Re: Questions about my son...

[Guest guest]

Hi ,

Welcome to the group. Hope you find this forum as helpful as I do. It

certainly makes things a little easier once we realize we are not

alone. It is not uncommon for children with feeding issues to have

oral apraxia. It sounds like this area is being addressed. Oral motor

therapy will strengthen his mouth muscles. Some great tips in the

bookmarks section. You need a id (which is free) to access it.

You can link it o your e-mail address so you only have to check one

mailbox.

I am not an SLP but it sounds like the possibility of verbal apraxia

is certainly there. My son use to call many things bah. I was called

huh for a very long time. What do the speech therapists say? have you

had him evaluated privately for speech. Perhaps you can find someone

familiar with apraxia who can administer an apraxia test.

I do not know anything about hippotherapy. I do know about Pro-efa.

My son started it in October and we have been very fortunate that his

speech exploded after that. More multi syllable approximations and

more spontaneous speech. I also noticed a difference in his gross

Motor skills. Of course you should consult with your child's

physician before trying it.

Good luck to you and your son.

denise

> I have a 2 year old son who has quad CP. Here's a little background

> on him: he started going into distress 7 hours prior to delivery

from

> a tight cord. His skull was then fractured by forceps at the time

of

> delivery causing bleeding of the brain. His main diagnosis is HIE

> (Hypoxic Ischemic Encephalopathy) . He has other problems stemming

> from it including quad cp (he can crawl very fast, walk along the

> couch and pull up on just about anything!) G-tube but can eat

mostly

> now by mouth and speech delays. I'm not quite sure what constitutes

> him having apraxia. Noone has mentioned this to me. I know that

since

> he has feeding problems he will had speech problems due to poor

oral

> motors skills but his eating has improved 150 % yet nothing with

his

> speech. He doesn't say words but when you ask him to point them

out,

> he does. All his words (when he is prompted to speak) sound alike.

Ba-

> ba for bubbles and wa-wa for water sound alike. You see him

stuggling

> trying to form the word but it mostly comes out as " ba " . He

receives

> EI every other week including PT,OT, ST, and feeding therapy. We

are

> looking into hippotherapy and maybe trying PROEFA. Any comments on

> these therapies would be appreciated too. Sorry to babble but I

just

> don't know what else to do for my son. I'm still waiting on him to

> call me " momma " .

> , ph's mom

[Guest guest]

hi.

the ProEfa i found at our GNC was for body builders, so I dont think its the

same thing.

from what ive been reading on this list though, everyone has been ordering

theirs from nordic naturals and kirkman labs.

they both have websites, but i'm sorry i dont know the urls.

anyhow, hope this helps somewhat

tami

[Guest guest]

I was looking in our local GNC and I was kind of confused on the Pro

EFA. Unfortunatly, the employee was just as confused as myself. What

exactly should I be looking for? His ST feel his problems are from

the poor motor skills. We do oral motor exercises to work on mouth

closure and stretching. We've only used the therapist provided at

Childrens Hospital. Would a private one be better? His therapist

seems to work really well with him. I'll be sure to check our the

bookmarks!

, ph's mom

> > I have a 2 year old son who has quad CP. Here's a little

background

> > on him: he started going into distress 7 hours prior to delivery

> from

> > a tight cord. His skull was then fractured by forceps at the time

> of

> > delivery causing bleeding of the brain. His main diagnosis is HIE

> > (Hypoxic Ischemic Encephalopathy) . He has other problems

stemming

> > from it including quad cp (he can crawl very fast, walk along the

> > couch and pull up on just about anything!) G-tube but can eat

> mostly

> > now by mouth and speech delays. I'm not quite sure what

constitutes

> > him having apraxia. Noone has mentioned this to me. I know that

> since

> > he has feeding problems he will had speech problems due to poor

> oral

> > motors skills but his eating has improved 150 % yet nothing with

> his

> > speech. He doesn't say words but when you ask him to point them

> out,

> > he does. All his words (when he is prompted to speak) sound

alike.

> Ba-

> > ba for bubbles and wa-wa for water sound alike. You see him

> stuggling

> > trying to form the word but it mostly comes out as " ba " . He

> receives

> > EI every other week including PT,OT, ST, and feeding therapy. We

> are

> > looking into hippotherapy and maybe trying PROEFA. Any comments

on

> > these therapies would be appreciated too. Sorry to babble but I

> just

> > don't know what else to do for my son. I'm still waiting on him

to

> > call me " momma " .

> > , ph's mom

[Guest guest]

ProEFA isn't sold at GNC, it is sold at a variety of sites on the internet.

A good site to see is www.shopinservice.com because part of your money goes

toward research.

At GNC you should be looking for Efalex made by Nutricia. I buy mine there

all of the time.

Hope this helps

>

>I was looking in our local GNC and I was kind of confused on the Pro

>EFA. Unfortunatly, the employee was just as confused as myself. What

>exactly should I be looking for? His ST feel his problems are from

>the poor motor skills. We do oral motor exercises to work on mouth

>closure and stretching. We've only used the therapist provided at

>Childrens Hospital. Would a private one be better? His therapist

>seems to work really well with him. I'll be sure to check our the

>bookmarks!

>, ph's mom

[Guest guest]

Hi to all ,

On the same topic of feed problems and oral motor skills.....my twins also

call everything da, bah, mmmmmmmm,aaaaaa.

That's been the limit of their skills for about 3 months now, before that we

had only mmmmmm, aaaaaaa. We are having alot of problems with teaching them

to use utensils....and they flat out refuse to use sippy cups.

I'm at my wits end....

They do not seem to understand or they are unable to lift even a bottle up

high enough to drink....they can only drink themselves lying down.....Any

ideas how to teach them to drink sitting?????

We have tried the high chair only thing and got nowhere fast....they simply

throw the bottlew on the floor and scream....... We have tried all

cups....They will drink from a regular cup in the bath after their teeth have

been brushed....so we know that eventually they will be able to but we still

have to hold it for them....we are looking for any ideas for utensils, and

arm lifting while drinking.

My OT is trying to come up with ideas but so far they haven't been anything

useful.

Devlin seems more willing as he will put the spout in mouth then throw it

when he can't get a drink....Aidan gets moody when he even see's it

coming....he doesn't like the way the hard spout feels....so we pourchased a

soft spout....but it leaks...HELP

I really want them to get this as we have a really hard time going anywhere

when the boys get thirsty they have a fit because they can't drink in their

car seats or the stroller...

AAAAAHHHHHH!!!!

Thanks for all input,

Hugs

, MOM to Aidan & Devlin former 30 weeker preemies, now 2 years,

global delays, NO speech!!

MOMMY desperate to hear the word.

[Guest guest]

Hello, Here's a suggestion.... Keara didn't like to hold a fork, spoon or

anything either, so I bought the pencil grippers, come in great colors and I

would slide them on ( must replace often they don't wash too great.) I think it

was how it felt she didn't like...... But anyway that seemed to work great.

(sometimes) As far as a cup we went to the disney store and got these great cups

they have a straw ( which is really recommended by her speech theraphist).. and

they make the drink bubble when you drink through the straw. She likes it.. and

it helped the sippy cup thing ( she hated it too). Just my cent and a half.

Juli

Mommy to 13, Kaitlyn 8 and Keara our soon to be chatting up a storm

girl.

Re: [ ] Re: Questions about my son...

Hi to all ,

On the same topic of feed problems and oral motor skills.....my twins also

call everything da, bah, mmmmmmmm,aaaaaa.

That's been the limit of their skills for about 3 months now, before that we

had only mmmmmm, aaaaaaa. We are having alot of problems with teaching them

to use utensils....and they flat out refuse to use sippy cups.

I'm at my wits end....

They do not seem to understand or they are unable to lift even a bottle up

high enough to drink....they can only drink themselves lying down.....Any

ideas how to teach them to drink sitting?????

We have tried the high chair only thing and got nowhere fast....they simply

throw the bottlew on the floor and scream....... We have tried all

cups....They will drink from a regular cup in the bath after their teeth have

been brushed....so we know that eventually they will be able to but we still

have to hold it for them....we are looking for any ideas for utensils, and

arm lifting while drinking.

My OT is trying to come up with ideas but so far they haven't been anything

useful.

Devlin seems more willing as he will put the spout in mouth then throw it

when he can't get a drink....Aidan gets moody when he even see's it

coming....he doesn't like the way the hard spout feels....so we pourchased a

soft spout....but it leaks...HELP

I really want them to get this as we have a really hard time going anywhere

when the boys get thirsty they have a fit because they can't drink in their

car seats or the stroller...

AAAAAHHHHHH!!!!

Thanks for all input,

Hugs

, MOM to Aidan & Devlin former 30 weeker preemies, now 2 years,

global delays, NO speech!!

MOMMY desperate to hear the word.