RE: 29 mo. child just diagnosed as apraxic-like

[Guest guest]

,

I was also hesitant to take my son to a neurolgist. He made the

initial diagnosis last June of " probable apraxia " . In October the

developmental pediatrician confirmed the verbal and oral apraxia. She

also determined that he had low tone which has resulted in us getting

OT and PT services. I am not a Dr. but if I explain this correctly,

the low tone contributes to the gutterly sound because the child

doesn't get all the air up for breath support. This is where OT comes

in.

I don't know what your situation is but no one says you have to share

the results with the service who provides speech which I am guessing

is Early Intervention.

Just a Mom's thought!

denise

> My youngest child (29mo.) was just diagnosed during a supplemental

> speech evaluation as apraxic-like. She has many single words, but

> can only say the first sound in those words (e.g. up is " uh " and

> apple is " ah " ) and sometimes she has problems with the begining

> sound. Blend sounds are completely beyond her at this time. She

has

> been receiving speech therapy since 19 mo. when she could say " ma "

> and gutteral sounds, but was making slow progress so I requested

the

> supplemental evaluation. She will now be receiving speeech 5x/week

> and my question is where should I go from here. I am as sure as I

> can be that she has only verbal apraxia. The speech therapist

> checked her for oral apraxia and her physical abilities both fine

and

> gross motor control are above age level. Should I take her to see

a

> neurologist? I am concerned that if he finds nothing wrong they

> might cut back her speech which she so desperately needs.

> --

[Guest guest]

:

Hi! Our son ph is almost three years old and was

just diagnosed with oral and verbal apraxia; he

originally was diagnosed with PDD-NOS and SID. Based

on our experience, I would recommend starting with a

developmental pediatrician as opposed to going to a

neurologist first. What was told to my wife and I was

that neurologists look for physical reasons for a

perceived abnormality. With apraxic/autistic

children, usually ( I say usually because I'm sure

there are exceptions) there is no physical problem

with the nerves and connections and so forth; the

problem lies with the interpretation of the signals

the brain is receiving. A developmental pediatrician

can give you a comprehensive evaluation, make

recommendations and give you a game plan to help deal

with whatever issues exist in the future.

I saw from another post that you live in NY state; we

do as well. If you are in the New York City area, I

can recommend some doctors to you if you'd like.

Hope this helps!

Jim, dad to ph, 2.9 y.o., PDD, apraxic and SID

--- rmbr1961 <romanowiczr@...> wrote:

> My youngest child (29mo.) was just diagnosed during

> a supplemental

> speech evaluation as apraxic-like. She has many

> single words, but

> can only say the first sound in those words (e.g. up

> is " uh " and

> apple is " ah " ) and sometimes she has problems with

> the begining

> sound. Blend sounds are completely beyond her at

> this time. She has

> been receiving speech therapy since 19 mo. when she

> could say " ma "

> and gutteral sounds, but was making slow progress so

> I requested the

> supplemental evaluation. She will now be receiving

> speeech 5x/week

> and my question is where should I go from here. I

> am as sure as I

> can be that she has only verbal apraxia. The speech

> therapist

> checked her for oral apraxia and her physical

> abilities both fine and

> gross motor control are above age level. Should I

> take her to see a

> neurologist? I am concerned that if he finds

> nothing wrong they

> might cut back her speech which she so desperately

> needs.

> --

>

>

>

__________________________________________________

[Guest guest]

Hi -

I would suggest taking your daughter to a neurodevelopmental pediatrician.

In my experience and also from reading people's posts, I find that they are

the best physicians to treat our children. A Neurodev. Ped. looks at the

whole child from a global perspective and will see things that many other

doctors and parents won't look at. I too, thought my son " only " had verbal

Apraxia. After seeing a neurodev. ped. I found out that he did have

hypotonia and sensory integration issues. This was discovered by subtle

signs that I would never have picked up such as the way my son sat in a W

pose. He would sit on his but with his legs bent like a W to balance and

strengthen him better because his truncal muscles were not strong enough.

My son also would freak out when I tried to brush his teeth or hair, cut his

nails, refused to wear any shirts with tags on it. I thought he was just

being difficult. It actually turned out to be sensory integration. There

were other things but my point is, if there's no problem, then great, but if

there is, then go to a person with the correct experience to find it early

so that you can begin to address it now. Just my thoughts...

in NJ

KDR-1@...

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Message: 25

Date: Tue, 29 Jan 2002 19:47:29 -0000

From: " rmbr1961 " <romanowiczr@...>

Subject: 29 mo. child just diagnosed as apraxic-like

My youngest child (29mo.) was just diagnosed during a supplemental

speech evaluation as apraxic-like. She has many single words, but

can only say the first sound in those words (e.g. up is " uh " and

apple is " ah " ) and sometimes she has problems with the begining

sound. Blend sounds are completely beyond her at this time. She has

been receiving speech therapy since 19 mo. when she could say " ma "

and gutteral sounds, but was making slow progress so I requested the

supplemental evaluation. She will now be receiving speeech 5x/week

and my question is where should I go from here. I am as sure as I

can be that she has only verbal apraxia. The speech therapist

checked her for oral apraxia and her physical abilities both fine and

gross motor control are above age level. Should I take her to see a

neurologist? I am concerned that if he finds nothing wrong they

might cut back her speech which she so desperately needs.

--

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