Guest guest Posted January 23, 2001 Report Share Posted January 23, 2001 Brigitte, My diagsosis has just been changed to PA. I've been reading a lot about it since my diagnosis a few weeks ago. I am also sero negative with the wrong diagnosis of RA for over 20 years. I have very mild psoriasis, but the arthritis isn't so mild. Both knees were replaced 4 years ago, and my ankles are in need. It is now in my elbow and starting in my wrist. BUT I am not a good person to judge, because I was treated with the wrong medication for many years. Maybe if I had been diagnoses and treated earlier, the damage could have been minimized. MOST people have mild to moderate, manageable arthritis, but some have progressive, erosive and disabling arthritis. There is no proven cause, but stress, trauma, heat-shock proteins, and strep and staph infections have been implicated. There is also a genetic link, which is what led to my diagnosis. I happened to ask for a refill of a coritsone cream that I use in the winter for patches of what I thought were dry skin. I mentioned that my daughter was broken out very bad. He asked if any other family member had it, which I said that I have an aunt with it. The joint inflammation in PA is similar to that seen in RA and other types of inflammatory arthritis. Only about 5% of people that have psoriasis develop arthritis. Age of onset us between 30 & 55, and it strikes woman and men equally. There are 6 different types of PA: Asymmetrical oligoarthritis - occurs in 30-40% of people and involves both large and small joints. The joints in the ends of your fingers and toes become " sausaged. " DIP (distal interphalangeal ) arthritis is seen in 10-15% Nail pitting and other nail changes are strongly assosicated to this type. RA Like polyarthritis is seen in 25-50% of patients with symetrical arthritis, but are sero-negative and have no rheumatoid nodules. Psoriatic spondylitis is seen in about 20% of people, of which 50% are HLA-B27 positive. This type more seriously affects the lumbar spine, but affects the entire spine. Arthiritis mutilans are seen in 5%, and is a very destructive, erosive polyarthritis affecting the hands and feet. Often this type leass to deformity and disability. HIV associated PA - I associated with HIV infection. Normally the psoriasis preceeds the arthritis, but in children and young adults, the arthritis can come first. There is no correlation between the severity of the psoriasis with the severity of the arthritis. Eye disease occurs in up to 30% of patients. Lab tests show an elevated sed rate and cronic anemia. Psoriatic lesions affect the scalp, ears, the butt, nail, knees, and elbows. NSAIDS are prescribed to alleviate symptoms. Steroid injections are used in the joints, oral steroids in low doses (5-10mg) are reserved for severe, uncontrolled PA. Oral steorids rarely help psoriatic spondylitis. SAARDs (slow acting antirheumatic drugs) such as methotrexate and sulfasalizine, are prescribed as well as gold, hydorxycloroquine & azathioprine. Enbrel is also effective for PA, and is the first drug to help me. Do you have psoriasis? a Many meds are the same for both RA and PA. ----- Original Message ----- From: Brigitte <1385-903@...> < egroups> Sent: Monday, January 22, 2001 10:56 AM Subject: [ ] psoriatic arthritis > Hello, > > I may have a diagnosis now. It could be psoriatic arthritis because all joints of my fingers are involved and I'm seronegative. > > Anybody out there with psoriatic arthritis who could tell me more about the disease, the outlook with this disease, what medication they are on, how bad the joints are, and so on. > > Any input would be greatly appreciated. > > Greetings from Brigitte in Cologne > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2003 Report Share Posted June 19, 2003 Sorry I don't have an answer, but would also like to know. I have a friend who suffers quite badly from psoriatic arthritis. He's on Methotrexate which seems to help but I have wondered about LDN. I'm not sure he'd even consider it unless he heard from someone else who it worked for though, perhaps understandably since what he's using right now actually works for the most part. Anyone out there using for these conditions? Good health! Matt. -----Original Message-----From: Libby Frazier [mailto:Libbyfrazier@...]Sent: 18 June 2003 23:49low dose naltrexone Subject: [low dose naltrexone] psoriatic arthritis I am new to this group and so far I have only seen reports from people with MS or Lupus. I was wondering if there is anyone with rheumatoid arthritis or psoriatic arthritis who is taking the LDN and how long it takes to kick in. I am presently giving myself shots of Enbrel twice a week. Thank you to anyone who can help me find out if LDN is the way for me to go. Libby Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2003 Report Share Posted August 13, 2003 Some people say that most diagnoses of fibromyalgia are really a misnomer for polymyositis which is a description of symptoms rather than a disease. It means pain in multiple muscles. (I'm not medically trained so this needs to be checked by someone who is medically trained.) Inflammatory arthritis is als a description of symptoms rather than a disease and it includes rheumatoid arthritis, lupus, psoriatic arthritis, and more than 100 other types of arthritis. It just distinguishes the type of arthritis from osteoarthritis. Arthritis by definition is a problem with joints but often the patient feels that the pain is coming from the muscles or tendons connected to the joints. In my opinion all of them are related and your case illustrated the frustration of both doctors and patients in getting an accurate diagnosis for someone with inflammatory arthritis. In my opinion the various types of inflammatory arthritis are not diseases in the classical sense but are merely descriptions of symptoms. There might be many basic causes for any inflammatory arthritis rather than a single cause that would be true for a classical disease. I'm not trying to be confusing but there is a lot of confusion about diagnoses for arthritis. Fortunately many of them are treated in essentially the same way. Good luck and God bless. ----- Original Message ----- From: SportsFanHome Rheumatoid Arthritis Sent: Monday, August 11, 2003 8:54 PM Subject: psoriatic arthritis Hi, I am new to the group. I was recently diagnosed with psoriatic arthritis. Previously he had also said inflammatory arthritis. For several years now, he had said fibromyalgia. Do all these run together? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2003 Report Share Posted August 13, 2003 Thanks for that reasoning. That is helpful. I have noticed many say they take prednisone. It was not prescribed for me. Might that be because it can either raise your blood sugar level or cause the reading to be higher? I am also on medication to keep my blood sugar in check. Once when given a cortisone shot I was told it might make my blood sugar reading higher. -----Original Message-----From: Harold Van Tuyl [mailto:hvantuyl@...]Sent: Wednesday, August 13, 2003 12:23 PMRheumatoid Arthritis Subject: Re: psoriatic arthritis Some people say that most diagnoses of fibromyalgia are really a misnomer for polymyositis which is a description of symptoms rather than a disease. It means pain in multiple muscles. (I'm not medically trained so this needs to be checked by someone who is medically trained.) Inflammatory arthritis is als a description of symptoms rather than a disease and it includes rheumatoid arthritis, lupus, psoriatic arthritis, and more than 100 other types of arthritis. It just distinguishes the type of arthritis from osteoarthritis. Arthritis by definition is a problem with joints but often the patient feels that the pain is coming from the muscles or tendons connected to the joints. In my opinion all of them are related and your case illustrated the frustration of both doctors and patients in getting an accurate diagnosis for someone with inflammatory arthritis. In my opinion the various types of inflammatory arthritis are not diseases in the classical sense but are merely descriptions of symptoms. There might be many basic causes for any inflammatory arthritis rather than a single cause that would be true for a classical disease. I'm not trying to be confusing but there is a lot of confusion about diagnoses for arthritis. Fortunately many of them are treated in essentially the same way. Good luck and God bless. ----- Original Message ----- From: SportsFanHome Rheumatoid Arthritis Sent: Monday, August 11, 2003 8:54 PM Subject: psoriatic arthritis Hi, I am new to the group. I was recently diagnosed with psoriatic arthritis. Previously he had also said inflammatory arthritis. For several years now, he had said fibromyalgia. Do all these run together? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2003 Report Share Posted August 13, 2003 Hi , This is in VA. Yes, prednisone can increase your sugar. However, my grandma takes it and she has elevated sugar already. Steph P.S. I see your email says Sports Fan. Any particular sport or team?~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > >Thanks for that reasoning. That is helpful. I have noticed many say they >take prednisone. It was not prescribed for me. Might that be because it can >either raise your blood sugar level or cause the reading to be higher? I am >also on medication to keep my blood sugar in check. Once when given a >cortisone shot I was told it might make my blood sugar reading higher. > The new MSN 8: smart spam protection and 2 months FREE* Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2003 Report Share Posted August 13, 2003 I did a quick check on Google for prednisone and "blood sugar" and got a bunch of hits that say Prednisone may increase blood sugar in diabetics and even that Prednisone may cause diabetes. The first link is http://www.diabetesmonitor.com/steroids.htm but there are thousands of others. Good luck and God bless. ----- Original Message ----- From: SportsFanHome Rheumatoid Arthritis Sent: Wednesday, August 13, 2003 9:40 AM Subject: RE: psoriatic arthritis Thanks for that reasoning. That is helpful. I have noticed many say they take prednisone. It was not prescribed for me. Might that be because it can either raise your blood sugar level or cause the reading to be higher? I am also on medication to keep my blood sugar in check. Once when given a cortisone shot I was told it might make my blood sugar reading higher. -----Original Message-----From: Harold Van Tuyl [mailto:hvantuyl@...]Sent: Wednesday, August 13, 2003 12:23 PMRheumatoid Arthritis Subject: Re: psoriatic arthritis Some people say that most diagnoses of fibromyalgia are really a misnomer for polymyositis which is a description of symptoms rather than a disease. It means pain in multiple muscles. (I'm not medically trained so this needs to be checked by someone who is medically trained.) Inflammatory arthritis is als a description of symptoms rather than a disease and it includes rheumatoid arthritis, lupus, psoriatic arthritis, and more than 100 other types of arthritis. It just distinguishes the type of arthritis from osteoarthritis. Arthritis by definition is a problem with joints but often the patient feels that the pain is coming from the muscles or tendons connected to the joints. In my opinion all of them are related and your case illustrated the frustration of both doctors and patients in getting an accurate diagnosis for someone with inflammatory arthritis. In my opinion the various types of inflammatory arthritis are not diseases in the classical sense but are merely descriptions of symptoms. There might be many basic causes for any inflammatory arthritis rather than a single cause that would be true for a classical disease. I'm not trying to be confusing but there is a lot of confusion about diagnoses for arthritis. Fortunately many of them are treated in essentially the same way. Good luck and God bless. ----- Original Message ----- From: SportsFanHome Rheumatoid Arthritis Sent: Monday, August 11, 2003 8:54 PM Subject: psoriatic arthritis Hi, I am new to the group. I was recently diagnosed with psoriatic arthritis. Previously he had also said inflammatory arthritis. For several years now, he had said fibromyalgia. Do all these run together? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2003 Report Share Posted August 14, 2003 I take it too and have problems with my sugar. But I am on a low dose - 5 mg. - > Quote Link to comment Share on other sites More sharing options...
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