Re: Advice needed re: overnight EEG

[Guest guest]

My daughter is five and she had a 24 hour EEG a few months ago. She had a

blast and didn't complain once!

Could we have done this at 2? NO WAY!

For blood work she had to be held down. It wasn't a pretty site.

Jennie

Lindsey's site

http://lindsey03.homestead.com/mygirl.html

[Guest guest]

First of all , our children are not " NORMAL " . I was wondering the same

thing because i think they are going to have do a 24 hour. " THERE IS

NO WAY ON GOD'S GREEN EARTH WILL HE LET THEM DO THAT. "

My 7 year old has had this done 2x's and 's 10 month old brother did it

with no problems. Now will be a different story. they would have to

KNOCK him out.

If anyone else knows please let us know.

[Guest guest]

Hi --

My son had an EEG done at 2.5 y and did fine without any sedation,

but my other 2 kids could never have done it at that age. I think

you have to judge it based on how your child reacts to new

experiences with people he doesn't know - it can be pretty scary for

many. I would think for those children who are more fearful it would

help to wait until they are old enough that you can explain it to

them and why it is important.

As far as blood work is concerned - if the person doing it with the

vein is used to performing blood work with young children it can be

done quickly and painlessly. If they are not good at it it can be a

nightmare for everyone. I have a friend with a 3yo with leukemia who

needs blood work every week and they have a bottle of skin numbing

solution that numbs the skin of the arm where the needle will go in

so she honestly doesn't feel it. You could ask your doctor.

--

[Guest guest]

Michele:

had an 80-minute EEG when she was 21/2, and

she fought having the leads put on too. The only way

that we were able to proceed, was my husband had to

hold her arms and legs and put his weight on her so

she couldn't move. She screamed the entire time! No

kid likes this and the adhesive is stinky! I don't

think that that reaction is rare. As for the blood

draw, I put in my lap and held her arms still

so they could draw the blood.

Good luck and let us know how it goes!

Martha in MA

--- hank_14 <aeagle311@...> wrote:

> Hi all!

>

> I hoping to hear from anyone who has had (their

> child) undergo an overnight EEG. I'm really torn on if we

> should even try it again, since the percent of him

> having night seizures seems so rare (to me).

>

> Also any suggestions for how to handle blood

> withdrawl through a

> vein? He is supposed to have the fragile X test

> too...

>

> Thanks for your help,

>

> Michele (Mom to 2.5 Verbal/Speech Apraxia,

> ASD, SID)

>

>

>

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[Guest guest]

Your poor little boy! This sounds much like the last time I took my daughter for

a

blood test. They had to draw a fair amount, which the technician kept clucking

about

to begin with. Then she insisted it would be better if my daughter lay down for

the

procedure. I told her I didn't think that would work well for her, but she kept

clucking and insisting, so against my instincts (she's done this a zillion

times,

right? what do I know), that's what we did. I will never be bullied into doing

what I

know isn't right for my child again. It was a disaster. To keep her still I

would

have had to push her down with enough force to leave bruises. Needless to say,

we

didn't get all the blood, my daughter was first hysterical, and then sobbing

with

such misery that I could barely keep myself together. I was glad she couldn't

see the

tears streaming down my face all 30 minutes of the ride home. She would still

have

cried and fought sitting on my lap with my arms around her, but she also would

not

have felt that extreme loss of control when lying down. And enveloped in my arms

would have been more comforting. Both things important to a child with SI

issues.

So my suggestion is to trust your instincts (you were right about the EEG) and

don't

let anyone try to convince you they know your son better than you do.

Barbara

hank_14 wrote:

[Guest guest]

Have you tried the 4 hour video eeg. My son has the same problems and is about

the same age. For us, they actually wanted to do an ambulatory eeg where they

hook you up at the hospital and then send you home. HA- I told them we would

nver get out of the hospital and of course, we didn't. They then did a routine

45 minute eeg with chloral hydrate given and did not catch anything and then

just a couple of weeks ago they did the 4 hour eeg. At least with that, they

can give the sedative and if it is sleep deprived you can pretty much count on

the little one sleeping through it. Just a thought. You may have already tried

this.

Stacey

[Guest guest]

Hi. My son was 3.. he had to have a Video EEG(24 hr

turned into 48hrs) PLUS an MRI. My son is Autistic and

non-verbal.. They had to put little electrodes in his

head and I had to pretty much lay on top of him to

hold him down.. They also say that some kids have an

allergic reaction to the EEG glue BUT wont know that

until they take the electrodes out. My son had a

reaction.. it looked like red welts on his forehead.

He also caught a 24 hour stomache virus while in the

hospital so they had to give him IV fluids. He was all

hooked up! It was awful!! His head was wrapped with

electrods coming out and a power pack he had to

wear(for video connection) and pushing around an IV

bag! His MRI.. he had to be put to sleep. Bring plenty

of Videos.. Good Luck..

--- borngmama@... wrote:

> My daughter is five and she had a 24 hour EEG a few

> months ago. She had a

> blast and didn't complain once!

> Could we have done this at 2? NO WAY!

>

> For blood work she had to be held down. It wasn't a

> pretty site.

>

> Jennie

>

> Lindsey's site

> http://lindsey03.homestead.com/mygirl.html

>

>

> [Non-text portions of this message have been

> removed]

>

>

>

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