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Re: Digest Number 390

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THANK YOU FOR THE WELCOME

I WILL PROBABLY JUST SIT BACK FOR AWHILE AND OBSERVE WHAT REALLY TRANSPIRES

BETWEEN ALL OF YOU. PLEASE DON'T THINK I AM ANTISOCIAL IF I DON'T RESPOND

IMMEDIATELY

A QUICK CAPSULE OF MY PROBLEM IS A 6 YEAR HISTORY OF PA WITH INVOLVEMENT OF

JOINTS ALL OVER MY BODY ON AN IRREGULAR ROTATING BASIS WITH THE HANDS, KNEES,

SHOULDERS AND FEET BEING MOST EFFECTED. AT TIMES I WALK LIKE A DUCK BECAUSE

I CANNOT PUT PRESSURE ON THE THE BALL OF MY RIGHT FOOT.

MY PROBLEMS ARE THAT I HAVE MULTIPLE DRUG ALLERGIES (TRUE ALLERGY) AND

MULTIPLE DRUG INTOLERANCES WITH SEVERE SIDE EFFECTS TO MANY OTHER DRUGS

INCLUDING ALL COX 1 NSAIDS AND NOW TO THE NEW COX 2 NSAIDS. PREDNISONE AND

METHOTREXATE ARE ALSO PROLEMATICAL.

I HAVE BEEN QUITE FORTUNATE IN HAVING, WHAT I CONSIDER, TO BE THE BEST OF

MEDICAL CARE WITH AN INTELLIGENT, CARING AND KNOWLEDGABLE RHEUMATOLOGIST.

HELLO TO ALL AND I LOOK FORWARD TO SITTING IN ON YOUR DISCUSSIONS

DOCSSS13@...

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  • 7 months later...

In a message dated 8/31/00 11:55:01 AM Pacific Daylight Time,

egroups writes:

<< And I really do take offence at the notion that just because I use a free

hosting site, that I cut corners on my products, or that anyone else does.

I'd rather use that $20 to buy some extra shea or oils to finish an order.

>>

I agree completely!!!!! I don't find it true that you can't trust anyone

with a free web site. I have used both and have had wonderful experience with

each. Jacque

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In a message dated 8/31/00 2:55:03 PM Eastern Daylight Time,

egroups writes:

<< craft shows >>

First check with the state sales tax authorities to see if you need a tax

certirficate, many shows require that you have one to have a place in the

show.

L. Clugstone

The big print giveth and the fine print taketh away.

- J. Fulton Sheen

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  • 2 years later...
Guest guest

O.K., I've got it. It's Ramos, lin, J. Neurotherapy Summer-Fall 98, p.

26.

From: Goldring <paul.goldring@...>

Subject: Re: Ramos Protocol

What's the reference, Gene?

On Tuesday, June 10, 2003, at 01:43 PM, Gene wrote:

> Hello--

>

> I have just read an article by Ramos, of the Ramos protocol. He

> compares

> training down theta to bloodletting, in which blood was once thought

> to be a

> hindrance, but is now seen to be valuable.

>

> He proposed a protocol to train up beta and theta at CZ and F3.

> Considering

> that people report success by training down theta, this is

> surprising. He

> says that he can reduce the number of sessions required from 40 or 60

> to

> about 20.

>

> This is tempting, but also seems it would screw up whatever progress

> I've

> made already, to go in the other direction. Currently, I'm having

> little

> success in raising SMR at C4, and if this continues several more days

> I will

> be pretty discouraged.

>

> The article is a little confusing. Some sentences suggest he trains

> CZ on

> one occasion, then F3 on another. Others suggest maybe those are the

> active-reference placements. Then again, when he mentions them

> together, he

> may mean he is training two channels, and they are both active

> points. Does

> anybody know for sure?

>

> Thanks,

> Gene

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Guest guest

Thank you for writing about stress. It helps. My 82 year old mother lives

with me and next week will undergo her second set of tests, x-rays, and a

surgical procedure to find out why she has blood in her urine...again. She

has lost 10 lbs. in the last month. What courage. She walked 1 and 1/16th

mile around Lion's Park with me today. I am back on predesone, and continue

with methrotrexate injections once a week. I believe in fighting the RA with

everything I've got. I've had it since 1960 when I turned 21.

Jean

----- Original Message -----

From: <Rheumatoid Arthritis >

<Rheumatoid Arthritis >

Sent: Sunday, June 15, 2003 1:50 AM

Subject: Digest Number 390

>

> There is 1 message in this issue.

>

> Topics in this digest:

>

> 1. Re: Re: stress

> From: n Huyck <mhg44@...>

>

>

> ________________________________________________________________________

> ________________________________________________________________________

>

> Message: 1

> Date: Sat, 14 Jun 2003 07:44:48 -0700 (PDT)

> From: n Huyck <mhg44@...>

> Subject: Re: Re: stress

>

> On the medical level I don't know how stress affects RA. I do know, in my

case only, stress increased the pain. I've had so many surgeries it seems

I've lost count. Each surgery was serious; most were life saving. In most

all cases they brought with them a list of after-effects; some being those

of joint pain, another new site of pain, or the addition of bone with gnarly

teeth gritting shooting pain. I've gone the physical therapy route to no

avail. They watch me and shake their heads. They try and it doesn't work.

I try so hard to work, to exercise, to even crawl my fingers up a wall, or

move my arm up high enough to comb my hair, I cry. I have found - in no

uncertain terms - stress played a major role each time. I took the ball in

my own hands as far as the stress thing went (to the best of my ability) and

I do feel better, although people who know me do know there are times I hurt

badly. I do my best to keep a realisitic outlook, yet look at the brighter

and li!

> ghter side of things too.

>

> You know, I watched, as my mother with her Parkinson's disease slowly got

worse and worse. She taught me a lot of things. One of them I likened to

Mohammed Ali when he said " Float like a butterfly, sting like a bee. " Mom

fought Parkinson's by stinging it and then floating during the in-between

good times. It was the hardest thing ever, watching as Mom slowly ebbed

away, yet her spirit and love of laughter remained. She floated. She

stung. She lived two or three GOOD (for her - for us) years longer than any

doctor thought. She left this earth floating. I have no idea if you

understand what I'm saying.

>

> You cannot rid yourself of the sad, sad things going on in your life at

this time. You can, however, when you remember, go outside, breathe in the

air, look at a blade of grass or a smile on a child's face -- you will be

floating, if even for a few minutes. Gradually, dear woman with more than

RA pain, you will float for longer periods of time. You cannot stop the

progression of your father-in-law's life ebbing away. You can put yourself

in the place you belong. At nearly the highest rung of the ladder. When

you think of things with regard to your family, think of the good things.

Please don't dwell on the bad, even though you nearly can't help it. If

possible, write your feelings and pain, anger, despair down on paper. Then

write all of the good things in your life. Talk about healing!

>

> Put on upbeat music. Sometimes stress leads to depression and progression

of pain. Maybe it's time to start floating like a butterfly and stinging

like a bee. And get angry at the position you are in, right now, today -

it's okay. Do write it down. Give it away. Don't keep it. I do know you

feel you are up against a brick wall. I only know of one miracle worker,

and that's certainly not me. Remember, sweet lady, there is laughter behind

the eyes of your husband, your children and family, and smiles on their

faces; if not now, think about the smiles that were there, for they will

return.

>

> And most of all, remember to give yourself nearly the highest rung on the

ladder. Draw the picture of a ladder. Put names and things on all positions

they belong on each rung (this includes your RA.) At the very top put your

higher power, whomever it is. Next is always you. Without you directly

under your higher power, you've begun your slip down the rungs of the

ladder. I've been at nearly the bottom rung - and believe me the climb up

each rung was a battle. But, by golly, I now float under the very top rung.

And I will " Float like a butterfly and sting like a bee. " Even while

gritting my teeth - even while crying in sadness for others.

>

> There is another way to think of it, and I'm not quite sure I'm quoting

this correctly, but " When facing a difficult task, think of it as going

after Moby Dick and take along the tartar sauce. "

>

> Someone said, " All you can do is the best you can. " May God Bless you

and bring your father-in-law peace. Your husband and family peace. And you

more peace and less pain.

>

> n

>

>

> I own my own business and am constantly under stress. I rely heavily

> upon tourists and this summer is the worst I've ever had so under

> more stress than usual. I have now idea how it affects my RA. It

> seems to make no difference in my life if my day or week is going

> real well or not. Sorry I couldn't help more and very sorry your

> father-in-law is so sick.

>

> Good luck and God Bless,

> Jay

>

>

> > does anyone know how stress is related with RA? am going thru alot

> > of stress right now. my father in law is in bad shape he most

> likely

> > wont live much longer. right now i am holding alot in for my hubby

> > and family. i am doing alot of stuff for them.thanks guys. sessymama

>

>

>

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  • 4 weeks later...
Guest guest

A neighbor that helped me didn't steal my pain meds but it was about

three times before I discovered she was taking my vitamins and cho

chips. Lexi

On Friday, July 11, 2003, at 04:20 AM,

spinaldisorderssupport wrote:

> I just had cervical fusion surgery (I'll post that story later),

> and they gave me that stuff. My pain levels are quite manageable,

> however I had a neighbor come over to give me flowers and run an

> errand for me and I'll be damned if she didn't pilfer some of those

> pills, like 20 or 30. Sooo.... I had to get another rx written,

> hardcopy to take to the pharmacy. Make sure I hide the pain pills

> when she comes over!!!! LOL (now that the new rx is filled (-;

>

> It's good, but not that good!

>

> Hank

>

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Guest guest

> OMG Lexi..how funny is that she took the cookies..LOL

Lexi -

You ought to bake a batch of Elax cookies. Get their

chocolate laxative and cook up some. :)

When I was home with my mom in May, she ended up

with gout on her foot. She was in such pain, and had

a doctor's appt. in 2 days, so I allegedly (just in case :) )

allowed her to take one of my Vicodin pills so she could

sleep. She had a great 15 hour sleep. :) I was worried,

but can laugh about it now, but would not (allegedly) do

it again.

joe

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Guest guest

HAHAHA..I bet that friend will think twice before she takes another

brownie..or drugs..Or she can be totally stupid and not even know what was done

to

her..HAHAH..

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Guest guest

Hank I had a friend who had someone steel their pain meds out of their medicine

cabinet and she made brownies with exlax in them. She left them out on the

table when she saw this friend coming and sure enough this so called friend

decided to put a couple of those brownies in a napkin and take them home with

her. She hasn't seen her friend in about 2 weeks (ha ha ha) serves her

right!!!!!!

Re: Digest Number 390

A neighbor that helped me didn't steal my pain meds but it was about

three times before I discovered she was taking my vitamins and cho

chips. Lexi

On Friday, July 11, 2003, at 04:20 AM,

spinaldisorderssupport wrote:

> I just had cervical fusion surgery (I'll post that story later),

> and they gave me that stuff. My pain levels are quite manageable,

> however I had a neighbor come over to give me flowers and run an

> errand for me and I'll be damned if she didn't pilfer some of those

> pills, like 20 or 30. Sooo.... I had to get another rx written,

> hardcopy to take to the pharmacy. Make sure I hide the pain pills

> when she comes over!!!! LOL (now that the new rx is filled (-;

>

> It's good, but not that good!

>

> Hank

>

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