Re: Has anyone heard of spina bifida occulta?

[Guest guest]

In a message dated 1/7/02 2:27:33 PM Pacific Standard Time, care4is@...

writes:

> She has a dimple at the top of

> her buttocks

Mollie had a deep dimple at her tailbone. It is very deep and spina Bifida

was something that the doctors were concerned about when she was a new born.

She is fine...just has a deep dimple.

~~~~~~~~~~*~~~~~~~~~~

(AKA Mollie's Mom)

and

Mollie

9 years old 1p36.22 deletion

:>)

~~~~~~~~~~*~~~~~~~~~~

[Guest guest]

> Glad to hear Mollie is fine. Did they do an MRI,

> ultrasound or xray?

>

> Thanks for getting back to me. Audrey

Audrey,

She has had all three but I don't remember if the MRI was for that or

something else. It was scary when I first heard the possibility of Spina

Bifida. She has other problems but that is one thing we don't have to worry

about.

~~~~~~~~~~*~~~~~~~~~~

(AKA Mollie's Mom)

and

Mollie

9 years old 1p36.22 deletion

:>)

~~~~~~~~~~*~~~~~~~~~~

[Guest guest]

In a message dated 1/7/02 5:27:33 PM Eastern Standard Time, care4is@...

writes:

> She has a dimple at the top of

>

Audrey,

My son has the same dimple. I never thought anything of it until our

geneticist made mention of it in his physical exam notes. He explained that

a dimple in this area is just one of the physical characteristics that tend

to run in children with spina bifida but that it is also very common in the

average population. Fortunately, we had already had an MRI and the results

were normal.

More than one of my well-meaning, healthcare professional relatives have

asked me if we have had our son evaluated for spina bifida because of his low

muscle tone. Four of his doctors have mentioned SB in their conversations

with us but all of them have ruled it out.

My thoughts are with you as you continue the testing with your child!

Seemingly, we've gone through it all but have gotten no difinitive

diagnosis...and that has become ok with me.

Mom to (38 months; developmental delays, hypotonia, apraxia) and

(19 months and a bundle of energy)

[Guest guest]

,

Glad to hear Mollie is fine. Did they do an MRI,

ultrasound or xray?

Thanks for getting back to me. Audrey

>

> Mollie had a deep dimple at her tailbone. It is

> very deep and spina Bifida

> was something that the doctors were concerned about

> when she was a new born.

> She is fine...just has a deep dimple.

>

>

[Guest guest]

He explained that a dimple in this area is just one

of the physical characteristics that tend

> to run in children with spina bifida but that it is

> also very common in the

> average population. Fortunately, we had already had

> an MRI and the results

> were normal.

>

Hi ,

I'm happy to hear your son is fine. From what I've

read, about 40% of the population has spina bifida

occulta with no symptoms or problems. That only about

5% have complications like a tethered cord.

I talked with our pediatrician last night and they are

going to set up an MRI for her. They are going to

sedate her because she is hypersensitive to noise. I'm

sure she'll be fine and this will be nothing but I'll

feel better once they check this out.

Audrey