Guest guest Posted January 5, 2004 Report Share Posted January 5, 2004 Hi all, I don't post much, but have been reading all the messages and I wanted to ask a question. My rheumy put me on Humira last Friday and I can feel the difference already! I am quite thrilled. Wanted to ask, though if anyone has had any side effects from Humira. The only think I'm noticing is more senior moments than usual (LOL) I am 61 and have noticed the past few days my thinking function has not been working up to par, if you know what I mean. I was wondering if I should go back to my Gingko for a while. Would love to hear from other Humira takers as well. Lois in MA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2004 Report Share Posted January 7, 2004 Hi Yes it would be great not to have to inject yourself. I've only had one injection and the doctor did it and I will do it myself next week although I'm not looking forward to it. Thanks for the info. Lois > Hi Lois: > > I've been on Humira since April. Things have definitely improved, although I > still have my problem spots. I haven't noticed anything specific in terms of > side effects from the drugs. But you mention some brain fog - I thought that > was from being a working mother! I lost my ability to clearly articulate around > the time my son was born. Luckily it will come back to me in important moments > like crucial meetings, etc. It's just the day to day " will someone get me > that thing from that place back there? " sort of stuff. > > BTW, I just read in the LA Times today that they are developing yet another > biologic similar to Enbrel, Humira and Remicade. It's still in trials, but they > think they might be able to give it orally. Wouldn't that be great not to > have to stick yourself? > > gloria Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2004 Report Share Posted January 18, 2004 ----- Original Message ----- From: leo Rheumatoid Arthritis Sent: Saturday, January 17, 2004 8:17 PM Subject: Re: Humira hello Jen; going over the interesting posts i saved back when i ran out of time to reply and am wondering how you are coming along. I can sympathize with you as it is hard for most people who are reasonably free of pain to understand how we can 'hurt all over' <G> sometimes i just keep my mouth shut to keep the 'over the glasses' looks from happening. I have been fortunate, however, as my daughter is a nurse ad she has seen what happens to some folks who are in our situation. as i noted in posts to others on the list, i will probably be taking the Humira injections and like Tawney, i'm looking forward to it yet NOT looking forward to it! <g> i haven't gotten to all the posts i wanted to, but have to stop for this time. well.. i go.. keeping good thoughts for all you fellow beings, and a soft hug. love.. granny lee ----- Original Message ----- From: jenrobinb Rheumatoid Arthritis Sent: Wednesday, December 10, 2003 7:11 PM Subject: Humira Hi Everyone, I am 34 years old and mom of 2 teenagers. I have finally beendagnosed with RA after over a year of being sick with weird things, having a fever all the time, etc. I am on Humira 40mg. weekly, Plaquenil 400mg a day, 10mg prednisone, Arava, Lasix and Percocet. I have only had two doses of Humira so far and my Rheumy changed it to weekly because my joints are still so swollen. I saw your post Tawny about the Humira, but I haven't noticed any side effects from it as much as from nausea from the Arava. I was on Methotrexate but it did not agree with me at all. My doc is not happy with my response to meds yet and neither am I. I am finding it hard to keep a positive attitude after all the time of everyone thinking your nuts and then they finally figure out what you have and nothing is working. I feel bad for my kids, I used to drive them everywhere and do everything for them (I guess I kind of spoiled them) and I can hardly stand on my feet for more than 15 minutes at a time now. I really hope something gives soon. Oh well, Sorry, I just had to vent. It's hard to talk to your family about it because of all the extra burden put on them and they can't understand how crummy you feel because they haven't been through it. I am glad that this group is here and thanks for letting me rant. :-) Jen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2004 Report Share Posted January 18, 2004 ----- Original Message ----- From: leo Rheumatoid Arthritis Sent: Saturday, January 17, 2004 8:17 PM Subject: Re: Humira hello Jen; going over the interesting posts i saved back when i ran out of time to reply and am wondering how you are coming along. I can sympathize with you as it is hard for most people who are reasonably free of pain to understand how we can 'hurt all over' <G> sometimes i just keep my mouth shut to keep the 'over the glasses' looks from happening. I have been fortunate, however, as my daughter is a nurse ad she has seen what happens to some folks who are in our situation. as i noted in posts to others on the list, i will probably be taking the Humira injections and like Tawney, i'm looking forward to it yet NOT looking forward to it! <g> i haven't gotten to all the posts i wanted to, but have to stop for this time. well.. i go.. keeping good thoughts for all you fellow beings, and a soft hug. love.. granny lee ----- Original Message ----- From: jenrobinb Rheumatoid Arthritis Sent: Wednesday, December 10, 2003 7:11 PM Subject: Humira Hi Everyone, I am 34 years old and mom of 2 teenagers. I have finally beendagnosed with RA after over a year of being sick with weird things, having a fever all the time, etc. I am on Humira 40mg. weekly, Plaquenil 400mg a day, 10mg prednisone, Arava, Lasix and Percocet. I have only had two doses of Humira so far and my Rheumy changed it to weekly because my joints are still so swollen. I saw your post Tawny about the Humira, but I haven't noticed any side effects from it as much as from nausea from the Arava. I was on Methotrexate but it did not agree with me at all. My doc is not happy with my response to meds yet and neither am I. I am finding it hard to keep a positive attitude after all the time of everyone thinking your nuts and then they finally figure out what you have and nothing is working. I feel bad for my kids, I used to drive them everywhere and do everything for them (I guess I kind of spoiled them) and I can hardly stand on my feet for more than 15 minutes at a time now. I really hope something gives soon. Oh well, Sorry, I just had to vent. It's hard to talk to your family about it because of all the extra burden put on them and they can't understand how crummy you feel because they haven't been through it. I am glad that this group is here and thanks for letting me rant. :-) Jen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2004 Report Share Posted January 24, 2004 Hi Jen,.... I haven't been on the group to much, been having some problems, and flaring. I was just wondering how you are doing, since being on the Humira for awhile. I was doing good, and then this terrible flare. I believe the stress, and all brought it on. I am on the taper of prednisone right, now and then will go to 5mg daily. I know it's tough because of the changes that you have to do. You just do the best you can. Your family has to understand, that your sick, and help you through it. Your right, they don't understand fully what you are going through, and it is tough sometimes. If you would like to post me privately, I would like to hear from you. As for your doctor it seems like they are never happy. Don't worry about that, that is what he is paid for to help get the meds that will help you. Please keep us posted on your progress, Tawny > Hi Everyone, I am 34 years old and mom of 2 teenagers. I have finally > been > dagnosed with RA after over a year of being sick with weird things, > having a fever all the time, etc. I am on Humira 40mg. weekly, > Plaquenil 400mg a day, 10mg prednisone, Arava, Lasix and Percocet. I > have only had two doses of Humira so far and my Rheumy changed it to > weekly because my joints are still so swollen. I saw your post Tawny > about the Humira, but I haven't noticed any side effects from it as > much as from nausea from the Arava. I was on Methotrexate but it did > not agree with me at all. My doc is not happy with my response to > meds yet and neither am I. I am finding it hard to keep a positive > attitude after all the time of everyone thinking your nuts and then > they finally figure out what you have and nothing is working. I feel > bad for my kids, I used to drive them everywhere and do everything > for them (I guess I kind of spoiled them) and I can hardly stand on > my feet for more than 15 minutes at a time now. I really hope > something gives soon. Oh well, Sorry, I just had to vent. It's hard > to talk to your family about it because of all the extra burden put > on them and they can't understand how crummy you feel because they > haven't been through it. I am glad that this group is here and > thanks for letting me rant. :-) Jen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2004 Report Share Posted July 31, 2004 Humira has worked pretty well for me. I've been on it for about a year and a half now - every other week. We are thinking that we may soon make my injections every week because there's lots of room for improvement. Overall, I have found it very helpful. gloria Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2005 Report Share Posted May 12, 2005 Hi everyone- I am rejecting the Remicade I am getting. I guess its becoming more common. I have a thing about needles and self injecting. There is also the bio hazard issue with sharps. If my body is smart to the TNF based biologicals, would humira work since its based on the same thing? I live in mortal fear of my next infusion because it makes me so sick. I am on a small bit of arava every other day, and MTX too. I will let everyone know how my next remicade goes. Its nice to know I am not the only one having trouble with remicade. Thanks everyone for your feedback. Deborah Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2005 Report Share Posted May 12, 2005 All the injectable's have patient support where they send you sharps containers for free. You call when the one you have is nearly full and they will send out a replacement. As far as disposal of a full sharps container, I take them to my doctors office and the nurse places them with there biohazard stuff for proper disposal. Again this is free also. As far as sticking yourself. I can certainly understand that...but I would much rather stick myself than have IVs placed anywhere!!! I have terrible venous access..so its always a traumatic experience to get blood drawn or IVs started. The last time I needed an IV they had to call a neonate anesthesiologist..and he even had a hard time. I don;t know what the answers are. I have rejected Enbrel, I refuse to take humira or remicaide, MTX made me deathly ill and Arava stopped working. I can't take plaquinel or sulfanizine because of drug allergies. That leaves one other drug, Kineret and I am not thrilled with that and daily injections...so right now I am left with No meds at all...which is fine with me. My old rheummy(the quack) moved away and my internal med doc is monitoring me right now....There is another rheummy but he was good friends with the old doc...so I will probably not see him. Toni In a message dated 5/12/05 6:36:28 P.M. Central Daylight Time, Rheumatoid Arthritis writes: Date: Thu, 12 May 2005 02:29:18 EDT From: dbargad@...Subject: Re: Re: HumiraHi everyone- I am rejecting the Remicade I am getting. I guess its becoming more common. I have a thing about needles and self injecting. There is also the bio hazard issue with sharps. If my body is smart to the TNF based biologicals, would humira work since its based on the same thing? I live in mortal fear of my next infusion because it makes me so sick. I am on a small bit of arava every other day, and MTX too. I will let everyone know how my next remicade goes. Its nice to know I am not the only one having trouble with remicade. Thanks everyone for your feedback. Deborah Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2005 Report Share Posted May 13, 2005 Deborah what kind of doctor is a RD I have never heard of one would like any imformation on it thanks Sherrie > Dear Tony- I hope you could explore other RD options. Its hard for us as > patients when we have a doctor that doesnt get it, or is helpful. A good PCP is > worth his weight in gold though. My RD treats me as though he were > consulting with a fellow collegue. Respect. Also a great deal of compassion. He is > working with me doing everything he can to help me, and just that alone helps. > He is always on time, and always makes time for me. A stellar human being, > and so on the cutting edge of everything. I with everyone could have a RD like > mine. He is a GEM. Yours, Deborah Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2005 Report Share Posted May 13, 2005 Rd is RHEUMATOLOGIST for short.....LOL Quote Link to comment Share on other sites More sharing options...
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