Re: I have to share this with people who will understand.

[Guest guest]

Thanks for the encouragement and congrats. It must have been a lot of hard

work for your son and we are so happy for his success. Yeah!!!!!

Janet

[Guest guest]

Congrats Dawn...that's great news...it must make you very happy,

Hugs,

, MOM to Aidan & Devlin former 30 weeker preemies, now 2 years,

global delays, NO speech!!

Desperate to hear the word MOMMY!!!!!

[Guest guest]

Congrats! What have you been doing to help?

Suzi

> Two years ago my 4.5 ds could only say " mom " . Today a parent who

knows

> nothing about his apraxia commented on how large his vocabulary

is. I

> have heard/hear this often about my older non-apraxic son but never

> expected to hear it about this little guy. I am so psyched and

just had

> to share. Dawn

>

> _______________________________________________________________

> Get your own FREE email account at iVillage.com!

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>

>

>

[Guest guest]

Dawn,

Thank you so much for sharing this with us! As the

mother of a 3.5 year old son, it is encouraging to

know there may be hope. Sometimes it seems everything

is just going SO SLOW that I could scream. He is now

starting once in a while to make the consonant and

vowel sounds (puh - eye for pie) in speech therapy

without having to be prompted for each sound

separately.

--- daalbe <daalbe@...> wrote:

> Two years ago my 4.5 ds could only say " mom " . Today

> a parent who knows

> nothing about his apraxia commented on how large his

> vocabulary is. I

> have heard/hear this often about my older

> non-apraxic son but never

> expected to hear it about this little guy. I am so

> psyched and just had

> to share. Dawn

>

>

[Guest guest]

dear,

can you write something detail on this? my son who

sems to be absolutely normal is not speaking more than

a few words. He is just 5 years old. date of birth

14th march,1997.

maharaj

> > Two years ago my 4.5 ds could only say " mom " .

> Today a parent who

> knows

> > nothing about his apraxia commented on how large

> his vocabulary

> is. I

> > have heard/hear this often about my older

> non-apraxic son but never

> > expected to hear it about this little guy. I am

> so psyched and

> just had

> > to share. Dawn

[Guest guest]

Has your son been assessed at all by any medical professionals? If

not, this needs to be seen to right away. Tell us where you are

located and maybe someone can point you in the right direction. You

ought to make an appointment with your family doctor in the meantime,

and look for speech assessment in your area. Do you have a Health

Department in your area you could call to get referrals?

> dear,

> can you write something detail on this? my son who

> sems to be absolutely normal is not speaking more than

> a few words. He is just 5 years old. date of birth

> 14th march,1997.

>

> maharaj

>

>

> > > Two years ago my 4.5 ds could only say " mom " .

> > Today a parent who

> > knows

> > > nothing about his apraxia commented on how large

> > his vocabulary

> > is. I

> > > have heard/hear this often about my older

> > non-apraxic son but never

> > > expected to hear it about this little guy. I am

> > so psyched and

> > just had

> > > to share. Dawn

[Guest guest]

Suzi,

I probably am harder on apraxic ds than was on older ds who talked on

time. Any misprononcings or syntax errors we stop and I have him repeat

them correctly. I am sure with older ds I just let it go and figured he

was talking like a 4 yr old. But when he was first diagnosed I

researched everything I could about apraxia. His 1st therapist at age 2

didn't understand the difference between verbal and oral apraxia. I

read it on internet and explained it to her. When he transitioned to

the school system 6 months later I got to know speech therapist real

well. From boards I saw that most kids were getting shorter 3 x week

therapys and because we live in rural area he only qualified for 2X (for

about 9 months of it) and 1 X the rest. So I convinced therapist to

work with him twice a day (when he really started talking at 3) and when

he would miss sessions due to no school or field trips or would arrange

with speech to bring him in another time that week. I also had her give

me sheets expaining sounds he was working on and how and we would work

on that during week. They have a notebook that I assume was set up for

communication of pre-school teachers and therapists but I also used that

to find out what he did each day and to write notes to speech therapist.

For summer I asked for home therapy ideas (since he didn't qualify for

summer therapy) and she ended up giving me the apraxic worksheets she

had been using. They were well documented and we had great success

using them. In other words I was real assertive and probably thought to

be a pain in the butt. Dawn

>Congrats! What have you been doing to help?

>Suzi

[Guest guest]

yeah, the specilist says he has to undergo speech

therapy and special programme. next week the

programme will start. in all his activities he seems

to so normal! i am in Hyderabad,India,

there are so many good hospitals, but i do not know

which is better. thanks.

maharaj

--- momofrileyca <lsummerton@...> wrote:

> Has your son been assessed at all by any medical

> professionals? If

> not, this needs to be seen to right away. Tell us

> where you are

> located and maybe someone can point you in the right

> direction. You

> ought to make an appointment with your family doctor

> in the meantime,

> and look for speech assessment in your area. Do you

> have a Health

> Department in your area you could call to get

> referrals?

>

>

> > dear,

> > can you write something detail on this? my son who

> > sems to be absolutely normal is not speaking more

> than

> > a few words. He is just 5 years old. date of birth

> > 14th march,1997.

> >

> > maharaj

> >

> >

> > > > Two years ago my 4.5 ds could only say " mom " .

> > > Today a parent who

> > > knows

> > > > nothing about his apraxia commented on how

> large

> > > his vocabulary

> > > is. I

> > > > have heard/hear this often about my older

> > > non-apraxic son but never

> > > > expected to hear it about this little guy. I

> am

> > > so psyched and

> > > just had

> > > > to share. Dawn

>

>

>

__________________________________________________

[Guest guest]

You may want to look at this group

child_language/

Many of its members live in India and may be able to help you find a

good place to start treatment.

Good Luck.

> yeah, the specilist says he has to undergo speech

> therapy and special programme. next week the

> programme will start. in all his activities he seems

> to so normal! i am in Hyderabad,India,

> there are so many good hospitals, but i do not know

> which is better. thanks.

[Guest guest]

> my son who

> sems to be absolutely normal is not speaking more

> than

> a few words. He is just 5 years old. date of birth

> 14th march,1997.

>

> maharaj

>

>

Maharaj,

Just wanted to say hello and to let you know I

sympathize with you.

What caught my eye in your post was your son's date of

birth because its the same as my daughter's. She had

very few words until the age of four (about 20, tops).

But with speech therapy and the continuation of what

she'd learn at speech being carried through at home

(along with EFA's)has made a huge difference!

We started speech therapy at age four and added

occupational therapy at age 4.7 (for sensory

integration) and now she can say 5 to 6 word

sentences. At age four she was just starting to put 2

to 3 words together.

We've been told its a language disorder and / or

auditory processing but not apraxia, which I use to

think matter but now I just want her to be able to

communicate and keep up with her peers.

She still has trouble with demand questions or trying

to repeat new words. For example, we have fox in the

area but have never really talked about them except

when I read about them in a story. Well, I told her

one had been in our yard the other day, and she tried

to say fox but couldn't, it came out like " v..ox " she

kept trying but couldn't say it. She can say box but

couldn't get the " f " sound with it; she can say the

" f " in fish or in food though. She still can't say

milk but says " muolk " .

At home we've been trying to do a lot of silly

rhyming. I do silly rhymes and then she'll try to

repeat them but when she starts to get frustrated we

stop and try something like " I Spy something blue on

the counter " .

Starting speech therapy will really make a world of

difference. We also used sign language at age 3 which

helped alot with her frustration and reduced the

number of tantrums she was having. Good luck.

Audrey