Re: finding a diagnosis- we live in NYC

[Guest guest]

Hi Ann Marie -

I am new to this site as well. What is the speechdiet website?? My son is

2 1/2 as well, I guess one month shy of it, and he is low tone as well, too.

And at different points EIP in my area has questioned his

distractibility, though I know him to have pretty great attention for stuff

he is interested in so I'm not too worried there. I just wanted to let you

know that having run the gammit of different doctors/therapists who have

seen Wiley, they say the same thing in terms of not being able to diagnose

apraxia at this point. Maybe there's some truth in it? I don't know. Just

interesting to see a similar story out there.

Betsy, mom to Wiley

>From: " rags10465 " <rags10465@...>

>Reply-

>

>Subject: [ ] finding a diagnosis- we live in NYC

>Date: Tue, 16 Apr 2002 22:10:43 -0000

>

>I am new to this site, and also discovered the speechdiet website

>yesterday. My daughter is 2 1/2 with severe speech delays and some

>recently observed attentional concerns also. Our pediatrician tries

>to help and sent us to 2 neurologists, a geneticist, and referred for

>EI. She has been receiving therapy for 18 months with very little

>improvement in her expressive language. I am looking for a

>developmental pediatrician here in NYC, and/or information to reach

>Dr. Agin. We did pay a large amount for a specialty speech oral

>motor eval; their response was that you can't diagnose apraxia until

>there are more consistent words present. None of the other doctors

>had an answer except that she is low tone, and don't worry so much...

>

>If anyone has suggestions or a name and # for me to try, I would

>really appreciate it. Thanks,

>Ann Marie

>

>

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp.

[Guest guest]

Betsy- the speech diet site is another group at . It is very

interesting and mostly talk about diet, nutrition and supplements and

how they have helped various people's children. The information

there and here really is amazing, it got me to order the pro EFA the

day after I found these sites. I am willing to try anything that is

not going to hurt Jenna. I am an OT, and truly believe the EI theory

that the time is now and make the most out of it with the hopes of

mainstream school. My husband and I wonder every day if she will be

able to speak clearly and communicate with friends, teachers etc... I

remind myself that I wondered the same things when she was a very

late walker (20 months), now she walks, runs, climbs the slide all

perfectly fine... Check out speech diet, it is very interesting.

Ann Marie

> Hi Ann Marie -

> I am new to this site as well. What is the speechdiet website??

My son is

> 2 1/2 as well, I guess one month shy of it, and he is low tone as

well, too.

> And at different points EIP in my area has questioned his

> distractibility, though I know him to have pretty great attention

for stuff

> he is interested in so I'm not too worried there. I just wanted to

let you

> know that having run the gammit of different doctors/therapists who

have

> seen Wiley, they say the same thing in terms of not being able to

diagnose

> apraxia at this point. Maybe there's some truth in it? I don't

know. Just

> interesting to see a similar story out there.

> Betsy, mom to Wiley

[Guest guest]

Hi Ann Marie,

It's true that a lot of pediatricians and pediatric specialists are

hesitant about making a diagnosis of apraxia in a child who may be

nonverbal. Unfortunately, not all of them are familiar enough with

the early warning signs or experienced enough with motor speech

disorders to confidently say they see signs of oral and verbal

apraxia and that it mandates specialized therapeutic interventions

(total communication plan including signing or PECS), a touch cue

approach to therapy, intensive 1: 1 speech therapy with daily

drills, development of a core vocabulary, the use of a Kaufaman

approach, and EFAs). An SLP or medical professional can make

a " presumptive diagnosis " if not absolutely sure of a diagnosis of

apraxia.

The interventions written above could benefit most " Late Talkers. "

Also, telling you not to worry when you have a " Late Talker " is not

very practical advice. You have reason to worry and your concerns

should not be diminished! If your daughter has been receiving speech

therapy for 18 mos. and has not made progress, you have to question

if the therapy she is recieving is appropriate. I am glad you have

found the CHERAB website for some advice and

reality testing!

Marilyn Agin, MD

> I am new to this site, and also discovered the speechdiet website

> yesterday. My daughter is 2 1/2 with severe speech delays and some

> recently observed attentional concerns also. Our pediatrician

tries

> to help and sent us to 2 neurologists, a geneticist, and referred

for

> EI. She has been receiving therapy for 18 months with very little

> improvement in her expressive language. I am looking for a

> developmental pediatrician here in NYC, and/or information to reach

> Dr. Agin. We did pay a large amount for a specialty speech oral

> motor eval; their response was that you can't diagnose apraxia

until

> there are more consistent words present. None of the other doctors

> had an answer except that she is low tone, and don't worry so

much...

>

> If anyone has suggestions or a name and # for me to try, I would

> really appreciate it. Thanks,

> Ann Marie

[Guest guest]

Hi there. I do not have any information about help in the NYC area, but I

was curious as to what the neurologists had to say to you. My son is four

and was diagnosed as being apraxic, but two other speech therapists said no,

he was not apraxic. My husband and I thought about taking him to a

neurologist just to make sure nothing else is wrong. As time goes on, I feel

Cory is not apraxic. I hear it is very rare. Your response is appreciated.

In your subject line, please put Hi . Thanks