same time. My stepdaughter

> decided to move into an apartment this year so we had to gather up some

> furnishings etc. My husband, step-son moved her to Univ. of Northern

Mich.

> while I was in Green Bay getting all our plans for the party straight. We

> had 53 friends and family coming from Minnesota and Michigan as well so

> sleeping arrangements had to be made etc. Anyway, it all worked out and

it

> was a beautiful party and my parents, who will be 83 next month, were so

> thrilled. And, my is now away at school again. I am both sad and

> glad. I will miss her but I will not miss her messes.

>

> I had my liver function lab test on Thursday and will find out this week

the

> results. I do not know if you remember but I am on MTX and my liver

function

> test had doubled the normal reading. They dropped my MTX and so I

repeated

> my liver function test Thursday. If it has not dropped significantly, I

do

> not know what will happen. I have also switched to injections because MTX

> was bother my stomach so bad. That part is working beautifully. I am

scared

> that if my numbers have not come down though, that they will take me off

MTX

> and I have been in remission for months now. I am afraid that a new drug

> might cause a flare. Oh well, you gotta roll with it all I guess.

>

> Sue, how goes it with disability? Tery, thanks for your letter. a,

how

> was your birthday? Can't remember what else has been going on here.

>

> Here's a wish for a Happy and Sun shiny day to you all!!!

>

> Jeannette

[Guest guest]

Hi, Jeannette!

I can't complain too much over here. I'm a little bit more fatigued than

usual, but a lot of things have been going on.

The flares stink. I hope a and everyone who is in one right now comes

out of them very soon!

A cure is a great miracle to wish for.

----- Original Message -----

From: <ednettieolson@...>

< egroups>

Sent: Monday, August 28, 2000 11:47 AM

Subject: Re: [ ] Hello Again!

> Hi :

>

> Nice to talk to you again too. is in her 3rd year of college. We

> still do not know what the heck she is majoring in but I guess some day we

> will find out (may graduation day LOL). How are you doing? I hope you

are

> doing ok. Poor a is not doing so hot I see. Those dang flares. I

have

> visions of someday somebody finding a cure for all of us. Wouldn't that

be a

> miracle?

>

> Jeannette

[Guest guest]

--- In Rheumatoid Arthritis , " jsala " <jsala@y...>

wrote:

> I did ask him about the condrotin and the fish oils--he kind of

> laughed and told me to stay away from those things. I wasn't sure

if

> he was serious or not...I plan to ask him again at my next visit

and

> I am going to keep taking them until he can give me a serious

reason

> why I shouldn't.

My rheumatologist RECOMMENDED glucosamine/chondroitin (for my

osteoarthritis) and said that one fish oil capsule is about the same

as taking an aspirin tab as far as anti-inflammatory benefit. (That's

not been my experience.) He told me to steer clear of ginseng and

echinacea as they are both immune system stimulants.

Sierra

[Guest guest]

Hi J Sala:

Great attitude! And shopping cures many ills - except that now I'm trying to clear out all the stuff accumulated in my house collected over too many years of shopping trips!!

As far as the chondroitin and fish oil capsules go - why not take them? If they are helpful to you, I say do what feels right. I am a great believer in taking everything the doctor says with a grain of salt. I often do what I feel what is right for my body despite what a doctor who sees me once every 3 months may have to say about it. He's not living in here!! But now I do have a rheumy who is very sensitive and accepting of my thoughts and I feel that we approach my case together. She really listens to me and is supportive of any kind of alternative thing I may want to try. And I'm sure that if she doesn't approve of some course of action, she would say so. It is refreshing to have a doctor that one can really tell everything to!

But it sounds good that you are doing more tests to actually determine what you may have. No point in going down this road if RA is not what you have.

Good luck to you! and hope you find fun stuff on the Internet.

gloria

[Guest guest]

Jsala,

I have had RA for 7 years and been thru many docs and many drugs. I am now off ALL meds except anti-inflammatory. I take a lot of Vitamin C, a lot of fish oil, and chicken cartilage. I am doing very well and in almost no pain after going thru a lot. Be proactive and do your own research. Glucosamine and condrotin are for osteo arthrthitis I was told and decided that was true after it did not help me much with rheumatoid arthritis. Good luck to you..

Kay

----- Original Message -----

From: jsala

Rheumatoid Arthritis

Sent: Saturday, January 03, 2004 10:00 PM

Subject: hello again!

Hi everyone,I had my first visit to my rheumatologist yesterday. Basically he is not totally convinced that I have RA. He feels that many primary care doctors when they see a middle aged woman with joint pain--that they use the term RA without a full medical evaluation. So he is doing more blood tests (CPK, TSH, repeat Sed Rate) and a Urinalysis. I go back until the end of the month.I did ask him about the condrotin and the fish oils--he kind of laughed and told me to stay away from those things. I wasn't sure if he was serious or not...I plan to ask him again at my next visit and I am going to keep taking them until he can give me a serious reason why I shouldn't.I am starting to "flare" again. And a cold front is moving into Pennsylvania--temps will be in the teens so I'm sure I'll be in some major pain. I have been doing some shopping on the internet and ordered some magazines to keep my mind "off" the pain. No one told be that RA could be hazardous to my credit card!!!Take care,J Sala

[Guest guest]

-Happy Anniversary to you and your husband it sounds like you had a

great time. It sounds like your kids really showed you a good time.

I hope all is well with you and your family. I go to the Cancer

Center on Friday to have them do the first pcr test there. I'm sure

it will differ from MDACC because of different labs used. My appt

with the Dr. is Oct. 14 I'm sure my results won't be in then. I will

have to keep calling and asking if they are back yet. One thing I

like about MDACC is Dr. Faderl calls me himself in the evening to

give me my results, and the one in July only took 5 days to come back.

I will post my results to the group when I get them.

Shari from Kansas

-- In , " Margot M " <redbudln@c...> wrote:

> Just a note to let you know that we are back from our Colorado

vacation and

> have everything around the house straightened out that went wrong

while we

> were gone. Well everything except for my computer. Though I did

buy a new

> printer, the computer--particularly the Internet Explorer--is still

all

> messed up. I may have to take everything off and reinstall it.

>

> We had a great and long vacation in Colorado, compliments of our

son and

> daughter and families as a 50th Anniversary present. They bought

us plane

> tickets to Colorado as a gift supposedly so we could see the new

home of our

> son's family who had just moved there. We were told our daughter

was too

> busy with other things to accompany us. She and her husband took

us to the

> airport and we said, " Goodbye and we will see you when we get

back! "

> Shortly after we checked in, Fred saw her walking up right behind

us for the

> flight, suitcase in hand. We hadn't spotted the suitcase in the

car. What

> a surprise!

>

> Our son had told us that they moved to the foothills of Colorado

and that it

> was pretty flat. He and his family picked us up in Denver in two

cars, as

> they couldn't fit us all in one car. We kept driving and driving

through

> mountains--not a flat area in sight--and I finally said, " I thought

it was

> fairly flat to your home. " I was told that Greg likes to take the

scenic

> route to wherever he goes. I said, " But I thought it took only 30

minutes

> from Denver and we have been on the road already about an hour. " My

> daughter-in-law replied that the scenic route always takes longer.

>

> We arrived in a small town and asked if that was Windsor. Boy that

sure is

> a lot more scenic than we thought. Greg told Fred that this was

Windsor and

> drove us to a house in the mountains. We couldn't get in because

the code,

> supposedly to his own house, didn't work. Our grandson said, " Oh,

the

> garage doors don't match (as in the dark they appeared to be of two

> different colors), we need to repaint them. My daughter-in-law

responded to

> my question, " The only thing I can tell you, it's not our house,

that's all

> I know. " Well we tried to chase down a guy to get the correct

code, but

> couldn't find him. Ended up in the Hyatt Lodge for the night. The

next day

> we went back to the house in the mountains and the code worked! The

surprise

> was that they had rented this marvelous mountain home in

Breckenridge for

> five days to celebrate--which certainly is what we did! What a

great time.

> Even our granddaughter flew in from Kansas City for the occasion.

>

> They had also made arrangements to meet some friends of ours who

spend part

> of the year in Colorado to meet us in Vail at one of their favorite

local

> eateries! We had more fun than the law allows!

>

> Afterwards we spent several days at our son's new residence,

shopping,

> sightseeing, and doing honey-do jobs which Fred offered to do. I

don't

> remember him being so eager to do them at home though!! But I think

> everything is better in Colorado.

>

> All in all, we had a wonderful time. If this is what we get for

the 50th,

> wonder what the 60th will be like! But first we have to reach that

occasion

> Feeling as good as we do, though, we may just make it there!

Upon our

> return we picked up the oil painting of the two of us that Fred had

> commissioned a friend of his to paint as our gift to each other.

That way

> we will always be able to remember what we looked like on this 50th

> Anniversary trip to Colorado!

>

> Margot

>

>

[Guest guest]

What a wonderful milestone Margot. A very hearty congratulations to

you and Fred!

Tracey