Re: finally have a possible diagnosis of dyspraxia

[Guest guest]

--- In @y..., Bridget Kirk <kaelismommy@y...>

wrote:

>

> Ughhh, see I'm doing it now. Trying to convince

> myself that I can trust the diagnosis since there's a

> part of me still not accepting it.

>

Hi,

I'm just curious why a " diagnosis " is important? And can someone

fill me in on what makes a child with " verbal dyspraxia " different

from a " late talker " ? I'm very confused. I mean, can they really

be separated easily? What are the characteristics of each and how

does the treatment offered differ?

Thanks,

Jody

[Guest guest]

In a message dated 1/29/02 1:49:37 AM Central Standard Time,

honeyboydiapers@... writes:

> And can someone

> fill me in on what makes a child with " verbal dyspraxia " different

> from a " late talker " ? I'm very confused. I mean, can they really

> be separated easily? What are the characteristics of each and how

> does the treatment offered differ?

>

One thing I am wondering too......just because a child has dyspraxia, does

that mean they will need special ed classes when starting school?

~*v*~*v*~*v*~*v*~

Karla

Married to Joe

SAHM to

Jackie, , Jenna & Kamryn

~*v*~*v*~*v*~*v*~

Visit the kids sites:

<A HREF= " http://jackierenee88.homestead.com/Jackie1.html " ></A>

<A HREF= " http://jackierenee88.homestead.com/1.html " >ph</A> <A

HREF= " http://jacjoejensplace.homestead.com/JennasPage.html " >JennaNoelle</A> <A

HREF= " http://jacjoejensplace.homestead.com/NewBaby.html " >KamrynBelle</A>

[Guest guest]

> I'm right there with you.....I know that Jenna has apraxia of speech, even

> though she hasn't officially been diagnosed yet. I have such mixed

> emotions

> as well. Jenna just barely turned 2, so our girls are close in age. This

> Thursday her Infant Specialist and OT come and I am going to push them to

> get

> her a speech therapist.

see now I dont know.....rebekah has NO END constants on words but is,

recently more " talkative " she makes noisy....she didnt used to tho

:¨`·´¨:*

.....`·.·´:¨`.´¨:

......* -;- `·.·´*

-!Karin!-

& Rebekah's mom

Make Feb. 14

<A HREF= " http://www.tchin.org/aware.htm " >A Day for Hearts: Congenital Heart

Defect Awareness Day</A>

[Guest guest]

In a message dated 1/29/02 1:26:00 PM Central Standard Time,

TheYospes@... writes:

> see now I dont know.....rebekah has NO END constants on words but is,

> recently more " talkative " she makes noisy....she didnt used to tho

>

Karin, when does she see the speech therapist again? Also, does she have any

of the characteristics listed on the web sites? What about sensory issues?

~*v*~*v*~*v*~*v*~

Karla

Married to Joe

SAHM to

Jackie, , Jenna & Kamryn

~*v*~*v*~*v*~*v*~

Visit the kids sites:

<A HREF= " http://jackierenee88.homestead.com/Jackie1.html " ></A>

<A HREF= " http://jackierenee88.homestead.com/1.html " >ph</A> <A

HREF= " http://jacjoejensplace.homestead.com/JennasPage.html " >JennaNoelle</A> <A

HREF= " http://jacjoejensplace.homestead.com/NewBaby.html " >KamrynBelle</A>

[Guest guest]

Dear Bridget,

Jack my 2 1/2 yr old was diagnosed in 4 1/2 months ago

but we first learned of Jack possibly having apraxia 6

1/2 months ago. I still to this day have a very small

part that has a difficult time accepting that he has

Apraxia. When it was confirmed for us in September I

felt this huge weight had been lifted, because We had

searched to find out what is not right here with my

child, but was still faced with the fact that he does

have this disorder and the reality that 1. it is not

just a delay and 2 that we have a lot of work to do,

and it is not going to be easy. The great thing is you

have found a great SLP and with that you WILL see

progress. You are a great mom who clearly loves her

daughter and would do anything for.

I have found that as the days and months pass there

are less days of feeling the way you do right now.

When you see progress even if it is something

extremely small it will be that, that will keep you

moving foward and of course seeing your precious

daughter overcoming her issues.

Good luck,

Sincerely,

Eileen.

--- Bridget Kirk <kaelismommy@...> wrote:

> I've known in my heart for 5 mos that my daughter

> probably had apraxia and now that an SLP has

> confirmed

> it, I'm wondering why I'm feeling all these mixed

> emotions. On one hand, I feel that Kaeli and I

> finally have a partner to help her overcome this.

> But, at the same time, I guess there was part of me

> wanting to hear that this wasn't the problem, that

> she

> is just a late-bloomer.

>

> I'm also having all these mixed emotions about the

> diagnosis. I have full confidence in this SLP,

> especially since she actually knew more about

> apraxia

> than I did. I know that sounds strange, but the

> last

> 2 SLP's I've come in contact with didn't even

> realize

> verbal apraxia could occur in the absence of oral

> apraxia. Not even sure they realized there was a

> difference. This therapist has been doing speech

> therapy in children for 8 yrs and has sevaral

> children

> with the apraxia diagnosis on her caseload now. The

> reason I say this is because there is a little part

> of

> me saying, " but what if she just thinks it's apraxia

> because I do? " I don't know why I'm letting that

> thought even haunt me since I've suspected it and

> since Kaeli has so many of the characteristics.

> But,

> maybe this is just the part of me that still can't

> accept that my daughter probably has a disorder? I

> mean, she did hear and see everything Kaeli is

> capable

> of. Kaeli was far more cooperative for this SLP

> than

> most anyone she comes in contact with. In fact, the

> SLP spent 2 hrs with us since Kaeli continued to do

> so

> well.

>

> Ughhh, see I'm doing it now. Trying to convince

> myself that I can trust the diagnosis since there's

> a

> part of me still not accepting it.

>

> I do want to say thank you to this group!! I

> learned

> so much from reading posts and learned a lot of

> therapy techniques. The SLP thinks the only reason

> Kaeli is doing so well and making so many attempts

> is

> because of all the work we've been doing at home for

> the past 4 mos. I'm so looking forward to the day

> my

> daughter can put syllables together to form words.

>

> I really can't say enough thank you's to those

> people

> that are working so hard to make apraxia more known.

>

> I know for a fact my daughter would not be where she

> is right now if not for the hard work of so many

> people that I don't even know. I would still be

> waiting for her to " just start talking in sentences

> one day " like everyone tried to convince me of.

>

> Thank you!!!

> Bridget

> mom to Kaeli (almost 2)

>

>

> __________________________________________________

>

[Guest guest]

In a message dated 1/29/2002 12:17:21 PM Pacific Standard Time,

LuvMyHubNKids@... writes:

> Karin, when does she see the speech therapist again? Also, does she have

> any

> of the characteristics listed on the web sites? What about sensory issues?

this coming thurs and then the following thursday. The only sensory issue I

notice is SCREAMING or SHREAKING when the sun hits her in the car....

Ok I went to the website...and my responses are at the end in

parentheisis...these are the doctor ones.....

Your child may say the same word four different ways. Sound errors are

significantly inconsistent!!!

Your child adds vowel sounds to the end of words that finish with a

consonant (Up-pa). (no but she doesnt put the constant there....mouse is

mo...cookie is cook (k is soft), cracker is crack )

Apraxic children may be able to produce sounds in imitation, which they

do not use in connected speech. (as in the fact that she does animal sounds

really well but doesnt talk?)

Your child gets less and less understandable as his speech unit gets

longer. Severity of apraxia increases as the length of the word or utterance

increases.(length of speech sentances doesnt seem to be increasing so I guess

not....)

Your child tends to mix-up consonants within a word. Sound swapping

errors are common (efelant vs elephant). Metathetic errors are frequent.

(words are really clear enough to tell....she does have some funny

words....daddy or dada is daden...paci is ta ta(new word BTW) christine (her

sister) is tee teee (space between the two ) or CEEE CEEE said the same way)

Your child may drop final consonants in single syllable words (omission

errors) simplifying their speech unit to contain consonant-vowel pairs in

short strings. “Cat come home†= “Ca co hoeâ€. YES YES YES

Your child may not be able to change his pitch during speech production.

Prosodic disturbances of speech, pitch, stress and rate are frequently in

error(she does this very well this is really her main communication...pitch

changes).

Your child may use only /b/, /m/, /d/, /g/, /z/ with simple vowels like

/uh/, /ah/, /oh/, but not /p/, /t/, /k/, or long vowels /ay/, /ee/, /i/ or

/ow/. Voicing errors, nasal resonance errors, and lengthening vowels before

omitted consonants are present. (I dont know...example? I dont understand

this one....)

Your child has difficulty repeating two different consonant + vowel

pairs over and over again. Marked difficulty repeating series of speech

sounds in diadokokenetic series /patika/. (?)

Other elements of difference include: - a big discrepancy between the

child’s ability to move their lips, tongue and jaw for eating or non-speech

activities and the use of these parts during speech on command. (no not that

I have noticed)

-general normal EEG/MRI results (one test she hasnt had)

-the ability to understand everything said to them. Normal receptive

language. (we think she understand everything but chooses to ignore quite a

bit)

-traditional speech therapy techniques are ineffectual. General speech

progress is slow and requires intensive, appropriate, speech therapy. (dont

know...only seen her 3 times....2 were evaluation sessions)

:¨`·´¨:*

.....`·.·´:¨`.´¨:

......* -;- `·.·´*

-!Karin!-

& Rebekah's mom

Make Feb. 14

<A HREF= " http://www.tchin.org/aware.htm " >A Day for Hearts: Congenital Heart

Defect Awareness Day</A>

:¨`·´¨:*

.....`·.·´:¨`.´¨:

......* -;- `·.·´*