Guest guest Posted March 16, 2002 Report Share Posted March 16, 2002 Hi Gail, Welcome! It sounds like you have your hands full! I wanted to recommend this website - it saved me in the beginning - it is http://www.apraxia-kids.org/ wonderful resources and information. , mom of Riley,6,apraxia, Zachary,8,ld/gifted, Avery, turned 4 yesterday! > Hi! My name is Gail Crow. I have my three grandchildren living with > me who all have special needs. is the most complicated.He has > DX of ADHD,SID,PDD,Bipolar, and the following DX for speech.speech > and language delay,microglossia,oral hypotonia,apraxia. will > be five in a few weeks. He tests at 18-24 months in speech delays. He > says a few 3word sentences. He has a volcabulary of about 150 words. > Nicolas who is three also has speech and language delays but it may > get better because he just got tubes in his ears this week. is > eight and has DX of ADHD,PTSD,CAPD. She has been in speech theraphy > for three years.She has really improved.I'm hopping to learn more > about some of s speech DX. I look forward to being part of > this group. > Gail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2002 Report Share Posted March 18, 2002 , Thanks so much for giving me that website. I will be checking it out. Gail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2002 Report Share Posted March 18, 2002 hi gail, welcome to the group! tami Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2002 Report Share Posted March 18, 2002 Tami, Thanks for the welcome. I'm really happy to have found this group. I hope to learn a lot from everyone. Gail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2002 Report Share Posted August 16, 2002 , Welcome... just want to let you know that there are LOTS of kids doing amazing things (like recovering) under Dr. Goldberg's care. The bad news is that right now there is really nowhere else to go to receive this type of treatment. There is an outreach clinic in New York, but it is so backlogged that they are not accepting new patients at this time (somebody please correct me if I'm wrong here). Don't give up the idea of seeing Dr. Goldberg so easily. Through the help of some very generous people and airlines, there is free airfare available for many kids who need to travel for medical reasons. We flew out and back free (round trip fare was provided for one child and one chaperone). We got great hotel and rental car deals through Priceline. You don't have to travel to California constantly to have your child cared for by Dr. Goldberg. Not even every year, from what I hear. Plus, insurance has been great (we have Blue Cross/Blue Shield) and has covered everything but the phone consultations, which are about $140 or so every 6 weeks. The meds have been covered, the initial visit was covered, the NeuroSPECT was covered. Think about it... we are all here to support you and want to help. I am so thrilled with the progress in my own child since our initial visit in January 2002 that even if we never got any more improvement than we have gotten since that day, the trip would have been totally worth it (and I'm still expecting more good things to come!) Caroline (Indiana) >On 8/16/02 10:52 AM, " rugrat3teach@... " <rugrat3teach@...> wrote: > Hi all. I just found this group and am interested in all the information you > are sharing. My son is 10 yrs old and I have always felt that he had an > impaired immune system that contributed to his autism. Any ideas for what to > do to pursue this line of treatment? We are on the east coast so trips to > Dr. G are out. My dr. would probably help if he knew what to do -- does Dr. > G. consult out of state? I'm looking forward to reading and learning. > > > > > > Quote Link to comment Share on other sites More sharing options...
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