Guest guest Posted January 18, 2002 Report Share Posted January 18, 2002 , , and all, My now 4 year old daughter had an MRI done when she was 2 and 1/2 and it showed that there was a mild myelin delay (myelin was in its final stage of development in the terminal zones). I was told that myelin usually completes development by the age of 2 but there is a bellcurve and some even typically developing kids don't finish until the age of 3. All of this is was discovered with the advent of the MRI. All of this you probably already know. The radiologist/neurologist who did the MRI actually gave me the most information. She called me on the phone and told me alot. One key item he told me was that he has scanned lots of kids like my daughter who aren't lacking myelin, just have it delayed in development or a very mild lack of it. He has followed these kids and found that between the ages of 3 -5 they progress tremendously to the point of being relatively caught up. I started supplementing with proefa last April with my daughter. The first sign of concern I had was the fact that she was not walking well until 18mths and even then she continued to walk on her knees frequently. Gross motor wise, I definitley did find that as your doctor said, there are developmental spurts. I never thought she would jump. But in one week in January, 2000, when she was not having any therapies of any kind, on her own, she started jumping, eating soup with a spoon, clapping her hands, and drinking with a straw. However, her progress with words and word sounds as well as I believe, receptive, did not come until I supplemented with efa's and in this case, proefa. Within days, I saw my first purposeful, looking right out for me, reaching for me " mama. " Then within weeks 2 other words came and the mama was every day. Sine May she has had sensory ot and since August, speech therapy. Both of which have been very important in taking the progress she has made and molding it, shaping it, and bringing her one step at a time toward what I hope is a bright future. Even though I am very skeptical and practical as an attorney, I am still surprised that so many doctors resist giving efa's credit. My father who was a dentist, always told us about the benefits of eating right and taking vitamins. I remember when I was only 5 or 6 and he told us about vitiamin C, zinc, painting our throats with iodine when we were sick, steaming our faces when we had colds, using olive oil instead of butter, staying away from nitrates, etc. If you have any questions, feel free to email and good luck. Carolyn aigjr@... > , > > I had to thank you for the information you posted to . Thanks > for the information, it sounds very logical to me. > All I can say is that I know how much of a difference my daughter > has made since she has been taking the proefa. is 17 months now > and she can say daddy and I have heard momma once or twice. (Never > after being asked to say it) She may be saying more words, but I am > not sure if it is me trying to make words out of the sounds or she > does not have enough strength or coordination in her mouth to make > sounds clear. She has become more active and she has gotten to the > point of cruising along furniture. I have noticed that not only is > she trying to make sounds, but she seems to be getting more > coordinated with her gross motor skills. I have mentioned this to > her neurologist, who blinked excessively and told me that she could > be making a developmental spirt unrelated to the proefa. Maybe so, > but I am a firm believer in simple things like nutritional deficits > can cause and help things that are not right in the body. > > Thanks for the info! > Rooker Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2002 Report Share Posted January 18, 2002 In a message dated 1/17/02 10:35:19 PM Central Standard Time, aigjr@... writes: > However, her progress with words and word sounds as well as I > believe, receptive, did not come until I supplemented with efa's and > in this case, proefa. Within days, I saw my first purposeful, > looking right out for me, reaching for me " mama. " Then within weeks 2 > other words came and the mama was every day. > What is proefa and how do you give it to her? Karla SAHM to Jackie, , Jenna and Kamryn Visit the kids sites: <A HREF= " http://jackierenee88.homestead.com/Jackie1.html " >Jackie</A> <A HREF= " http://jackierenee88.homestead.com/1.html " ></A> <A HREF= " http://jacjoejensplace.homestead.com/JennasPage.html " >Jenna</A> <A HREF= " http://jacjoejensplace.homestead.com/NewBaby.html " >Kamryn</A> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2002 Report Share Posted January 18, 2002 Hi Karla, It was nice instant messaging with you. I know you know now how to get the proefa, what it is, and where to get it since we " spoke. " I want to give you some more encouragement. You have started at a great age, your child is 2. You are so lucky to be able to start with the proefa now as well as do your ot and speech. Now, don't forget what I told you-get the trapoline for the low muscle tone and sensory therapy, go the that gorgeous California Beach and have her play with the sand, use an electric toothbrush, use proefa, make your house into an ot facility we spoke about, etc. posted the prior post regarding foods and textures. Think positive, we are all here to help!! Carolyn Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.