Has anyone heard of spina bifida occulta?

[Guest guest]

Hi Everyone,

I have a four-year-old daughter that's has SID,

hypotonia, motor planning problems, difficulty with

speech (do not know whether it's apraxia but she is

receiving intensive speech therapy)and suspected APD.

We recently (beginning of Dec.) saw a neurologist at

Boston's Children Hospital and he reinforced

everything we were already doing with my daughter

(therapies-speech and OT).Yeah!

But at the end of the exam he asked if she had any

birthmarks or moles. She has a dimple at the top of

her buttocks and almost nonexistant reflex in her

knees and ankles. He thought we should get this

checked out for spina bifida occulta for a tethered

cord. He recommended an MRI and said he could set it

up there. It took us by surprise and we said we'd

talk to our pediatrician about it. In his report to

the pediatrician he said he'd address this issue and

we should follow up on it. Well needless to say our

ped hasn't received the report yet and what I've read

online concerns me. Has anyone else heard of this or

experienced this?

Thanks Audrey

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