Guest guest Posted January 22, 2002 Report Share Posted January 22, 2002 Today and I met with Dr. Laveman today. It was a very informative meeting and I am sure now and I can get somewhere. Thank you Dr.Laveman and I am looking forward to meeting with you again. Diane.........Mommy, Taxi, cheerleader,friend peacemaker, banker, cook, too 16 (aka ny) 15, 13, 11 (aka Jake), and 9 (aka Josh) and a special Auntie nanny to Kayleigh 7 months GOD BLESS AMERICA (fixed it linda lol) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2003 Report Share Posted June 9, 2003 Hello & welcome to our group!!! Glad you found us! Wow, you've certainly done a terrific job seeking help for & educating yourself. How is your friend's baby doing in his DOCband so far? Hope all is well. Bottom line here, is you need to do what YOU feel is best for your . Repositionign is a difficult job, esp. the older the baby is and more mobile, they seem to always find their way back to their flat area. I see many have advised you to go into CT for an evaluation. Most clinics offer this at no charge, and you don't need a Drs referral. They'll give you their honest opinion & advice. Good luck, let us know what you decide to do Debbie Abby's mom DOCGradMIhildama07206 <hildam@...> wrote: Hi, I'm new to this group. I'm not sure who this goes to. Maybe everyone. I haven't really had a chance to read all the details about this. I just need to have some peace of mind about what to do about my son's plagio. was born on 1/24/03. I registered for the head and back to sleep positioner and I put it in 's bassinett for about two weeks before I had him. It was all ready next to my bed. I knew that it was something I needed so that Matt wouldn't roll over to his belly and I read the box about the little pillow being there to prevent head flatness. At that point I didn't know it could happen so quickly.Matt used it for about two weeks. THen I took it away thinking that was the reason for his fussiness and crying. I thought it bothered him to sleep on it. BIG MISTAKE!!! I mean, I don't know if anyone else has used it and gotten good results. But I started to notice (all of a sudden, it seemed) that Matt's head was getting a little flat. BUt the first thing I thought was. It'll be ok. It will get round again as he gets older. I don't know where I heard that from but that's what i thought. At the same time my friend's baby was about 2-3 months old and she was concerned that his right side was flat. She questioned her doctor several times and he said that it would round out on its own. At her insistance he sent her for xrays and suddenly was in a whirlwind of physical therapy for torticollis and going to see a craniofacial team at St. ph's in Paterson, NJ. BUt her process took so long. She got the xrays in Feb. and only saw the craniofacial team in April, got her son's DOC band just one week ago. Well, back to . I went to my pediatrician when was two months old and she gave me an orthopedic surgeon and a neurosurgeon. I noticed that only wanted to look to the left. So, I went to see the orthopedic first and he said had mild torticollis. He said that as soon as he started moving his head around more, that he would be his own best therapy. Also we had to help him out by making him look more to the right and turn his head and also repositioning for the flatness. I felt great. I believed this wonderful man. I wanted my friend to see him so that he could tell her that her baby would be ok. BUt as time went on I started to read more stories on the computer, talked to more people, and I decided to see the neurosurgeon even though my pediatrician told me that they wouldn't want to see Matt until he was 5 months old anyway. When Matt turned 4 months I went to see the neurosurgeon. He basically told me that with or without the DOC band, Matt's head would round out. I asked him directly again and he said the same. He gave me a brochure for Cranial Tech. and said he would write a prescription if i wanted it. He said he was only off by 5. I didn't ask what he meant by that. I assume from reading stories that he meant 5 mm on his head. I did not go in with xrays of his skull, but I got them done as soon as I left his office. He wants to see me in a month but I want to go like tomorrow. I'm scared to wait too long and then Matt's head will still be flat and then he has to get the DOC band for longer. I'm kind of convincing myself to get the doc band because I don't want to regret it later on.Now Matt is turning from his stomach to his back all the time. THe other night I woke up at 3am and found him on his back. I have been putting him to sleep on his stomach for naps during the day for a while now. But for the past week, He sleeps on his stomach cuz he had a cold and was uncomfortable. Actually since I put him on his stomach, he sleeps better and longer. He always used to get up at 3 or 4 am. Now he sleeps until 6 or 6:30am has a bottle and goes back to sleep until 9am or longer.So now that he rolls over, it'll be hard to keep him off the flat.Well, this is so long I hope someone reads it. I feel like I'm racing against time in deciding helmet or not. I am going to call Cranial Tech tomorrow to get a free consultation and just to get another opinion. To me, Sometimes Matt's head looks good and other times it looks bad. But I took pictures last month and I'm going to do it this month too. Please, someone, write back. If I don't get messages back, my email is hildam@.... Gotta go, I'm a teacher and I work tomorrow. Matt's asleep finally so I better go too. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2003 Report Share Posted June 9, 2003 Hello and welcome! You've gotten so many good replies so far that I'll just add my welcome. Definitely don't wait - go get that free eval from CT. They will give you an honest opinion and will be able to show you some stretches to help with the tort. Let us know what you find out. Marci (Mom to ) Oklahoma --- In Plagiocephaly , " hildama07206 " <hildam@p...> wrote: > Hi, I'm new to this group. I'm not sure who this goes to. Maybe > everyone. I haven't really had a chance to read all the details about > this. I just need to have some peace of mind about what to do about > my son's plagio. > was born on 1/24/03. I registered for the head and back to > sleep positioner and I put it in 's bassinett for about two > weeks before I had him. It was all ready next to my bed. I knew that > it was something I needed so that Matt wouldn't roll over to his > belly and I read the box about the little pillow being there to > prevent head flatness. At that point I didn't know it could happen so > quickly. > Matt used it for about two weeks. THen I took it away thinking that > was the reason for his fussiness and crying. I thought it bothered > him to sleep on it. BIG MISTAKE!!! I mean, I don't know if anyone > else has used it and gotten good results. But I started to notice > (all of a sudden, it seemed) that Matt's head was getting a little > flat. BUt the first thing I thought was. It'll be ok. It will get > round again as he gets older. I don't know where I heard that from > but that's what i thought. At the same time my friend's baby was > about 2-3 months old and she was concerned that his right side was > flat. She questioned her doctor several times and he said that it > would round out on its own. At her insistance he sent her for xrays > and suddenly was in a whirlwind of physical therapy for torticollis > and going to see a craniofacial team at St. ph's in Paterson, NJ. > BUt her process took so long. She got the xrays in Feb. and only saw > the craniofacial team in April, got her son's DOC band just one week > ago. > Well, back to . I went to my pediatrician when was two > months old and she gave me an orthopedic surgeon and a neurosurgeon. > I noticed that only wanted to look to the left. So, I went > to see the orthopedic first and he said had mild torticollis. > He said that as soon as he started moving his head around more, that > he would be his own best therapy. Also we had to help him out by > making him look more to the right and turn his head and also > repositioning for the flatness. I felt great. I believed this > wonderful man. I wanted my friend to see him so that he could tell > her that her baby would be ok. BUt as time went on I started to read > more stories on the computer, talked to more people, and I decided to > see the neurosurgeon even though my pediatrician told me that they > wouldn't want to see Matt until he was 5 months old anyway. When Matt > turned 4 months I went to see the neurosurgeon. > He basically told me that with or without the DOC band, Matt's head > would round out. I asked him directly again and he said the same. He > gave me a brochure for Cranial Tech. and said he would write a > prescription if i wanted it. He said he was only off by 5. I didn't > ask what he meant by that. I assume from reading stories that he > meant 5 mm on his head. I did not go in with xrays of his skull, but > I got them done as soon as I left his office. He wants to see me in a > month but I want to go like tomorrow. I'm scared to wait too long and > then Matt's head will still be flat and then he has to get the DOC > band for longer. I'm kind of convincing myself to get the doc band > because I don't want to regret it later on. > Now Matt is turning from his stomach to his back all the time. THe > other night I woke up at 3am and found him on his back. I have been > putting him to sleep on his stomach for naps during the day for a > while now. But for the past week, He sleeps on his stomach cuz he had > a cold and was uncomfortable. Actually since I put him on his > stomach, he sleeps better and longer. He always used to get up at 3 > or 4 am. Now he sleeps until 6 or 6:30am has a bottle and goes back > to sleep until 9am or longer. > So now that he rolls over, it'll be hard to keep him off the flat. > Well, this is so long I hope someone reads it. I feel like I'm racing > against time in deciding helmet or not. I am going to call Cranial > Tech tomorrow to get a free consultation and just to get another > opinion. To me, Sometimes Matt's head looks good and other times it > looks bad. But I took pictures last month and I'm going to do it this > month too. Please, someone, write back. If I don't get messages > back, my email is hildam@p... Gotta go, I'm a teacher and I > work tomorrow. Matt's asleep finally so I better go too. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2003 Report Share Posted June 13, 2003 Hang in there! Debbie is right, after a while you won't even notice the band as much. has been in nearly 5 weeks, and I take her anywhere I would normally go in the band. We've gone to a few family and kids birthday parties/picnics, and it's really not a big deal. If you decorate it, it kind of removes some of the " medical " feel - we've had more than a few kids make comments about her " cool hat " (it's painted with a beach-y scene). Which CT clinic are you going to? The bands REALLY don't bother the kids at all - I even saw a 17 month old at CT this week who was fine with it ( is 6 months), and once you see his beautiful head rounding out, you'll be amazed! And don't blame yourself re: the tort. If they are born with that tightness, carrying them won't get rid of the tort - you need to do physical therapy (CT should have given you the exercises) the stretch the neck muscle. You'll have to continue these until he is 16 months - the tort can re-occur otherwise. The exercises do get easier with time. We just blow raspberries at while we're doing them and she giggles and blows them back. Kerri Mom to (DOC banded 5/9/03) > On Wed. my husband, and I went to CT. I thought they would > say he wasn't that bad. But it was kind of depressing. She said his > ear was starting to shift. One side of his head was a little higher > than the other. Something with the eye starting to slope down. And he > had a tilt from the torticollis. I know that they are trained to see > these things. But is good at holding his head up. Since he was > born I remember having to hold him tight all the time because he would > try to lift his head. > Well, anyway. We are going to get the band. I don't really want to. > But I figure better do it now than regret it later on. My > pediatrician, who is a sweetheart, told me that I could still wait a > little bit to see if it starts to correct itself. THere are other > babies at my pediatrician who have the helmet. But I told her that I > just wanted her to write me the prescription to get the pre approval > from ins. so I wouldn't have to wait if I do decide to get it. > I could have faxed the prescription yesterday but I got home and I was > just so depressed about all of this. I am going to be a wreck when I > have another baby. I think I'm going to carry him/her all the time so > that nothing happens to their head. > I just don't understand why this happens to some babies and not > others. I understand with the torticollis, they tend to look and sleep > to one side. Like Matt, always slept with his head facing left. That's > what did it. And I was so scared in the beginning to get him used to > being carried all the time, I was always trying to get him used to > being in seats, and the crib. If I would have known, I would have > carried him more. > In July, we have my cousin's wedding. I don't want him to have it on > all the time. There are going to be people there that will be making > assumptions. They'll probably think he's handicapped or something. I > figure, when he falls asleep, I'll put it on. Or maybe I just won't > stay the whole time. My mother already said, " You're not going to put > it on for 's wedding, are you? " I said, " I don't know. " > Well, I'll keep everyone updated. > > > > > For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2004 Report Share Posted June 9, 2004 I'm so sorry about your loss of your mom, . If you're like me, you'll never stop missing her but can recall the precious moments you had with her. Sue Quote Link to comment Share on other sites More sharing options...
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