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hi

ive posted once or twice about my daughter sara (19 months with coloboma,

vsd, pfo, a broad range of developmental delays, severe ankle pronation,

choroid plexus cyst and so on )

she is involved in the early intervention and has a terrific team of doctors

that do everything they can for her.

our problem is this::

sara is only getting speech therapy once a week through early intervention

(she receives pt and ot once a week as well) but her doctors feel that she

should be receiving speech therapy 3 times a week.

there is no way we can afford to pay for private therapy, we have 4 other

children, and sara's medical bills are overwhelming us as it is. our

insurance wont cover speech therapy because " speech delay " is not a medical

condition they say. there is another program which could be of some help to

us (it was called crippled childrens, cant remember what its called now)

but to qualify sara has to meet certain diagnostic criteria, which she does

not.

so i think the thing we need is to have a diagnosis. there have been a few

possible diagnosises (sp?) such as apraxia, dyspraxia and a couple others,

but so far there has been nothing " official " .

now let me say first that i am not looking to label my child for any purpose

other than receiving the care she needs.

so, how would i go about getting an official diagnosis? her ped and her slp

are both at a loss for what to do.

would it be something to see a developmental ped for? or neurology?

or something else??

please help me!!!!!!!!!!!!!!!!

thanks in advance

tami

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