Guest guest Posted June 14, 2001 Report Share Posted June 14, 2001 Hi , My son just started mtx 4 weeks ago by injection. One weird coincidence I noticed in your email was that your nephew complained about back pain shortly after getting the first dose of mtx. My son did the same thing the day after he got his first injection. He had NEVER complained about his back before. It scared me so much that I called his doctor and she said that she was glad that I called and that we should keep an eye on it to see if it would continue or get worse. But, as far as she knows, mtx does not cause back pain. He complained about his back for one more day and then never again. Since he started mtx he has improved remarkably fast and he is running around like a little nut. He is actually jumping and skipping - something I haven't seen him do in such a long time. I really think the drug is great. It is supposed to take a month to see results, but I started seeing great changes in my boy by the second day after his first shot. No other bad side effects have occurred - knock on wood. But, I would hang in there and search for another reason for your nephew's fever before assuming that it is the mtx and stopping him from taking it. take care - Robin On Wed, 13 June 2001, s wrote: > > hi, my name is , I am the aunt of a 9yr old boy with JRA. I have > emailed the forum before..... > I am writing today to get information from family members of children with > JRA who have been on Methotrexate.....My nephew was just put on this > medication this week. He had his first dose yesterday morning. Last night my > sister had to take him to the hospital because his fever spiked to 104+, he > said his chest hurt and couldn't breath right, and his whole body ached to > the point where he wouldn't let anyone touch him because he hurt so much, he > complained about his back the most which hasn't happened before. > Does anyone have any information about the side affects of this medication > or has anyone experienced this before. Are there any major concerns we > should have? Anything will be helpful......Thank you for all your help > > A very concerned aunt, > > > > L. s > SQA Project Coordinator > jstevens@... <mailto:jstevens@...> > > > Softricity, Inc. > 332 Congress Street > Boston, MA 02210 > ph 617.695.0336 x137 > fx 617.338.7769 > www.softricity.com <http://www.softricity.com/> - Powering Software as a > Service > > > To manage your subscription settings, please visit: > > > For links to websites about JRA: > http://www.geocities.com/Heartland/Village/8414/Links.html > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2002 Report Share Posted January 12, 2002 , Thank you so much for the information on polyps. Now, I have another area (other than AIH) that I need to research before I speak to my GI again. What a wonderful son you have! I work with teenagers everyday (I teach HS English) and see that not all are as considerate and loving as your son. He is a treasure and you are to be complimented. Enjoy your manicure and pedicure and give your son a HUGE hug tonight. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2002 Report Share Posted January 25, 2002 I missed the program cause I couldn't be home at the time and later learn I found out I didn't have the channel. I would also like a copy if anyone has it Diane.........Mommy, Taxi, cheerleader,friend peacemaker, banker, cook, too 16 (aka ny) 15, 13, 11 (aka Jake), and 9 (aka Josh) and a special Auntie nanny to Kayleigh 7 months GOD BLESS AMERICA (fixed it linda lol) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2002 Report Share Posted March 2, 2002 At 20:19 02/03/2002 -0500, you wrote: > wrote: > > >Are you seeing any die off reactions. >I have started taking these drops a couple of days ago. >I feel so very tired. Last night I excused myself from the dinner table >to go to sleep and slept over 12 hours. >My skin especially on my arms and back feels so itchy. >I can't get over the exhaustion. >Is this typical in die off for an adult? >---------------- > >I've been about a week using the GSE drops and the most common side effect >for me is a headache. It's a rather low grade headache, actually, more >intense about 20 minutes after I take the drops and then gradually dropping >off until its just a barely noticeable annoyance. > >I've also felt a lack of appetite and oddly, an increase in itchiness in my >private area that comes and goes. I've got serious candida problems - an >IgG test showed astronomical levels. I've been taking 8 drops four to five >times a day for 6 days now. Other than that -- no other symptoms. > >But let me tell you, GSE is the most bitter tasting stuff I've ever had. If >I were a yeast and touched that stuff, I'd just shrivel up and die. It's >all I can do to get it down without gagging. Good thing I didn't have to >use this on my son!! > > Cz. > >, thank you for posting. Funny, I don't mind the bitter taste so much. What makes me Gag is magnesium citrate...... it has a salty kind of gross yucky kind of taste (explicit enough?). For now..........I am still itching but no rash, just an itch that seems to migrate. Any ideas how long one needs to take the GSE to get rid of this gut yeast? . >_________________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2003 Report Share Posted July 23, 2003 Dear Prue, I wished I had known about Glycine when I was weaning off Risperdol last year. I dropped her back down to 1000mg a day as she seemed to be getting weepy lately and I'm not sure if too much glycine would do this. I am just sooooo happy that she has stopped aggressing towards her teachers at school. Puberty has been tough to handle and I can't wait until she's through it (even though I don't want her to grow up so fast (: ). () > >The glycine supplementation that Steve >suggested is also starting to help. The past >couple of days since we got up to 1500 mg, > has been calmer, initiating her language >more, and actually got through a day at her >new school without aggressing towards the >staff. I also give her Culturelle every other >day and Candex every day.So for once I can >report some good news for a change and I hope >I can keep up the good news as time goes on >My best, > > Yay,this is excellent ! I am switching to AFP when it gets here too. Hope it works the same as for you... > > Glycine helped us too! I got Harry off the Risperdal because of it. I give 500mg so far. > Prue > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2008 Report Share Posted February 18, 2008 , I'm sorry.We waited until the last minuite to pack and forgot a bunch of stuff.Allan was sick and we didn't even arrive at the hotel until 5:30.You know Al is sick when he sets cruise control at 75.It was nice when we got there.Temps close to home but the next day(Sun.) was awful.Up to 55mph wind gusts sent the wind chill to sub zero.Going to get brunch almost got knocked down at 104lbs.He did good,he turned his back to the wind, braced his legs and got his center of gravity down low.Mon. was no better and our apoint. lasted almost 2 hrs.We stoped for lunch 20 miles south of Louisville and after leaving the snow started.We eventualy drove out of it and got back home to high 40's.It felt so warm compared to the temps we left. I do have some urinalysis questions for you,but will do that off list. I owe you a phone call so let me know when a good time is. Love Becki and 9 systemic @group s.com > Hi everyone, > Just wanted to send an update on Dave.He went to Cincinnati > Childrens Monday to see Lovell.It went realy well.No sighns of > Arthur for 6 months so finaly back in complete control after 2 > 1/2 yrs. made the decision to switch back to MTX shots,the > pills were hurting his stomache and making him throw up,which > was news to me.I guess he has forgotten all about the dreadful > yellow shots that he hated.Personaly I love the shots and he got > to reduce his dose by 5mg so thats a plus. > It was a long visit and got to ask alot of questions.The most > interesting I guess was I had never seen a CRP for .Vandy > never ordered it just the SED.The CRP is no better at > discriminating against non arthur inflimation. Back in Aug he had > no active arthritis anywhere and his SED was a 12 and his CRP > was a 2.5 back in April Lovell had to search high and low to > find a tiny amount of swelling in his rt ankle and his SED was a > 11 and his CRP was an incredibly high 5.7 I questioned about > what sub type was since no systemic symptoms since April > 02 he has and always will have systemic onset JIA and it will > not be long before they no longer classify it with the other > types of JIA,it is a totaly seperate disease. > Keeping all of you in my thoughts and prayers. > Hugs > Becki and 9 systemic > > > > ____________ _________ _________ _________ _________ _________ _Never miss a thing. Make your home page. > http://www.. com/r/hs > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2008 Report Share Posted February 21, 2008 we are traveling to cleveland with my son do you get a break on hotel rates when you come to cincinnati? we are having such a time trying to get a hotel room under $200 a night which can really add up if we are staying any length of time. Becki Larson <sojramom@...> wrote: , I'm sorry.We waited until the last minuite to pack and forgot a bunch of stuff.Allan was sick and we didn't even arrive at the hotel until 5:30.You know Al is sick when he sets cruise control at 75.It was nice when we got there.Temps close to home but the next day(Sun.) was awful.Up to 55mph wind gusts sent the wind chill to sub zero.Going to get brunch almost got knocked down at 104lbs.He did good,he turned his back to the wind, braced his legs and got his center of gravity down low.Mon. was no better and our apoint. lasted almost 2 hrs.We stoped for lunch 20 miles south of Louisville and after leaving the snow started.We eventualy drove out of it and got back home to high 40's.It felt so warm compared to the temps we left. I do have some urinalysis questions for you,but will do that off list. I owe you a phone call so let me know when a good time is. Love Becki and 9 systemic @group s.com > Hi everyone, > Just wanted to send an update on Dave.He went to Cincinnati > Childrens Monday to see Lovell.It went realy well.No sighns of > Arthur for 6 months so finaly back in complete control after 2 > 1/2 yrs. made the decision to switch back to MTX shots,the > pills were hurting his stomache and making him throw up,which > was news to me.I guess he has forgotten all about the dreadful > yellow shots that he hated.Personaly I love the shots and he got > to reduce his dose by 5mg so thats a plus. > It was a long visit and got to ask alot of questions.The most > interesting I guess was I had never seen a CRP for .Vandy > never ordered it just the SED.The CRP is no better at > discriminating against non arthur inflimation. Back in Aug he had > no active arthritis anywhere and his SED was a 12 and his CRP > was a 2.5 back in April Lovell had to search high and low to > find a tiny amount of swelling in his rt ankle and his SED was a > 11 and his CRP was an incredibly high 5.7 I questioned about > what sub type was since no systemic symptoms since April > 02 he has and always will have systemic onset JIA and it will > not be long before they no longer classify it with the other > types of JIA,it is a totaly seperate disease. > Keeping all of you in my thoughts and prayers. > Hugs > Becki and 9 systemic > > > > ____________ _________ _________ _________ _________ _________ _Never miss a thing. Make your home page. > http://www.. com/r/hs > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2008 Report Share Posted February 21, 2008 Cinci has what is called the careing network.A bunch of hotels offer discounts if you are traveling from out of town.I remember Vanderbuilt also had hotel brochures for famalies traveling more then 50 miles so I would assume Cleveland would have something similar. @group s.com > Hi everyone, > Just wanted to send an update on Dave.He went to Cincinnati > Childrens Monday to see Lovell.It went realy well.No sighns of > Arthur for 6 months so finaly back in complete control after 2 > 1/2 yrs. made the decision to switch back to MTX shots,the > pills were hurting his stomache and making him throw up,which > was news to me.I guess he has forgotten all about the dreadful > yellow shots that he hated.Personaly I love the shots and he got > to reduce his dose by 5mg so thats a plus. > It was a long visit and got to ask alot of questions.The most > interesting I guess was I had never seen a CRP for .Vandy > never ordered it just the SED.The CRP is no better at > discriminating against non arthur inflimation. Back in Aug he had > no active arthritis anywhere and his SED was a 12 and his CRP > was a 2.5 back in April Lovell had to search high and low to > find a tiny amount of swelling in his rt ankle and his SED was a > 11 and his CRP was an incredibly high 5.7 I questioned about > what sub type was since no systemic symptoms since April > 02 he has and always will have systemic onset JIA and it will > not be long before they no longer classify it with the other > types of JIA,it is a totaly seperate disease. > Keeping all of you in my thoughts and prayers. > Hugs > Becki and 9 systemic > > > > ____________ _________ _________ _________ _________ _________ _Never miss a thing. Make your home page. > http://www.. com/r/hs > > Quote Link to comment Share on other sites More sharing options...
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