Guest guest Posted March 19, 2002 Report Share Posted March 19, 2002 Hi - Reading your note brought me back to this time last year when my son had a never ending bruise on his forehead from slamming it into anything and everything out of his frustration due to his inability to speak. Thank God one year later full of great speech therapy and Pro EFA, he's talking away! As a matter of fact, his brother just complained to me that he couldn't sleep because was singing too loud in his room. ha ha - who would have ever thought! I can imagine your frustration at your inability to get a diagnosis. First of all, I'm not a doctor but I am a mom who's been going down this road for a while and I can tell you that a major sign of Apraxia is losing words. My son constantly did that in the beginning and I know of many other parents who can say the same. When he first started to talk, he'd say a word 10 times in one day and then months would go by before we'd hear it again. I would highly recommend finding a neurodevelopmental pediatrician to get a diagnosis of Apraxia. They seem to be much more knowledgeable about Apraxia then a neurologist. It seems to me that neurologists look for things that they can find wrong in tests and if they can't find a physical reason, they don't acknowledge it exists. Apraxia doesn't show up in MRI's or anything but it doesn't mean it isn't there. Neurodev. pediatricians look at the entire child and see the " soft " signs that many other doctors would miss. My neurodev. pediatrician has been our savior and has given us such great guidance. I don't know where we'd be without her. Best of luck to you! in NJ KDR@... mom to 6 and 3 (apraxia) Quote Link to comment Share on other sites More sharing options...
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