Re: ? on the communication area of brain?

[Guest guest]

> BTW, venting here, my aunt told my mother that I should just bring my son

> over to my cousin's to play--that'll get him talking. (My cousin's son is

> a month older than mine and talked really early). I get it, it's just that

> I'm ineffective as a parent--that's why my son's not talking--bringing him

> over to her will get him talking right away! It's frustrating when people

> don't understand!!!!

This really strikes home with me.....can't tell you the sense of betrayal I

felt when my own brother said virtually the same thing. This was straight

after I had spent two whole days listening to his problems (his marriage was

going through an extremely rough patch and no wonder). I got angry for a

while but don't hold any grudges. I too had no concept of what it was like to

have a special needs child until I had one myself.

UK Stay at Home Mum

[Guest guest]

Hi ,

I'm the first to say that medical doctors may not always have all the

answers and at times parents just like us or holistic doctors can

discover ways to help our children. Ways that some medical doctors

do not feel comfortable recommending until all the clinical work is

done. What's getting me nervous with your email (and why I felt I

needed to answer right away) What is this " treatment " that the

naturopath recommended that your son wasn't " old enough " before for and

have you gone for a second opinion?

What does your son's pediatrician say about it? The treatment, is

there anyplace to research it from credible journals...at all?

It's always good to be skeptical when we are dealing with our

children. I tell people all the time that it sounds like fish oil is

too good to be true -but if you study under the surface there are

strong roots as to why we are seeing what we are. In addition to

medical journals, or on abstracts on clinical trials -you can also

look at many other grouplists outside of this one, and at other

conditions outside of speech, where EFAs are helping. There is

enough in fact to make some medical doctors recommend EFAs even

though there are no clinical trials yet in this area.

What about the treatment, or " remedy " the naturopath is talking

about? And is there anyway a neurological doctor should be involved

if there is a suspected fungus infection on your child's brain?

(Going back years ago wasn't this a big thing with fungus in the body

causing everything wrong?) The word " remedy " is really the word that

makes me think of that robot from the old TV show Lost in Space

(remember that?)

As far as what your aunt said, believe me I know how frustrating it

is. I used to say " I hope you are right, but just in case you aren't

I want to make sure I don't look back in the future and wish I

listened to the professionals instead "

Anyway, we are here for you so please let us know!!

=====

[Guest guest]

Thanks for your concern! It is nice to hear it! We have been going

to our ND for a few years now as a family and he has cured us of

several ailments so I really trust him. [He has gone through the

same schooling as a medical doctor but instead of spending so much

time on pharmaceutical drugs, he learned about alternative

therapies. He is familiar with MD diagnoses and treatments for all

ailments.] I can see how others would be skeptical and concerned

though. His " treatment " is merely some botanical herbs that Lucas

will be taking for 2 days. (I used the term " remedy " because it

seemed an appropriate word.) He was old enough to take it before but

I wasn't able to get him to take it and to follow the diet (no sugar,

fruit, fruit juice, grains, cheese). The dose he needed before was

more than now--thanks to the anti-inflammatory properties of the

Efalex. There are no side effects. Lucas has taken the botanicals

before when he had other problems and the problems were fixed.

I'm actually more skeptical of regular doctors. Every week I hear of

new drugs with tons of side effects that people take forever (since

they don't actually seem to cure anything) and that have no long term

testing done on them. And then we hear about unexpected side effects

they find out about after people have been taking them for a few

years. To take these herbs for a few days to a week with no side

effects that actually cure me of what's ailing me, seems to be a

safer bet. I do have to mention that my ND has developed his own

system which is different from other ND's. He has had great success

treating all disease--asthma, allergies, cancer, etc. He has

saved me from having to go on estrogen permanently--he helped my body

cure itself.

By the way, my son's pediatrician said that as soon as my son's ears

cleared, he'd start talking up a storm--he didn't. We are going for

weekly speech therapy which seems to be going well--thanks to the

Efalex and the therapist (finally got a good one).

I know it all sounds weird but " the proof is in the pudding " as far

as we're concerned. We have had so many positive results with taking

the botanicals for only a few days or so and our friends have had

similar success (one almost completely rid of psoriasis, one not

requiring blood transfusions for the rest of her life--as diagnosed

by MD's--due to rare blood disorder--cured in one week). I'm not

here to try to convince anyone but rather trying to provide some

insight to my point of view.

And thanks for the reply for my aunt. I'm glad people understand!

[Guest guest]

,

If this works I would definitely be interested to try it!! Please, let us

know!!!

thank you

His " treatment " is merely some botanical herbs that Lucas

>will be taking for 2 days. (I used the term " remedy " because it

>seemed an appropriate word.) He was old enough to take it before but

>I wasn't able to get him to take it and to follow the diet (no sugar,

>fruit, fruit juice, grains, cheese). The dose he needed before was

>more than now--thanks to the anti-inflammatory properties of the

>Efalex. There are no side effects. Lucas has taken the botanicals

>before when he had other problems and the problems were fixed.

[Guest guest]

My family has always acted like my daughter's illness was like

febrile seizures, and she won't have any problems. They don't

understand that she has brain damage. If they know that she has

problems, then they act like she has down syndrome.

She gets frustrated easily because of the speech problems and she

has sensory integration problems. They certainly don't understand

either of those conditions.

At least the others in this group understand!!! Thanks everyone!

> > BTW, venting here, my aunt told my mother that I should just

bring my son

> > over to my cousin's to play--that'll get him talking. (My

cousin's son is

> > a month older than mine and talked really early). I get it,

it's just that

> > I'm ineffective as a parent--that's why my son's not talking--

bringing him

> > over to her will get him talking right away! It's frustrating

when people

> > don't understand!!!!

>

>

>

>

> This really strikes home with me.....can't tell you the sense of

betrayal I

> felt when my own brother said virtually the same thing. This was

straight

> after I had spent two whole days listening to his problems (his

marriage was

> going through an extremely rough patch and no wonder). I got angry

for a

> while but don't hold any grudges. I too had no concept of what it

was like to

> have a special needs child until I had one myself.

>

>

> UK Stay at Home Mum

[Guest guest]

Hi again ,

Please do let us know! Another alternative method that I've been

hearing lots of great things about is the cranial sacral therapy

(done by a Physical Therapist) and the cranial osteopathy therapy

(done by an MD) Woods, who is an RN and a mom to a child with

apraxia and mild CP who is doing amazing on ProEFA just told me about

the cranial osteopathy therapy results for her son just like the EFAs

was almost immediate. There was another " surge " as they say. There

of course isn't the same amount of parents trying this as the EFAs.

I was told by everyone that takes their child for this type of

therapy to make sure you find someone who specializes in working with

children - stressed the cranial osteopathy over the cranial

sacral because it's done by an MD -but I really don't know enough

about it yet to know if that is accurate in all cases-maybe someone

else in our group does? However after all I've heard now from

various people in different areas of the world how great it is I

probably will take Tanner.

(And you are right about looking in that pudding for the proof!)

=====