Re: Zachary's Mom desparate for ANSWERS!!!!!!

[Guest guest]

Hi Rowena,

I know it sounds silly, but how many neuropsichiatrists have seen

Zachary? It sounds to me he needs a good neuropsichiatrist to sort

the problem out. My suggestion is: keep looking for another

specialist until you get the right answer.

My daughter Alison was seen by a queue of doctors, NP and other

specialists of 9 different hospitals, until eventually a NP realized

IMMEDIATELY she had a syndrome and addresed us to a geneticist who

gave us the right diagnosis. That after 7 years and a half.

So do not give it up. When doctors say it is a difficult case, it

just means: I have not a clue.

Simonetta, Milan, Italy