Re: Digest Number 627

[Guest guest]

Hi Chris! Geoff Crenshaw here.

> Date: Thu, 27 Jan 2000 05:46:28 GMT

> From: " Adlard " <cadlard@...>

> Subject: Re: Doctors selling supplements

>

> Hi Mark,

>

> We have herbals etc. here which are only sold through doctors. I

understood

> that you also have those products there. From what I see, most of them

come

> from the states.

>

> I actually have no idea why some are sold in shops and others can only

be obtained

> through doctors. Perhaps some 'ruling' body has determined that the

high amounts

Nope...

All products subject to distribution control by a 'government body' in

the states are issued by Prescription Only. The distribution of certain

food supplements, herbals and the like, strictly through physicians is a

MARKETING decision. It gives " exclusivity " to the dispensing physician

while increasing margins on both ends of the distribution chain,

manufacturer and retailer alike. These are also often " vanity branded " ,

i.e., have a " custom label " featuring a logo, etc., specifically for

THAT office.

It's just marketing.

But...

I have NEVER met a single physician who sells " stuff " that isn't happy

to let you examine the label, even have their own staff (whose time THEY

pay for) write down the ingredients, so you can " shop around " and get

them elsewhere, which I have done as well as having bought on the spot.

BTW, had it NOT been for just exactly this sort of situation (Dr. Pfau

selling supplements) I would NOT have been in remission in 1990, nor

would I be in remission today. Dr. Pfau sold me the allergy serums and

homeopathic remedies that put me back together in 1990, AND he sold me

the RA SPES which put me back together in 1998.

I guess it comes down to trusting your own judgment in whom you hire to

care for your health, as well as that of the " hired hand " .

Regards,

Geoff Crenshaw, ACC -----------------------

Captain Cook's Cruise Center ** Usual Disclaimers **

-----------------------

Religion: Man's attempt to discover God

Christianity: God's offer to save mankind

ICQ 60333388

[Guest guest]

>Message: 6

> Date: Sat, 29 Jan 2000 03:18:03 -0500

> From: " C.Tab. " <tab@...>

>Subject: Re: Mito/metabolic workup

Patti and Christie! I've also made an appt. to see Dr. Cohen April 17th

at the Cleveland Clinic. When are your appointments? Can we stay in touch

so that who ever goes first can let us know the routine and what to

expect? best, Beth S (esp@...)

[Guest guest]

Hi there. I've been on this list for approximately 6 mos. I can't recall if

I've told my story or not. Anyways, I am curious about these tests for

Candida. I didn't know there was such a thing. Candida albicans are

naturally in our body. They only become pathogenic when they cause

overgrowth, due to loss of good bacteria (which keeps them under control).

When I was going from doctor to doctor, trying to figure out what was wrong

with me, I requested to see an allergist so I could be tested for

candidaisis...that was a waste, cause he didn't have anything to test it

with...he said they got rid of it, because it wasn't needed...whatever...I

think he was full of BS...My tests were negative, except for a high level

of histamine...I asked him what that indicated, and he told me nothing and

insisted that it was all in my head...stress related, and gave me a name of

his friend, the psychotherapist...While doing my own research, I discovered

yeast overgrowth (candida) creates high levels of histamine.

---

Definition Of A Dysbiosis

" In a dysbiosis, the balance of intestinal microbes is dominated by the more

harmful organisms, that produce a wide array of toxic chemicals as

byproducts of their nutrient consumption. These include vasoactive

substances derived from protein putrefaction; free radicals; and

carcinogenic substances. These toxins can be absorbed into the bloodstream,

as well as cause local gut mucosa inflammation and irritation, with

resultant mucus overproduction, increased mucosal permeability and

overburdening of the immune system... "

from Nutritional Pathology and the Health Care of the Future by Stephney

Whillier BSc(Hons)(Physiology),RHN,RNCP

---

A book that I would reccommend is " Eating Alive - Prevention Thru Good

Digestion " by Dr Matsen N.D.

In this entertainining book he writes about the importance of improving the

digestive process, to prevent these pathogens from taking over.

" The underlying problem goes back thousands of years. Faulty digestion is

the true cause. If you don't digest your food quickly some micro-organism

will digest it for you, making toxins. Antibiotics and refined foods have

just recently given yeast an advantage over many of the other

toxin-producing micro-organisms. "

---

>i also have just been lurking for some time. but since the subject of

>severe dysbiosis came up! I also am off the scale for severe dysbiosis. I

>had a CDSA done, because My Dr's think I have Candida, but the test did not

>show up any Candida, just dysbiosis. Any comments or suggestions.

>thanks

>gail

>

_________________________________________________________________________

Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com.

[Guest guest]

Hi!

This message is for G, whose Mom has lung cancer that metasticized.

You were worried about your mother's mental state, and whether or not the cancer

went to her brain. Worry no more......cognitive function is adversely affected

by any kind of chemo. People forget just how potent that stuff is.....it's like

an H-bomb. It messes up thinking. This is well documented. That's probably

why her thinking is screwy.

Ellen

wrote:

>

> Learn more about cancer:

> http://home.online.no/~dusan/diseases/cancer/

> http://home.online.no/~dusan/diseases/cancer/faq.htm

> http://www.geocities.com/~mycleanse/

> http://www.geocities.com/HotSprings/1158

>

> You are receiving this email because you elected to subscribe to the

egroups.

[Guest guest]

Ellen,

Could you please refer me to documentation regarding the adverse effects

of chemotherapy on cognitive function? I have been unable to find

any.

I am 46 and went through chemo in 1993/1994 for breast cancer.

After my 3rd chemo, I was unable even to recall my own address and phone

number. Though it is certainly not that bad now, I am back in college

to earn a 2nd Bachelor of Science degree and find that it takes me much

longer to grasp concepts than before. I have problems remembering

things I know I studied.

(Off the topic, I have also gained an incredible 90 lbs. since chemo

and cannot seem to get my weight under control. I have NEVER had

such a problem. The only thing I can attribute the gain to is hormonal

or other changes related to past chemotherapy.)

I cope with daily challenges by going back to references, but when it

comes time for exams, that is not possible. I talked with the Dean

of Students, who does not want to consider the possibility of impaired

function due to chemotherapy, much less facilitate testing for learning

disability. Instead, he blames the situation on stress. Like

anyone else, I have faced a lot of stressors, but I feel I have made it

through with flying colors. I will complete my 2nd B.S. in May and

plan to continue for an M.S.

One thing I can say, though, is that problems with recall and with grasping

of concepts does add stress. I do, however, feel that I have a learning

disability and that it should be taken into consideration during my studies.

I would like to have scientific references to back up my suspicion that

chemo has adversely impacted my cognitive function and potentially brought

about a learning disability.

Message: 2

Date: Tue, 17 Apr 2001 09:24:23 -0400

From: ROBERT R RHUDY <rhudy@...>

Subject: Re: Digest Number 627

Hi!

This message is for G, whose Mom has

lung cancer that metasticized. You were worried about your mother's

mental state, and whether or not the cancer went to her brain. Worry

no more......cognitive function is adversely affected by any kind of chemo.

People forget just how potent that stuff is.....it's like an H-bomb.

It messes up thinking. This is well documented. That's probably

why her thinking is screwy.

Ellen

[Guest guest]

In a message dated 8/17/2001 3:27:41 AM Central Daylight Time,

writes:

>

>

>

>

>

> Click reply to all for messages to go to the list. Just hit reply for

> messages to go to the sender of the message.

>

>

[Guest guest]

In a message dated 8/17/2001 3:27:41 AM Central Daylight Time,

writes:

>

>

>

>

>

> Click reply to all for messages to go to the list. Just hit reply for

> messages to go to the sender of the message.

>

>

[Guest guest]

Audrey,

Regarding school " permanent " records, I don't know too much yet, as my son is

2.5. However, I believe that one area of concern could be this: -- You want to

educate yourself about the litany of available IQ tests that have been listed

here (can someone print that list one more time pls?) for nonverbal (or

verbally limited) children, and insist upon those that will best showcase your

child.

It seems to me that you want to have your child score as high as possible on the

" cognitive " tests (I know -- who wouldn't--but stay with me here). I think that

when your child has a higher " cognitive " capability and then significantly lower

performance (expressively, or maybe just school testing wise), that this then

qualifies as a " learning disability " . Hence -- additional services.

For example, a good friend of mine has a son that is 12. He has struggled with

school all his life. No diagnosis. Now he is at a crisis because he is failing

and his parents are looking for answers. The school administered an IQ test.

He tested quite low. Then the school said -- he doesn't have a learning

disability -- he is just limited.

Well, his parents then took him to a local " inexpensive " pyschologist. He

didn't administer an additional test -- he " didn't want to put the boy through

that " . In any case, I am left wondering-- does this boy really have a low IQ

(he is extremely social and his interaction with people doesn't reflect this

" limitation " ? or -- If a good developmental pediatrician looked at him, would

he/she be able to test him in a creative way that would show some of his

strengths?

I am not afraid of the " permanent " record, only make sure it reflects what your

child can do -- and if you don't buy what the school says, I believe it is worth

outside evaluations.

Please jump in -- parents with kids that have already gotten some direct school

experience!

lois

[Guest guest]

Re: Community Mothers

Dear ,

Thank you for a superbly efficient response with

suggestions for contacts for Community Mothers. We

will be following these through. Does anyone have any

info on the outcome of the University of Salford evaluation

on Community Mothers (interviews carried out Autumn '99).

We have also found it difficult to trace a reference for Walter

Barker's first-parent visiting - does anyone have a reference?

Thanks,

Maggie

Digest Number 627

>

>

[Guest guest]

Re: Walter Barker's first parent visiting scheme - there is a recent article

in Archives of Disease in Childhood 2002;86;150-157. www.archdischild.com -

An evaluation of the First Parent Health Visitor Scheme, A Emond, J Pollock,

T Deave et al. Toity Deave would obviously have more information. Also

other references in Elkan R et al - The effectiveness of domiciliary health

visiting; a systematic review.

Jeannette Nicholson

>From: " Maggie Lavin " <maggie.lavin@...>

>Reply-

>< >

>Subject: Re: Digest Number 627

>Date: Wed, 29 May 2002 19:14:26 +0100

>

>Re: Community Mothers

>

>Dear ,

>

>Thank you for a superbly efficient response with

>suggestions for contacts for Community Mothers. We

>will be following these through. Does anyone have any

>info on the outcome of the University of Salford evaluation

>on Community Mothers (interviews carried out Autumn '99).

>We have also found it difficult to trace a reference for Walter

>Barker's first-parent visiting - does anyone have a reference?

>Thanks,

>Maggie

> Digest Number 627

>

>

> >

> >

[Guest guest]

When I was doing some work for the first semester of my course Ii put his name in under the www.google.com search website and came across some interesting articles and a website of note.

Judy

Re: Digest Number 627>Date: Wed, 29 May 2002 19:14:26 +0100>>Re: Community Mothers>>Dear ,>>Thank you for a superbly efficient response with>suggestions for contacts for Community Mothers. We>will be following these through. Does anyone have any>info on the outcome of the University of Salford evaluation>on Community Mothers (interviews carried out Autumn '99).>We have also found it difficult to trace a reference for Walter>Barker's first-parent visiting - does anyone have a reference?>Thanks,>Maggie> Digest Number 627>>> >> >

[Guest guest]

I am have recently been asked to sit on our local Domestic Violence Forum. I was wondering if anyone was recording incidents in their records as Health Visitors/School Nurses and if they are using any method to highlight these families particularly? Judy

Re: Digest Number 627>Date: Wed, 29 May 2002 19:14:26 +0100>>Re: Community Mothers>>Dear ,>>Thank you for a superbly efficient response with>suggestions for contacts for Community Mothers. We>will be following these through. Does anyone have any>info on the outcome of the University of Salford evaluation>on Community Mothers (interviews carried out Autumn '99).>We have also found it difficult to trace a reference for Walter>Barker's first-parent visiting - does anyone have a reference?>Thanks,>Maggie> Digest Number 627>>> >> >

[Guest guest]

Hello Judy

we are looking at devising a risk assessment tool to fit into our HV records this will identify families where there are known episodes of violence domestic or 'other' to alert the HV of possible dangers to themselves or members of the family they are visiting. This was highlighted as a need following evidence of increasing violent/abusive episodes recorded on incident forms (IR1),

Pat Liston

Re: Digest Number 627>Date: Wed, 29 May 2002 19:14:26 +0100>>Re: Community Mothers>>Dear ,>>Thank you for a superbly efficient response with>suggestions for contacts for Community Mothers. We>will be following these through. Does anyone have any>info on the outcome of the University of Salford evaluation>on Community Mothers (interviews carried out Autumn '99).>We have also found it difficult to trace a reference for Walter>Barker's first-parent visiting - does anyone have a reference?>Thanks,>Maggie> Digest Number 627>>> >> >

[Guest guest]

Our local Social Services department (Child Protection) are looking at the reasons for families being placed on the register and they have found that 30% are due to domestic violence (or other forms of violence e.g.financial violence)!

Re: Digest Number 627>Date: Wed, 29 May 2002 19:14:26 +0100>>Re: Community Mothers>>Dear ,>>Thank you for a superbly efficient response with>suggestions for contacts for Community Mothers. We>will be following these through. Does anyone have any>info on the outcome of the University of Salford evaluation>on Community Mothers (interviews carried out Autumn '99).>We have also found it difficult to trace a reference for Walter>Barker's first-parent visiting - does anyone have a reference?>Thanks,>Maggie> Digest Number 627>>> >> >

[Guest guest]

From Lund-Lack

We are running a scheme locally in Suffolk whereby we are sent photocopies of domestic violence incident reports completed by the local police. We are then requested to transfer the information to the mother's record only and then shred the photocopied report. We are not required to act on the information, in fact, we are asked specifically not to visit or make contact with the family as the powers that be feel it might constitute a risk. We're not sure what this risk is and even more puzzled by the fact that if A/E can send us photocopied reports to which we are invited to act on if deemed necessary why can't we do the same with these dom. violence reports. It seems to go against the working together principle. Surely, the reporting police officer just needs to alert the family that the information is being passed on to the relevant agencies and from then on we use our discretion.

We now also keep 'significant event' records of which domestic violence is considered a 'significant event' among others. However, as this is part of the child's record it would seem that the police information is not to be recorded on it! Given that victims often end up in A/E it gets even more complicated, and if the victim is pregnant and the Midwives involved it gets even more confusing. We feel frustrated because if we see the victim but can't discuss the situation we can only ask tentatively, how's things? and if she says 'fine' we know it's not true so one feels that one has caught them out telling a lie, neither can one offer support and a source of further help, referral etc.. let alone address the children's needs. Madness. However, it does help to inform the statistics on our profiles!

Digest Number 627>>> >> >

[Guest guest]

To comment your recent info. scoop. It seems very strange and also and

infringement of confidentiality and human rights to pass on info withouta

person`s consent and not requesting action. Surely the police can collect stats

and what happens to the mother`s notes when the child is longer on a caseload?

or indeed if a child is deemed to be at risk because of violence in the

home.Whose accountability? health visitors in my area have been asked to be part

of a team with police, solicitors, and housing in a `domestic violence drop`in

clinic`. It has highlighted the fragile and often difficult nature of violence

and the importance of ensuring that info is used appropriately and women can

seek help quickly with the backing of agencies. Not an easy issue to resolve,

despite recent episodes of ER and casualty. jeanette

> From Lund-Lack

>We are running a scheme locally in Suffolk whereby we are sent photocopies of

domestic violence incident reports completed by the local police. We are then

requested to transfer the information to the mother's record only and then shred

the photocopied report. We are not required to act on the information, in fact,

we are asked specifically not to visit or make contact with the family as the

powers that be feel it might constitute a risk. We're not sure what this risk

is and even more puzzled by the fact that if A/E can send us photocopied reports

to which we are invited to act on if deemed necessary why can't we do the same

with these dom. violence reports. It seems to go against the working together

principle. Surely, the reporting police officer just needs to alert the family

that the information is being passed on to the relevant agencies and from then

on we use our discretion.

>We now also keep 'significant event' records of which domestic violence is

considered a 'significant event' among others. However, as this is part of the

child's record it would seem that the police information is not to be recorded

on it! Given that victims often end up in A/E it gets even more complicated,

and if the victim is pregnant and the Midwives involved it gets even more

confusing. We feel frustrated because if we see the victim but can't discuss

the situation we can only ask tentatively, how's things? and if she says 'fine'

we know it's not true so one feels that one has caught them out telling a lie,

neither can one offer support and a source of further help, referral etc.. let

alone address the children's needs. Madness. However, it does help to inform the

statistics on our profiles!

>

> Digest Number 627

> >

> >

> > >

> > >

[Guest guest]

Sorry that I have not replied before but I have been away

and am just beginning to get on top of my eamils that

kindly awaited me!

Please feel free to get in touch if you want anymore

details thatn that which is in the Archives paper. I am

hoping to get anopther paper published later in the year

relating to the mothers' and hvs' experience of using the

First Parent Health Vsiting Scheme.

Best wishes

Toity

On Wed, 29 May 2002 21:52:28 +0100 jeannette nicholson

<jeannettenicholson@...> wrote:

> Re: Walter Barker's first parent visiting scheme - there is

> a recent article in Archives of Disease in Childhood

> 2002;86;150-157. www.archdischild.com - An evaluation of

> the First Parent Health Visitor Scheme, A Emond, J Pollock,

> T Deave et al. Toity Deave would obviously have more

> information. Also other references in Elkan R et al - The

> effectiveness of domiciliary health visiting; a systematic

> review. Jeannette Nicholson

>

>

> >From: " Maggie Lavin " <maggie.lavin@...>

> >Reply-

> >< >

> >Subject: Re: Digest Number 627

> >Date: Wed, 29 May 2002 19:14:26 +0100

> >

> >Re: Community Mothers

> >

> >Dear ,

> >

> >Thank you for a superbly efficient response with

> >suggestions for contacts for Community Mothers. We

> >will be following these through. Does anyone have any

> >info on the outcome of the University of Salford evaluation

> >on Community Mothers (interviews carried out Autumn '99).

> >We have also found it difficult to trace a reference for

> Walter >Barker's first-parent visiting - does anyone have a

> reference? >Thanks,

> >Maggie > Digest Number 627

> > >

> > > > >

[Guest guest]

My understanding is that DMSO is a paint thinner, that was tried for

medicinal purposes in the 1950's, and rejected as useless. People still use

it as home remedies for nearly everything. In fact, the woman who

supposedly knocked out a whole emergency room in California was said to have

been using it for cancer. It absorbs through the skin extremely rapidly,

and is said to produce a garlic taste in the mouth within seconds of doing

this.

My 2c worth.

Gene

From: Dale@...

Subject: Re: interstatial cystitis?

& Fred,

My understanding is that DMSO is simply a topical anesthetic that will

provide significant temporary relief for IC and a number of other disorders,

no

different from steroids, and certainly not a " cure " or permanent, effective,

self-regulatory management for IC.

I could be wrong, of course. Additional commentary is welcomed.

Dale

****************************************************************************

**

***************

Dale M. , M.S., C.A.C.B.,

CPPS, BCIAC-EEG-Associate Fellow,

BCIAC--Senior Fellow

Clinical/Executive Director

Biofeedback & Alternative Medicne Centers

New Jersey offices in town (856-728-7900)

and Cherry Hill (856-424-5147)

Cell phones: 856-404-2565/2566

Dale@...

BFALTMED@...

www.biofeedback.net/altmedicine

****************************************************************************

**

****************

In a message dated 1/25/2004 8:28:54 PM Eastern Standard Time,

karenduncan@... writes:

Hi Fred~

DMSO as a topical solvent? I will pass the info on to her . She may find

the book at a health food store. Thank you! It seems this illness is not

that

easy to treat. She is still waiting for test results to come back and has

not

been given any meds or anything for relief but she is anxious for anything

that will bring relief. Thank you for your suggestion,

~

[Guest guest]

Ankle replacement/surgery options:

Hi All,

as per past postings, I have a fiance who, after a lifetime of severe

ankle trauma, resulting in an inch loss of height from bone rubbing on

bone, no cartilage, much pain, and severe physical limitations.

We researched for two years, and agreed ankle transplant as the whole

ankle joint replacement was our/his best choice.

I urge any member who thinks their only choice is TAR devices

(artificial total ankle replacement devices) or Fusion, to consider

transplant surgery.

This two hour procedure gives you a brand new ankle that lasts a

lifetime. No kidding.

Dr. Mark Myerson on the east coast, and Dr's, Brage and Bugbee on the

west coast perform this cutting edge (no pun intended) procedure.

MOST DOCTORS DON'T KNOW THIS OPTION EXISTS.

Some doctors will argue it is unsafe, too new, blah, blah,

blah....look, take your health in your hands, and simply do a little

online research.

Be secure in your answer. Know all your options before deciding on one.

It could mean the difference between success or failure in your new

life with new ankles.

Dr. Bugbee, at UCSD performed 's double transplant surgery.

Here's how it went - in a short summary:

After seeing this option turn up repeatedly in my research efforts, I

contacted Dr. Bugbee by email.

He was incredibly gracious and patient in answering my many, many

questions.

He is one of those rare doctors who over-extends himself and makes you

feel very comfortable.

When we finally met, and he performed 's surgery, and I could see

first hand what a world class, very busy man he is, I was even more

appreciative of his having taken the time to help me with transplant

answers. And I did ask A LOT of questions!

1- flew to San Diego to meet doctor Bugbee to see if he was a

candidate

This was accomplished through an appointment: by Dr. Bugbee and

speaking at length, by examining good x-rays of 's ankles and

damage thereof, by Dr. Bugbee assessing 's state of overall health

and mental well being (ie: asking : in the case of failure, of

which the possibility is less than 15% (non union - bones don't grow

together) for transplants, versus 40-50% failure rate, and 70%+

multiple surgical revision necessary for TARs) would consider a

TAR device or Fusion if his transplants failed?

said yes. So did Dr. Bugbee.

Dr. Bugbee's team measured 's ankles - 3D style. As far as we

remember, was a 34 mm - apparently a common size.

Also, it is not necessary, nor would you have to take anti-rejection

drugs to accomodate your new donor ankles.

The piece used is about the size of your index finger - from knuckle to

tip.

This small piece is the mighty ankle - what titanium cannot compare to

in strength, and what all TAR devices fail to mimic in motion.

was put on the waiting list, at the time of this initial visit -

the only appointment necessary before arriving for surgery four months

later.

He was told we would get a call with one week's notice to get to San

Diego.

The tissue, once harvested, is checked during this time for bacteria,

viability, viruses etc.

2 - was on the waiting list for four months.

3 - We got the call at four months, four days - with three days

notice, since we were flying from out of town (Alaska) and they wanted

us to fly only if the tissue was good.

It was. It rarely isn't.

4 - We checked into the hospital, the surgery was performed.

Dr. Bugbee's team was absolutely beyond reproach - just excellent.

By the way, has severe Hemophilia A, HIV from the Hemophilia, and

Hepatitis C from the Hemohpilia - none of which were issues affecting

his candidacy or surgery success, all of which were easily addressed.

5 - recouped for a couple of days in the hospital, then we flew

home with a print out of pictures, and a disc of pictures that a member

of Dr. Bugbee's team snapped during surgery so we could know EXACTLY

what goes on during this procedure.

This also makes any follow up with a different/hometown doctor very

easy, and which gives you much bragging rights when showing to visiting

well wishers...

6 - has his first plaster/hospital casts removed, and got Aircasts

to wear for four months before full weight bearing completes the

healing process. Since had two ankles done at once, the normal 25%

weight bearing which begins at three months is a little different -

four for him to heal completely.

Since it is close to Halloween, we are thinking could be a Star

Wars Storm Trooper - as his boots look distinctively like them.

That's where and I are now.

Camped out on the couch healing, watching many DVDs.

He's gotten really good at crawling around on the floor. We've bought

some carpets for the health of his knees.

We have made a list of helpful ideas for success at home whilst in

recovery.

We would be very happy to send along pictures and insight, support,

knowledge, contact info etc for anyone wanting more info about this

procedure.

Again, we've got a file full of research three inches thick comparing

ankle replacement options, and ankle transplants are definitely the

best option.

Don't be discouraged thinking you might not be a candidate because your

doctor told you you aren't.

The vital question is: does he/she know enough (or anything) about this

procedure to tell you that you truly aren't a candidate?

One local doctor, who was familiar with the procedure, told he was

absolutely not a candidate for the procedure.

By the way, this was all without even meeting - just from our

preliminary contact of inquiry about setting up an appointment to meet

with the doctor...

Doctors are busy people.

They don't always have the time to get familiar with such cutting edge

stuff unless directed to do so.

Many are hesitant to extend beyond their comfort or knowledge, since

they usually are overwhelmed in their practice, let alone being

partner, or follow-up doctor for such a 'big' event.

We are lucky to have met a young doctor here who is a big admirer of

Dr. Bugbee's work, and who has done some followup on a fellow ankle

transplant recipient.

As well, since people can't patent the transplant procedure, no one

stands to gain any money from any device used, unlike TAR devices,

which are patented by, and well marketed by, the doctors who invented

it.

Doctors aren't receiving regular literature about the transplant

surgery etc. unless they are looking for it, or have the time to read

the many scientific and medical Journals documenting its

progress/success.

Here's where you come in:

Get in touch with Dr. Bugbee: Bill Bugbee, <wbugbee@...>

or Dr. Brage Brage: (also San Diego)

or Dr. Myerson: (will performs this procedure even outside his east

coast clinic)

Visit www.artificialankles.com to see, and speak with others who have

had this surgery, and are well into enjoying their new ankles. This is

an excellent resource site.

On this 'new' procedure:

Kathy, a fellow double transplant recipient has had her 'new' ankles

for 12 years!

This site, like this Group, is a community of lovely people, very kind

and encouraging in responding to inquiries.

They have all 'been there' with ankle issues.

I will be posting a detailed account of our ongoing ankle adventures at

the www.artificialankle.com site, and to/for this Group, and I will

send along to anyone who requests it/them, pictures and personal

account of what you can expect etc.

This is a big decision.

You may very likely be a transplant candidate.

Be your own best health advocate to find out.

's old ankles were so very very destroyed. The pictures of the new

and old ankles side by side tell such a story.

In any case, our best to the TJR Group members who have posted recently

regarding their upcoming TAR surgery.

Be well all,

Colleen and

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