Encouraging words for you all

April 11, 2002

I know I was at a point in the past where when I read a post where a child

was doing good it as so encouraging to hear someone had made it through what

we were going through and was overcoming the difficulties. Now I feel like

I am on the end where I can encourage others more. Not that we still don't

have a long way to go. Anyway, my 3 yr old (diagnosed severe apraxia,

Sensory Disfunction, and hypotonia) is in a mainstream preschool at my

insistence (as opposed to special ed preschool, we do ST and OT privately)

When she started she was unable to say anything other then " mama " . They

have totally included her and now she is able to pretty much make known what

she is saying or at least her point. Here is the good part....She will be

participating and SINGING in the end of year Spring Program at school Monday

night!! I went today and saw the rehearsal. At the beginning of the year

because of sensory issues she didn't want to be touched and screamed in

large groups. Now here she was sitting with several classes, all bunched

together, motioning and singing songs. I'm so excited I can't wait til

Monday and even her therapist wants to come watch her. There is also a

local newspaper interview with us in the works. Her speech therapist calls

her " her miracle child " . Most of the progress has been just in the past 4

mths (since New Years when we began ProEFA consistently) People now just

think she is quiet or maybe shy, I'm not getting the " what's the matter with

her? " hardly ever anymore. If someone does comment on her speech I just say

" She is talking so well now, she is really learning how to use her words "

and which LeAnne just looks up at me and smiles.

Keep up all your are doing with your child, keep taking ProEFA or start it

(it was our 3rd bottle before we started getting amazing results), and trust

your parental insticts as far as how much therapy they need, when and what

kind of school to go to, and when you think they are ready to advance. As

parents we are the ones that know what is best for our child(ren).

Also, thanks for all the help you all on this list have been. Always quick

to answer any questions I have and so much helpful info and encouragment!

Hannah, mom to LeAnne (3.5) and (5.5)

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